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Literature Review on Provision of Appropriate and Accessible ...

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PAGE 169<br />

fulfilling three c<strong>on</strong>diti<strong>on</strong>s: (i) there was no sign that children were abused<br />

or neglected, (ii) there was no interference from a child protecti<strong>on</strong><br />

agency, (iii) there was no court ordered displacement <strong>of</strong> children in foster<br />

care. The main aim <strong>of</strong> the survey was to identify indicators explaining why<br />

parenting went well in these families. In relati<strong>on</strong> to this aim, the following<br />

issues were identified in the qualitative part <strong>of</strong> the study:<br />

• The c<strong>on</strong>diti<strong>on</strong> <strong>and</strong> degree <strong>of</strong> the intellectual disability per se was<br />

not a str<strong>on</strong>g indicator <strong>of</strong> success or failure.<br />

• Inadequate pr<strong>of</strong>essi<strong>on</strong>al support was a str<strong>on</strong>g indicator <strong>of</strong> failure.<br />

• The presence <strong>of</strong> a social network acting in support <strong>of</strong> the parents<br />

was a str<strong>on</strong>g indicator <strong>of</strong> success.<br />

• People’s unwillingness to accept support <strong>and</strong> follow advice<br />

tended to result in difficult c<strong>on</strong>diti<strong>on</strong>s <strong>of</strong> family life.<br />

Support to People with an Intellectual Disability who are<br />

<strong>Accessible</strong><br />

<strong>and</strong> <strong>Appropriate</strong> <strong>of</strong> Provisi<strong>on</strong> <strong>on</strong> <str<strong>on</strong>g>Review</str<strong>on</strong>g> <str<strong>on</strong>g>Literature</str<strong>on</strong>g><br />

Experiencing Crisis Pregnancy<br />

A c<strong>on</strong>sistent finding from the literature is that mothers with intellectual<br />

disability typically experience poverty <strong>and</strong> hardship in raising their<br />

children (McC<strong>on</strong>nell et al., 2003b). Reinders’ analysis (2008) points<br />

to the research literature, which has dem<strong>on</strong>strated that parents with<br />

intellectual disability are usually poor <strong>and</strong> with a lower health status than<br />

that <strong>of</strong> the general populati<strong>on</strong> (Emers<strong>on</strong> <strong>and</strong> Hatt<strong>on</strong>, 2007). Moreover,<br />

such parents are usually socially isolated <strong>and</strong> c<strong>on</strong>sequently lack the<br />

supports necessary to escape psychological stress. McGaw (1997)<br />

has noted from her experience that social isolati<strong>on</strong> <strong>and</strong> dysfuncti<strong>on</strong>al<br />

relati<strong>on</strong>ships are the most comm<strong>on</strong>ly reported problems cited by parents<br />

with learning disabilities. In particular, families reported difficulties with<br />

the development <strong>and</strong> maintenance <strong>of</strong> relati<strong>on</strong>ships, <strong>and</strong> disengaging from<br />

inter-family fighting (McGaw, 1997: 125). Many pr<strong>of</strong>essi<strong>on</strong>als recognised<br />

that family stresses could have been avoided, or their impact lessened,<br />

if <strong>on</strong>ly parents had been provided with some support <strong>and</strong> guidance at an<br />

earlier stage (McGaw, 1997).<br />

5.5 Role <strong>of</strong> family networks in supporting parents with<br />

intellectual disability<br />

Traustadottir <strong>and</strong> Sigurj<strong>on</strong>sdottir (2008) used qualitative methods to<br />

study three generati<strong>on</strong>s <strong>of</strong> Icel<strong>and</strong>ic mothers with intellectual disabilities<br />

<strong>and</strong> their children over half a century (1950-2005). Eighteen mothers<br />

participated in the study. Data were collected through participant

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