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Literature Review on Provision of Appropriate and Accessible ...

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PAGE 141<br />

introduced students not <strong>on</strong>ly to the joys <strong>of</strong> parenthood, but also to the<br />

difficulties.<br />

4.4.2 Accessing sexual health services<br />

It has been recognised that many women with intellectual disability do<br />

not have access to the same opportunities for choice, c<strong>on</strong>tinuity <strong>and</strong><br />

c<strong>on</strong>trol, which form the basis <strong>of</strong> good practice, yet these factors are<br />

crucially important for these women (Campi<strong>on</strong>, 1996). In many societies,<br />

general attitudes towards women with intellectual disability may result<br />

in the denial or marginalising <strong>of</strong> sexual health c<strong>on</strong>cerns. Such attitudes<br />

limit access to health services related to gynaecological care. According<br />

to Sulpizi (1996) women with intellectual disability may be treated as<br />

children, as it may be incorrectly assumed that they may not underst<strong>and</strong><br />

what is being told to them. As a c<strong>on</strong>sequence, health pr<strong>of</strong>essi<strong>on</strong>als<br />

may direct their questi<strong>on</strong>s <strong>and</strong> explanati<strong>on</strong>s to the n<strong>on</strong>-disabled pers<strong>on</strong><br />

accompanying them. It has been suggested that there are few health<br />

pr<strong>of</strong>essi<strong>on</strong>als who are willing <strong>and</strong> trained to address sexual health issues<br />

for women with intellectual disability (Schrojenstein Lantman-de Valk,<br />

Schupf <strong>and</strong> Patja, 2002).<br />

Support to People with an Intellectual Disability who are<br />

<strong>Accessible</strong><br />

<strong>and</strong> <strong>Appropriate</strong> <strong>of</strong> Provisi<strong>on</strong> <strong>on</strong> <str<strong>on</strong>g>Review</str<strong>on</strong>g> <str<strong>on</strong>g>Literature</str<strong>on</strong>g><br />

Experiencing Crisis Pregnancy<br />

A study <strong>of</strong> gynaecological services for women with intellectual disability<br />

in the US involving 127 women with developmental disabilities reported<br />

that 40 per cent <strong>of</strong> the women surveyed had not received health<br />

educati<strong>on</strong> regarding gynaecological care (Kopac, Fritz <strong>and</strong> Holt, 1998).<br />

Barriers to accessing services in general included:<br />

• Financial difficulties<br />

• Fear <strong>of</strong> examinati<strong>on</strong>s<br />

• Difficulties in accessing healthcare pr<strong>of</strong>essi<strong>on</strong>als to provide such<br />

services.<br />

4.4.3 Inadequate informati<strong>on</strong><br />

James (2004), writing from her experience as part <strong>of</strong> a Community<br />

Learning Disabilities Team in Engl<strong>and</strong>, c<strong>on</strong>tends that despite<br />

c<strong>on</strong>siderable developments in educati<strong>on</strong> <strong>and</strong> health input for women<br />

with learning disabilities in recent years, many women remain poorly<br />

informed about c<strong>on</strong>tracepti<strong>on</strong> <strong>and</strong> the significance <strong>of</strong> changes in<br />

their menstrual pattern. As a result, such women may find it hard to

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