Literature Review on Provision of Appropriate and Accessible ...
Literature Review on Provision of Appropriate and Accessible ...
Literature Review on Provision of Appropriate and Accessible ...
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PAGE 163<br />
Accessing services<br />
• The literature acknowledges that there c<strong>on</strong>tinue to be<br />
inadequacies in relati<strong>on</strong> to access to equitable healthcare for<br />
women with intellectual disability, including pre- <strong>and</strong> post-natal<br />
care for mothers <strong>and</strong> their infants. Women with intellectual<br />
disability are likely to have difficulty accessing quality antenatal<br />
care, given that health <strong>and</strong> social service providers are generally<br />
ill-equipped to accommodate their special learning needs. Staff<br />
percepti<strong>on</strong>s <strong>of</strong> maternal ability play a role in decisi<strong>on</strong>s made<br />
about appropriate healthcare delivery (McC<strong>on</strong>nell et al., 2008).<br />
Support to People with an Intellectual Disability who are<br />
<strong>Accessible</strong><br />
<strong>and</strong> <strong>Appropriate</strong> <strong>of</strong> Provisi<strong>on</strong> <strong>on</strong> <str<strong>on</strong>g>Review</str<strong>on</strong>g> <str<strong>on</strong>g>Literature</str<strong>on</strong>g><br />
Experiencing Crisis Pregnancy<br />
• Research findings in relati<strong>on</strong> to how women with intellectual<br />
disability interact with services included: low numbers <strong>of</strong> women<br />
making c<strong>on</strong>tact with pregnancy advisory services (Burgen,<br />
2008); reliance <strong>on</strong> others to make c<strong>on</strong>tact with services (Burgen,<br />
2008); late recogniti<strong>on</strong> <strong>of</strong> pregnancy (Burgen, 2008; Mayes et<br />
al., 2006); delayed decisi<strong>on</strong>-making <strong>and</strong> c<strong>on</strong>siderati<strong>on</strong> <strong>of</strong> opti<strong>on</strong>s<br />
(Burgen, 2008; Mayes et al., 2006); difficulties in underst<strong>and</strong>ing<br />
the informati<strong>on</strong> received <strong>and</strong> putting it into practice (James,<br />
2004); informati<strong>on</strong> deficit based <strong>on</strong> having not been able to access<br />
popular literature <strong>on</strong> pregnancy <strong>and</strong> parenthood (James, 2004)<br />
Other problems highlighted by a UK-based disability organisati<strong>on</strong><br />
in providing support to women with intellectual disability were<br />
that women were <strong>of</strong>ten not known to learning disability services<br />
during pregnancy <strong>and</strong> that there was a lack <strong>of</strong> integrati<strong>on</strong> across<br />
services.<br />
Tailoring services to intellectual disability<br />
• The use <strong>of</strong> repetiti<strong>on</strong>, pictures <strong>and</strong> role play, the practice <strong>of</strong><br />
audio-taping c<strong>on</strong>sultati<strong>on</strong>s, <strong>and</strong> the availability <strong>of</strong> clearly<br />
illustrated educati<strong>on</strong>al resources written in plain language<br />
have been recommended as a way <strong>of</strong> c<strong>on</strong>tributing to effective<br />
healthcare c<strong>on</strong>sultati<strong>on</strong>s (Klaar, 1999, McC<strong>on</strong>nell, 2008).<br />
• Good practice guidance <strong>on</strong> working with parents with learning<br />
disabilities has recommended that identificati<strong>on</strong> <strong>of</strong> needs should<br />
start when pregnancy is c<strong>on</strong>firmed <strong>and</strong> that procedures, criteria