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Literature Review on Provision of Appropriate and Accessible ...

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PAGE 153<br />

The authors suggested that <strong>on</strong>e possible explanati<strong>on</strong> for the higher<br />

admissi<strong>on</strong> rates to ne<strong>on</strong>atal intensive care or special care nursery<br />

for babies <strong>of</strong> mothers with intellectual disability <strong>and</strong>/or self-reported<br />

learning difficulties could be that staff percepti<strong>on</strong>s <strong>of</strong> maternal ability<br />

play a role in decisi<strong>on</strong>s about appropriate healthcare delivery.<br />

Support to People with an Intellectual Disability who are<br />

<strong>Accessible</strong><br />

<strong>and</strong> <strong>Appropriate</strong> <strong>of</strong> Provisi<strong>on</strong> <strong>on</strong> <str<strong>on</strong>g>Review</str<strong>on</strong>g> <str<strong>on</strong>g>Literature</str<strong>on</strong>g><br />

Experiencing Crisis Pregnancy<br />

4.8 Provisi<strong>on</strong> <strong>of</strong> services<br />

4.8.1 Antenatal care services<br />

All pregnant women - irrespective <strong>of</strong> their disability status - are entitled<br />

to receive the same range <strong>of</strong> free or affordable health care as provided to<br />

other pers<strong>on</strong>s, including in the area <strong>of</strong> reproductive health <strong>and</strong> antenatal<br />

care (UN C<strong>on</strong>venti<strong>on</strong> <strong>on</strong> the Rights <strong>of</strong> Pers<strong>on</strong>s with Disabilities, 2006).<br />

The literature acknowledges that there c<strong>on</strong>tinue to be inadequacies in<br />

relati<strong>on</strong> to access to equitable healthcare for women with intellectual<br />

disability, including pre- <strong>and</strong> post-natal care for mothers <strong>and</strong> their<br />

infants (Llewellyn et al., 2008). Such disadvantage is frequently<br />

accompanied by stigma <strong>and</strong> discriminati<strong>on</strong>. According to a number <strong>of</strong><br />

authors, women with intellectual disability are likely to have difficulty<br />

accessing quality antenatal care, given that health <strong>and</strong> social service<br />

providers are generally ill-equipped to accommodate their special<br />

learning needs (Beange et al., 1995; McC<strong>on</strong>nell et al., 1997; Kapell et<br />

al., 1998). In additi<strong>on</strong>, staff percepti<strong>on</strong>s <strong>of</strong> maternal ability play a role in<br />

decisi<strong>on</strong>s made about appropriate healthcare delivery (McC<strong>on</strong>nell et al.,<br />

2008).<br />

A positive finding from McC<strong>on</strong>nell et al.’s investigati<strong>on</strong> (2008a) is that<br />

their study group participated in their first antenatal visit at around the<br />

same time in pregnancy as their n<strong>on</strong>-disabled peers <strong>and</strong> c<strong>on</strong>tinued<br />

their visits throughout their pregnancy (2008a: 534). However, Burgen’s<br />

research (2008) dem<strong>on</strong>strated the opposite: there was delayed decisi<strong>on</strong>making<br />

<strong>and</strong> c<strong>on</strong>tact with services am<strong>on</strong>gst her sample. Meanwhile, a<br />

number <strong>of</strong> research studies involving women with intellectual disability<br />

have dem<strong>on</strong>strated late recogniti<strong>on</strong> <strong>of</strong> pregnancy <strong>and</strong> a c<strong>on</strong>sequent<br />

delayed decisi<strong>on</strong>-making around the pregnancy (Burgen, 2008; Mayes<br />

et al., 2006). According to Alis<strong>on</strong> Giraud-Saunders, Co-Director <strong>of</strong> the<br />

Foundati<strong>on</strong> for People with Learning Disabilities in the UK, there are<br />

problems in many areas when it comes to supporting parents with

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