Literature Review on Provision of Appropriate and Accessible ...
Literature Review on Provision of Appropriate and Accessible ...
Literature Review on Provision of Appropriate and Accessible ...
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PAGE 172<br />
• Clearly outlining pr<strong>of</strong>essi<strong>on</strong>als’ <strong>and</strong> advocates’ roles, <strong>and</strong> their<br />
boundaries.<br />
<str<strong>on</strong>g>Literature</str<strong>on</strong>g> <str<strong>on</strong>g>Review</str<strong>on</strong>g> <strong>on</strong> Provisi<strong>on</strong> <strong>of</strong> <strong>Appropriate</strong> <strong>and</strong> <strong>Accessible</strong><br />
Support to People with an Intellectual Disability who are<br />
• Remaining Experiencing vigilant Crisis about Pregnancy the impact <strong>of</strong> the level <strong>of</strong> involvement<br />
<strong>of</strong> extended family members so that family relati<strong>on</strong>ships do not<br />
deteriorate.<br />
• Not getting involved in family feuds.<br />
5.6 Role <strong>of</strong> social networks in supporting parents with<br />
intellectual disability<br />
In the Australian c<strong>on</strong>text, Llewellyn <strong>and</strong> McC<strong>on</strong>nell (2002) investigated<br />
mothers’ views about the types <strong>of</strong> support they get <strong>and</strong> from where they<br />
get that support. The study was based <strong>on</strong> interviews with 70 mothers<br />
with intellectual disability using a support interview guide designed<br />
to accommodate the mothers’ cognitive difficulties. [88] Key findings<br />
highlighted by the authors were:<br />
• Family members were central in the support networks <strong>of</strong><br />
mothers with intellectual disability with pre-school age children.<br />
Mothers with cognitive difficulties felt closest to <strong>and</strong> most<br />
comfortable with family members, who provided more types <strong>of</strong><br />
support (practical/tangible as well as emoti<strong>on</strong>al support) than<br />
formal ties or friends <strong>and</strong> neighbours.<br />
• Service providers formed the sec<strong>on</strong>d largest group <strong>of</strong> supportive<br />
ties <strong>and</strong> they were the mothers’ primary source <strong>of</strong> informati<strong>on</strong><br />
<strong>and</strong> advice; however, relati<strong>on</strong>ships with service providers were<br />
relatively short-term <strong>and</strong> characterised by relatively infrequent<br />
c<strong>on</strong>tact. Mothers with intellectual disability in general felt less<br />
comfortable in seeking support from them.<br />
• Few mothers with intellectual disability could identify supportive<br />
ties with friends <strong>and</strong> neighbours, suggesting that they were<br />
isolated from their local communities <strong>and</strong> were potentially<br />
88 The sample was comprised <strong>of</strong> mothers <strong>of</strong> pre-school age children (i.e. ‹ 6 years)<br />
who participated in three studies over a four-year period. Participants in the study<br />
were those described by social service agencies as having learning disabilities.