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Literature Review on Provision of Appropriate and Accessible ...

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PAGE 170<br />

observati<strong>on</strong>, in-depth interviews with mothers, their children, partners,<br />

extended family members <strong>and</strong> pr<strong>of</strong>essi<strong>on</strong>als. The authors found that<br />

despite the development <strong>of</strong> formal support services, the importance <strong>of</strong><br />

assistance from <str<strong>on</strong>g>Literature</str<strong>on</strong>g> extended <str<strong>on</strong>g>Review</str<strong>on</strong>g> family <strong>on</strong> Provisi<strong>on</strong> c<strong>on</strong>tinued <strong>of</strong> <strong>Appropriate</strong> to be crucial <strong>and</strong> in <strong>Accessible</strong> determining<br />

whether mothers Support with to People intellectual with an disabilities Intellectual retained Disability custody who are <strong>of</strong> their<br />

children. In-depth Experiencing examinati<strong>on</strong> Crisis Pregnancy <strong>of</strong> the support <strong>of</strong>fered by family members<br />

revealed that women relatives referred to as ‘mothers’ played the most<br />

important role. The ‘mother’ was a n<strong>on</strong>-disabled woman who provided<br />

practical <strong>and</strong> emoti<strong>on</strong>al assistance <strong>and</strong> advocated <strong>on</strong> behalf <strong>of</strong> the<br />

disabled mother <strong>and</strong> her family. If successful, the ‘mother’s’ advocacy<br />

was found to play a crucial role in facilitating the maintenance <strong>of</strong> the<br />

custody <strong>of</strong> the children by their birth mothers.<br />

The ‘mothers’ who were successful in their advocacy role were accepted<br />

by the pr<strong>of</strong>essi<strong>on</strong>als as partners in planning <strong>and</strong> providing services for<br />

the mother with intellectual disability. The pr<strong>of</strong>essi<strong>on</strong>als seemed to be<br />

more inclined to accept the ‘mothers’ as partners if they were the <strong>on</strong>es<br />

who initiated c<strong>on</strong>tact with social services <strong>and</strong> asked for assistance while<br />

the intellectually disabled mother was still pregnant. Pr<strong>of</strong>essi<strong>on</strong>als<br />

seemed to identify with the ‘mother’ <strong>and</strong> viewed her as a resp<strong>on</strong>sible<br />

individual who had similar views towards the ‘case’ as they had<br />

themselves.<br />

It also seemed to help if the disabled mother was living with the father <strong>of</strong><br />

the child when the ‘mother’ first c<strong>on</strong>tacted social services. This seemed<br />

to indicate ‘respectability’, which the system favoured: the expectant<br />

mother was regarded as sexually resp<strong>on</strong>sible, <strong>and</strong> the child was<br />

perceived as growing up within a stable traditi<strong>on</strong>al family pattern.<br />

The authors c<strong>on</strong>cluded that the establishment <strong>of</strong> services did not<br />

diminish the importance <strong>of</strong> support from extended family networks.<br />

Rather, it has influenced the kind <strong>of</strong> assistance needed from family<br />

members, pointing to a more active advocacy role. This role involved<br />

negotiating with service pr<strong>of</strong>essi<strong>on</strong>als as well as protecting mothers<br />

from negative attitudes <strong>on</strong> the part <strong>of</strong> pr<strong>of</strong>essi<strong>on</strong>als <strong>and</strong> support workers<br />

within the health, social, <strong>and</strong> child protecti<strong>on</strong> services. The importance <strong>of</strong><br />

the family support network c<strong>on</strong>tinued to be crucial for the mothers with<br />

intellectual disability in keeping their children.

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