Qualitative Research in Practice : Stories From the Field - Blogs Unpad
Qualitative Research in Practice : Stories From the Field - Blogs Unpad Qualitative Research in Practice : Stories From the Field - Blogs Unpad
Ethics and organisations relevant issues prior to granting permission to proceed. The onus is firmly on the researcher to show that the proposed research will not cause harm and that adequate safeguards are put in place to ensure this. Even when practitioner researchers are experienced in working with a particular group which may be considered vulnerable in the research context, they will still have to demonstrate to an ethics committee that they have the appropriate skills to undertake the proposed research with this group. While ethical guidelines used in university and medical research settings were originally oriented to biomedical experimentation, as in clinical drug trials, their mandate has now extended to behavioural and social science research. Ethics review boards are often unfamiliar with qualitative research and this can create difficulties for researchers, particularly in the field of health. Attempts are now being made to assist medical and health research ethics review boards to develop a better understanding of qualitative research and its associated ethical issues. For example, in Australia the National Health and Medical Research Council has produced a special paper on ethical aspects of qualitative methods in health research (National Health and Medical Research Council, 1995). Some of the most common areas of misunderstanding in relation to qualitative research relate to the often small sample size and the lack of specific hypotheses, control groups and predetermined questions, which can lead to the false assumption that the proposed study is not sufficiently rigorous. It is therefore important to address such concerns directly in any proposal. Institutional ethics committees may also be unfamiliar with the human service field, so those undertaking qualitative research in the human services can encounter a double-layered lack of understanding. Ethics review boards may not appreciate that the study is part and parcel of professional practice, governed by professional ethics and under the auspices of an organisation with its own structure of accountability. Thus, for example, workers who routinely collect feedback from service users may find that the ethics review board is uneasy about such data being collected from people who are dependent upon the service and as a consequence may be seen as constrained in their capacity to give freely their informed consent. The boundary between a clinical audit or quality assurance project in an agency and ‘research’ may also appear blurred. In our experience this is less likely to be a problem with medical ethics 23
Qualitative research in practice review boards than with university-based ethics committees in the behavioural and social sciences, as the distinction is usually better understood in health settings. In university-auspiced research in the human services it is usually necessary to have the permission of both the university ethics committee and the relevant human services organisation(s), with the latter typically being one of the prerequisites for the former. Outside universities and hospitals the accountability mechanisms for research are still developing and research in some areas remains relatively unregulated. In some human services agencies, there may not be an agency policy or set of guidelines on research and those wishing to undertake research may unwittingly find themselves in an ethical minefield. Other organisations, such as government departments, may be concerned with the potential political ramifications of the research and at times research proposals may be thwarted, ostensibly on ethical grounds. Some human service agencies are accelerating their efforts to provide guidelines and structures to manage ethical research. An excellent model of how this can be done is that of the Australian child and family welfare agency Uniting Care Burnside. This agency has produced a Research Code of Ethics (Burnside, 2000) which can be copied in its entirety for non-profit purposes. It covers all types of research, including quantitative and qualitative studies, and is particularly focused on safeguards for research with vulnerable children and young people. It takes the prospective researcher through the research process and sets out clear guidelines in relation to designing valid research, obtaining voluntary informed consent, implementing the research, protecting privacy, maximising benefits and disseminating the research results. Qualitative research in the human services poses particular challenges in relation to ethical considerations. This chapter focuses on three main issues: informed consent; intrusiveness; and confidentiality. The characteristics of qualitative investigation seem to generate particular decision-making problems for the investigator who seeks to safeguard the research participant. There are three types of problems, although the categories are loose and overlapping: (a) the participant– investigator relationship itself, within which are divulged many confidences, (b) the investigator’s subjective interpretation of the collected data, and (c) the more loosely defined, emergent, design (Ramos, 1989, p. 58). 24
- Page 2 and 3: Qualitative research in practice St
- Page 4 and 5: Contents The researchers vi Table o
- Page 6 and 7: Contents 8 Presenting and writing u
- Page 8 and 9: The researchers Anne Coleman began
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- Page 12 and 13: Table of research studies Tim and W
- Page 14 and 15: Preface In this book we aim to brid
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- Page 18 and 19: 1 From practice to research In the
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- Page 24 and 25: From practice to research consumer
- Page 26 and 27: From practice to research parent—
- Page 28 and 29: From practice to research space—t
- Page 30 and 31: From practice to research what peop
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- Page 36 and 37: From practice to research tracked d
- Page 38 and 39: 2 Ethics and organisations The best
- Page 42 and 43: Ethics and organisations Informed c
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- Page 60 and 61: Ethics and organisations Yvonne: To
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<strong>Qualitative</strong> research <strong>in</strong> practice<br />
review boards than with university-based ethics committees <strong>in</strong> <strong>the</strong><br />
behavioural and social sciences, as <strong>the</strong> dist<strong>in</strong>ction is usually better<br />
understood <strong>in</strong> health sett<strong>in</strong>gs. In university-auspiced research <strong>in</strong> <strong>the</strong><br />
human services it is usually necessary to have <strong>the</strong> permission of<br />
both <strong>the</strong> university ethics committee and <strong>the</strong> relevant human<br />
services organisation(s), with <strong>the</strong> latter typically be<strong>in</strong>g one of <strong>the</strong><br />
prerequisites for <strong>the</strong> former.<br />
Outside universities and hospitals <strong>the</strong> accountability mechanisms<br />
for research are still develop<strong>in</strong>g and research <strong>in</strong> some areas<br />
rema<strong>in</strong>s relatively unregulated. In some human services agencies,<br />
<strong>the</strong>re may not be an agency policy or set of guidel<strong>in</strong>es on research<br />
and those wish<strong>in</strong>g to undertake research may unwitt<strong>in</strong>gly f<strong>in</strong>d<br />
<strong>the</strong>mselves <strong>in</strong> an ethical m<strong>in</strong>efield. O<strong>the</strong>r organisations, such as<br />
government departments, may be concerned with <strong>the</strong> potential<br />
political ramifications of <strong>the</strong> research and at times research<br />
proposals may be thwarted, ostensibly on ethical grounds.<br />
Some human service agencies are accelerat<strong>in</strong>g <strong>the</strong>ir efforts to<br />
provide guidel<strong>in</strong>es and structures to manage ethical research. An<br />
excellent model of how this can be done is that of <strong>the</strong> Australian<br />
child and family welfare agency Unit<strong>in</strong>g Care Burnside. This agency<br />
has produced a <strong>Research</strong> Code of Ethics (Burnside, 2000) which can<br />
be copied <strong>in</strong> its entirety for non-profit purposes. It covers all types<br />
of research, <strong>in</strong>clud<strong>in</strong>g quantitative and qualitative studies, and is<br />
particularly focused on safeguards for research with vulnerable<br />
children and young people. It takes <strong>the</strong> prospective researcher<br />
through <strong>the</strong> research process and sets out clear guidel<strong>in</strong>es <strong>in</strong> relation<br />
to design<strong>in</strong>g valid research, obta<strong>in</strong><strong>in</strong>g voluntary <strong>in</strong>formed consent,<br />
implement<strong>in</strong>g <strong>the</strong> research, protect<strong>in</strong>g privacy, maximis<strong>in</strong>g benefits<br />
and dissem<strong>in</strong>at<strong>in</strong>g <strong>the</strong> research results.<br />
<strong>Qualitative</strong> research <strong>in</strong> <strong>the</strong> human services poses particular<br />
challenges <strong>in</strong> relation to ethical considerations. This chapter focuses<br />
on three ma<strong>in</strong> issues: <strong>in</strong>formed consent; <strong>in</strong>trusiveness; and confidentiality.<br />
The characteristics of qualitative <strong>in</strong>vestigation seem to generate<br />
particular decision-mak<strong>in</strong>g problems for <strong>the</strong> <strong>in</strong>vestigator who seeks to<br />
safeguard <strong>the</strong> research participant. There are three types of problems,<br />
although <strong>the</strong> categories are loose and overlapp<strong>in</strong>g: (a) <strong>the</strong> participant–<br />
<strong>in</strong>vestigator relationship itself, with<strong>in</strong> which are divulged many<br />
confidences, (b) <strong>the</strong> <strong>in</strong>vestigator’s subjective <strong>in</strong>terpretation of <strong>the</strong><br />
collected data, and (c) <strong>the</strong> more loosely def<strong>in</strong>ed, emergent, design<br />
(Ramos, 1989, p. 58).<br />
24