2006-2007 - British Lung Foundation
2006-2007 - British Lung Foundation
2006-2007 - British Lung Foundation
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Annual Review <strong>2006</strong>-<strong>2007</strong><br />
• helpline: 08458 50 50 20<br />
• e: enquiries@blf-uk.org<br />
• w: www.lunguk.org
contents<br />
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Chairman and CE’s foreward<br />
The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
Support<br />
Breathe Easy and patient support<br />
Information and publications<br />
BLF Nurses<br />
BLF Active<br />
Change<br />
Campaigns<br />
COPD project<br />
Research<br />
Fundraising<br />
Finance<br />
Trust and corporate supporters<br />
Cover photo: we are very proud to have established BLF nurse posts this year - see pp. 12/13
Chairman and Chief Executive’s foreword<br />
Each year sees progress on a variety of fronts. This year we have managed to get our income<br />
back up over £6 million – a great effort after last year’s drop in legacy income. Similarly, we<br />
have seen growth in a number of areas – BLF Nurses, BLF Active and our Helpline. Each of<br />
these activities has started to take off and flourish in a very satisfactory way.<br />
Our press coverage has increased greatly and we are playing a full part in many of the different<br />
groups which the devolved nations have related to respiratory disease. Respiratory research is<br />
also much more in the central mindset of different funding bodies and our own research is<br />
achieving a considerable amount for the money invested.<br />
This year has seen the end of the Baby Breathe Easy pilot and its evaluation. As a result a<br />
whole new strategy on the provision of services for the parents of children with respiratory<br />
disease is due to begin in <strong>2007</strong>/8.<br />
Our COPD (chronic obstructive pulmonary disease) project is also fully underway with two<br />
people recruited and another due soon. This project will identify areas of interest in the<br />
forthcoming National Service Framework for COPD and consult widely with different people<br />
and groups as to how best the BLF can engage. There is much to do and, as always, limited<br />
resources with which to act. The corporate plan is now set for the year ahead with the aim of<br />
consolidating the increase in income achieved this year and building a modest increase in for<br />
next year. Of all our budgets, we feel that there is a need to increase our research budget to a<br />
higher level. With this in mind, we have set ourselves a new increased target for funding in<br />
<strong>2007</strong>/8.<br />
During the year we have recruited new Trustees through public advertising and set up a<br />
reduced and streamlined system of subcommittees. This new governance system seems to be<br />
working well and will be built on in the year ahead.<br />
In summary, it has been a year of considerable progress and much hard work. The many<br />
people who help us as volunteers in a variety of different ways deserve, and get, our sincere<br />
thanks for all that they do. In addition the staff throughout the UK, who work long hours to<br />
achieve many good things, is a valuable resource that we cannot manage without. Thank you<br />
one and all.<br />
Dr Keith Prowse<br />
Chairman<br />
Dame Helena Shovelton<br />
Chief Executive<br />
3 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
One person in seven in the UK is<br />
affected by lung disease.<br />
Whether it’s mild asthma or lung<br />
cancer, the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
is here for every one of them.<br />
This is what we do:<br />
• We support people affected by lung<br />
disease through the individual<br />
challenges they will face. Support is the<br />
focus of many of our activities,<br />
including our nationwide network of<br />
Breathe Easy support groups and<br />
membership scheme.<br />
• We help people to understand their<br />
condition. We do this by providing<br />
comprehensive and clear information<br />
on paper, on the web and on the<br />
telephone.<br />
• And we work for positive change<br />
in lung health. We do this by<br />
campaigning, raising awareness and<br />
funding world-class research.<br />
Our Head Office is in London, and we<br />
have offices in Scotland (which also<br />
covers Northern Ireland), Wales and in<br />
five English regions (South West,<br />
Midlands, North West, North, and<br />
London and South). Our Advice<br />
Service, which includes our telephone<br />
Helpline, is based in Liverpool.<br />
The national/regional offices’ main<br />
role is to provide support to people<br />
affected by lung disease, mainly<br />
through Breathe Easy groups.<br />
The offices also raise awareness of<br />
lung disease and work with<br />
health/social/political organisations to<br />
improve services for people affected by<br />
lung disease. <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
Scotland and Wales also have a<br />
fundraising function.<br />
New BLF Membership<br />
scheme launched<br />
In January <strong>2007</strong> the <strong>British</strong> <strong>Lung</strong><br />
<strong>Foundation</strong> introduced a membership<br />
scheme. This was an important<br />
development, offering people the<br />
opportunity to join with us and add<br />
their voice to the only UK charity<br />
working to help everyone with a<br />
lung condition.<br />
Our 2,020 members who joined by the<br />
end of the year received the quarterly<br />
magazine, Breathing Space, campaign<br />
bulletin, access to all of our<br />
information leaflets, booklets and our<br />
Breathe Easy support network. In the<br />
future we aim to develop a members'<br />
area of the BLF website.<br />
4 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> has a two-fold mission:<br />
• To focus our resources on providing support for people affected<br />
by lung disease today.<br />
• To use a variety of means (including funding world-class research)<br />
to bring about positive change, to improve treatment, care and<br />
support for people affected by lung disease in the future.
support<br />
Breathe Easy – going from strength to strength<br />
The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>'s nationwide network of Breathe Easy<br />
groups for people with long-term lung conditions continues to grow,<br />
with 40 new groups opening during the year. The mission of<br />
Breathe Easy is to provide a network of friends, advisers, events and<br />
activities that support and empower people affected by lung disease.<br />
England<br />
We established 31 new Breathe Easy<br />
groups over the year, bringing the total<br />
number in England to 152, with a<br />
further 18 groups in development. In<br />
doing so the Breathe Easy network in<br />
England has extended its regular<br />
support to over 1000 people with<br />
respiratory disease and their carers.<br />
Groups have been proactive in raising<br />
awareness of lung disease in their<br />
localities, hosting 72 events during<br />
Breathe Easy Week and more than<br />
150 events during World COPD Day in<br />
November. Additionally, we undertook<br />
three large awareness raising events<br />
engaging specifically with minority<br />
ethnic communities.<br />
During the year, Breathe Easy group<br />
volunteers actively influenced and<br />
worked towards improving health care<br />
through local health fora. Their role is<br />
to work in partnership through<br />
consultation, by sharing patient<br />
experiences and representing the<br />
needs of people with respiratory<br />
disease in their area. Over the year,<br />
groups have pressed for the<br />
introduction of continued access to<br />
pulmonary rehabilitation,<br />
improvements in the availability of BLF<br />
literature in GP surgeries, the provision<br />
of lung function testing in GP surgeries<br />
and annual reviews for all patients.<br />
More BLF display boards were provided<br />
to hospitals in England over the year,<br />
and these are regularly updated by the<br />
Breathe Easy members.<br />
Breathe Easy volunteers and members<br />
have also taken part in many<br />
consultations and surveys about<br />
health service provision, and kept their<br />
local MPs updated on BLF and NHS<br />
services, support and developments.<br />
As the NHS restructure took place,<br />
Support and Development Managers<br />
“The most important thing has been to keep the<br />
meetings varied”<br />
…says Rose Durrans, who chairs the Breathe Easy Gloucester group that launched in February <strong>2007</strong>.” I was<br />
going to Birmingham hospital and was asked to set up a patient group there, but thought something more<br />
local would be much better. My respiratory nurse suggested contacting the BLF. Having healthcare<br />
professionals involved makes such a big difference as they speak to the people affected by lung disease<br />
and can recommend us.”<br />
“We’ve also made a big effort to publicise ourselves in the local newspapers, giving interviews when the<br />
group was launched and during Breathe Easy Week and we always get calls after something has been<br />
published. We have between 20 and 30 people attending our meetings – not always the same faces – and<br />
I’ve been told that is pretty impressive!”<br />
“I find the most important thing is keeping the meetings varied. So sometimes we focus on health and have<br />
people like physiotherapists come and give talks, which is very popular. But it doesn’t always need to be<br />
about the disease. We have also had artists come in to help inspire people to take up new hobbies. Most of<br />
us can’t get out and about easily so taking up something like painting is ideal for us as well as good fun.”<br />
6 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
“I receive phone calls all the time from people who have been<br />
diagnosed with COPD and have no idea how to deal with it”<br />
…says Carol Forsdyke, 64, Chair of Breathe Easy Islington. “The group was set up in March <strong>2007</strong> and since<br />
then we’ve gone from strength to strength. We now have over 30 members. We receive fantastic support<br />
from both the Islington PCT Respiratory Service and the consultants at University College Hospital.”<br />
“Our group is a very active campaigning group. We were represented at the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>’s ‘Meet<br />
the Patients’ reception at the House of Commons during Breathe Easy Week. Two of our members attended<br />
- Maureen Tricki and her husband - and they both found the whole experience a very rewarding one.”<br />
“I find being Chair of the group very rewarding. Even though I am ill myself I want to help others to cope<br />
with their lung condition and with the help of my husband, Maureen and Committee members, hopefully I<br />
do. I receive phone calls all the time from people who have been diagnosed with COPD and have no idea<br />
how to deal with it. I then send those who contact me free leaflets and information provided by the BLF<br />
and an invitation to attend our group. Many of our members have found that Breathe Easy Islington has<br />
given them the information; support and friendship that they needed to give them the confidence to cope<br />
with the reality of having a lung condition and deal with it in a positive way.”<br />
continue to identify, contact and build<br />
partnerships with appropriate<br />
respiratory and Long Term Conditions<br />
leads throughout the 10 Strategic<br />
Health Authorities and 152 PCT areas.<br />
We began to track PCT progress in<br />
respiratory services mapping and<br />
gathering intelligence and developing<br />
an overview of the state of services<br />
across English regions. This has proved<br />
challenging and time consuming.<br />
Managers now support many PCT<br />
working groups advising and sharing<br />
best practice with NHS staff.<br />
Facts and figures <strong>2006</strong>-07<br />
190 ➜ Breathe Easy groups across the UK<br />
9700 ➜ People attending Breathe Easy groups<br />
31,000 ➜ BLF’s supporter network<br />
300+ ➜ People who have used the Pen pal scheme<br />
“I started off with Breathe Easy soon<br />
after my Dad died”<br />
…says Nathan Ledger. “My Mum had started helping out with<br />
Breathe Easy. It was probably because we saw how much Dad<br />
suffered with his lung disease that we didn’t want anyone else to<br />
suffer that as well. It also makes you feel that you are not just taking<br />
but also giving back, this makes you not feel guilty. It does get a bit<br />
cold and wet and tiring standing outside on a stall trying to raise<br />
awareness, when people think you are trying to con them or sell<br />
something, but it is very worthwhile when you think of the people<br />
you have helped in the long run.”<br />
7 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
Scotland and<br />
Northern Ireland<br />
We continued our drive to reach more<br />
rural areas in Scotland opening BE<br />
groups in Borders and Dumfries and<br />
Galloway, and we also opened our<br />
fourth BE group in Northern Ireland –<br />
BE Lisburn. This brings the total<br />
number of group across Scotland and<br />
Northern Ireland to 20. <strong>2006</strong>-07 saw<br />
the first joint Scotland and Northern<br />
Ireland Breathe Easy Conference.<br />
In partnership with VOCAL Carers<br />
Centre, Edinburgh we launched the<br />
first expert respiratory carers’ course<br />
providing training and advice for<br />
people caring for someone living with<br />
a lung condition. Our Breathe Easy<br />
groups have been involved in a range<br />
of Healthboard and other initiatives<br />
providing the vital patient<br />
perspective to help shape<br />
appropriate services. Breathe Easy<br />
group members made up the focus<br />
groups for the Audit Scotland Report<br />
into long-term conditions.<br />
Elsewhere, <strong>2006</strong>-07 saw the<br />
development of two new respiratory<br />
managed clinical networks (MCN) in<br />
Scotland. NHS Forth Valley MCN was<br />
funded by £100,000 that the BLF<br />
helped secure from the Scottish<br />
Government Health Department,<br />
and NHS Lanarkshire launched its<br />
MCN in May. The BLF is represented<br />
on the Executive Group of these and<br />
the Grampian MCN.<br />
The campaign for Clinical Standards<br />
on COPD really got underway with<br />
the Christmas postcard campaign in<br />
December. We took the decision to<br />
lobby the Scottish Executive to<br />
develop a set of standards that will<br />
provide COPD patients with the<br />
same access to care and treatment,<br />
regardless of where in the country<br />
they live. We produced campaign<br />
postcards with the slogan "All I want<br />
for Christmas is … clinical standards<br />
for COPD", which we then distributed<br />
with the help of our Breathe Easy<br />
members, collecting signatures to<br />
return to the Minister for Health in<br />
time for Christmas <strong>2006</strong>.<br />
After gaining successful publicity for<br />
the campaign including television<br />
and radio news, and delivering over<br />
1000 signed postcards to the<br />
Minister for Health, we were pleased<br />
to have secured a meeting with the<br />
Minister, where we were in a unique<br />
position to push forward the BLF<br />
agenda in advance of the Scottish<br />
elections and the publication of the<br />
Audit Scotland Report which focused<br />
on COPD as one of the two longterm<br />
conditions studied.<br />
The Big Lottery Fund provided<br />
£64,000 for a Communications and<br />
Information project, which helped to<br />
raise both the awareness of lung<br />
disease in Scotland and the profile<br />
of the BLF by having over 250<br />
stories in the press and hosting 12<br />
outreach events.<br />
“It’s still early days, but the group is doing well and I think<br />
we’re going to carry on growing”<br />
…says John McKie, Chair of Breathe Easy Dumfries, which had its official launch in March <strong>2007</strong>. “The<br />
group is still in the early stages but we’re getting around 14 to 18 people at every meeting, which is a good<br />
start and I think we’re going to get bigger as time goes on. We have talks about things like how to give up<br />
smoking and speakers from other organisations like Age Concern come too, but we also try and set up<br />
other social events like a barbeque and trips out.”<br />
“An event we all really enjoyed was our ‘Walk in the Woods’. <strong>Lung</strong> disease can often be very isolating and<br />
people sometimes feel trapped at home, so it’s good to get out and about. We took it very slowly and it<br />
was a gentle walk – I think I was the one holding the rest of the group up!”<br />
“The next big thing we’re planning is a Christmas meal for the group. Breathe Easy Dumfries has had great<br />
support, my hope is that we will carry on expanding.”<br />
8 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
Wales<br />
Since opening our first national office<br />
in Wales, in late 2005, 17 new<br />
Breathe Easy groups have been<br />
opened in Wales, bringing the total<br />
to 19. With so many new people<br />
there have been great opportunities<br />
– through ‘Meet the Patients’ at the<br />
Welsh Assembly, conferences and the<br />
officers forum – to network and join<br />
together to make one big voice for<br />
lung disease in Wales.<br />
A survey of all the membership<br />
showed that over 80 per cent felt<br />
that, since joining Breathe Easy,<br />
they understood their condition<br />
more, felt more supported and had<br />
an improved relationship with their<br />
health professionals. Together, we<br />
are determined to make a difference.<br />
It has been a busy year too for<br />
fundraising in Wales. On a misty day<br />
in the beautiful Neath Valley, South<br />
Wales, members of Breathe Easy<br />
Neath group, their friends and<br />
families, took part in a sponsored<br />
abseil which raised close to £6,000.<br />
Part of the proceeds will be spent<br />
locally and the remainder allocated<br />
to the BLF’s work in Wales and with<br />
children across the UK.<br />
Rosemary Butler, Welsh Assembly<br />
Member and Deputy Presiding Officer,<br />
with Margaret Zier, Chairwoman of<br />
Breathe Easy Newport<br />
“Being part of Breathe Easy is not only fun but very fulfilling”<br />
…says Margaret Barnard, of Breathe Easy Neath Valley. 63 year old Margaret helped to form her local<br />
Breathe Easy group after she was diagnosed with COPD and is currently the Secretary. Margaret was a<br />
primary school teacher, but retired early because of the impact the condition had on her life.”<br />
“I am one of the founder members of Breathe Easy Neath Valley. We have been together for 19 months<br />
now and go from strength to strength. We support each other with tips and hints. We fundraise for the local<br />
pulmonary rehabilitation unit and the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>, but, most of all we have fun. Being involved<br />
with the BLF and trying to improve the situation for myself and all others like me is actually very fulfilling.<br />
Breathe Easy Neath Valley has also helped me to remain positive and focus on what I can do rather than<br />
what I can’t do anymore.”<br />
Children’s services<br />
Our Baby Breathe Easy pilot has now<br />
come to an end, which helped 320<br />
families and children. During the year<br />
we undertook a full evaluation of this<br />
innovative pilot scheme, to assess the<br />
benefits to parents of babies and<br />
young children with lung disease and<br />
breathing problems.<br />
The pilot has taught the BLF many<br />
things, including the need to support<br />
parents in a tailored way – many<br />
parents told us they found it difficult<br />
to attend group meetings because of<br />
the demands of childcare.<br />
Baby Breathe Easy gave us an<br />
invaluable opportunity to evaluate<br />
the kind of support that parents<br />
want. Following full discussions<br />
throughout the organisation, we have<br />
decided to change the way we deliver<br />
support for parents and children and<br />
try to reach more people. This has led<br />
to the closing of the nine Baby<br />
Breathe Easy groups and transferring<br />
the service on to the BLF Helpline<br />
where a paediatric respiratory nurse<br />
and parent counsellors will work.<br />
Our initial task is to ensure that the<br />
families who were receiving support<br />
from the nine group organisers are<br />
transferred to the telephone help they<br />
had indicated they would like, and<br />
then to publicise the service wider in<br />
order to reach more people. The BLF<br />
continues to provide information on<br />
childhood lung diseases, on its<br />
website and through printed leaflets,<br />
and also encourages people to<br />
support each other through its penpal<br />
patient networking scheme.<br />
We plan to promote and expand the<br />
service over the year ahead.<br />
9 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
Information and publications<br />
The reach of the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> continues to grow. Over the<br />
year we distributed larger numbers of publications, increased website<br />
traffic and received more calls to our helpline. We are helping more<br />
people as we work towards positioning the BLF as the leading expert<br />
voice on all lung disease.<br />
BLF Helpline<br />
Our Helpline, based in Liverpool, has<br />
been operating since March 2005. It<br />
is staffed by respiratory nurses and<br />
welfare benefits advisers who provide<br />
advice on a broad range of topics,<br />
principally by phone, but also by<br />
email and post. Volunteers provide<br />
vital administrative support for the<br />
service. The team handled 13,434<br />
calls this year, a 16 per cent increase<br />
on the previous year.<br />
In particular, we continued to receive<br />
large numbers of calls during the<br />
summer of <strong>2006</strong> about the changes<br />
in the arrangements for providing<br />
home oxygen. And in April <strong>2007</strong>, the<br />
Helpline was involved in the BLF’s first<br />
television campaign which was<br />
broadcast in the Yorkshire region. This<br />
campaign generated 686 calls to the<br />
Helpline over a five-week period.<br />
Plans are underway to expand the<br />
service with the addition of a<br />
paediatric nurse and parent<br />
counsellor to the Helpline team. This<br />
will help the BLF provide more<br />
specialist support to parents of<br />
children with a lung condition.<br />
BLF Publications<br />
We distributed 970,474 items of<br />
literature during the course of <strong>2006</strong>-<br />
07, covering a range of lung<br />
condition and related topics. This was<br />
a 20 per cent increase on the<br />
previous year. BLF leaflets and<br />
brochures are provided to patients<br />
and health care professionals free-ofcharge.<br />
We produced new<br />
publications during the year on<br />
complementary therapies, dealing<br />
with anxiety, lung cancer, sarcoidosis<br />
and the special reports, ‘An unnatural<br />
death’ and ‘Lost in translation’.<br />
The majority of our patient leaflets<br />
and booklets are distributed through<br />
hospitals and respiratory clinics. We<br />
want to encourage more hospitals to<br />
distribute BLF publications and so we<br />
continue to provide leaflet display<br />
boards for this purpose. In <strong>2006</strong>-07<br />
we delivered display boards to<br />
another 55 hospitals, taking the total<br />
in use to 282.<br />
With the growth in demand for BLF<br />
publications, and the expanding<br />
range of charity literature, the time<br />
had come to review the way we<br />
process orders and distribute printed<br />
publications. It was no longer possible<br />
to meet the need using a<br />
combination of staff and volunteers<br />
working out of head office. The<br />
decision was taken therefore to<br />
outsource the fulfillment of<br />
publication requests, and this new<br />
arrangement started in August <strong>2006</strong><br />
and has been working well.<br />
Following the launch of the BLF<br />
membership scheme in January<br />
<strong>2007</strong>, Breathing Space became the<br />
magazine for BLF members. It<br />
continues to feature a wide range<br />
of topics on lung health and BLF<br />
activities, as well as general<br />
interest articles.<br />
BLF Website<br />
The popularity of our website<br />
continues to grow. This year the site<br />
was visited by 845,000 people, an<br />
increase of 37 per cent over 2005-06.<br />
We are planning to redesign the BLF<br />
website, and to incorporate a Content<br />
Management System (CMS) that will<br />
allow the site to become much more<br />
dynamic and responsive. The new<br />
website will be launched in the<br />
autumn of <strong>2007</strong>.<br />
10 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
This year we aimed<br />
to help more people<br />
with lung disease.<br />
We sent out 20% more<br />
publications, received<br />
37% more unique<br />
visitors to our website,<br />
and responded to 16%<br />
more calls through<br />
our Helpline.
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Nurses<br />
Following the successful launch of<br />
the BLF Nurse programme the<br />
previous year, 23 BLF Nurses are<br />
now operating in six areas in<br />
England and Scotland, in Glasgow,<br />
Oldham, Bristol, Sefton, Central<br />
Lancashire and Calderdale. BLF<br />
nurses work across the spectrum of<br />
respiratory disease, although the<br />
majority of patients have a<br />
diagnosis of COPD.<br />
The nurses are delivering expert<br />
care and support to patients and<br />
carers in their own homes. They also<br />
deliver tailored education<br />
programmes to community matrons,<br />
district and practice nurses,<br />
pharmacists, physiotherapists and<br />
other health professionals.<br />
BLF Nurses have supported over<br />
3000 patients during the course of<br />
the year. They help by monitoring<br />
patients’ symptoms, stabilising their<br />
conditions and with advice on<br />
lifestyle, nutrition and medication.<br />
Collectively the BLF Nurses provided<br />
more than 1000 medication reviews<br />
over the year and prevented over<br />
300 hospital admissions.<br />
The nurses are also developing<br />
innovative practice and are involved<br />
in the Primary Care Organisation<br />
decision-making fora.<br />
BLF Nurses supported over 3000 patients<br />
during the year, improving the quality of life<br />
for people affected by lung disease.<br />
“Everyone should have a <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Nurse<br />
like Mary”<br />
…enthuses Adrian Parker, who has had COPD for 10 years but has never spent time in hospital until last<br />
year, when he collapsed at home. His worried wife Barbara rang 999 and Adrian was rushed to Preston<br />
Royal Infirmary. He stayed there for five weeks and wasn’t expected to survive.<br />
Adrian says the fact that he is still around, nearly one year after that hospital stay, is<br />
largely thanks to his <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> nurse, Mary Tomlinson. Mary is a<br />
specialist respiratory nurse who has supported Adrian through regular home visits.<br />
Each time she visits, she runs through a series of checks to monitor Adrian’s health<br />
and helps him manage his medication. Over the past year Mary has ensured that<br />
Adrian receives the home nursing and physiotherapy he relies on.<br />
Adrian says: “One of the most important things I have learnt about COPD is not to<br />
Mary Tomlinson let problems build up. Mary gives me lots of practical help and advice on managing<br />
my condition. I know that she is checking on my health on an ongoing basis and<br />
helping me to avoid anything drastic happening. That has helped me feel a lot more confident about<br />
my condition.”<br />
“Mary is a very special person – she is one in a million,” says Adrian. “I can’t describe the difference she has<br />
made to my life – but I can tell you that everyone with COPD should have a specialist nurse like her.”<br />
12 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
Being BLF Active<br />
“I was so delighted about how much better<br />
I felt, I just wanted to keep going”<br />
…says Ellen Smith, 73, from Aire Valley in the North East. “I was part<br />
of the BLF Active pilot scheme. I’m still doing exercise. I have<br />
bronchiectasis and asthma, and it really does help. It gives me<br />
confidence and helps with my balance, which is really important<br />
because I’m 73 now – most of us are knocking on! Recently I had<br />
an appointment and I saw the bus coming, and I ran. It didn’t take<br />
long for me to recover my breath. When things like that happen,<br />
you can cope better. Before I would have missed the bus.”<br />
It is well known that people with severe<br />
lung problems can benefit from even<br />
small amounts of exercise, and it really<br />
is worth keeping as active as possible.<br />
By gradually building up their exercise,<br />
over time people can often improve<br />
their breathing and feel better. That is<br />
why in its Charter the BLF calls for<br />
pulmonary rehabilitation, with followup<br />
exercise classes to be made<br />
available to all those who could benefit.<br />
Pulmonary rehabilitation is very<br />
important in encouraging people with<br />
lung disease to start exercising in the<br />
right way. But the <strong>British</strong> <strong>Lung</strong><br />
<strong>Foundation</strong> believes it is also vital that<br />
people are encouraged to continue<br />
exercising. This follows earlier BLF<br />
work testing the usefulness of physical<br />
exercise classes.<br />
In <strong>2006</strong>-07 we worked with health<br />
care professionals and<br />
Loughborough University to develop<br />
a Chronic Respiratory Diseases<br />
Exercise course which will equip<br />
fitness instructors to provide exercise<br />
classes. We also developed a bursary<br />
scheme - with funding from Air<br />
Products - for fitness instructors.<br />
Instructors who successfully<br />
complete the course will be able to<br />
set up BLF Active classes in their own<br />
community. These classes are<br />
designed to complement rather than<br />
substitute for pulmonary<br />
rehabilitation classes.<br />
We wanted to<br />
develop an exercise<br />
training programme<br />
for fitness<br />
instructors, tailored<br />
to the needs of<br />
people with chronic<br />
lung disease.<br />
“I feel better now than I did more than a decade ago thanks to<br />
the exercise classes”<br />
…says Roy Davies, 78, from Leicester who was diagnosed with bronchiectasis 25 years ago. “I’ve always<br />
been told about how being afraid of feeling breathless leads to a downward spiral of being less active and<br />
therefore even more at risk of breathlessness attacks. The exercise classes have helped to break that<br />
vicious cycle and I feel fitter now than I did 11 years ago when I retired as a shopkeeper. We all felt such<br />
benefits that even when the six months were up, most of our group kept going. I can now do more of the<br />
housework and gardening than I used to be able to, which is especially important because my wife is<br />
slightly disabled. It feels good not to have to depend so much on other people.”<br />
13 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
change<br />
The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>’s campaigning was more focused this<br />
year, particularly with regard to Chronic Obstructive Pulmonary<br />
Disease (COPD), a condition which has an extremely low profile in the<br />
UK despite being our fifth biggest killer disease. We also celebrated<br />
the introduction of smoking bans across the UK.<br />
Progress across the UK<br />
In England … we are playing a<br />
constructive role in the development<br />
of the National Service Framework<br />
for COPD (see pages 18-19).<br />
In Scotland … the BLF ran a major<br />
campaign calling for the development<br />
of clinical standards for COPD to be<br />
implemented through Managed<br />
Clinical Networks in every Health Board<br />
area of the country (see page 8).<br />
In Northern Ireland … following the<br />
development of new Breathe Easy<br />
groups, the BLF has taken a seat on<br />
the Regional Respiratory Forum that<br />
is looking at the implementation of<br />
the Strategic Framework for<br />
Respiratory Conditions.<br />
In Wales … we continue to be<br />
involved in the development of<br />
Service Development and Commission<br />
Directives for Respiratory Conditions.<br />
World COPD Day<br />
To mark World COPD Day in<br />
November <strong>2006</strong>, the <strong>British</strong> <strong>Lung</strong><br />
<strong>Foundation</strong> launched a campaign<br />
aimed at finding the ‘Missing Millions’<br />
of people living with undiagnosed<br />
COPD. The campaign reached more<br />
than 22.5 million people through a<br />
combination of: free lung testing road<br />
shows in COPD ‘hotspot’ areas; a<br />
national and regional PR campaign;<br />
and awareness-raising activities<br />
around the UK.<br />
‘Missing Millions’ road shows staffed<br />
by qualified lung technicians,<br />
respiratory nurses and smoking<br />
cessation advisors offered free lung<br />
function tests and information about<br />
COPD and the BLF to the public in<br />
prominent sites in four major<br />
shopping centres in England. Nearly<br />
1000 people were tested in all, with<br />
131 people being referred to their GP<br />
as a result.<br />
A national and regional media<br />
campaign communicated World<br />
COPD Day key messages. Case<br />
14 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
“It was a great privilege to be invited to speak to MPs at the House of Commons for the <strong>British</strong> <strong>Lung</strong><br />
<strong>Foundation</strong>’s World COPD Day parliamentary dinner. I was extremely grateful for the opportunity to<br />
represent the views of primary care physicians to such a distinguished audience and talk about the key<br />
policy developments, such as the forthcoming National Service Framework for COPD.”<br />
“My perception of politics had always been the arguing and point-scoring that you see on the television,<br />
but I found it really reassuring that the politicians at the dinner really wanted to improve services at a local<br />
level and were passionate about doing so. It was good to see them so committed to helping people with<br />
lung disease and thinking about what needs to be done in the future to really make a difference.”<br />
Dr Steve Holmes, General Practitioner in Shepton Mallet<br />
Chair of the General Practice Airways Group<br />
studies, spokespeople and celebrities<br />
(Richard Wilson, William Roach,<br />
Tamsin Greig and Joseph Milson)<br />
were recruited to support the<br />
campaign. The BLF’s Breathe Easy<br />
groups held more than 100<br />
awareness-raising events across the<br />
UK and took part in local PR. Online<br />
‘email your MP’ and letter<br />
campaigns were organised to<br />
engage support for an Early Day<br />
Motion (Westminster), Statements of<br />
Opinion (National Assembly for<br />
Wales), and Motion (Scottish<br />
Parliament) supporting the <strong>British</strong><br />
<strong>Lung</strong> <strong>Foundation</strong>’s campaign.<br />
Parliamentary dinners were also held<br />
to mark World COPD Day at the<br />
House of Commons and at the<br />
National Assembly for Wales.<br />
The campaign achieved some<br />
fantastic media coverage reaching a<br />
potential audience of more than 22<br />
million people, including a ‘live’ lung<br />
testing clinic on ITV’s This Morning<br />
featuring BLF spokesperson<br />
Eve Cowdell and articles in the<br />
Daily Express and Daily Mail’s<br />
You Magazine.<br />
Smoking bans<br />
The BLF welcomed the smoking bans<br />
that came into force across the<br />
country in <strong>2006</strong> and <strong>2007</strong>. Scotland<br />
has now celebrated a year of being<br />
smoke-free after becoming the first<br />
nation within the UK to ban lightingup<br />
in enclosed public places in March<br />
<strong>2006</strong>. They were followed by Wales<br />
on the 2 April <strong>2007</strong>, Northern Ireland<br />
28 days later and finally England on<br />
the 1 July. These were important<br />
events for the BLF and followed<br />
sustained campaigning in<br />
conjunction with other health<br />
charities to secure comprehensive<br />
legislation and appropriate<br />
regulations for the new law.<br />
A survey of Breathe Easy members<br />
showed that an overwhelming<br />
majority felt the bans gave them a<br />
new lease of life and meant they<br />
would no longer live in fear of an<br />
attack of breathlessness brought on<br />
by second-hand smoke. Many<br />
members welcomed them by holding<br />
their first meeting ever in a newly<br />
smoke-free venue and invited the local<br />
press along to celebrate with them.<br />
Tobacco control policies continue to<br />
be of importance and the BLF<br />
responded to Government<br />
consultations regarding the legal age<br />
of sale for tobacco products,<br />
supporting an increase from age 16<br />
to age 18.<br />
This year we aimed to increase broadcast media coverage<br />
about lung disease by 15% - we actually achieved<br />
an increase of 300%.<br />
15 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
<strong>Lung</strong> Health<br />
Awareness Day<br />
In May <strong>2007</strong> the BLF joined forces<br />
with the House of Commons’<br />
Occupational Health Safety and<br />
Welfare Service to hold a third <strong>Lung</strong><br />
Health Awareness Day. 150<br />
members of House of<br />
Commons/Lords staff took a<br />
spirometry test. 80 MPs and two<br />
Members of the House of Lords<br />
agreed to support the <strong>British</strong> <strong>Lung</strong><br />
<strong>Foundation</strong>’s ‘Missing Millions’<br />
campaign and took part in a photo<br />
call for their local media.<br />
Action Mesothelioma<br />
Day<br />
This year saw real progress on the<br />
Action Mesothelioma Charter, with<br />
the launch of a new Department of<br />
Health initiative to improve services<br />
for people with mesothelioma in<br />
England and an announcement of<br />
improvements to the way<br />
mesothelioma compensation claims<br />
are handled.<br />
Both were the highlights of a BLF<br />
Parliamentary Reception at the<br />
House of Commons on Action<br />
Mesothelioma Day on 27 February<br />
attended by 35 MPs, where speakers<br />
included National Cancer Director,<br />
Professor Mike Richards and<br />
Department for Work and Pensions<br />
Minister Jim Murphy MP. The event<br />
was one of many marking Action<br />
Mesothelioma Day around the<br />
country, including a balloon release in<br />
Gateshead attended by Health<br />
Minister Rosie Winterton MP, and<br />
rallies and meetings in Leicester,<br />
Liverpool, Manchester, Leeds,<br />
Sheffield, Chesterfield, Rotherham and<br />
Doncaster. The charity received good<br />
media coverage for this campaign,<br />
reaching a potential audience of<br />
more than 28 million people.<br />
The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> also<br />
published a report into the impact<br />
of Coroner’s procedures on<br />
bereaved families following<br />
concerns that these families found<br />
the process unsympathetic and<br />
distressing at a very difficult time.<br />
Work has continued in this area,<br />
with the Ministry of Justice, The<br />
Coroner’s Society of England and<br />
Wales, the Coroner’s Officers<br />
Association and the Association of<br />
Chief Police Officers, in an attempt<br />
to make improvements to the<br />
current system.<br />
We met our target to deliver three<br />
high-profile campaigns about lung disease,<br />
and launched the BLF Charter.<br />
Breathe Easy Week<br />
launches the<br />
BLF Charter<br />
This year’s Breathe Easy Week, from<br />
11-17 June, saw Breathe Easy<br />
members across the UK ‘Blowing the<br />
Whistle on <strong>Lung</strong> Disease’. We used<br />
the week to launch the BLF Charter,<br />
setting out our 12 priorities for<br />
improving the UK’s record on lung<br />
disease. The results of a survey of<br />
1000 Breathe Easy members were<br />
released to the press showing that<br />
almost two thirds wanted respiratory<br />
disease to be a priority for their local<br />
healthcare services; that nearly half<br />
wanted an end to the postcode<br />
16 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
lottery of treatment and care, and<br />
more than a third highlighted the<br />
lack of respiratory specialists in<br />
the NHS.<br />
Breathe Easy members had a<br />
chance to put these points to their<br />
MP in person when they travelled<br />
from all over England and Wales to<br />
‘Meet the Patients’ events in<br />
Westminster and the Welsh<br />
Assembly. Former Health Minister<br />
Andy Burnham MP was among<br />
more than 40 MPs who got to hear<br />
first hand from people with lung<br />
disease about the impact it has on<br />
their lives and who were asked to<br />
support the BLF Charter. In Wales,<br />
more than half of Assembly<br />
Members attended to talk to their<br />
constituents and sign the Charter.<br />
Signatures in support of the Charter<br />
are continuing to be collected both<br />
on paper and online – go to<br />
www.lunguk.org to sign up.<br />
Around the country more than 100<br />
events marked the launch of the Blow<br />
the Whistle campaign, including an<br />
abseil off the Dinas Rock in Wales, a<br />
whistle-blowing bingo session, nine<br />
lung testing events and a boat trip in<br />
the North East which went ahead<br />
despite local flooding in the area!<br />
A press campaign focused on the<br />
results of the Breathe Easy survey,<br />
highlighting the stigma associated<br />
with lung disease and how people<br />
with respiratory disease felt they<br />
received a raw deal from the NHS.<br />
Media coverage generated included<br />
188 regional TV and radio interviews<br />
and 74 regional newspaper articles.<br />
Home oxygen<br />
In February <strong>2006</strong> the Government<br />
introduced a new system for the<br />
supply of oxygen to people living<br />
with long term respiratory conditions<br />
and other diseases that are treated<br />
with oxygen therapy. Immediately<br />
after the change, people reported<br />
considerable problems with the new<br />
service and disruption to their supply.<br />
Throughout <strong>2006</strong> and <strong>2007</strong>, the<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> continued to<br />
press government ministers behind<br />
the scenes for improvements to the<br />
new Home Oxygen Service. This<br />
worked. A survey of Breathe Easy<br />
members in April <strong>2007</strong> showed<br />
significant improvements in the<br />
service, with most respondents<br />
saying they were no longer<br />
experiencing problems with their<br />
oxygen supply, and most describing<br />
the overall service, helpline and<br />
servicing of equipment as excellent,<br />
very good or good. Holiday provision<br />
of oxygen is still causing some<br />
problems, and we will continue to<br />
work for improvements.<br />
“I never imagined I’d be on telly, but I really enjoyed it and<br />
wasn’t as nervous as I thought I’d be”<br />
…says Eve Cowdell, 57, who appeared on This Morning as part of World COPD Day <strong>2006</strong>. Eve lives in<br />
Grimesthorpe in South Yorkshire and was diagnosed with COPD in 2005. “They brought me down the night<br />
before and put me up in a nice hotel. The next morning I got driven to the studios, which weren’t how I<br />
expected. I thought I’d be really nervous, but I wasn’t. I think having my hair and make up done relaxed<br />
me. Dr Chris as well as Fern and Phillip were really lovely and had definitely done their research.”<br />
“I’ve had lung problems since my 20s despite never being a smoker and really regret that my COPD wasn’t<br />
picked up on earlier, as it meant I went through a very stressful time. That was the message I wanted to<br />
get across – that people should get themselves tested. It seemed to work. As part of This Morning we went<br />
out on to London’s South Bank and did spirometry tests on passers by. Some days after the show I<br />
popped in to see how the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> roadshow was getting on in Sheffield and loads of<br />
people there had come along after seeing me on TV, which was really amazing. I even got roped into<br />
doing something for Yorkshire TV while I was there, so I almost felt like a celebrity for the day!”<br />
Most of Eve’s village also saw her performance. “My vicar taped This Morning and then played the video to<br />
the whole congregation! I definitely enjoyed the day and the whole experience that went with it.”<br />
17 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
Putting the spotlight on COPD<br />
COPD Project<br />
The BLF established its COPD Project<br />
in January <strong>2007</strong> in direct response to<br />
the announcement of the National<br />
Service Framework (NSF) for Chronic<br />
Obstructive Pulmonary Disease. NSFs<br />
are 10 year strategies which commit<br />
health care providers to raising<br />
standards and to ensuring that<br />
everyone gets the same level of good<br />
quality care no matter where they<br />
live. This was a major announcement<br />
by the Department of Health in<br />
<strong>2006</strong>, and is the first ever NSF for a<br />
respiratory disease in England.<br />
The COPD Project is one of the<br />
largest projects undertaken by the<br />
BLF and has been made possible by<br />
an educational grant from<br />
GlaxoSmithKline. Over three years,<br />
the project aims to mobilise the BLF’s<br />
internal resources and to work in<br />
partnership with other organisations<br />
to prepare for the launch and<br />
subsequent implementation of the<br />
NSF in 2009. The project is focussing<br />
on four key themes: Awareness<br />
Raising, Knowledge Exchange,<br />
Support and Advocacy.<br />
The activities undertaken so far<br />
include establishing a dedicated<br />
COPD Project Team and two project<br />
stakeholder reference forums; one of<br />
pharmaceutical industry<br />
representatives to develop a<br />
consortium of industry partners to<br />
support the BLF’s work in COPD, and<br />
another of patients living with COPD<br />
and their carers. Seven regional<br />
patient and carer forum workshops<br />
across England are planned to better<br />
understand what issues patients and<br />
their carers face in managing their<br />
condition; this is instrumental in<br />
identifying new ways for the<br />
organisation to respond to their<br />
needs. Plans are in place to develop a<br />
similar forum for health and social<br />
care professionals with an interest in<br />
COPD, to explore how the BLF can<br />
support local implementation of the<br />
NSF standards.<br />
So far, we have made strides<br />
particularly in raising awareness<br />
among the general public about the<br />
signs and symptoms of COPD,<br />
encouraging people to adopt healthy<br />
lifestyles such as stopping smoking,<br />
and also signposting people to their<br />
local healthcare professionals for<br />
more advice and information. With<br />
the support of a Department of<br />
Health Section 64 grant, the project<br />
has coordinated 12 COPD public<br />
awareness raising events across<br />
England. These events have attracted<br />
an estimated footfall of over 5,000<br />
Our COPD Project Team has coordinated<br />
public awareness-raising events<br />
across England.<br />
18 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
“I was astonished that a room filled with doctors and health<br />
experts wanted to listen and understand my point of view”<br />
…says former miner Pat Crowe (pictured right), aged 57, chairman of Mansfield and Ashfield Breathe Easy<br />
group in the Midlands. “I was diagnosed with COPD in 2002 after being misdiagnosed with asthma since<br />
1989 and was really pleased when the Government announced<br />
they were developing a National Service Framework for COPD<br />
because it meant that at last people like me would be more of a<br />
priority for our local health services. When the <strong>British</strong> <strong>Lung</strong><br />
<strong>Foundation</strong> asked if I would attend some workshops organised<br />
by the Government to canvas the opinions and views of<br />
patients with COPD, I jumped at the chance.”<br />
“I attended three out of four workshops all over the country<br />
and each one focused on a different subject - pulmonary<br />
rehabilitation, treatment management, palliative care, early<br />
diagnosis, the smoking ban, medicines, devices and<br />
alternative therapies. I was absolutely astonished how the<br />
health professionals and lung health experts who attended the<br />
workshops were so keen to listen to mine and other patients opinions and<br />
it was also great to see that the majority of patients attending the workshops were<br />
Breathe Easy members proudly representing the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>”<br />
“I can honestly say that I found the whole experience very worthwhile and interesting. I just hope now<br />
that the Government will go on to create a worthwhile document which will be implemented in a practical<br />
and useful way to help make the lives of future generations of patients living with COPD a little easier.”<br />
and of the 248 people who<br />
undertook lung function screening at<br />
these events, 33 (13%) were<br />
referred to their GP for further advice<br />
and assessment.<br />
Members of the COPD Project Team<br />
have visited various Breathe Easy<br />
groups in England and have been<br />
supporting BLF regional staff to<br />
spread the word about the NSF and<br />
the charity’s COPD Project. At these<br />
events, we have been getting a sense<br />
of what patients and carers want,<br />
not only out of the NSF, but also<br />
from the BLF in the future.<br />
The COPD project is very much taking<br />
their lead and members like Pat Crowe<br />
have been very supportive in looking at<br />
how we roll out our activities.<br />
Influencing the<br />
National Service<br />
Framework for COPD<br />
The Chief Executive is a member<br />
of the External Reference Group for<br />
the Department of Health advising<br />
on the content of this NSF. She is<br />
co-chairing the Patient Awareness<br />
and Prevention and Awareness<br />
Raising Subgroups as part of this<br />
work. The advice from the External<br />
Reference Group will be given to<br />
Ministers in January 2008 and the<br />
Department of Health will then take<br />
on drafting the NSF with a view to<br />
making it public towards the end<br />
of 2008.<br />
We planned to<br />
establish a COPD<br />
Project Team and to<br />
engage with patients,<br />
carers and other<br />
partners about the<br />
forthcoming NSF<br />
for COPD.<br />
19 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
BLF Research – giving hope for the future<br />
This year has been spent<br />
consolidating the <strong>British</strong> <strong>Lung</strong><br />
<strong>Foundation</strong>’s investment in medical<br />
research and developing a new<br />
strategy for the way in which we<br />
allocate funding to research. During<br />
the year the BLF made two important<br />
research awards:<br />
Dr Zsuzsanna Tabi from the School of<br />
Medicine at Cardiff University has<br />
received £139,000 from the BLF June<br />
Hancock Mesothelioma Research<br />
Fund to study a new type of<br />
treatment for mesothelioma, a cancer<br />
caused by past exposure to asbestos.<br />
The grant will enable her to<br />
investigate the possibility of<br />
developing an immune therapy<br />
treatment for mesothelioma, using<br />
the patient’s own immune cells to<br />
attack the tumour cells.<br />
Dr Ling-Pei Ho of University of Oxford<br />
has received the Henry Shelford<br />
award for research into sarcoidosis.<br />
Dr Ho was awarded £50,082 for her<br />
project looking at the role that our<br />
genes play in the development of<br />
long-term progressive sarcoidosis.<br />
We also awarded 20 Travel Fellowship<br />
awards of £750 each to respiratory<br />
scientists to enable them to attend the<br />
European Respiratory Society annual<br />
congress in Munich in September<br />
<strong>2006</strong> and nine Travel Fellowship<br />
awards of £750 each to the American<br />
Thoracic Society annual congress in<br />
San Francisco in May <strong>2007</strong>.<br />
Although it may appear this year’s<br />
investment into medical research has<br />
been smaller than usual, this is simply<br />
a consequence of delaying the<br />
awarding of the majority of research<br />
funds raised in <strong>2006</strong>-07 until<br />
November <strong>2007</strong> (see box for a fuller<br />
explanation of this).<br />
New research strategy<br />
As the only UK charity that<br />
supports research into all forms of<br />
lung disease, the BLF recognises the<br />
need for a robust strategy that will<br />
help make the most of our<br />
investment in medical research. In<br />
consultation with the wider UK<br />
respiratory research community, the<br />
BLF’s Scientific Committee has now<br />
developed a three-stranded<br />
research strategy:<br />
• Capacity Building - helping<br />
scientists to begin and maintain a<br />
career in lung research.<br />
• Research Prioritisation - ensuring<br />
our research tackles the most<br />
important questions in lung<br />
disease.<br />
• Patient-Centred Communication –<br />
improving the way we tell nonscientists<br />
about the work we fund.<br />
The BLF will also continue to<br />
welcome opportunities in working<br />
with other organisations interested in<br />
funding respiratory research.<br />
Accounting for research grant awards<br />
The Charity Commission’s Statement of Recommended Practice (SORP) states that grant expenditure must be<br />
accounted for in the year it is allocated. In 2005-06, the BLF made its research awards before the end of the<br />
financial year, so that grant expenditure could be accounted for in the same year that the money was raised.<br />
However, as our accounts had not been audited at this point in time, the Scientific Committee did not know exactly<br />
how much money was available to allocate to new research grants. This made it difficult for the Committee to<br />
make informed funding decisions and has lead to changes in the timing of research fund allocations this year.<br />
It was agreed that the money raised for research in <strong>2006</strong>-07 should not be allocated until the financial audit for the<br />
year had been completed. The grants award meeting for distributing funds raised in <strong>2006</strong>-07 will therefore take<br />
place in November <strong>2007</strong>. To ensure compliance with SORP, the grants awarded in November <strong>2007</strong> will be<br />
accounted for in the <strong>2007</strong>-08 financial year. Therefore, details of this expenditure will appear in our <strong>2007</strong>-08<br />
annual review together with details of the awards made.<br />
20 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
In 2005-06 we<br />
planned to develop<br />
a new research<br />
strategy, to make<br />
sure we get the most<br />
from the funds we<br />
spend on medical<br />
research.<br />
TB researcher wins<br />
prestigious BLF award<br />
Innovative research aimed at<br />
combating TB has won the<br />
prestigious BTS/BLF Young<br />
Investigator of the Year award. These<br />
awards are designed to recognise and<br />
reward innovative research in lung<br />
disease and they attract around 100<br />
entries from young doctors every<br />
year. "It is crucial to encourage this<br />
kind of research from young doctors if<br />
we are to have any hope of achieving<br />
ground-breaking cures for lung<br />
disease in the future," says Dame<br />
Helena Shovelton. The winning<br />
research projects are expected to be<br />
published in the specialist medical<br />
magazine Thorax.<br />
Dr Clare Sander of Oxford (pictured<br />
below right), who is a Specialist<br />
Registrar in Respiratory Infection at<br />
the Royal Brompton Hospital in<br />
London, received the Young<br />
Investigator’s Prize for her work to<br />
improve the efficacy of the BCG<br />
vaccine to combat TB. After a period<br />
of decline in the UK, the most recent<br />
figures for 2005 showed the number<br />
of TB cases in England, Wales and<br />
Northern Ireland rising sharply<br />
by 10.8 per cent.<br />
Dr Rachel Hoyles of London, an<br />
Arthritis Research Campaign Clinical<br />
Research Fellow at the Royal<br />
Brompton Hospital and Royal Free<br />
and University College Medical<br />
School, was runner up in the Awards<br />
for her work on the causes of<br />
pulmonary fibrosis. Dr Phillippa<br />
Lawson of West Wickham,<br />
Cambridge, is a Wellcome Clinical<br />
Research Training Fellow at University<br />
College London, also received a prize<br />
for her investigation into possible<br />
genetic tendencies for sarcoidosis<br />
to occur.<br />
New BLF research<br />
spares children the pain<br />
of the needle<br />
Children could be spared the pain of<br />
the doctor’s needle when they are<br />
being treated for pneumonia, thanks<br />
to new research funded by the<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>. In the study,<br />
researchers at The University of<br />
Nottingham discovered that<br />
antibiotics taken orally are just as<br />
effective as those given<br />
intravenously in children with acute<br />
respiratory infection.<br />
In fact the study found that those<br />
patients given oral treatment<br />
recovered more quickly, suffered less<br />
pain, required less oxygen therapy in<br />
hospital and were able to go home<br />
sooner than those given injections.<br />
2.5 million children are affected by<br />
pneumonia each year in Europe.<br />
Over the last 5 to 10 years, increasing<br />
numbers of them have been<br />
admitted to hospital and treated with<br />
injected antibiotics.<br />
The findings suggest that these<br />
injections – endured by generations<br />
of children – may be unnecessary and<br />
could be replaced with oral doses of<br />
the medicine in the majority of cases.<br />
The research was led by Terence<br />
Stephenson, Professor of Child Health,<br />
and Dr Maria Atkinson, both of The<br />
University of Nottingham’s Medical<br />
School. The study is the first in the<br />
world to compare oral treatment<br />
versus IV treatment for children with<br />
community-acquired pneumonia who<br />
are unwell enough to need admission<br />
to hospital.<br />
Professor Stephenson said: “This is<br />
good news for children who hate<br />
injections; good news for parents<br />
whose children will spend less time in<br />
hospital; good news for paediatricians<br />
who hate sticking needles in children<br />
and good news for the NHS as less<br />
beds will be occupied and the<br />
treatment is cheaper.”<br />
The researchers conclude: “We<br />
suggest that in countries like the UK,<br />
all but the sickest children with<br />
community-acquired pneumonia<br />
should be treated with oral<br />
amoxicillin initially. We expect that<br />
the majority of children will still<br />
require hospital admission but for a<br />
shorter period to ensure oral<br />
medication is tolerated, and<br />
temperature and respiratory distress<br />
are settling. Most importantly,<br />
children will be spared the pain and<br />
distress that injections cause.”<br />
21 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
fundraising<br />
Strong performance by fundraising<br />
The <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> relies on<br />
the generosity, support and<br />
commitment of many individuals, the<br />
business community, trusts,<br />
foundations and statutory sources to<br />
fund its work and activities.<br />
This year has been the most successful<br />
ever for the charity and we are<br />
profoundly grateful for the support<br />
given whether through money, time or<br />
sharing of resources. A record<br />
£6,215,982 was raised, 40 per cent<br />
higher than the previous year, reflecting<br />
the successful implementation of the<br />
five-year fundraising strategy and<br />
investment in staff posts. The cost of<br />
achieving this impressive result has<br />
been closely monitored and we are<br />
pleased that expenditure in these<br />
activities was 30 per cent lower than<br />
expected. Fundraising costs for the year<br />
were 13.1p for every £1 raised.<br />
Impressive results were achieved from<br />
the business development and trust<br />
and statutory teams who secured<br />
significant high return donations and<br />
funding to support key activities. A<br />
major donor programme has started<br />
and several one-off donations were<br />
received during the year towards<br />
research activities.<br />
There has been significant growth in<br />
income from charitable trusts,<br />
foundations, statutory sources and<br />
the business community. Collectively<br />
they have contributed £2,219,977<br />
and helped fund a wide range of new<br />
projects and core activities including<br />
medical research, high profile<br />
campaigns such as the World COPD<br />
Day Roadshow, Breathe Easy<br />
Awareness Days, the Helpline and the<br />
BLF Nurse programme. We were<br />
especially pleased to receive funding<br />
to produce and air the first BLF<br />
television campaign in the Yorkshire<br />
Television area and to fund the<br />
development of the charity’s COPD<br />
Project Team.<br />
Engaging individuals in events and<br />
regular giving programmes has been<br />
more challenging, although there<br />
were some positive results during<br />
the year. New activities including a<br />
BLF team in the New York Marathon<br />
and the London to Paris Bike Ride<br />
were well supported, together<br />
raising over £35,000, and existing<br />
activities such as Breath of Life<br />
Funds continue to perform well.<br />
Investment in payroll giving has<br />
delivered impressive returns with a<br />
70 per cent increase on the<br />
previous year. Legacy income<br />
continues to be an important source<br />
of income for the charity – this year<br />
gifts totalled £930,983. Established<br />
events such as the London<br />
Marathon, Great North Run, overseas<br />
treks and challenges, Midlands <strong>Lung</strong><br />
Run and the golf days continued to<br />
attract supporters and our thanks go<br />
to everyone who participated in<br />
these events and raised much<br />
needed funds.<br />
“I wanted to beat Matt Dawson and<br />
Gordon Ramsay and I did”<br />
…says James Thomlinson, 23, who has COPD and ran the London<br />
Marathon for the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>. “Running the marathon was<br />
a personal ambition, but if I was going to run for a charity, I wanted to<br />
run for the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong>. I did it with two other friends and<br />
between us we raised nearly £7,000. While we were training we<br />
heard ex-England rugby player Matt Dawson and top chef Gordon<br />
Ramsay were running and decided we were going to beat them and<br />
we did. We even saw them on the course. Whenever we ran past<br />
other people wearing BLF T-shirts we cheered them on.”<br />
22 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
During the year we wanted to<br />
consolidate our progress<br />
towards building our base of<br />
sustainable funding.
Aim: to develop our<br />
major donor<br />
giving programme.<br />
Staff will continue to identify and<br />
attract new sources of support in line<br />
with the agreed five-year fundraising<br />
strategy in order to plan for future<br />
growth and development.<br />
This includes work on our major donor<br />
fundraising strategy. There has been<br />
generous support for medical research<br />
projects into the causes, treatments<br />
and better understanding of lung<br />
disease from a range of donors. We<br />
are particulaly grateful to Severin<br />
Wunderman for his gift. With one<br />
person in seven now affected by lung<br />
disease in the UK, the need for funding<br />
has never been greater - we hope to<br />
attract significant interest from current<br />
and prospective donors towards this<br />
Event supporters<br />
vital work in the coming year.<br />
We would like to express our gratitude<br />
to everyone who has supported the<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> during the<br />
year and helped make this one of our<br />
most successful ever.<br />
Television advertising<br />
helps spread the word<br />
The BLF received funding from<br />
Boehringer Ingelheim Limited and<br />
Pfizer Limited to develop and run a<br />
television advertising campaign to<br />
raise awareness of COPD and the<br />
BLF’s services. The 30-second advert<br />
was aired in April <strong>2007</strong> on Yorkshire<br />
Television (an area known to have a<br />
Our thanks go the many participants and supporters of the BLF’s<br />
fundraising events programme, including our celebrity supporters and<br />
the organisations which have contributed including:<br />
Brendan Reynolds<br />
Ray Wilkins<br />
BARTS<br />
Gary Lineker OBE<br />
Rob Bonnett<br />
Andrew Cotter<br />
Mark Foster<br />
Dan Lobb<br />
Celina Hinchcliffe<br />
Ed Stewart<br />
Sir Henry Cooper OBE<br />
Desmond Lynam<br />
Alex and Daniel Stewart and<br />
Nina Anderson<br />
Birmingham City Council<br />
Ashdown Forest Royal Golf Club<br />
higher than average incidence of<br />
COPD in the population) and ran for<br />
four weeks. Seen through the eyes of<br />
a person with COPD, the advert<br />
highlighted the difficulties and<br />
frustrations of coping with everyday<br />
tasks such as climbing the stairs and<br />
gardening. The viewer was invited to<br />
contact the BLF Helpline for support<br />
and advice to help them “breathe<br />
more easily”.<br />
The adverts were targeted at both<br />
women and men aged 60 and over<br />
with COPD or COPD symptoms.<br />
They were also intended to inform<br />
people of all ages who might know or<br />
care for someone with COPD or<br />
COPD symptoms.<br />
Throughout the campaign the BLF<br />
Helpline extended its normal weekday<br />
opening hours until 9pm in the<br />
evenings and additional temporary<br />
staff were taken on to handle the<br />
increased number of calls. Some 686<br />
calls were received as a result of people<br />
seeing and responding to the advert.<br />
The advert resulted in an increased<br />
uptake across other BLF services –<br />
additional COPD publications were<br />
requested, there was an increase in<br />
visits to the BLF website<br />
www.lunguk.org and an annual<br />
awareness survey conducted by GfK<br />
NOP highlighted that awareness of<br />
COPD and breathing problems in<br />
Yorkshire and Humberside increased<br />
on the previous year. BLF publicity<br />
generated 19 items of regional media<br />
coverage about the advertising<br />
campaign, reaching a potential<br />
audience of 872,396 people.<br />
24 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
Finance<br />
In <strong>2006</strong>-07 we achieved our highest ever income, just above our previous best performance in 2004-05 and 40 per cent<br />
higher than the previous year. This strong performance was due mainly to significant increases in income received from<br />
trusts, companies, individuals and legacy donations. The growth is also partly attributable to the wide range of fundraising<br />
initiatives which were put in place during 2005-06 in order to develop future income growth.<br />
Income<br />
Activities in relation to Breathe Easy and patient support £969,440<br />
Public education & literature £46,065<br />
Legacies £930,983<br />
In Memoriam £496,755<br />
Companies £964,800<br />
Trusts £1,255,177<br />
Individuals £919,595<br />
Events £398,263<br />
Investment incomes £234,904<br />
£6,215,982<br />
Expenditure<br />
Public education & literature £916,795<br />
Activities in relation to Breathe Easy and patient support £2,356,676<br />
Research grants £181,368<br />
Research department costs £79,639<br />
Campaigning and awareness raising £529,205<br />
Costs of generating voluntary income £816,990<br />
Governance costs £216,762<br />
£5,097,435<br />
Overall income<br />
£4,879,506<br />
£6,113,045<br />
£4,423,907<br />
£6,215,982<br />
2003 - 04<br />
2004 - 05<br />
2005 - 06<br />
<strong>2006</strong> - 07<br />
25 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
Income<br />
Income was £6,215,982 (<strong>2006</strong>:<br />
£4,423,907), up by just over<br />
£1,792,000 (40 per cent) from <strong>2006</strong>.<br />
Income streams with a significant<br />
increase on <strong>2006</strong> figures were: Trusts<br />
up £1,035,000, Companies up<br />
£706,000, Legacies up £348,000,<br />
and Individuals up £339,000. These<br />
were, however, offset by Activities in<br />
relation to Breathe Easy and patient<br />
support which were down by<br />
£321,000 and Public education and<br />
literature down by £298,000.<br />
Activities in relation to Breathe Easy<br />
and patient support includes the total<br />
income of Breathe Easy groups of<br />
£461,000 (<strong>2006</strong>: £401,000).<br />
Expenditure<br />
Expenditure totalled £5,097,435<br />
(<strong>2006</strong>: £5,157,654), a decrease of just<br />
over £60,000 (one per cent) against<br />
<strong>2006</strong>. Expenditure in <strong>2006</strong> included<br />
charitable expenditure of £596,000<br />
designated out of the 2005 surplus by<br />
the Trustees, which was spent in <strong>2006</strong>.<br />
The Costs of generating voluntary<br />
income include direct fundraising costs,<br />
salaries and overheads of fundraising<br />
staff. These costs decreased by 19 per<br />
cent in the year to £816,990, and<br />
equated to 13.1p for every £1 raised<br />
(<strong>2006</strong>: 22.8p). This decrease reflects<br />
our previously stated aim to refine our<br />
fundraising strategy to increase our<br />
income while maintaining a tight<br />
control on expenditure, in order to<br />
maximise our expenditure on our<br />
charitable activities.<br />
Expenditure on charitable activities<br />
increased by three per cent to<br />
£4,280,445 (<strong>2006</strong>: £4,146,893). Such<br />
expenditure equated to 68.9p for<br />
every £1 raised (<strong>2006</strong>: 82.6p). This<br />
figure is not directly comparable with<br />
last year because of the decision to<br />
delay the awarding of major research<br />
grants until November <strong>2007</strong>. If the<br />
planned research grants had been<br />
awarded in the <strong>2006</strong>-07 financial year<br />
this year’s ratio would have been<br />
80.8p for every £1 raised. Expenditure<br />
categories in relation to charitable<br />
activities are detailed above and<br />
include the expenditure of Breathe<br />
Easy groups, and the expenditure on<br />
salaries and overheads of staff<br />
involved in delivering our charitable<br />
objectives.<br />
This summarised information has<br />
been extracted from management<br />
information. These financial highlights<br />
may not contain sufficient information<br />
to allow a full understanding of the<br />
financial affairs of the charity. For<br />
further information, the full statutory<br />
accounts, the auditors’ report on those<br />
accounts and the Report of the<br />
Trustees should be considered. Copies<br />
of these will be available from the<br />
registered office once approved by the<br />
Board of Trustees at their meeting on<br />
28 November <strong>2007</strong>.<br />
Thank you!<br />
Grateful thanks to everyone who has volunteered, donated, remembered us in their Will, taken part in an event, started a<br />
Breath of Life Fund or made an in-memoriam gift during <strong>2006</strong>-07.<br />
Trust and foundation<br />
supporters<br />
Archer Trust<br />
Awards for All<br />
Big Lottery Fund<br />
Big Lottery Fund Scotland<br />
Burdett Trust for Nursing<br />
W A Cargill Fund<br />
City Bridge Trust<br />
Martin Connell Charitable Trust<br />
Department of Health (Section 64)<br />
John Ellerman <strong>Foundation</strong><br />
Eranda <strong>Foundation</strong><br />
Peter John Foord Charitable Trust<br />
Donald Forrester Trust<br />
Freemasons’ Grand Charity<br />
Greendale Charitable <strong>Foundation</strong><br />
King Edward VII Hospital, Midhurst<br />
Kirby Laing <strong>Foundation</strong><br />
Lloyds TSB <strong>Foundation</strong> for England<br />
and Wales<br />
Robert Luff <strong>Foundation</strong> Limited<br />
W M Mann <strong>Foundation</strong><br />
Merchants' House of Glasgow<br />
Miller <strong>Foundation</strong><br />
P F Charitable Trust<br />
Partick Queen Victoria Diamond Jubilee<br />
Benevolent Association<br />
Peacock Charitable Trust<br />
Rayne <strong>Foundation</strong><br />
The Muriel Edith Rickman Trust<br />
Rosetrees Trust<br />
Row Fogo Charitable Trust<br />
ShareGift (The Orr Mackintosh<br />
<strong>Foundation</strong>)<br />
Sir Samuel Scott of Yews Trust<br />
Henry Smith Charity<br />
Souter Charitable Trust<br />
Strathclyde Police Benevolent Fund<br />
Swire Charitable Trust<br />
Garfield Weston <strong>Foundation</strong><br />
Francis Winham <strong>Foundation</strong><br />
J & J R Wilson Trust<br />
James Wood Bequest Fund<br />
Zochonis Charitable Trust<br />
...and a number of trusts and<br />
foundations that wish to remain<br />
anonymous<br />
Corporate supporters<br />
Air Products PLC<br />
AstraZeneca UK Limited<br />
Boehringer Ingelheim Limited<br />
Garnett Keeler Public Relations<br />
GlaxoSmithKline<br />
Monster UK<br />
TMP Worldwide<br />
Novartis Pharmaceuticals UK<br />
Pfizer Limited<br />
Talteg Limited<br />
26 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
President<br />
Dr John Moore-Gillon MA MD FRCP<br />
Past president<br />
Sir John Batten KCVO MD FRCP<br />
Chairman<br />
Dr Keith Prowse BSc MD FRCP<br />
Vice Presidents<br />
Greta Barnes MBE<br />
Prof Peter Barnes DM DSc FRCP FMedSci<br />
Sir Christian Bonnington CBE<br />
Prof Mark Britton MD MSc FRCP<br />
Dame Judi Dench CH DBE<br />
Sir Terence English KBE FRCS FRCP<br />
Baroness Fritchie of Gloucester DBE<br />
Sir Richard Giordano KBE<br />
Prof Sir Malcolm Green DM FRCP FMedSci<br />
David Hanger<br />
Dame Deirdre Hine DBE FRCP FFPH<br />
Prof Stephen Holgate MD DSc FRCP FRCPE FRCPath FMedSci Cbiol FIBiol<br />
Lord Howe of Aberavon<br />
Prof William MacNee MBChB FRCP<br />
Dr Michael Morgan MD FRCP<br />
Sir Richard Sykes DSc FRS<br />
Lord Tugendhat<br />
Prof Lord Turnberg PRCP FRCP<br />
Prof Dame Margaret Turner-Warwick DM PhD FRCP<br />
Severin Wunderman<br />
Board of Trustees<br />
Dr Keith Prowse BSc MD FRCP (Chairman)<br />
Mr Ian Hudson FCA (Honorary Treasurer)<br />
Dr David Bellamy MBE BSc FRCP MRCGP<br />
Lord Borwick (Deputy Chairman)<br />
Mr Peter Dolphin (appointed 1 September <strong>2006</strong>)<br />
Dr Noemi Eiser MD FRCP (resigned 29 November <strong>2006</strong>)<br />
Prof Ruth Endacott PhD MA Cert Ed DipN RN (appointed 1 July <strong>2006</strong>)<br />
Dr Emrys Evans MB BCh MD FRCP (appointed 13 February <strong>2007</strong>)<br />
Mrs Christine Fehrenbach RCN (resigned 29 November <strong>2006</strong>)<br />
Mr Russell Hancock (resigned 29 November <strong>2006</strong>)<br />
Sir Graham Hart KCB (appointed 1 September <strong>2006</strong>)<br />
Prof Chris Haslett BSc MBChB FRCP FRSE FMedSci OBE<br />
Mr Graham Lancaster<br />
Prof Warren Lenney MD FRCP FRCPCH DCH (resigned 13 February <strong>2007</strong>)<br />
Ms Gillian Perkins BA (appointed 1 July <strong>2006</strong>)<br />
Mrs Samantha Prigmore MSc BSc RGN (appointed 13 February <strong>2007</strong>)<br />
Mrs Phyllida Pyper (resigned 26 July <strong>2006</strong>)<br />
Dr Gary Ruiz FRCP FRCPCH (appointed 25 July <strong>2007</strong>)<br />
Mrs Amanda Sater<br />
Mr Karamjit Singh CBE (appointed 1 July <strong>2006</strong>)<br />
Prof Stephen Spiro BSc MD FRCP<br />
Prof Monica Spiteri PhD FRCP (resigned 29 November <strong>2006</strong>)<br />
Mr Sabah Zubaida (appointed 1 September <strong>2006</strong>)<br />
Advisory Council<br />
Dr John Moore-Gillon MA MD FRCP (President)<br />
Dr Keith Prowse BSc MD FRCP (Chairman, Board of Trustees)<br />
Ian Hudson FCA (Honorary Treasurer)<br />
Lord Borwick (Deputy Chairman)<br />
Greta Barnes MBE<br />
Prof Edwin Chilvers PhD FRCPE FRCP<br />
Prof Paul Corris FRCP<br />
Prof Tim Evans BSc MD PhD DSc FRCP FRCA EDICM FMedSci<br />
Dr Jonathan Goldman MD FRCP<br />
Prof Chris Haslett OBE BSc MBChB FRCP<br />
Dr William Holmes MRCP FRCGP<br />
Amanda Jordan OBE<br />
Dr Mike Morgan MD FRCP<br />
Dr Fiona Moss MD FRCP<br />
Dr James Paton MBChB MD MRCP<br />
Richard Reid FCA<br />
Prof Rob Stockley MD DSc FRCP<br />
Adrian Vickers<br />
27 <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Annual Review 06/07
Contacting the <strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
Email: enquiries@blf-uk.org<br />
Helpline: 08458 50 50 20 (Mon-Fri, 10am-6pm)<br />
Website: www.lunguk.org<br />
Head Office<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
73-75 Goswell Road<br />
London EC1V 7ER<br />
Tel: 020 7688 5555<br />
National Offices<br />
Scotland and Northern Ireland<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
Scotland & Northern Ireland<br />
Suite 110-111, Baltic Chambers<br />
50 Wellington Street<br />
Glasgow G2 6HJ<br />
t: 0141 229 0318<br />
e: scotland@blf-uk.org<br />
e: northernireland@blf-uk.org<br />
Wales<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong> Wales<br />
6/7 Llandarcy Suite<br />
Llys Kearns, Jersey marine<br />
Swansea SA1 8QL<br />
t: 01792 455 764<br />
e: wales@blf-uk.org<br />
Regional Offices<br />
London and South<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
73-75 Goswell Road<br />
London EC1V 7ER<br />
t: 020 7688 5555<br />
e: londonandsouth@blf-uk.org<br />
Midlands<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
Carlton House<br />
28 Regent Street<br />
Leicester LE1 6YH<br />
t: 0116 249 5780<br />
e: midlands@blf-uk.org<br />
North<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
The Sir GB Hunter Memorial<br />
Hospital<br />
The Green<br />
Wallsend NE28 7PB<br />
t: 0191 263 0276<br />
e: north@blf-uk.org<br />
North West<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
Orleans House<br />
Edmund Street<br />
Liverpool L3 9NG<br />
t: 0151 224 7778<br />
e: northwest@blf-uk.org<br />
South West<br />
<strong>British</strong> <strong>Lung</strong> <strong>Foundation</strong><br />
Second floor, South Suite<br />
Liberty House, South Liberty Lane<br />
Bristol BS3 2ST<br />
t: 0117 300 4080<br />
e: southwest@blf-uk.org<br />
Registered charity of England and Wales - no. 326730<br />
Charity registered in Scotland - no. SC 038415<br />
• helpline: 08458 50 50 20<br />
• e: enquiries@blf-uk.org<br />
• w: www.lunguk.org