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Literature Review on Provision of Appropriate and Accessible ...

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PAGE 165<br />

5.0 Parenting<br />

5.1 Introducti<strong>on</strong><br />

Being a parent is an important marker <strong>of</strong> adulthood <strong>and</strong> maturity. Women<br />

with intellectual disabilities have been viewed as childlike, implying<br />

that they are not capable <strong>of</strong> taking <strong>on</strong> adult roles. Stereotypical views <strong>of</strong><br />

women with intellectual disabilities make it difficult for groups in society<br />

to imagine they could be parents. This has led to many challenges for<br />

people with intellectual disability who become or want to become parents<br />

(Llewellyn <strong>and</strong> McC<strong>on</strong>nell, 2005).<br />

Support to People with an Intellectual Disability who are<br />

<strong>Accessible</strong><br />

<strong>and</strong> <strong>Appropriate</strong> <strong>of</strong> Provisi<strong>on</strong> <strong>on</strong> <str<strong>on</strong>g>Review</str<strong>on</strong>g> <str<strong>on</strong>g>Literature</str<strong>on</strong>g><br />

Experiencing Crisis Pregnancy<br />

According to Booth et al. (2005), writing from the UK perspective, several<br />

factors make it difficult to estimate the number <strong>of</strong> parents labelled with<br />

intellectual disability. These include the lack <strong>of</strong> a comm<strong>on</strong> definiti<strong>on</strong><br />

<strong>of</strong> intellectual disability, variable populati<strong>on</strong> screening <strong>and</strong> diagnostic<br />

practices, inc<strong>on</strong>sistent record-keeping, <strong>and</strong> the invisibility <strong>of</strong> many<br />

parents to <strong>of</strong>ficial agencies. C<strong>on</strong>sequently, mothers <strong>and</strong> fathers labelled<br />

with intellectual disability c<strong>on</strong>stitute a hidden populati<strong>on</strong>, whose size is<br />

hard to estimate. In the UK estimates vary widely, from 23,000 to 250,000<br />

(DH <strong>and</strong> DfES, 2007). An English study (Emers<strong>on</strong> et al. 2005) found<br />

that almost 7% <strong>of</strong> adults with ‘learning difficulties’ were parents. Pixa-<br />

Kettner (2008) c<strong>on</strong>ducted a survey <strong>on</strong> parents with intellectual disability<br />

in Germany. Questi<strong>on</strong>naires requesting informati<strong>on</strong> about all children<br />

born to adults with intellectual disability since 1990 were sent to service<br />

providers (n=701) in the summer <strong>of</strong> 2005. The study c<strong>on</strong>firmed the trend<br />

from an earlier study carried out in 199, <strong>of</strong> a c<strong>on</strong>tinually increasing<br />

number <strong>of</strong> parents with intellectual disability. A total <strong>of</strong> 1584 cases <strong>of</strong><br />

parenthood were reported for the period 1990 – 2005. The proporti<strong>on</strong><br />

<strong>of</strong> children living with at least <strong>on</strong>e biological parent with an intellectual<br />

disability had increased from 40% to 57% between 1998 <strong>and</strong> 2005. At the<br />

time <strong>of</strong> the review, comprehensive data <strong>on</strong> the total number <strong>of</strong> parents<br />

with learning disabilities in Irel<strong>and</strong> was not available.<br />

Despite difficulties in estimating correct numbers for this populati<strong>on</strong>,<br />

across a number <strong>of</strong> countries including the UK, Australia, <strong>and</strong> Germany<br />

there are increasing numbers <strong>of</strong> parents with learning disabilities in<br />

c<strong>on</strong>tact with services (DH <strong>and</strong> DfES, 2007; Bradley, T<strong>of</strong>t <strong>and</strong> Collins, 2000;<br />

Guinea, 2001). Pixa-Kettner makes the point that the increasing number

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