Qualitative Research in Practice : Stories From the Field - Blogs Unpad
Qualitative Research in Practice : Stories From the Field - Blogs Unpad Qualitative Research in Practice : Stories From the Field - Blogs Unpad
Tailoring data collection We focus here particularly on practical aspects of engagement with research participants and data collection. Ethical issues, particularly in relation to obtaining informed consent, have been considered in Chapter 2. Both children and people with an intellectual disability have, until relatively recently, remained ‘voiceless’ in the research literature. They have been overlooked as potential research participants, considered either too vulnerable to be troubled by researchers, or to be unreliable sources of information. It is not that children and people with an intellectual disability have been under-researched per se, but that they have had limited opportunities to speak on their own behalf—parents, teachers, carers and case records have all been prefered as sources of information about them. Children’s rights and disability rights movements have, in recent times, played an important role in highlighting, and attempting to redress, the absence of voices of children and people with an intellectual disability in research. An essential step is accepting that children and people with an intellectual disability do have important things to say on their own behalf, and that their perspectives are a valuable source of input into decisions regarding themselves as individuals and the development of services more generally. This is only a first step. Another hurdle to the inclusion of children and people with an intellectual disability in research concerns the skills of the researchers working with these groups. Researchers have too often avoided including these groups as research participants, considering them too hard to get information from or unable to express a point of view, and instead asking others to speak on their behalf. Researchers may have feared intruding or doing the wrong thing, and held concerns that participation could be detrimental. In many cases, they may just not have known how to work directly with children or with people with an intellectual disability. Researchers’ lack of skill in working with these groups can be addressed, either through the researcher acquiring the necessary skills or through working in a team with someone who already has these skills. The remainder of this chapter focuses separately on the practicalities of working with children and with people with an intellectual disability in the research context. 93
Qualitative research in practice Researching with children There is increasing recognition of children’s rights to be involved in decisions affecting them. Just how and to what extent this should happen is a subject of continuing debate. Perspectives on children’s rights range from liberationist views which focus on children’s similarities to adults, and thus argue for expanded rights for children, to a protectionist stance that takes account of children’s differences from adults as well as what they have in common, and seeks to preserve the differences, in the best interests of children (Wilkinson, 1993; Brannen & O’Brien, 1995). The United Nations Convention on the Rights of the Child (United Nations Centre for Human Rights, 1989) steers a middle course in that it ‘embraces both the vulnerable, dependent child requiring special protection and also the child who is a potential adult, or is adult-like, and thus the rightful recipient of a range of civil, political, legal and social rights similar to those attaching to the status of adult (Carney, 1991)’ (Wilkinson, 1993, p. 148). Article 12.1 of the Convention is germane to practice in areas such as family law, child protection and education, and is also relevant to the research context: States Parties shall assure to the child who is capable of forming his or her own views the right to express those views freely in all matters affecting the child, the views of the child being given due weight in accordance with the age and maturity of the child. In this section, we draw together some of the considerable practice wisdom that has developed in research with children, in particular on interviewing and conducting participant observation with children. In this discussion, we in no way view children, even those of similar ages, as homogenous groups about whom rigid generalisations can be made. Fixed age-related stages of children’s cognitive development and their use and understanding of language are being increasingly challenged (Donaldson, 1978; Carey, 1985; Keil, 1989). Donaldson, for example, emphasises the situational context of children’s cognitive and language capacity, suggesting that children are generally more likely to display competence when they are ‘dealing with “real-life” meaningful situations in which they have purposes and intentions and in which they can recognise and respond to similar purposes and intentions in others’ (1978, p. 121). Thus, both the behaviour of others and what is expected of them need to make sense to them. 94
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<strong>Qualitative</strong> research <strong>in</strong> practice<br />
<strong>Research</strong><strong>in</strong>g with children<br />
There is <strong>in</strong>creas<strong>in</strong>g recognition of children’s rights to be <strong>in</strong>volved <strong>in</strong><br />
decisions affect<strong>in</strong>g <strong>the</strong>m. Just how and to what extent this should<br />
happen is a subject of cont<strong>in</strong>u<strong>in</strong>g debate. Perspectives on children’s<br />
rights range from liberationist views which focus on children’s similarities<br />
to adults, and thus argue for expanded rights for children, to<br />
a protectionist stance that takes account of children’s differences<br />
from adults as well as what <strong>the</strong>y have <strong>in</strong> common, and seeks to<br />
preserve <strong>the</strong> differences, <strong>in</strong> <strong>the</strong> best <strong>in</strong>terests of children (Wilk<strong>in</strong>son,<br />
1993; Brannen & O’Brien, 1995).<br />
The United Nations Convention on <strong>the</strong> Rights of <strong>the</strong> Child<br />
(United Nations Centre for Human Rights, 1989) steers a middle<br />
course <strong>in</strong> that it ‘embraces both <strong>the</strong> vulnerable, dependent child<br />
requir<strong>in</strong>g special protection and also <strong>the</strong> child who is a potential<br />
adult, or is adult-like, and thus <strong>the</strong> rightful recipient of a range of<br />
civil, political, legal and social rights similar to those attach<strong>in</strong>g to <strong>the</strong><br />
status of adult (Carney, 1991)’ (Wilk<strong>in</strong>son, 1993, p. 148).<br />
Article 12.1 of <strong>the</strong> Convention is germane to practice <strong>in</strong> areas<br />
such as family law, child protection and education, and is also<br />
relevant to <strong>the</strong> research context:<br />
States Parties shall assure to <strong>the</strong> child who is capable of form<strong>in</strong>g his or<br />
her own views <strong>the</strong> right to express those views freely <strong>in</strong> all matters<br />
affect<strong>in</strong>g <strong>the</strong> child, <strong>the</strong> views of <strong>the</strong> child be<strong>in</strong>g given due weight <strong>in</strong><br />
accordance with <strong>the</strong> age and maturity of <strong>the</strong> child.<br />
In this section, we draw toge<strong>the</strong>r some of <strong>the</strong> considerable practice<br />
wisdom that has developed <strong>in</strong> research with children, <strong>in</strong> particular<br />
on <strong>in</strong>terview<strong>in</strong>g and conduct<strong>in</strong>g participant observation with<br />
children. In this discussion, we <strong>in</strong> no way view children, even those<br />
of similar ages, as homogenous groups about whom rigid generalisations<br />
can be made. Fixed age-related stages of children’s cognitive<br />
development and <strong>the</strong>ir use and understand<strong>in</strong>g of language are<br />
be<strong>in</strong>g <strong>in</strong>creas<strong>in</strong>gly challenged (Donaldson, 1978; Carey, 1985; Keil,<br />
1989). Donaldson, for example, emphasises <strong>the</strong> situational context of<br />
children’s cognitive and language capacity, suggest<strong>in</strong>g that children<br />
are generally more likely to display competence when <strong>the</strong>y are<br />
‘deal<strong>in</strong>g with “real-life” mean<strong>in</strong>gful situations <strong>in</strong> which <strong>the</strong>y have<br />
purposes and <strong>in</strong>tentions and <strong>in</strong> which <strong>the</strong>y can recognise and<br />
respond to similar purposes and <strong>in</strong>tentions <strong>in</strong> o<strong>the</strong>rs’ (1978, p. 121).<br />
Thus, both <strong>the</strong> behaviour of o<strong>the</strong>rs and what is expected of <strong>the</strong>m<br />
need to make sense to <strong>the</strong>m.<br />
94