Literature Review on Provision of Appropriate and Accessible ...
Literature Review on Provision of Appropriate and Accessible ...
Literature Review on Provision of Appropriate and Accessible ...
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PAGE 16<br />
Executive summary<br />
The Crisis Pregnancy Agency [2] <strong>and</strong> the Nati<strong>on</strong>al Disability Authority<br />
commissi<strong>on</strong>ed this systematic review <strong>of</strong> Irish <strong>and</strong> internati<strong>on</strong>al<br />
literature to <str<strong>on</strong>g>Literature</str<strong>on</strong>g> identify internati<strong>on</strong>al <str<strong>on</strong>g>Review</str<strong>on</strong>g> Provisi<strong>on</strong> models <strong>of</strong> <strong>of</strong> <strong>Appropriate</strong> good practice <strong>and</strong> <strong>Accessible</strong> regarding<br />
crisis pregnancy Support counselling to People with <strong>and</strong> an support Intellectual services Disability for women who are with an<br />
Experiencing Crisis Pregnancy<br />
intellectual disability experiencing a crisis pregnancy. A further aim <strong>of</strong><br />
this review was to inform the future development <strong>of</strong> guidelines for crisis<br />
pregnancy counsellors <strong>and</strong> GPs <strong>on</strong> providing appropriate <strong>and</strong> accessible<br />
support to people with an intellectual disability who are experiencing<br />
crisis pregnancy.<br />
For the purpose <strong>of</strong> the review, a crisis pregnancy is defined as “a<br />
pregnancy which is neither planned nor desired by the woman c<strong>on</strong>cerned<br />
<strong>and</strong> which represents a pers<strong>on</strong>al crisis for her”. [3] This definiti<strong>on</strong><br />
includes the experiences <strong>of</strong> those women for whom a planned or<br />
desired pregnancy develops into a crisis over time due to a change in<br />
circumstances. It is important to state that, within the review, not all<br />
pregnancies experienced by women with an intellectual disability are<br />
assumed to be a crisis pregnancy.<br />
The main findings <strong>and</strong> commentaries <strong>of</strong> the review <strong>of</strong> the literature<br />
include the following:<br />
• The review <strong>of</strong> literature dem<strong>on</strong>strated internati<strong>on</strong>al legislati<strong>on</strong>,<br />
structures <strong>and</strong> codes <strong>of</strong> practice <strong>on</strong> capacity to c<strong>on</strong>sent <strong>of</strong> an<br />
individual with an intellectual disability incorporating c<strong>on</strong>sent to<br />
medical treatment decisi<strong>on</strong>s. While there is protective legislati<strong>on</strong><br />
internati<strong>on</strong>ally addressing capacity to c<strong>on</strong>sent to sexual relati<strong>on</strong>s<br />
for this group, this area remains less developed in relati<strong>on</strong> to<br />
assessment <strong>of</strong> capacity to c<strong>on</strong>sent. In additi<strong>on</strong>, there was <strong>on</strong>ly<br />
<strong>on</strong>e study retrieved over the course <strong>of</strong> the review relating to crisis<br />
pregnancy am<strong>on</strong>g individuals with an intellectual disability, as<br />
defined by the Crisis Pregnancy Agency.<br />
2 Since this review was commissi<strong>on</strong>ed the Crisis Pregnancy Agency has been<br />
integrated into the Health Service Executive (HSE) <strong>and</strong> is now the HSE Crisis<br />
Pregnancy Programme. It is a nati<strong>on</strong>al programme working within the Children<br />
<strong>and</strong> Family Social Services Care Group in the HSE.<br />
3 Crisis Pregnancy Agency definiti<strong>on</strong> <strong>of</strong> a crisis pregnancy, as set out by the<br />
Statutory Instrument, S.I. No. 446 <strong>of</strong> 2001, the Crisis Pregnancy Agency<br />
(Establishment) Order, 2001.