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2006-2007 - British Lung Foundation

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Annual Review <strong>2006</strong>-<strong>2007</strong><br />

• helpline: 08458 50 50 20<br />

• e: enquiries@blf-uk.org<br />

• w: www.lunguk.org


contents<br />

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12<br />

13<br />

14<br />

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18<br />

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25<br />

26<br />

Chairman and CE’s foreward<br />

The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

Support<br />

Breathe Easy and patient support<br />

Information and publications<br />

BLF Nurses<br />

BLF Active<br />

Change<br />

Campaigns<br />

COPD project<br />

Research<br />

Fundraising<br />

Finance<br />

Trust and corporate supporters<br />

Cover photo: we are very proud to have established BLF nurse posts this year - see pp. 12/13


Chairman and Chief Executive’s foreword<br />

Each year sees progress on a variety of fronts. This year we have managed to get our income<br />

back up over £6 million – a great effort after last year’s drop in legacy income. Similarly, we<br />

have seen growth in a number of areas – BLF Nurses, BLF Active and our Helpline. Each of<br />

these activities has started to take off and flourish in a very satisfactory way.<br />

Our press coverage has increased greatly and we are playing a full part in many of the different<br />

groups which the devolved nations have related to respiratory disease. Respiratory research is<br />

also much more in the central mindset of different funding bodies and our own research is<br />

achieving a considerable amount for the money invested.<br />

This year has seen the end of the Baby Breathe Easy pilot and its evaluation. As a result a<br />

whole new strategy on the provision of services for the parents of children with respiratory<br />

disease is due to begin in <strong>2007</strong>/8.<br />

Our COPD (chronic obstructive pulmonary disease) project is also fully underway with two<br />

people recruited and another due soon. This project will identify areas of interest in the<br />

forthcoming National Service Framework for COPD and consult widely with different people<br />

and groups as to how best the BLF can engage. There is much to do and, as always, limited<br />

resources with which to act. The corporate plan is now set for the year ahead with the aim of<br />

consolidating the increase in income achieved this year and building a modest increase in for<br />

next year. Of all our budgets, we feel that there is a need to increase our research budget to a<br />

higher level. With this in mind, we have set ourselves a new increased target for funding in<br />

<strong>2007</strong>/8.<br />

During the year we have recruited new Trustees through public advertising and set up a<br />

reduced and streamlined system of subcommittees. This new governance system seems to be<br />

working well and will be built on in the year ahead.<br />

In summary, it has been a year of considerable progress and much hard work. The many<br />

people who help us as volunteers in a variety of different ways deserve, and get, our sincere<br />

thanks for all that they do. In addition the staff throughout the UK, who work long hours to<br />

achieve many good things, is a valuable resource that we cannot manage without. Thank you<br />

one and all.<br />

Dr Keith Prowse<br />

Chairman<br />

Dame Helena Shovelton<br />

Chief Executive<br />

3 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

One person in seven in the UK is<br />

affected by lung disease.<br />

Whether it’s mild asthma or lung<br />

cancer, the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

is here for every one of them.<br />

This is what we do:<br />

• We support people affected by lung<br />

disease through the individual<br />

challenges they will face. Support is the<br />

focus of many of our activities,<br />

including our nationwide network of<br />

Breathe Easy support groups and<br />

membership scheme.<br />

• We help people to understand their<br />

condition. We do this by providing<br />

comprehensive and clear information<br />

on paper, on the web and on the<br />

telephone.<br />

• And we work for positive change<br />

in lung health. We do this by<br />

campaigning, raising awareness and<br />

funding world-class research.<br />

Our Head Office is in London, and we<br />

have offices in Scotland (which also<br />

covers Northern Ireland), Wales and in<br />

five English regions (South West,<br />

Midlands, North West, North, and<br />

London and South). Our Advice<br />

Service, which includes our telephone<br />

Helpline, is based in Liverpool.<br />

The national/regional offices’ main<br />

role is to provide support to people<br />

affected by lung disease, mainly<br />

through Breathe Easy groups.<br />

The offices also raise awareness of<br />

lung disease and work with<br />

health/social/political organisations to<br />

improve services for people affected by<br />

lung disease. <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

Scotland and Wales also have a<br />

fundraising function.<br />

New BLF Membership<br />

scheme launched<br />

In January <strong>2007</strong> the <strong>British</strong> <strong>Lung</strong><br />

<strong>Foundation</strong> introduced a membership<br />

scheme. This was an important<br />

development, offering people the<br />

opportunity to join with us and add<br />

their voice to the only UK charity<br />

working to help everyone with a<br />

lung condition.<br />

Our 2,020 members who joined by the<br />

end of the year received the quarterly<br />

magazine, Breathing Space, campaign<br />

bulletin, access to all of our<br />

information leaflets, booklets and our<br />

Breathe Easy support network. In the<br />

future we aim to develop a members'<br />

area of the BLF website.<br />

4 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> has a two-fold mission:<br />

• To focus our resources on providing support for people affected<br />

by lung disease today.<br />

• To use a variety of means (including funding world-class research)<br />

to bring about positive change, to improve treatment, care and<br />

support for people affected by lung disease in the future.


support<br />

Breathe Easy – going from strength to strength<br />

The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>'s nationwide network of Breathe Easy<br />

groups for people with long-term lung conditions continues to grow,<br />

with 40 new groups opening during the year. The mission of<br />

Breathe Easy is to provide a network of friends, advisers, events and<br />

activities that support and empower people affected by lung disease.<br />

England<br />

We established 31 new Breathe Easy<br />

groups over the year, bringing the total<br />

number in England to 152, with a<br />

further 18 groups in development. In<br />

doing so the Breathe Easy network in<br />

England has extended its regular<br />

support to over 1000 people with<br />

respiratory disease and their carers.<br />

Groups have been proactive in raising<br />

awareness of lung disease in their<br />

localities, hosting 72 events during<br />

Breathe Easy Week and more than<br />

150 events during World COPD Day in<br />

November. Additionally, we undertook<br />

three large awareness raising events<br />

engaging specifically with minority<br />

ethnic communities.<br />

During the year, Breathe Easy group<br />

volunteers actively influenced and<br />

worked towards improving health care<br />

through local health fora. Their role is<br />

to work in partnership through<br />

consultation, by sharing patient<br />

experiences and representing the<br />

needs of people with respiratory<br />

disease in their area. Over the year,<br />

groups have pressed for the<br />

introduction of continued access to<br />

pulmonary rehabilitation,<br />

improvements in the availability of BLF<br />

literature in GP surgeries, the provision<br />

of lung function testing in GP surgeries<br />

and annual reviews for all patients.<br />

More BLF display boards were provided<br />

to hospitals in England over the year,<br />

and these are regularly updated by the<br />

Breathe Easy members.<br />

Breathe Easy volunteers and members<br />

have also taken part in many<br />

consultations and surveys about<br />

health service provision, and kept their<br />

local MPs updated on BLF and NHS<br />

services, support and developments.<br />

As the NHS restructure took place,<br />

Support and Development Managers<br />

“The most important thing has been to keep the<br />

meetings varied”<br />

…says Rose Durrans, who chairs the Breathe Easy Gloucester group that launched in February <strong>2007</strong>.” I was<br />

going to Birmingham hospital and was asked to set up a patient group there, but thought something more<br />

local would be much better. My respiratory nurse suggested contacting the BLF. Having healthcare<br />

professionals involved makes such a big difference as they speak to the people affected by lung disease<br />

and can recommend us.”<br />

“We’ve also made a big effort to publicise ourselves in the local newspapers, giving interviews when the<br />

group was launched and during Breathe Easy Week and we always get calls after something has been<br />

published. We have between 20 and 30 people attending our meetings – not always the same faces – and<br />

I’ve been told that is pretty impressive!”<br />

“I find the most important thing is keeping the meetings varied. So sometimes we focus on health and have<br />

people like physiotherapists come and give talks, which is very popular. But it doesn’t always need to be<br />

about the disease. We have also had artists come in to help inspire people to take up new hobbies. Most of<br />

us can’t get out and about easily so taking up something like painting is ideal for us as well as good fun.”<br />

6 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


“I receive phone calls all the time from people who have been<br />

diagnosed with COPD and have no idea how to deal with it”<br />

…says Carol Forsdyke, 64, Chair of Breathe Easy Islington. “The group was set up in March <strong>2007</strong> and since<br />

then we’ve gone from strength to strength. We now have over 30 members. We receive fantastic support<br />

from both the Islington PCT Respiratory Service and the consultants at University College Hospital.”<br />

“Our group is a very active campaigning group. We were represented at the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>’s ‘Meet<br />

the Patients’ reception at the House of Commons during Breathe Easy Week. Two of our members attended<br />

- Maureen Tricki and her husband - and they both found the whole experience a very rewarding one.”<br />

“I find being Chair of the group very rewarding. Even though I am ill myself I want to help others to cope<br />

with their lung condition and with the help of my husband, Maureen and Committee members, hopefully I<br />

do. I receive phone calls all the time from people who have been diagnosed with COPD and have no idea<br />

how to deal with it. I then send those who contact me free leaflets and information provided by the BLF<br />

and an invitation to attend our group. Many of our members have found that Breathe Easy Islington has<br />

given them the information; support and friendship that they needed to give them the confidence to cope<br />

with the reality of having a lung condition and deal with it in a positive way.”<br />

continue to identify, contact and build<br />

partnerships with appropriate<br />

respiratory and Long Term Conditions<br />

leads throughout the 10 Strategic<br />

Health Authorities and 152 PCT areas.<br />

We began to track PCT progress in<br />

respiratory services mapping and<br />

gathering intelligence and developing<br />

an overview of the state of services<br />

across English regions. This has proved<br />

challenging and time consuming.<br />

Managers now support many PCT<br />

working groups advising and sharing<br />

best practice with NHS staff.<br />

Facts and figures <strong>2006</strong>-07<br />

190 ➜ Breathe Easy groups across the UK<br />

9700 ➜ People attending Breathe Easy groups<br />

31,000 ➜ BLF’s supporter network<br />

300+ ➜ People who have used the Pen pal scheme<br />

“I started off with Breathe Easy soon<br />

after my Dad died”<br />

…says Nathan Ledger. “My Mum had started helping out with<br />

Breathe Easy. It was probably because we saw how much Dad<br />

suffered with his lung disease that we didn’t want anyone else to<br />

suffer that as well. It also makes you feel that you are not just taking<br />

but also giving back, this makes you not feel guilty. It does get a bit<br />

cold and wet and tiring standing outside on a stall trying to raise<br />

awareness, when people think you are trying to con them or sell<br />

something, but it is very worthwhile when you think of the people<br />

you have helped in the long run.”<br />

7 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


Scotland and<br />

Northern Ireland<br />

We continued our drive to reach more<br />

rural areas in Scotland opening BE<br />

groups in Borders and Dumfries and<br />

Galloway, and we also opened our<br />

fourth BE group in Northern Ireland –<br />

BE Lisburn. This brings the total<br />

number of group across Scotland and<br />

Northern Ireland to 20. <strong>2006</strong>-07 saw<br />

the first joint Scotland and Northern<br />

Ireland Breathe Easy Conference.<br />

In partnership with VOCAL Carers<br />

Centre, Edinburgh we launched the<br />

first expert respiratory carers’ course<br />

providing training and advice for<br />

people caring for someone living with<br />

a lung condition. Our Breathe Easy<br />

groups have been involved in a range<br />

of Healthboard and other initiatives<br />

providing the vital patient<br />

perspective to help shape<br />

appropriate services. Breathe Easy<br />

group members made up the focus<br />

groups for the Audit Scotland Report<br />

into long-term conditions.<br />

Elsewhere, <strong>2006</strong>-07 saw the<br />

development of two new respiratory<br />

managed clinical networks (MCN) in<br />

Scotland. NHS Forth Valley MCN was<br />

funded by £100,000 that the BLF<br />

helped secure from the Scottish<br />

Government Health Department,<br />

and NHS Lanarkshire launched its<br />

MCN in May. The BLF is represented<br />

on the Executive Group of these and<br />

the Grampian MCN.<br />

The campaign for Clinical Standards<br />

on COPD really got underway with<br />

the Christmas postcard campaign in<br />

December. We took the decision to<br />

lobby the Scottish Executive to<br />

develop a set of standards that will<br />

provide COPD patients with the<br />

same access to care and treatment,<br />

regardless of where in the country<br />

they live. We produced campaign<br />

postcards with the slogan "All I want<br />

for Christmas is … clinical standards<br />

for COPD", which we then distributed<br />

with the help of our Breathe Easy<br />

members, collecting signatures to<br />

return to the Minister for Health in<br />

time for Christmas <strong>2006</strong>.<br />

After gaining successful publicity for<br />

the campaign including television<br />

and radio news, and delivering over<br />

1000 signed postcards to the<br />

Minister for Health, we were pleased<br />

to have secured a meeting with the<br />

Minister, where we were in a unique<br />

position to push forward the BLF<br />

agenda in advance of the Scottish<br />

elections and the publication of the<br />

Audit Scotland Report which focused<br />

on COPD as one of the two longterm<br />

conditions studied.<br />

The Big Lottery Fund provided<br />

£64,000 for a Communications and<br />

Information project, which helped to<br />

raise both the awareness of lung<br />

disease in Scotland and the profile<br />

of the BLF by having over 250<br />

stories in the press and hosting 12<br />

outreach events.<br />

“It’s still early days, but the group is doing well and I think<br />

we’re going to carry on growing”<br />

…says John McKie, Chair of Breathe Easy Dumfries, which had its official launch in March <strong>2007</strong>. “The<br />

group is still in the early stages but we’re getting around 14 to 18 people at every meeting, which is a good<br />

start and I think we’re going to get bigger as time goes on. We have talks about things like how to give up<br />

smoking and speakers from other organisations like Age Concern come too, but we also try and set up<br />

other social events like a barbeque and trips out.”<br />

“An event we all really enjoyed was our ‘Walk in the Woods’. <strong>Lung</strong> disease can often be very isolating and<br />

people sometimes feel trapped at home, so it’s good to get out and about. We took it very slowly and it<br />

was a gentle walk – I think I was the one holding the rest of the group up!”<br />

“The next big thing we’re planning is a Christmas meal for the group. Breathe Easy Dumfries has had great<br />

support, my hope is that we will carry on expanding.”<br />

8 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


Wales<br />

Since opening our first national office<br />

in Wales, in late 2005, 17 new<br />

Breathe Easy groups have been<br />

opened in Wales, bringing the total<br />

to 19. With so many new people<br />

there have been great opportunities<br />

– through ‘Meet the Patients’ at the<br />

Welsh Assembly, conferences and the<br />

officers forum – to network and join<br />

together to make one big voice for<br />

lung disease in Wales.<br />

A survey of all the membership<br />

showed that over 80 per cent felt<br />

that, since joining Breathe Easy,<br />

they understood their condition<br />

more, felt more supported and had<br />

an improved relationship with their<br />

health professionals. Together, we<br />

are determined to make a difference.<br />

It has been a busy year too for<br />

fundraising in Wales. On a misty day<br />

in the beautiful Neath Valley, South<br />

Wales, members of Breathe Easy<br />

Neath group, their friends and<br />

families, took part in a sponsored<br />

abseil which raised close to £6,000.<br />

Part of the proceeds will be spent<br />

locally and the remainder allocated<br />

to the BLF’s work in Wales and with<br />

children across the UK.<br />

Rosemary Butler, Welsh Assembly<br />

Member and Deputy Presiding Officer,<br />

with Margaret Zier, Chairwoman of<br />

Breathe Easy Newport<br />

“Being part of Breathe Easy is not only fun but very fulfilling”<br />

…says Margaret Barnard, of Breathe Easy Neath Valley. 63 year old Margaret helped to form her local<br />

Breathe Easy group after she was diagnosed with COPD and is currently the Secretary. Margaret was a<br />

primary school teacher, but retired early because of the impact the condition had on her life.”<br />

“I am one of the founder members of Breathe Easy Neath Valley. We have been together for 19 months<br />

now and go from strength to strength. We support each other with tips and hints. We fundraise for the local<br />

pulmonary rehabilitation unit and the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>, but, most of all we have fun. Being involved<br />

with the BLF and trying to improve the situation for myself and all others like me is actually very fulfilling.<br />

Breathe Easy Neath Valley has also helped me to remain positive and focus on what I can do rather than<br />

what I can’t do anymore.”<br />

Children’s services<br />

Our Baby Breathe Easy pilot has now<br />

come to an end, which helped 320<br />

families and children. During the year<br />

we undertook a full evaluation of this<br />

innovative pilot scheme, to assess the<br />

benefits to parents of babies and<br />

young children with lung disease and<br />

breathing problems.<br />

The pilot has taught the BLF many<br />

things, including the need to support<br />

parents in a tailored way – many<br />

parents told us they found it difficult<br />

to attend group meetings because of<br />

the demands of childcare.<br />

Baby Breathe Easy gave us an<br />

invaluable opportunity to evaluate<br />

the kind of support that parents<br />

want. Following full discussions<br />

throughout the organisation, we have<br />

decided to change the way we deliver<br />

support for parents and children and<br />

try to reach more people. This has led<br />

to the closing of the nine Baby<br />

Breathe Easy groups and transferring<br />

the service on to the BLF Helpline<br />

where a paediatric respiratory nurse<br />

and parent counsellors will work.<br />

Our initial task is to ensure that the<br />

families who were receiving support<br />

from the nine group organisers are<br />

transferred to the telephone help they<br />

had indicated they would like, and<br />

then to publicise the service wider in<br />

order to reach more people. The BLF<br />

continues to provide information on<br />

childhood lung diseases, on its<br />

website and through printed leaflets,<br />

and also encourages people to<br />

support each other through its penpal<br />

patient networking scheme.<br />

We plan to promote and expand the<br />

service over the year ahead.<br />

9 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


Information and publications<br />

The reach of the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> continues to grow. Over the<br />

year we distributed larger numbers of publications, increased website<br />

traffic and received more calls to our helpline. We are helping more<br />

people as we work towards positioning the BLF as the leading expert<br />

voice on all lung disease.<br />

BLF Helpline<br />

Our Helpline, based in Liverpool, has<br />

been operating since March 2005. It<br />

is staffed by respiratory nurses and<br />

welfare benefits advisers who provide<br />

advice on a broad range of topics,<br />

principally by phone, but also by<br />

email and post. Volunteers provide<br />

vital administrative support for the<br />

service. The team handled 13,434<br />

calls this year, a 16 per cent increase<br />

on the previous year.<br />

In particular, we continued to receive<br />

large numbers of calls during the<br />

summer of <strong>2006</strong> about the changes<br />

in the arrangements for providing<br />

home oxygen. And in April <strong>2007</strong>, the<br />

Helpline was involved in the BLF’s first<br />

television campaign which was<br />

broadcast in the Yorkshire region. This<br />

campaign generated 686 calls to the<br />

Helpline over a five-week period.<br />

Plans are underway to expand the<br />

service with the addition of a<br />

paediatric nurse and parent<br />

counsellor to the Helpline team. This<br />

will help the BLF provide more<br />

specialist support to parents of<br />

children with a lung condition.<br />

BLF Publications<br />

We distributed 970,474 items of<br />

literature during the course of <strong>2006</strong>-<br />

07, covering a range of lung<br />

condition and related topics. This was<br />

a 20 per cent increase on the<br />

previous year. BLF leaflets and<br />

brochures are provided to patients<br />

and health care professionals free-ofcharge.<br />

We produced new<br />

publications during the year on<br />

complementary therapies, dealing<br />

with anxiety, lung cancer, sarcoidosis<br />

and the special reports, ‘An unnatural<br />

death’ and ‘Lost in translation’.<br />

The majority of our patient leaflets<br />

and booklets are distributed through<br />

hospitals and respiratory clinics. We<br />

want to encourage more hospitals to<br />

distribute BLF publications and so we<br />

continue to provide leaflet display<br />

boards for this purpose. In <strong>2006</strong>-07<br />

we delivered display boards to<br />

another 55 hospitals, taking the total<br />

in use to 282.<br />

With the growth in demand for BLF<br />

publications, and the expanding<br />

range of charity literature, the time<br />

had come to review the way we<br />

process orders and distribute printed<br />

publications. It was no longer possible<br />

to meet the need using a<br />

combination of staff and volunteers<br />

working out of head office. The<br />

decision was taken therefore to<br />

outsource the fulfillment of<br />

publication requests, and this new<br />

arrangement started in August <strong>2006</strong><br />

and has been working well.<br />

Following the launch of the BLF<br />

membership scheme in January<br />

<strong>2007</strong>, Breathing Space became the<br />

magazine for BLF members. It<br />

continues to feature a wide range<br />

of topics on lung health and BLF<br />

activities, as well as general<br />

interest articles.<br />

BLF Website<br />

The popularity of our website<br />

continues to grow. This year the site<br />

was visited by 845,000 people, an<br />

increase of 37 per cent over 2005-06.<br />

We are planning to redesign the BLF<br />

website, and to incorporate a Content<br />

Management System (CMS) that will<br />

allow the site to become much more<br />

dynamic and responsive. The new<br />

website will be launched in the<br />

autumn of <strong>2007</strong>.<br />

10 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


This year we aimed<br />

to help more people<br />

with lung disease.<br />

We sent out 20% more<br />

publications, received<br />

37% more unique<br />

visitors to our website,<br />

and responded to 16%<br />

more calls through<br />

our Helpline.


<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Nurses<br />

Following the successful launch of<br />

the BLF Nurse programme the<br />

previous year, 23 BLF Nurses are<br />

now operating in six areas in<br />

England and Scotland, in Glasgow,<br />

Oldham, Bristol, Sefton, Central<br />

Lancashire and Calderdale. BLF<br />

nurses work across the spectrum of<br />

respiratory disease, although the<br />

majority of patients have a<br />

diagnosis of COPD.<br />

The nurses are delivering expert<br />

care and support to patients and<br />

carers in their own homes. They also<br />

deliver tailored education<br />

programmes to community matrons,<br />

district and practice nurses,<br />

pharmacists, physiotherapists and<br />

other health professionals.<br />

BLF Nurses have supported over<br />

3000 patients during the course of<br />

the year. They help by monitoring<br />

patients’ symptoms, stabilising their<br />

conditions and with advice on<br />

lifestyle, nutrition and medication.<br />

Collectively the BLF Nurses provided<br />

more than 1000 medication reviews<br />

over the year and prevented over<br />

300 hospital admissions.<br />

The nurses are also developing<br />

innovative practice and are involved<br />

in the Primary Care Organisation<br />

decision-making fora.<br />

BLF Nurses supported over 3000 patients<br />

during the year, improving the quality of life<br />

for people affected by lung disease.<br />

“Everyone should have a <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Nurse<br />

like Mary”<br />

…enthuses Adrian Parker, who has had COPD for 10 years but has never spent time in hospital until last<br />

year, when he collapsed at home. His worried wife Barbara rang 999 and Adrian was rushed to Preston<br />

Royal Infirmary. He stayed there for five weeks and wasn’t expected to survive.<br />

Adrian says the fact that he is still around, nearly one year after that hospital stay, is<br />

largely thanks to his <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> nurse, Mary Tomlinson. Mary is a<br />

specialist respiratory nurse who has supported Adrian through regular home visits.<br />

Each time she visits, she runs through a series of checks to monitor Adrian’s health<br />

and helps him manage his medication. Over the past year Mary has ensured that<br />

Adrian receives the home nursing and physiotherapy he relies on.<br />

Adrian says: “One of the most important things I have learnt about COPD is not to<br />

Mary Tomlinson let problems build up. Mary gives me lots of practical help and advice on managing<br />

my condition. I know that she is checking on my health on an ongoing basis and<br />

helping me to avoid anything drastic happening. That has helped me feel a lot more confident about<br />

my condition.”<br />

“Mary is a very special person – she is one in a million,” says Adrian. “I can’t describe the difference she has<br />

made to my life – but I can tell you that everyone with COPD should have a specialist nurse like her.”<br />

12 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


Being BLF Active<br />

“I was so delighted about how much better<br />

I felt, I just wanted to keep going”<br />

…says Ellen Smith, 73, from Aire Valley in the North East. “I was part<br />

of the BLF Active pilot scheme. I’m still doing exercise. I have<br />

bronchiectasis and asthma, and it really does help. It gives me<br />

confidence and helps with my balance, which is really important<br />

because I’m 73 now – most of us are knocking on! Recently I had<br />

an appointment and I saw the bus coming, and I ran. It didn’t take<br />

long for me to recover my breath. When things like that happen,<br />

you can cope better. Before I would have missed the bus.”<br />

It is well known that people with severe<br />

lung problems can benefit from even<br />

small amounts of exercise, and it really<br />

is worth keeping as active as possible.<br />

By gradually building up their exercise,<br />

over time people can often improve<br />

their breathing and feel better. That is<br />

why in its Charter the BLF calls for<br />

pulmonary rehabilitation, with followup<br />

exercise classes to be made<br />

available to all those who could benefit.<br />

Pulmonary rehabilitation is very<br />

important in encouraging people with<br />

lung disease to start exercising in the<br />

right way. But the <strong>British</strong> <strong>Lung</strong><br />

<strong>Foundation</strong> believes it is also vital that<br />

people are encouraged to continue<br />

exercising. This follows earlier BLF<br />

work testing the usefulness of physical<br />

exercise classes.<br />

In <strong>2006</strong>-07 we worked with health<br />

care professionals and<br />

Loughborough University to develop<br />

a Chronic Respiratory Diseases<br />

Exercise course which will equip<br />

fitness instructors to provide exercise<br />

classes. We also developed a bursary<br />

scheme - with funding from Air<br />

Products - for fitness instructors.<br />

Instructors who successfully<br />

complete the course will be able to<br />

set up BLF Active classes in their own<br />

community. These classes are<br />

designed to complement rather than<br />

substitute for pulmonary<br />

rehabilitation classes.<br />

We wanted to<br />

develop an exercise<br />

training programme<br />

for fitness<br />

instructors, tailored<br />

to the needs of<br />

people with chronic<br />

lung disease.<br />

“I feel better now than I did more than a decade ago thanks to<br />

the exercise classes”<br />

…says Roy Davies, 78, from Leicester who was diagnosed with bronchiectasis 25 years ago. “I’ve always<br />

been told about how being afraid of feeling breathless leads to a downward spiral of being less active and<br />

therefore even more at risk of breathlessness attacks. The exercise classes have helped to break that<br />

vicious cycle and I feel fitter now than I did 11 years ago when I retired as a shopkeeper. We all felt such<br />

benefits that even when the six months were up, most of our group kept going. I can now do more of the<br />

housework and gardening than I used to be able to, which is especially important because my wife is<br />

slightly disabled. It feels good not to have to depend so much on other people.”<br />

13 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


change<br />

The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>’s campaigning was more focused this<br />

year, particularly with regard to Chronic Obstructive Pulmonary<br />

Disease (COPD), a condition which has an extremely low profile in the<br />

UK despite being our fifth biggest killer disease. We also celebrated<br />

the introduction of smoking bans across the UK.<br />

Progress across the UK<br />

In England … we are playing a<br />

constructive role in the development<br />

of the National Service Framework<br />

for COPD (see pages 18-19).<br />

In Scotland … the BLF ran a major<br />

campaign calling for the development<br />

of clinical standards for COPD to be<br />

implemented through Managed<br />

Clinical Networks in every Health Board<br />

area of the country (see page 8).<br />

In Northern Ireland … following the<br />

development of new Breathe Easy<br />

groups, the BLF has taken a seat on<br />

the Regional Respiratory Forum that<br />

is looking at the implementation of<br />

the Strategic Framework for<br />

Respiratory Conditions.<br />

In Wales … we continue to be<br />

involved in the development of<br />

Service Development and Commission<br />

Directives for Respiratory Conditions.<br />

World COPD Day<br />

To mark World COPD Day in<br />

November <strong>2006</strong>, the <strong>British</strong> <strong>Lung</strong><br />

<strong>Foundation</strong> launched a campaign<br />

aimed at finding the ‘Missing Millions’<br />

of people living with undiagnosed<br />

COPD. The campaign reached more<br />

than 22.5 million people through a<br />

combination of: free lung testing road<br />

shows in COPD ‘hotspot’ areas; a<br />

national and regional PR campaign;<br />

and awareness-raising activities<br />

around the UK.<br />

‘Missing Millions’ road shows staffed<br />

by qualified lung technicians,<br />

respiratory nurses and smoking<br />

cessation advisors offered free lung<br />

function tests and information about<br />

COPD and the BLF to the public in<br />

prominent sites in four major<br />

shopping centres in England. Nearly<br />

1000 people were tested in all, with<br />

131 people being referred to their GP<br />

as a result.<br />

A national and regional media<br />

campaign communicated World<br />

COPD Day key messages. Case<br />

14 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


“It was a great privilege to be invited to speak to MPs at the House of Commons for the <strong>British</strong> <strong>Lung</strong><br />

<strong>Foundation</strong>’s World COPD Day parliamentary dinner. I was extremely grateful for the opportunity to<br />

represent the views of primary care physicians to such a distinguished audience and talk about the key<br />

policy developments, such as the forthcoming National Service Framework for COPD.”<br />

“My perception of politics had always been the arguing and point-scoring that you see on the television,<br />

but I found it really reassuring that the politicians at the dinner really wanted to improve services at a local<br />

level and were passionate about doing so. It was good to see them so committed to helping people with<br />

lung disease and thinking about what needs to be done in the future to really make a difference.”<br />

Dr Steve Holmes, General Practitioner in Shepton Mallet<br />

Chair of the General Practice Airways Group<br />

studies, spokespeople and celebrities<br />

(Richard Wilson, William Roach,<br />

Tamsin Greig and Joseph Milson)<br />

were recruited to support the<br />

campaign. The BLF’s Breathe Easy<br />

groups held more than 100<br />

awareness-raising events across the<br />

UK and took part in local PR. Online<br />

‘email your MP’ and letter<br />

campaigns were organised to<br />

engage support for an Early Day<br />

Motion (Westminster), Statements of<br />

Opinion (National Assembly for<br />

Wales), and Motion (Scottish<br />

Parliament) supporting the <strong>British</strong><br />

<strong>Lung</strong> <strong>Foundation</strong>’s campaign.<br />

Parliamentary dinners were also held<br />

to mark World COPD Day at the<br />

House of Commons and at the<br />

National Assembly for Wales.<br />

The campaign achieved some<br />

fantastic media coverage reaching a<br />

potential audience of more than 22<br />

million people, including a ‘live’ lung<br />

testing clinic on ITV’s This Morning<br />

featuring BLF spokesperson<br />

Eve Cowdell and articles in the<br />

Daily Express and Daily Mail’s<br />

You Magazine.<br />

Smoking bans<br />

The BLF welcomed the smoking bans<br />

that came into force across the<br />

country in <strong>2006</strong> and <strong>2007</strong>. Scotland<br />

has now celebrated a year of being<br />

smoke-free after becoming the first<br />

nation within the UK to ban lightingup<br />

in enclosed public places in March<br />

<strong>2006</strong>. They were followed by Wales<br />

on the 2 April <strong>2007</strong>, Northern Ireland<br />

28 days later and finally England on<br />

the 1 July. These were important<br />

events for the BLF and followed<br />

sustained campaigning in<br />

conjunction with other health<br />

charities to secure comprehensive<br />

legislation and appropriate<br />

regulations for the new law.<br />

A survey of Breathe Easy members<br />

showed that an overwhelming<br />

majority felt the bans gave them a<br />

new lease of life and meant they<br />

would no longer live in fear of an<br />

attack of breathlessness brought on<br />

by second-hand smoke. Many<br />

members welcomed them by holding<br />

their first meeting ever in a newly<br />

smoke-free venue and invited the local<br />

press along to celebrate with them.<br />

Tobacco control policies continue to<br />

be of importance and the BLF<br />

responded to Government<br />

consultations regarding the legal age<br />

of sale for tobacco products,<br />

supporting an increase from age 16<br />

to age 18.<br />

This year we aimed to increase broadcast media coverage<br />

about lung disease by 15% - we actually achieved<br />

an increase of 300%.<br />

15 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


<strong>Lung</strong> Health<br />

Awareness Day<br />

In May <strong>2007</strong> the BLF joined forces<br />

with the House of Commons’<br />

Occupational Health Safety and<br />

Welfare Service to hold a third <strong>Lung</strong><br />

Health Awareness Day. 150<br />

members of House of<br />

Commons/Lords staff took a<br />

spirometry test. 80 MPs and two<br />

Members of the House of Lords<br />

agreed to support the <strong>British</strong> <strong>Lung</strong><br />

<strong>Foundation</strong>’s ‘Missing Millions’<br />

campaign and took part in a photo<br />

call for their local media.<br />

Action Mesothelioma<br />

Day<br />

This year saw real progress on the<br />

Action Mesothelioma Charter, with<br />

the launch of a new Department of<br />

Health initiative to improve services<br />

for people with mesothelioma in<br />

England and an announcement of<br />

improvements to the way<br />

mesothelioma compensation claims<br />

are handled.<br />

Both were the highlights of a BLF<br />

Parliamentary Reception at the<br />

House of Commons on Action<br />

Mesothelioma Day on 27 February<br />

attended by 35 MPs, where speakers<br />

included National Cancer Director,<br />

Professor Mike Richards and<br />

Department for Work and Pensions<br />

Minister Jim Murphy MP. The event<br />

was one of many marking Action<br />

Mesothelioma Day around the<br />

country, including a balloon release in<br />

Gateshead attended by Health<br />

Minister Rosie Winterton MP, and<br />

rallies and meetings in Leicester,<br />

Liverpool, Manchester, Leeds,<br />

Sheffield, Chesterfield, Rotherham and<br />

Doncaster. The charity received good<br />

media coverage for this campaign,<br />

reaching a potential audience of<br />

more than 28 million people.<br />

The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> also<br />

published a report into the impact<br />

of Coroner’s procedures on<br />

bereaved families following<br />

concerns that these families found<br />

the process unsympathetic and<br />

distressing at a very difficult time.<br />

Work has continued in this area,<br />

with the Ministry of Justice, The<br />

Coroner’s Society of England and<br />

Wales, the Coroner’s Officers<br />

Association and the Association of<br />

Chief Police Officers, in an attempt<br />

to make improvements to the<br />

current system.<br />

We met our target to deliver three<br />

high-profile campaigns about lung disease,<br />

and launched the BLF Charter.<br />

Breathe Easy Week<br />

launches the<br />

BLF Charter<br />

This year’s Breathe Easy Week, from<br />

11-17 June, saw Breathe Easy<br />

members across the UK ‘Blowing the<br />

Whistle on <strong>Lung</strong> Disease’. We used<br />

the week to launch the BLF Charter,<br />

setting out our 12 priorities for<br />

improving the UK’s record on lung<br />

disease. The results of a survey of<br />

1000 Breathe Easy members were<br />

released to the press showing that<br />

almost two thirds wanted respiratory<br />

disease to be a priority for their local<br />

healthcare services; that nearly half<br />

wanted an end to the postcode<br />

16 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


lottery of treatment and care, and<br />

more than a third highlighted the<br />

lack of respiratory specialists in<br />

the NHS.<br />

Breathe Easy members had a<br />

chance to put these points to their<br />

MP in person when they travelled<br />

from all over England and Wales to<br />

‘Meet the Patients’ events in<br />

Westminster and the Welsh<br />

Assembly. Former Health Minister<br />

Andy Burnham MP was among<br />

more than 40 MPs who got to hear<br />

first hand from people with lung<br />

disease about the impact it has on<br />

their lives and who were asked to<br />

support the BLF Charter. In Wales,<br />

more than half of Assembly<br />

Members attended to talk to their<br />

constituents and sign the Charter.<br />

Signatures in support of the Charter<br />

are continuing to be collected both<br />

on paper and online – go to<br />

www.lunguk.org to sign up.<br />

Around the country more than 100<br />

events marked the launch of the Blow<br />

the Whistle campaign, including an<br />

abseil off the Dinas Rock in Wales, a<br />

whistle-blowing bingo session, nine<br />

lung testing events and a boat trip in<br />

the North East which went ahead<br />

despite local flooding in the area!<br />

A press campaign focused on the<br />

results of the Breathe Easy survey,<br />

highlighting the stigma associated<br />

with lung disease and how people<br />

with respiratory disease felt they<br />

received a raw deal from the NHS.<br />

Media coverage generated included<br />

188 regional TV and radio interviews<br />

and 74 regional newspaper articles.<br />

Home oxygen<br />

In February <strong>2006</strong> the Government<br />

introduced a new system for the<br />

supply of oxygen to people living<br />

with long term respiratory conditions<br />

and other diseases that are treated<br />

with oxygen therapy. Immediately<br />

after the change, people reported<br />

considerable problems with the new<br />

service and disruption to their supply.<br />

Throughout <strong>2006</strong> and <strong>2007</strong>, the<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> continued to<br />

press government ministers behind<br />

the scenes for improvements to the<br />

new Home Oxygen Service. This<br />

worked. A survey of Breathe Easy<br />

members in April <strong>2007</strong> showed<br />

significant improvements in the<br />

service, with most respondents<br />

saying they were no longer<br />

experiencing problems with their<br />

oxygen supply, and most describing<br />

the overall service, helpline and<br />

servicing of equipment as excellent,<br />

very good or good. Holiday provision<br />

of oxygen is still causing some<br />

problems, and we will continue to<br />

work for improvements.<br />

“I never imagined I’d be on telly, but I really enjoyed it and<br />

wasn’t as nervous as I thought I’d be”<br />

…says Eve Cowdell, 57, who appeared on This Morning as part of World COPD Day <strong>2006</strong>. Eve lives in<br />

Grimesthorpe in South Yorkshire and was diagnosed with COPD in 2005. “They brought me down the night<br />

before and put me up in a nice hotel. The next morning I got driven to the studios, which weren’t how I<br />

expected. I thought I’d be really nervous, but I wasn’t. I think having my hair and make up done relaxed<br />

me. Dr Chris as well as Fern and Phillip were really lovely and had definitely done their research.”<br />

“I’ve had lung problems since my 20s despite never being a smoker and really regret that my COPD wasn’t<br />

picked up on earlier, as it meant I went through a very stressful time. That was the message I wanted to<br />

get across – that people should get themselves tested. It seemed to work. As part of This Morning we went<br />

out on to London’s South Bank and did spirometry tests on passers by. Some days after the show I<br />

popped in to see how the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> roadshow was getting on in Sheffield and loads of<br />

people there had come along after seeing me on TV, which was really amazing. I even got roped into<br />

doing something for Yorkshire TV while I was there, so I almost felt like a celebrity for the day!”<br />

Most of Eve’s village also saw her performance. “My vicar taped This Morning and then played the video to<br />

the whole congregation! I definitely enjoyed the day and the whole experience that went with it.”<br />

17 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


Putting the spotlight on COPD<br />

COPD Project<br />

The BLF established its COPD Project<br />

in January <strong>2007</strong> in direct response to<br />

the announcement of the National<br />

Service Framework (NSF) for Chronic<br />

Obstructive Pulmonary Disease. NSFs<br />

are 10 year strategies which commit<br />

health care providers to raising<br />

standards and to ensuring that<br />

everyone gets the same level of good<br />

quality care no matter where they<br />

live. This was a major announcement<br />

by the Department of Health in<br />

<strong>2006</strong>, and is the first ever NSF for a<br />

respiratory disease in England.<br />

The COPD Project is one of the<br />

largest projects undertaken by the<br />

BLF and has been made possible by<br />

an educational grant from<br />

GlaxoSmithKline. Over three years,<br />

the project aims to mobilise the BLF’s<br />

internal resources and to work in<br />

partnership with other organisations<br />

to prepare for the launch and<br />

subsequent implementation of the<br />

NSF in 2009. The project is focussing<br />

on four key themes: Awareness<br />

Raising, Knowledge Exchange,<br />

Support and Advocacy.<br />

The activities undertaken so far<br />

include establishing a dedicated<br />

COPD Project Team and two project<br />

stakeholder reference forums; one of<br />

pharmaceutical industry<br />

representatives to develop a<br />

consortium of industry partners to<br />

support the BLF’s work in COPD, and<br />

another of patients living with COPD<br />

and their carers. Seven regional<br />

patient and carer forum workshops<br />

across England are planned to better<br />

understand what issues patients and<br />

their carers face in managing their<br />

condition; this is instrumental in<br />

identifying new ways for the<br />

organisation to respond to their<br />

needs. Plans are in place to develop a<br />

similar forum for health and social<br />

care professionals with an interest in<br />

COPD, to explore how the BLF can<br />

support local implementation of the<br />

NSF standards.<br />

So far, we have made strides<br />

particularly in raising awareness<br />

among the general public about the<br />

signs and symptoms of COPD,<br />

encouraging people to adopt healthy<br />

lifestyles such as stopping smoking,<br />

and also signposting people to their<br />

local healthcare professionals for<br />

more advice and information. With<br />

the support of a Department of<br />

Health Section 64 grant, the project<br />

has coordinated 12 COPD public<br />

awareness raising events across<br />

England. These events have attracted<br />

an estimated footfall of over 5,000<br />

Our COPD Project Team has coordinated<br />

public awareness-raising events<br />

across England.<br />

18 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


“I was astonished that a room filled with doctors and health<br />

experts wanted to listen and understand my point of view”<br />

…says former miner Pat Crowe (pictured right), aged 57, chairman of Mansfield and Ashfield Breathe Easy<br />

group in the Midlands. “I was diagnosed with COPD in 2002 after being misdiagnosed with asthma since<br />

1989 and was really pleased when the Government announced<br />

they were developing a National Service Framework for COPD<br />

because it meant that at last people like me would be more of a<br />

priority for our local health services. When the <strong>British</strong> <strong>Lung</strong><br />

<strong>Foundation</strong> asked if I would attend some workshops organised<br />

by the Government to canvas the opinions and views of<br />

patients with COPD, I jumped at the chance.”<br />

“I attended three out of four workshops all over the country<br />

and each one focused on a different subject - pulmonary<br />

rehabilitation, treatment management, palliative care, early<br />

diagnosis, the smoking ban, medicines, devices and<br />

alternative therapies. I was absolutely astonished how the<br />

health professionals and lung health experts who attended the<br />

workshops were so keen to listen to mine and other patients opinions and<br />

it was also great to see that the majority of patients attending the workshops were<br />

Breathe Easy members proudly representing the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>”<br />

“I can honestly say that I found the whole experience very worthwhile and interesting. I just hope now<br />

that the Government will go on to create a worthwhile document which will be implemented in a practical<br />

and useful way to help make the lives of future generations of patients living with COPD a little easier.”<br />

and of the 248 people who<br />

undertook lung function screening at<br />

these events, 33 (13%) were<br />

referred to their GP for further advice<br />

and assessment.<br />

Members of the COPD Project Team<br />

have visited various Breathe Easy<br />

groups in England and have been<br />

supporting BLF regional staff to<br />

spread the word about the NSF and<br />

the charity’s COPD Project. At these<br />

events, we have been getting a sense<br />

of what patients and carers want,<br />

not only out of the NSF, but also<br />

from the BLF in the future.<br />

The COPD project is very much taking<br />

their lead and members like Pat Crowe<br />

have been very supportive in looking at<br />

how we roll out our activities.<br />

Influencing the<br />

National Service<br />

Framework for COPD<br />

The Chief Executive is a member<br />

of the External Reference Group for<br />

the Department of Health advising<br />

on the content of this NSF. She is<br />

co-chairing the Patient Awareness<br />

and Prevention and Awareness<br />

Raising Subgroups as part of this<br />

work. The advice from the External<br />

Reference Group will be given to<br />

Ministers in January 2008 and the<br />

Department of Health will then take<br />

on drafting the NSF with a view to<br />

making it public towards the end<br />

of 2008.<br />

We planned to<br />

establish a COPD<br />

Project Team and to<br />

engage with patients,<br />

carers and other<br />

partners about the<br />

forthcoming NSF<br />

for COPD.<br />

19 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


BLF Research – giving hope for the future<br />

This year has been spent<br />

consolidating the <strong>British</strong> <strong>Lung</strong><br />

<strong>Foundation</strong>’s investment in medical<br />

research and developing a new<br />

strategy for the way in which we<br />

allocate funding to research. During<br />

the year the BLF made two important<br />

research awards:<br />

Dr Zsuzsanna Tabi from the School of<br />

Medicine at Cardiff University has<br />

received £139,000 from the BLF June<br />

Hancock Mesothelioma Research<br />

Fund to study a new type of<br />

treatment for mesothelioma, a cancer<br />

caused by past exposure to asbestos.<br />

The grant will enable her to<br />

investigate the possibility of<br />

developing an immune therapy<br />

treatment for mesothelioma, using<br />

the patient’s own immune cells to<br />

attack the tumour cells.<br />

Dr Ling-Pei Ho of University of Oxford<br />

has received the Henry Shelford<br />

award for research into sarcoidosis.<br />

Dr Ho was awarded £50,082 for her<br />

project looking at the role that our<br />

genes play in the development of<br />

long-term progressive sarcoidosis.<br />

We also awarded 20 Travel Fellowship<br />

awards of £750 each to respiratory<br />

scientists to enable them to attend the<br />

European Respiratory Society annual<br />

congress in Munich in September<br />

<strong>2006</strong> and nine Travel Fellowship<br />

awards of £750 each to the American<br />

Thoracic Society annual congress in<br />

San Francisco in May <strong>2007</strong>.<br />

Although it may appear this year’s<br />

investment into medical research has<br />

been smaller than usual, this is simply<br />

a consequence of delaying the<br />

awarding of the majority of research<br />

funds raised in <strong>2006</strong>-07 until<br />

November <strong>2007</strong> (see box for a fuller<br />

explanation of this).<br />

New research strategy<br />

As the only UK charity that<br />

supports research into all forms of<br />

lung disease, the BLF recognises the<br />

need for a robust strategy that will<br />

help make the most of our<br />

investment in medical research. In<br />

consultation with the wider UK<br />

respiratory research community, the<br />

BLF’s Scientific Committee has now<br />

developed a three-stranded<br />

research strategy:<br />

• Capacity Building - helping<br />

scientists to begin and maintain a<br />

career in lung research.<br />

• Research Prioritisation - ensuring<br />

our research tackles the most<br />

important questions in lung<br />

disease.<br />

• Patient-Centred Communication –<br />

improving the way we tell nonscientists<br />

about the work we fund.<br />

The BLF will also continue to<br />

welcome opportunities in working<br />

with other organisations interested in<br />

funding respiratory research.<br />

Accounting for research grant awards<br />

The Charity Commission’s Statement of Recommended Practice (SORP) states that grant expenditure must be<br />

accounted for in the year it is allocated. In 2005-06, the BLF made its research awards before the end of the<br />

financial year, so that grant expenditure could be accounted for in the same year that the money was raised.<br />

However, as our accounts had not been audited at this point in time, the Scientific Committee did not know exactly<br />

how much money was available to allocate to new research grants. This made it difficult for the Committee to<br />

make informed funding decisions and has lead to changes in the timing of research fund allocations this year.<br />

It was agreed that the money raised for research in <strong>2006</strong>-07 should not be allocated until the financial audit for the<br />

year had been completed. The grants award meeting for distributing funds raised in <strong>2006</strong>-07 will therefore take<br />

place in November <strong>2007</strong>. To ensure compliance with SORP, the grants awarded in November <strong>2007</strong> will be<br />

accounted for in the <strong>2007</strong>-08 financial year. Therefore, details of this expenditure will appear in our <strong>2007</strong>-08<br />

annual review together with details of the awards made.<br />

20 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


In 2005-06 we<br />

planned to develop<br />

a new research<br />

strategy, to make<br />

sure we get the most<br />

from the funds we<br />

spend on medical<br />

research.<br />

TB researcher wins<br />

prestigious BLF award<br />

Innovative research aimed at<br />

combating TB has won the<br />

prestigious BTS/BLF Young<br />

Investigator of the Year award. These<br />

awards are designed to recognise and<br />

reward innovative research in lung<br />

disease and they attract around 100<br />

entries from young doctors every<br />

year. "It is crucial to encourage this<br />

kind of research from young doctors if<br />

we are to have any hope of achieving<br />

ground-breaking cures for lung<br />

disease in the future," says Dame<br />

Helena Shovelton. The winning<br />

research projects are expected to be<br />

published in the specialist medical<br />

magazine Thorax.<br />

Dr Clare Sander of Oxford (pictured<br />

below right), who is a Specialist<br />

Registrar in Respiratory Infection at<br />

the Royal Brompton Hospital in<br />

London, received the Young<br />

Investigator’s Prize for her work to<br />

improve the efficacy of the BCG<br />

vaccine to combat TB. After a period<br />

of decline in the UK, the most recent<br />

figures for 2005 showed the number<br />

of TB cases in England, Wales and<br />

Northern Ireland rising sharply<br />

by 10.8 per cent.<br />

Dr Rachel Hoyles of London, an<br />

Arthritis Research Campaign Clinical<br />

Research Fellow at the Royal<br />

Brompton Hospital and Royal Free<br />

and University College Medical<br />

School, was runner up in the Awards<br />

for her work on the causes of<br />

pulmonary fibrosis. Dr Phillippa<br />

Lawson of West Wickham,<br />

Cambridge, is a Wellcome Clinical<br />

Research Training Fellow at University<br />

College London, also received a prize<br />

for her investigation into possible<br />

genetic tendencies for sarcoidosis<br />

to occur.<br />

New BLF research<br />

spares children the pain<br />

of the needle<br />

Children could be spared the pain of<br />

the doctor’s needle when they are<br />

being treated for pneumonia, thanks<br />

to new research funded by the<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>. In the study,<br />

researchers at The University of<br />

Nottingham discovered that<br />

antibiotics taken orally are just as<br />

effective as those given<br />

intravenously in children with acute<br />

respiratory infection.<br />

In fact the study found that those<br />

patients given oral treatment<br />

recovered more quickly, suffered less<br />

pain, required less oxygen therapy in<br />

hospital and were able to go home<br />

sooner than those given injections.<br />

2.5 million children are affected by<br />

pneumonia each year in Europe.<br />

Over the last 5 to 10 years, increasing<br />

numbers of them have been<br />

admitted to hospital and treated with<br />

injected antibiotics.<br />

The findings suggest that these<br />

injections – endured by generations<br />

of children – may be unnecessary and<br />

could be replaced with oral doses of<br />

the medicine in the majority of cases.<br />

The research was led by Terence<br />

Stephenson, Professor of Child Health,<br />

and Dr Maria Atkinson, both of The<br />

University of Nottingham’s Medical<br />

School. The study is the first in the<br />

world to compare oral treatment<br />

versus IV treatment for children with<br />

community-acquired pneumonia who<br />

are unwell enough to need admission<br />

to hospital.<br />

Professor Stephenson said: “This is<br />

good news for children who hate<br />

injections; good news for parents<br />

whose children will spend less time in<br />

hospital; good news for paediatricians<br />

who hate sticking needles in children<br />

and good news for the NHS as less<br />

beds will be occupied and the<br />

treatment is cheaper.”<br />

The researchers conclude: “We<br />

suggest that in countries like the UK,<br />

all but the sickest children with<br />

community-acquired pneumonia<br />

should be treated with oral<br />

amoxicillin initially. We expect that<br />

the majority of children will still<br />

require hospital admission but for a<br />

shorter period to ensure oral<br />

medication is tolerated, and<br />

temperature and respiratory distress<br />

are settling. Most importantly,<br />

children will be spared the pain and<br />

distress that injections cause.”<br />

21 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


fundraising<br />

Strong performance by fundraising<br />

The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> relies on<br />

the generosity, support and<br />

commitment of many individuals, the<br />

business community, trusts,<br />

foundations and statutory sources to<br />

fund its work and activities.<br />

This year has been the most successful<br />

ever for the charity and we are<br />

profoundly grateful for the support<br />

given whether through money, time or<br />

sharing of resources. A record<br />

£6,215,982 was raised, 40 per cent<br />

higher than the previous year, reflecting<br />

the successful implementation of the<br />

five-year fundraising strategy and<br />

investment in staff posts. The cost of<br />

achieving this impressive result has<br />

been closely monitored and we are<br />

pleased that expenditure in these<br />

activities was 30 per cent lower than<br />

expected. Fundraising costs for the year<br />

were 13.1p for every £1 raised.<br />

Impressive results were achieved from<br />

the business development and trust<br />

and statutory teams who secured<br />

significant high return donations and<br />

funding to support key activities. A<br />

major donor programme has started<br />

and several one-off donations were<br />

received during the year towards<br />

research activities.<br />

There has been significant growth in<br />

income from charitable trusts,<br />

foundations, statutory sources and<br />

the business community. Collectively<br />

they have contributed £2,219,977<br />

and helped fund a wide range of new<br />

projects and core activities including<br />

medical research, high profile<br />

campaigns such as the World COPD<br />

Day Roadshow, Breathe Easy<br />

Awareness Days, the Helpline and the<br />

BLF Nurse programme. We were<br />

especially pleased to receive funding<br />

to produce and air the first BLF<br />

television campaign in the Yorkshire<br />

Television area and to fund the<br />

development of the charity’s COPD<br />

Project Team.<br />

Engaging individuals in events and<br />

regular giving programmes has been<br />

more challenging, although there<br />

were some positive results during<br />

the year. New activities including a<br />

BLF team in the New York Marathon<br />

and the London to Paris Bike Ride<br />

were well supported, together<br />

raising over £35,000, and existing<br />

activities such as Breath of Life<br />

Funds continue to perform well.<br />

Investment in payroll giving has<br />

delivered impressive returns with a<br />

70 per cent increase on the<br />

previous year. Legacy income<br />

continues to be an important source<br />

of income for the charity – this year<br />

gifts totalled £930,983. Established<br />

events such as the London<br />

Marathon, Great North Run, overseas<br />

treks and challenges, Midlands <strong>Lung</strong><br />

Run and the golf days continued to<br />

attract supporters and our thanks go<br />

to everyone who participated in<br />

these events and raised much<br />

needed funds.<br />

“I wanted to beat Matt Dawson and<br />

Gordon Ramsay and I did”<br />

…says James Thomlinson, 23, who has COPD and ran the London<br />

Marathon for the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>. “Running the marathon was<br />

a personal ambition, but if I was going to run for a charity, I wanted to<br />

run for the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>. I did it with two other friends and<br />

between us we raised nearly £7,000. While we were training we<br />

heard ex-England rugby player Matt Dawson and top chef Gordon<br />

Ramsay were running and decided we were going to beat them and<br />

we did. We even saw them on the course. Whenever we ran past<br />

other people wearing BLF T-shirts we cheered them on.”<br />

22 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


During the year we wanted to<br />

consolidate our progress<br />

towards building our base of<br />

sustainable funding.


Aim: to develop our<br />

major donor<br />

giving programme.<br />

Staff will continue to identify and<br />

attract new sources of support in line<br />

with the agreed five-year fundraising<br />

strategy in order to plan for future<br />

growth and development.<br />

This includes work on our major donor<br />

fundraising strategy. There has been<br />

generous support for medical research<br />

projects into the causes, treatments<br />

and better understanding of lung<br />

disease from a range of donors. We<br />

are particulaly grateful to Severin<br />

Wunderman for his gift. With one<br />

person in seven now affected by lung<br />

disease in the UK, the need for funding<br />

has never been greater - we hope to<br />

attract significant interest from current<br />

and prospective donors towards this<br />

Event supporters<br />

vital work in the coming year.<br />

We would like to express our gratitude<br />

to everyone who has supported the<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> during the<br />

year and helped make this one of our<br />

most successful ever.<br />

Television advertising<br />

helps spread the word<br />

The BLF received funding from<br />

Boehringer Ingelheim Limited and<br />

Pfizer Limited to develop and run a<br />

television advertising campaign to<br />

raise awareness of COPD and the<br />

BLF’s services. The 30-second advert<br />

was aired in April <strong>2007</strong> on Yorkshire<br />

Television (an area known to have a<br />

Our thanks go the many participants and supporters of the BLF’s<br />

fundraising events programme, including our celebrity supporters and<br />

the organisations which have contributed including:<br />

Brendan Reynolds<br />

Ray Wilkins<br />

BARTS<br />

Gary Lineker OBE<br />

Rob Bonnett<br />

Andrew Cotter<br />

Mark Foster<br />

Dan Lobb<br />

Celina Hinchcliffe<br />

Ed Stewart<br />

Sir Henry Cooper OBE<br />

Desmond Lynam<br />

Alex and Daniel Stewart and<br />

Nina Anderson<br />

Birmingham City Council<br />

Ashdown Forest Royal Golf Club<br />

higher than average incidence of<br />

COPD in the population) and ran for<br />

four weeks. Seen through the eyes of<br />

a person with COPD, the advert<br />

highlighted the difficulties and<br />

frustrations of coping with everyday<br />

tasks such as climbing the stairs and<br />

gardening. The viewer was invited to<br />

contact the BLF Helpline for support<br />

and advice to help them “breathe<br />

more easily”.<br />

The adverts were targeted at both<br />

women and men aged 60 and over<br />

with COPD or COPD symptoms.<br />

They were also intended to inform<br />

people of all ages who might know or<br />

care for someone with COPD or<br />

COPD symptoms.<br />

Throughout the campaign the BLF<br />

Helpline extended its normal weekday<br />

opening hours until 9pm in the<br />

evenings and additional temporary<br />

staff were taken on to handle the<br />

increased number of calls. Some 686<br />

calls were received as a result of people<br />

seeing and responding to the advert.<br />

The advert resulted in an increased<br />

uptake across other BLF services –<br />

additional COPD publications were<br />

requested, there was an increase in<br />

visits to the BLF website<br />

www.lunguk.org and an annual<br />

awareness survey conducted by GfK<br />

NOP highlighted that awareness of<br />

COPD and breathing problems in<br />

Yorkshire and Humberside increased<br />

on the previous year. BLF publicity<br />

generated 19 items of regional media<br />

coverage about the advertising<br />

campaign, reaching a potential<br />

audience of 872,396 people.<br />

24 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


Finance<br />

In <strong>2006</strong>-07 we achieved our highest ever income, just above our previous best performance in 2004-05 and 40 per cent<br />

higher than the previous year. This strong performance was due mainly to significant increases in income received from<br />

trusts, companies, individuals and legacy donations. The growth is also partly attributable to the wide range of fundraising<br />

initiatives which were put in place during 2005-06 in order to develop future income growth.<br />

Income<br />

Activities in relation to Breathe Easy and patient support £969,440<br />

Public education & literature £46,065<br />

Legacies £930,983<br />

In Memoriam £496,755<br />

Companies £964,800<br />

Trusts £1,255,177<br />

Individuals £919,595<br />

Events £398,263<br />

Investment incomes £234,904<br />

£6,215,982<br />

Expenditure<br />

Public education & literature £916,795<br />

Activities in relation to Breathe Easy and patient support £2,356,676<br />

Research grants £181,368<br />

Research department costs £79,639<br />

Campaigning and awareness raising £529,205<br />

Costs of generating voluntary income £816,990<br />

Governance costs £216,762<br />

£5,097,435<br />

Overall income<br />

£4,879,506<br />

£6,113,045<br />

£4,423,907<br />

£6,215,982<br />

2003 - 04<br />

2004 - 05<br />

2005 - 06<br />

<strong>2006</strong> - 07<br />

25 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


Income<br />

Income was £6,215,982 (<strong>2006</strong>:<br />

£4,423,907), up by just over<br />

£1,792,000 (40 per cent) from <strong>2006</strong>.<br />

Income streams with a significant<br />

increase on <strong>2006</strong> figures were: Trusts<br />

up £1,035,000, Companies up<br />

£706,000, Legacies up £348,000,<br />

and Individuals up £339,000. These<br />

were, however, offset by Activities in<br />

relation to Breathe Easy and patient<br />

support which were down by<br />

£321,000 and Public education and<br />

literature down by £298,000.<br />

Activities in relation to Breathe Easy<br />

and patient support includes the total<br />

income of Breathe Easy groups of<br />

£461,000 (<strong>2006</strong>: £401,000).<br />

Expenditure<br />

Expenditure totalled £5,097,435<br />

(<strong>2006</strong>: £5,157,654), a decrease of just<br />

over £60,000 (one per cent) against<br />

<strong>2006</strong>. Expenditure in <strong>2006</strong> included<br />

charitable expenditure of £596,000<br />

designated out of the 2005 surplus by<br />

the Trustees, which was spent in <strong>2006</strong>.<br />

The Costs of generating voluntary<br />

income include direct fundraising costs,<br />

salaries and overheads of fundraising<br />

staff. These costs decreased by 19 per<br />

cent in the year to £816,990, and<br />

equated to 13.1p for every £1 raised<br />

(<strong>2006</strong>: 22.8p). This decrease reflects<br />

our previously stated aim to refine our<br />

fundraising strategy to increase our<br />

income while maintaining a tight<br />

control on expenditure, in order to<br />

maximise our expenditure on our<br />

charitable activities.<br />

Expenditure on charitable activities<br />

increased by three per cent to<br />

£4,280,445 (<strong>2006</strong>: £4,146,893). Such<br />

expenditure equated to 68.9p for<br />

every £1 raised (<strong>2006</strong>: 82.6p). This<br />

figure is not directly comparable with<br />

last year because of the decision to<br />

delay the awarding of major research<br />

grants until November <strong>2007</strong>. If the<br />

planned research grants had been<br />

awarded in the <strong>2006</strong>-07 financial year<br />

this year’s ratio would have been<br />

80.8p for every £1 raised. Expenditure<br />

categories in relation to charitable<br />

activities are detailed above and<br />

include the expenditure of Breathe<br />

Easy groups, and the expenditure on<br />

salaries and overheads of staff<br />

involved in delivering our charitable<br />

objectives.<br />

This summarised information has<br />

been extracted from management<br />

information. These financial highlights<br />

may not contain sufficient information<br />

to allow a full understanding of the<br />

financial affairs of the charity. For<br />

further information, the full statutory<br />

accounts, the auditors’ report on those<br />

accounts and the Report of the<br />

Trustees should be considered. Copies<br />

of these will be available from the<br />

registered office once approved by the<br />

Board of Trustees at their meeting on<br />

28 November <strong>2007</strong>.<br />

Thank you!<br />

Grateful thanks to everyone who has volunteered, donated, remembered us in their Will, taken part in an event, started a<br />

Breath of Life Fund or made an in-memoriam gift during <strong>2006</strong>-07.<br />

Trust and foundation<br />

supporters<br />

Archer Trust<br />

Awards for All<br />

Big Lottery Fund<br />

Big Lottery Fund Scotland<br />

Burdett Trust for Nursing<br />

W A Cargill Fund<br />

City Bridge Trust<br />

Martin Connell Charitable Trust<br />

Department of Health (Section 64)<br />

John Ellerman <strong>Foundation</strong><br />

Eranda <strong>Foundation</strong><br />

Peter John Foord Charitable Trust<br />

Donald Forrester Trust<br />

Freemasons’ Grand Charity<br />

Greendale Charitable <strong>Foundation</strong><br />

King Edward VII Hospital, Midhurst<br />

Kirby Laing <strong>Foundation</strong><br />

Lloyds TSB <strong>Foundation</strong> for England<br />

and Wales<br />

Robert Luff <strong>Foundation</strong> Limited<br />

W M Mann <strong>Foundation</strong><br />

Merchants' House of Glasgow<br />

Miller <strong>Foundation</strong><br />

P F Charitable Trust<br />

Partick Queen Victoria Diamond Jubilee<br />

Benevolent Association<br />

Peacock Charitable Trust<br />

Rayne <strong>Foundation</strong><br />

The Muriel Edith Rickman Trust<br />

Rosetrees Trust<br />

Row Fogo Charitable Trust<br />

ShareGift (The Orr Mackintosh<br />

<strong>Foundation</strong>)<br />

Sir Samuel Scott of Yews Trust<br />

Henry Smith Charity<br />

Souter Charitable Trust<br />

Strathclyde Police Benevolent Fund<br />

Swire Charitable Trust<br />

Garfield Weston <strong>Foundation</strong><br />

Francis Winham <strong>Foundation</strong><br />

J & J R Wilson Trust<br />

James Wood Bequest Fund<br />

Zochonis Charitable Trust<br />

...and a number of trusts and<br />

foundations that wish to remain<br />

anonymous<br />

Corporate supporters<br />

Air Products PLC<br />

AstraZeneca UK Limited<br />

Boehringer Ingelheim Limited<br />

Garnett Keeler Public Relations<br />

GlaxoSmithKline<br />

Monster UK<br />

TMP Worldwide<br />

Novartis Pharmaceuticals UK<br />

Pfizer Limited<br />

Talteg Limited<br />

26 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


President<br />

Dr John Moore-Gillon MA MD FRCP<br />

Past president<br />

Sir John Batten KCVO MD FRCP<br />

Chairman<br />

Dr Keith Prowse BSc MD FRCP<br />

Vice Presidents<br />

Greta Barnes MBE<br />

Prof Peter Barnes DM DSc FRCP FMedSci<br />

Sir Christian Bonnington CBE<br />

Prof Mark Britton MD MSc FRCP<br />

Dame Judi Dench CH DBE<br />

Sir Terence English KBE FRCS FRCP<br />

Baroness Fritchie of Gloucester DBE<br />

Sir Richard Giordano KBE<br />

Prof Sir Malcolm Green DM FRCP FMedSci<br />

David Hanger<br />

Dame Deirdre Hine DBE FRCP FFPH<br />

Prof Stephen Holgate MD DSc FRCP FRCPE FRCPath FMedSci Cbiol FIBiol<br />

Lord Howe of Aberavon<br />

Prof William MacNee MBChB FRCP<br />

Dr Michael Morgan MD FRCP<br />

Sir Richard Sykes DSc FRS<br />

Lord Tugendhat<br />

Prof Lord Turnberg PRCP FRCP<br />

Prof Dame Margaret Turner-Warwick DM PhD FRCP<br />

Severin Wunderman<br />

Board of Trustees<br />

Dr Keith Prowse BSc MD FRCP (Chairman)<br />

Mr Ian Hudson FCA (Honorary Treasurer)<br />

Dr David Bellamy MBE BSc FRCP MRCGP<br />

Lord Borwick (Deputy Chairman)<br />

Mr Peter Dolphin (appointed 1 September <strong>2006</strong>)<br />

Dr Noemi Eiser MD FRCP (resigned 29 November <strong>2006</strong>)<br />

Prof Ruth Endacott PhD MA Cert Ed DipN RN (appointed 1 July <strong>2006</strong>)<br />

Dr Emrys Evans MB BCh MD FRCP (appointed 13 February <strong>2007</strong>)<br />

Mrs Christine Fehrenbach RCN (resigned 29 November <strong>2006</strong>)<br />

Mr Russell Hancock (resigned 29 November <strong>2006</strong>)<br />

Sir Graham Hart KCB (appointed 1 September <strong>2006</strong>)<br />

Prof Chris Haslett BSc MBChB FRCP FRSE FMedSci OBE<br />

Mr Graham Lancaster<br />

Prof Warren Lenney MD FRCP FRCPCH DCH (resigned 13 February <strong>2007</strong>)<br />

Ms Gillian Perkins BA (appointed 1 July <strong>2006</strong>)<br />

Mrs Samantha Prigmore MSc BSc RGN (appointed 13 February <strong>2007</strong>)<br />

Mrs Phyllida Pyper (resigned 26 July <strong>2006</strong>)<br />

Dr Gary Ruiz FRCP FRCPCH (appointed 25 July <strong>2007</strong>)<br />

Mrs Amanda Sater<br />

Mr Karamjit Singh CBE (appointed 1 July <strong>2006</strong>)<br />

Prof Stephen Spiro BSc MD FRCP<br />

Prof Monica Spiteri PhD FRCP (resigned 29 November <strong>2006</strong>)<br />

Mr Sabah Zubaida (appointed 1 September <strong>2006</strong>)<br />

Advisory Council<br />

Dr John Moore-Gillon MA MD FRCP (President)<br />

Dr Keith Prowse BSc MD FRCP (Chairman, Board of Trustees)<br />

Ian Hudson FCA (Honorary Treasurer)<br />

Lord Borwick (Deputy Chairman)<br />

Greta Barnes MBE<br />

Prof Edwin Chilvers PhD FRCPE FRCP<br />

Prof Paul Corris FRCP<br />

Prof Tim Evans BSc MD PhD DSc FRCP FRCA EDICM FMedSci<br />

Dr Jonathan Goldman MD FRCP<br />

Prof Chris Haslett OBE BSc MBChB FRCP<br />

Dr William Holmes MRCP FRCGP<br />

Amanda Jordan OBE<br />

Dr Mike Morgan MD FRCP<br />

Dr Fiona Moss MD FRCP<br />

Dr James Paton MBChB MD MRCP<br />

Richard Reid FCA<br />

Prof Rob Stockley MD DSc FRCP<br />

Adrian Vickers<br />

27 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07


Contacting the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

Email: enquiries@blf-uk.org<br />

Helpline: 08458 50 50 20 (Mon-Fri, 10am-6pm)<br />

Website: www.lunguk.org<br />

Head Office<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

73-75 Goswell Road<br />

London EC1V 7ER<br />

Tel: 020 7688 5555<br />

National Offices<br />

Scotland and Northern Ireland<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

Scotland & Northern Ireland<br />

Suite 110-111, Baltic Chambers<br />

50 Wellington Street<br />

Glasgow G2 6HJ<br />

t: 0141 229 0318<br />

e: scotland@blf-uk.org<br />

e: northernireland@blf-uk.org<br />

Wales<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Wales<br />

6/7 Llandarcy Suite<br />

Llys Kearns, Jersey marine<br />

Swansea SA1 8QL<br />

t: 01792 455 764<br />

e: wales@blf-uk.org<br />

Regional Offices<br />

London and South<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

73-75 Goswell Road<br />

London EC1V 7ER<br />

t: 020 7688 5555<br />

e: londonandsouth@blf-uk.org<br />

Midlands<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

Carlton House<br />

28 Regent Street<br />

Leicester LE1 6YH<br />

t: 0116 249 5780<br />

e: midlands@blf-uk.org<br />

North<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

The Sir GB Hunter Memorial<br />

Hospital<br />

The Green<br />

Wallsend NE28 7PB<br />

t: 0191 263 0276<br />

e: north@blf-uk.org<br />

North West<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

Orleans House<br />

Edmund Street<br />

Liverpool L3 9NG<br />

t: 0151 224 7778<br />

e: northwest@blf-uk.org<br />

South West<br />

<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />

Second floor, South Suite<br />

Liberty House, South Liberty Lane<br />

Bristol BS3 2ST<br />

t: 0117 300 4080<br />

e: southwest@blf-uk.org<br />

Registered charity of England and Wales - no. 326730<br />

Charity registered in Scotland - no. SC 038415<br />

• helpline: 08458 50 50 20<br />

• e: enquiries@blf-uk.org<br />

• w: www.lunguk.org

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