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Literature Review on Provision of Appropriate and Accessible ...

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PAGE 174<br />

intellectual disability had relatively poor support networks but those who<br />

showed higher levels <strong>of</strong> satisfacti<strong>on</strong> with their social support networks<br />

had both lower stress levels <strong>and</strong> more positive maternal behaviours in<br />

interacti<strong>on</strong>s <str<strong>on</strong>g>Literature</str<strong>on</strong>g> with their <str<strong>on</strong>g>Review</str<strong>on</strong>g> children. <strong>on</strong> Provisi<strong>on</strong> <strong>of</strong> <strong>Appropriate</strong> <strong>and</strong> <strong>Accessible</strong><br />

Support to People with an Intellectual Disability who are<br />

Experiencing Crisis Pregnancy<br />

The findings highlighted the potentially crucial role <strong>of</strong> perceived<br />

competency-enhancing supports in promoting positive parenting<br />

practices in parents with intellectual disabilities. Feldman et al. (2002)<br />

observed that the parents’ percepti<strong>on</strong> <strong>of</strong> supports was more important<br />

than the actual amount <strong>of</strong> support provided in shielding them from the<br />

negative effects <strong>of</strong> stress. The authors observed that having a large<br />

support network does not necessarily mean that the parent c<strong>on</strong>siders<br />

all these people <strong>and</strong> organizati<strong>on</strong>s helpful. They note that competency<br />

<strong>and</strong> self-esteem may be enhanced by some support approaches (such<br />

as empowerment <strong>and</strong> positive reinforcement for improvements) <strong>and</strong><br />

inhibited by others (such as c<strong>on</strong>trol <strong>and</strong> criticism) (Tucker & Johns<strong>on</strong>,<br />

1989; Feldman 2002a). The authors also suggest that other factors<br />

besides the parents’ disability status are likely to affect parenting abilities<br />

<strong>and</strong> these variables should be c<strong>on</strong>sidered when assessing the parental<br />

competence <strong>of</strong> these parents (Feldman 1998, 2002a). Limitati<strong>on</strong>s <strong>of</strong> the<br />

study included inability to c<strong>on</strong>firm the level <strong>of</strong> disability <strong>of</strong> mothers; the<br />

fact that the instruments used for measuring parental stress, social<br />

support <strong>and</strong> parent-child interacti<strong>on</strong>s had not been st<strong>and</strong>ardised for use<br />

with people with intellectual disability; <strong>and</strong> small sample size.<br />

Stenfert Kroese, Hussein, Clifford <strong>and</strong> Ahmed (2002), in a similar study in<br />

the UK, interviewed a small group <strong>of</strong> mothers with intellectual disability<br />

to explore their psychological well-being <strong>and</strong> social networks. They<br />

c<strong>on</strong>firmed the small size <strong>of</strong> people’s networks, a reliance <strong>on</strong> family<br />

c<strong>on</strong>tacts (70 per cent <strong>of</strong> c<strong>on</strong>tacts were family members) <strong>and</strong> the fact<br />

that not all the social c<strong>on</strong>tacts (including partners) were experienced<br />

as helpful. The authors reported that there were str<strong>on</strong>g positive<br />

relati<strong>on</strong>ships between mothers with intellectual disability’s psychological<br />

well-being <strong>and</strong> the size <strong>and</strong> helpfulness <strong>of</strong> their social network.<br />

These studies suggest that <strong>on</strong>e way <strong>of</strong> improving the outcome for parents<br />

with intellectual disability would be to help them build positive social<br />

networks.

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