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Qualitative Research in Practice : Stories From the Field - Blogs Unpad

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Ethics and organisations<br />

relevant issues prior to grant<strong>in</strong>g permission to proceed. The onus is<br />

firmly on <strong>the</strong> researcher to show that <strong>the</strong> proposed research will not<br />

cause harm and that adequate safeguards are put <strong>in</strong> place to ensure<br />

this. Even when practitioner researchers are experienced <strong>in</strong> work<strong>in</strong>g<br />

with a particular group which may be considered vulnerable <strong>in</strong> <strong>the</strong><br />

research context, <strong>the</strong>y will still have to demonstrate to an ethics<br />

committee that <strong>the</strong>y have <strong>the</strong> appropriate skills to undertake <strong>the</strong><br />

proposed research with this group.<br />

While ethical guidel<strong>in</strong>es used <strong>in</strong> university and medical research<br />

sett<strong>in</strong>gs were orig<strong>in</strong>ally oriented to biomedical experimentation, as<br />

<strong>in</strong> cl<strong>in</strong>ical drug trials, <strong>the</strong>ir mandate has now extended to behavioural<br />

and social science research. Ethics review boards are often<br />

unfamiliar with qualitative research and this can create difficulties<br />

for researchers, particularly <strong>in</strong> <strong>the</strong> field of health. Attempts are now<br />

be<strong>in</strong>g made to assist medical and health research ethics review<br />

boards to develop a better understand<strong>in</strong>g of qualitative research and<br />

its associated ethical issues. For example, <strong>in</strong> Australia <strong>the</strong> National<br />

Health and Medical <strong>Research</strong> Council has produced a special paper<br />

on ethical aspects of qualitative methods <strong>in</strong> health research<br />

(National Health and Medical <strong>Research</strong> Council, 1995).<br />

Some of <strong>the</strong> most common areas of misunderstand<strong>in</strong>g <strong>in</strong> relation<br />

to qualitative research relate to <strong>the</strong> often small sample size and <strong>the</strong><br />

lack of specific hypo<strong>the</strong>ses, control groups and predeterm<strong>in</strong>ed questions,<br />

which can lead to <strong>the</strong> false assumption that <strong>the</strong> proposed<br />

study is not sufficiently rigorous. It is <strong>the</strong>refore important to address<br />

such concerns directly <strong>in</strong> any proposal.<br />

Institutional ethics committees may also be unfamiliar with <strong>the</strong><br />

human service field, so those undertak<strong>in</strong>g qualitative research <strong>in</strong><br />

<strong>the</strong> human services can encounter a double-layered lack of understand<strong>in</strong>g.<br />

Ethics review boards may not appreciate that <strong>the</strong> study is<br />

part and parcel of professional practice, governed by professional<br />

ethics and under <strong>the</strong> auspices of an organisation with its own structure<br />

of accountability. Thus, for example, workers who rout<strong>in</strong>ely<br />

collect feedback from service users may f<strong>in</strong>d that <strong>the</strong> ethics review<br />

board is uneasy about such data be<strong>in</strong>g collected from people who<br />

are dependent upon <strong>the</strong> service and as a consequence may be seen<br />

as constra<strong>in</strong>ed <strong>in</strong> <strong>the</strong>ir capacity to give freely <strong>the</strong>ir <strong>in</strong>formed<br />

consent.<br />

The boundary between a cl<strong>in</strong>ical audit or quality assurance<br />

project <strong>in</strong> an agency and ‘research’ may also appear blurred. In our<br />

experience this is less likely to be a problem with medical ethics<br />

23

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