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Qualitative Research in Practice : Stories From the Field - Blogs Unpad

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<strong>Qualitative</strong> research <strong>in</strong> practice<br />

children and <strong>in</strong>terviewers to develop a pictorial record of <strong>the</strong>ir<br />

experiences at <strong>the</strong> home (<strong>the</strong> children who did this were able to keep<br />

<strong>the</strong>ir book). Aga<strong>in</strong>, teachers used <strong>the</strong>ir exist<strong>in</strong>g knowledge of <strong>the</strong><br />

children to devise imag<strong>in</strong>ative ways of us<strong>in</strong>g <strong>the</strong> available cues.<br />

Involv<strong>in</strong>g people with an <strong>in</strong>tellectual disability <strong>in</strong> research<br />

L<strong>in</strong>da Ward (1997) provides practical guidel<strong>in</strong>es for <strong>in</strong>volv<strong>in</strong>g<br />

disabled children and young people at every stage of research, from<br />

project development through to dissem<strong>in</strong>ation. Elsewhere, Ward<br />

and Simons (1998) describe several ways <strong>in</strong> which people with an<br />

<strong>in</strong>tellectual disability have been able to participate <strong>in</strong> research<br />

processes, <strong>in</strong>clud<strong>in</strong>g: help<strong>in</strong>g to shape <strong>the</strong> research agenda, through<br />

lobby<strong>in</strong>g for research to be conducted on issues of importance to<br />

people with an <strong>in</strong>tellectual disability; advis<strong>in</strong>g and assist<strong>in</strong>g<br />

research projects; do<strong>in</strong>g research <strong>the</strong>mselves; and be<strong>in</strong>g <strong>in</strong>volved <strong>in</strong><br />

research dissem<strong>in</strong>ation.<br />

Dissem<strong>in</strong>ation of research to people with an <strong>in</strong>tellectual<br />

disability requires serious consideration of <strong>the</strong> form <strong>in</strong> which<br />

research results are presented. <strong>Research</strong>ers at <strong>the</strong> University of<br />

Bristol (Bashford, Townsley & Williams, 1995) have developed<br />

‘parallel texts’ of research reports as a means of mak<strong>in</strong>g research<br />

accessible to people with an <strong>in</strong>tellectual disability. They <strong>in</strong>clude<br />

both <strong>the</strong> formal and complete report and a simplified version, not as<br />

a separate document, but <strong>in</strong> parallel form with<strong>in</strong> <strong>the</strong> report, on<br />

fac<strong>in</strong>g sheets. They argue that provid<strong>in</strong>g access to both <strong>the</strong> orig<strong>in</strong>al<br />

and <strong>the</strong> simplified versions helps to break down pervasive ‘<strong>the</strong>m’<br />

and ‘us’ attitudes and also avoids mak<strong>in</strong>g judgements about <strong>the</strong> skill<br />

levels of those access<strong>in</strong>g <strong>the</strong> report. Any user of <strong>the</strong> research may<br />

read <strong>the</strong> simple or complete version or move between <strong>the</strong> two,<br />

accord<strong>in</strong>g to <strong>the</strong>ir own levels of skill and <strong>in</strong>terest <strong>in</strong> <strong>the</strong> report.<br />

<strong>Stories</strong> from <strong>the</strong> field<br />

In <strong>the</strong> follow<strong>in</strong>g <strong>in</strong>side stories, Carol<strong>in</strong>e Thomas talks about her<br />

research with adopted children, and Tim and Wendy Booth talk<br />

about <strong>the</strong>ir work with parents who have learn<strong>in</strong>g difficulties. These<br />

<strong>in</strong>side stories illustrate <strong>the</strong> ways <strong>in</strong> which some of <strong>the</strong> pr<strong>in</strong>ciples and<br />

techniques we have discussed <strong>in</strong> this chapter can be put <strong>in</strong>to<br />

practice.<br />

106

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