Literature Review on Provision of Appropriate and Accessible ...
Literature Review on Provision of Appropriate and Accessible ...
Literature Review on Provision of Appropriate and Accessible ...
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PAGE 148<br />
Mayes et al. (2006) assert that GPs, midwives <strong>and</strong> other health<br />
pr<strong>of</strong>essi<strong>on</strong>als routinely in c<strong>on</strong>tact with expectant mothers may need<br />
to be especially vigilant against projecting pejorative beliefs about the<br />
decisi<strong>on</strong>s women <str<strong>on</strong>g>Literature</str<strong>on</strong>g> with <str<strong>on</strong>g>Review</str<strong>on</strong>g> intellectual <strong>on</strong> Provisi<strong>on</strong> disability <strong>of</strong> <strong>Appropriate</strong> make for <strong>and</strong> about <strong>Accessible</strong> their<br />
babies. They Support should to also People be aware with an <strong>of</strong> Intellectual the presence Disability <strong>and</strong> potentially<br />
who are<br />
negative c<strong>on</strong>sequences Experiencing <strong>of</strong> Crisis such Pregnancy attitudes <strong>on</strong> the mother as she prepares<br />
for her baby’s arrival (Mayes et al., 2006). In Mayes et al.’s study, these<br />
attitudes were apparent in the women’s stories <strong>and</strong> the women were fully<br />
aware <strong>of</strong> them.<br />
Mayes et al. (2006) note that the short-term nature <strong>of</strong> disability support<br />
services may be unhelpful for providing women with support to make<br />
significant decisi<strong>on</strong>s for <strong>and</strong> about their unborn babies. The women<br />
clearly indicated that these decisi<strong>on</strong>s were made within the c<strong>on</strong>text <strong>of</strong><br />
l<strong>on</strong>g-st<strong>and</strong>ing relati<strong>on</strong>ships, built <strong>on</strong> trust. They c<strong>on</strong>sidered that support<br />
services for pregnant women with intellectual disability may need to be<br />
tailored to allow the l<strong>on</strong>ger term involvement <strong>of</strong> support workers with<br />
expectant mothers with intellectual disability. Support workers should<br />
also be sensitive to, <strong>and</strong> respectful <strong>of</strong>, decisi<strong>on</strong>s made in the c<strong>on</strong>text <strong>of</strong> a<br />
woman’s intimate relati<strong>on</strong>ships (Mayes et al., 2006).<br />
4.6 Research <strong>on</strong> experiences <strong>of</strong> pregnancy am<strong>on</strong>g women with an<br />
intellectual disability<br />
In Mayes et al.’s research (2006), the lived, embodied experiences<br />
<strong>of</strong> pregnancy were explored by c<strong>on</strong>ducting multiple in-depth, semistructured<br />
interviews with 17 women with disabilities while they were<br />
pregnant, in order to underst<strong>and</strong> the phenomen<strong>on</strong> <strong>of</strong> becoming a mother.<br />
The majority <strong>of</strong> these were recruited during their first antenatal clinic<br />
appointment at two large public hospitals in an Australian city, where<br />
informati<strong>on</strong> outlining the nature <strong>and</strong> purpose <strong>of</strong> the study was distributed<br />
to them. C<strong>on</strong>senting participants completed a brief questi<strong>on</strong>naire which<br />
established whether women:<br />
• Had received excepti<strong>on</strong>al help at school (such as assistance from<br />
a remedial educati<strong>on</strong> teacher) due to a special learning need;<br />
<strong>and</strong>/or<br />
• Had attended a special school specifically designed for children<br />
with special learning needs; <strong>and</strong>/or<br />
• Had received in the past or currently received a disability pensi<strong>on</strong><br />
related to a cognitive limitati<strong>on</strong>; <strong>and</strong>/or