Toomey J Gazette (Vol. 6, No. 1, 1963) - Polio Place

Vol.VI, No.1 Spring-Smer, 1963 Horizontal Eiitora: Sue h'illiams 

Editorial Office: Sox lL9, Chagrin veils. Ohjo, U.S.A. 

Ida Brink, Jme Cornstack, Barbara Cory, Ruth Davis, Don 

Kollw, Marperet Borris 

The TOOMEY j GAZETTE is published twice a year by a Managing sitor: Gini Laurie 

volunteer staff of severely discbled (Horizontals) and Vertical Filitors: Connie Winslow, Jean Frazier, Naney Martt. 

their nor-disabled friends (Verticals). It is a non- Brooke Ouens, Maribei '(eynolds, Naney Sarpnt, Melda Smith 

"rofit, tax-deductible organination incorporated as: Circulation: Frieda Hutchins, R.E., Billie )!hitlinger 

Iror; Lung . Polios. Ine. 

Addressers: Ruth Adans, Louise Bartholomew, Barbara English 

Market Place: Mickie McCrav 

FREE to respos, other quads and all seversly disabled. Business Managers: >!aney Hoover, Mary Lynch 

Horizontal Medical Mitor: Duncan 6.. Holhert, M.D. 

QUaS are auadriple~ics--those whose four limbs are 

paralyzed or useless because of disease Ho~isontal Correspondents: Ann idama, Margaret E~nderson, 

Susan Armbreeht, Jecob H. Blitzer, Jr., Brjeid Boardman, 

RE'OS are respiratory polio$-----those who reouire John Lyle Bromlee, Darlene Cal~sert, Merle Chishclm, 

mechanical breathing aids, such as iron lungs, etc. Doris Coutant, Maq- 'Ellen Davis, Mary Jane Faull, Jack 

(Professionals - minimum cortrihition of 51 per cooy) Fuller, Join" Godin, Kathy Harrigan, Paul Hibbard, Ira 

Holland, Vince La Mielle, Charles Lyser, Jean Mead. 

Imo~ene Priehard, Juanita Pusatwi, irene Ridgeway, Dana 

@. g< &L 

Stanton, Betty Weisensel, Naney Westman, Diana Wilkins, 

L. Clyndwr Williams 

TjG ILIM: To reach, to inform, and to dipify all Horizontal Foreign Correspondents: See below 

respiratory polios, and all other severely disabled Promotional Mitors: Bea Shmock, Jan Service, Pearl Essert 

young adults, throughout the world. 

Technical Mviser: Junius Eddy 

Writers: Our vriters are the readers 

Argentina: llonica Le I.!onnier, Rdripuez Pena 3L, auenos Aires 

Australia: tiax Rawson, Uard 12, Fa3rfield Hospital, ?airfield, Victoria 

Canada: Bob Cordon, Pearson polio Pavilion, 700 W. 57th Ave., Vancouver 11, B.C. 

Horizontal England: Kenneth KcDonald, 3, llaoles Ave., Burnlev, Lane. 

Foreign France: Michel Le Saw, L 11 A, Hopital R. Pcincare. Carches, S et 0 

Correspondents Cernary: Jurean Erbsleben, Hanburg Gsdorf, Blomkamg 90d 

Ireland: Ethna OqDaud, Ward 7, Cherry Orchard Hospital, Dublin 10 

. E!ev Zealand: ?!paire Pascee, Lincoln Pd., lassey, Hen3erson 

Suitzerlacd: Charles 'raelicher, Steinofhalde 16. Luzern

Vol.VI No.1 (Sixth Year) Chagrin Falls, Spring-Swnmer, 1963 Circulation: 5,012 

TWO SPECIAL FEATURES: 

QUADS AT HOME - FAMILY LIFE AND FUN 

HOUSING FOR HOMELESS QUADS 

4 It 1 s Great to he Home, Joe Cardy 25 Introduction - b'here will I ~o: 

7 Consider Adoption!, Grace Sadness and Lowell C,'eissert 20 The Cheshire Homes in England 

8 Everybody in the Act, Mary .inn Hamilton and Ruth Davis 29 iustralia, Ireland and Finland 

10 Vive la difference! 

12 Volunteers Give Valued Service 

SPORTS AND VACATI0E:S 

30 A Danish Experiment, Euger.ie 

heberg 

35 Housine in the U.S.A. 

41 h'otes from Hell or a Polio's 

15 I. Fishing - With Rod and Wheel, Don W. Smith Derditior, E. 3. Rector 

16 It's No Fish Story, Roy kbell 

DEPARTMENTS 

18 11. Swimming - That's Revolutionary, Tusan krmbrecht 

20 111. Camping - ii Wonderful Experience!, Betty Mielke 

21 IV. Vacation Directory 

Joe Cardy and two of his post-polio, 

"wonders of God" babies. See "age 4 

22 Bulletin Board 

42 Equipent 

48 >brket Place 

51 hual Report 

52 Sponsors

it's Great to Be Home 

by -930 Cdy 

12, Wykeham Rd., Ir'rittle, 

Nr. Chelmsford, Essex, mgland 

On 

Friday the thirteenth in 1957 I became a polio suspect. I was soon on my way to 

the isolation hospital, which uss right apposite the London Road firm vith whom I had 

been eqloyed as an industrial engineer. When my breathing veahened rapidly, the diagnosis 

of polio ves confirmed. 

I vas then smartly vhisked was to the nearest respiratory polio unit, Rush Green [ 

Hoqital, Romford, and peped into an iron lung. Time \rent @ and, after six months , 

in the lung, things looked pretty permanent. lher I learned frog-breathing. It was 

the hardest work I had ever done, but it meant some freedom from the lung. 

I still had to have mechanicel aid to breathe throughout the night and most of the 

day, but it was in the form of the Tunnicliffe brenthine jacket that alloved me to 

sit up in a normal bed. Being a very practical man I soon began to make us? of the 

only moving part left, my head, I mean the outside of my head as well as the inside. 

I dressed up in an ear, nose and throat specialist's headband, vith a sixteen-inch 

metal r d orojecting fonrd like a unicorn's horn,to which I attached paint brushes. 

Propned up in bed vith an easel in front of me and with some paints vithin reach,I 

once more made my mark in the world. hd so it vent for another year, painting a lot 

of pictures and havinc them noticed. 

. .:,,,.v:

I had come to terms with the neb, rorld in uhich I lived. I csll the police or fire-brigade for more batteries. A phone 

was not ill any more but I was still helnl~ss. The challenge was rigpd for emergencies. A hone help whs hired to help my 

had begun. I had been ~iven life apilin and I uas going to wife, who already had to look after our two small children, 

live it. Being just 25, I still had a lot of thin~s to do. Leonard and Joseohine. The district nurse arranged to call 

I was now able to stay out of my breathin5 device for two on me each mornins. The date was set, and home I came. That 

and a half hours, and had been in hosmital eighteen months. whs in December 1958. 

For a patient vhoss breathoflife depended on a machine, Some called me brave and some mad, to take such a risk. But 

the dream of going home uhs as hopeful as a dream of winning after a time things worked out and I got to know the outside 

the pools. The risk was too big with electric power cuts and world again. Then nature had its way and my wife became preca 

host of other hazards to be faced. nant. Ye had a beautiful baby girl, of whom I am very proud 

But my wife, Doreen, is bath devoted to me and has a prae- indeed - Shirley Jane. 

tical tum of rnind, so she and I ttlllred it over. Then we Two of my first interests after the illness were the teletalked 

to my doctor on the uard vho in turn discussed it uith vision and the radio. I must say they still are. I have to 

the superintendent who decided to give it a trial. A fifteen- keep up to dhte with the cowboys and Huckleberry Hound, who 

amp socket was installed into vhich my machine cculd be plug- are great favourites uith my children as well as with me. I 

ged. I also got batteries to drive a small D.C. electric mo- enjoy reading, with my son turning the pages for me, ard I 

tor vhich would run my machine for five hcurs, then we could like music - anything jazzy like rock 'n' roll. 

-, 

I 

! 

-. 

I - 

I 

'. 

, , 

.~ 

I 

1.-

Mr latest an6 prized oossessior is an electric typewriter. 

I :ype 'y using the painting headband and a rubber cork on 

the end of the wand with which to press the kel-s. As for my 

naintin~s, I now use oils, and paint on cr,vas. It was by 

selling them that I was able to buy my typewriter. Secordhand, 

of course, but ouite seruicehble. >:ow that I can vrite 

under my oun stem, I would like to find Den friends. I am 

sure I car find nlentj. to talk about as my i~terests are wide. 

Last fall I started takin~ 3glish 1essor.s four afternoons 

a week. It is being oaid for @ the loci1 Cocnt:; Ccuncil uho 

have said that a home .tezcher ma? call on me as long ashe 

thinks necessary. The teacher is a rstired ma. sho has taught 

for 50 years in a ~ocd school and he is sc very interesting. 

'he hoed-for outcome is that I shall be able to write short 

stories far children's magazines. I have already written two 

and we are hcoefully nlu~~icp them with the publishers. 

We moved into a larger house that has more graurd - floor 

space and a mch better view from my window bec&use in iiugust 

1961 we had another ba-, or rather my uor.derfu1 wife, Doreen, 

did. It was another girl - Janet Dam. I went baek to the 

olio centre for the month of August, and I saw all my old 

friends uhile Doreel: had the babe. I often look upon our two 

post-polio babies as wonders of God worked through science, 

and joke to my friends that they were born on borrowed time. 

Tuo of tte pictures are of Doreen and the children dawn at 

the coast. The children are real water babies. hey love to 

stand and let the waves kLock them over. Doreen rents a bungalow 

an the seafront every year for a week, while I go back 

to the hospital. Then, I hear the works vhec they get baek. 

I have been home over five and a half years nau and, with 

the help of my fmily, and many pod friends and the grace 

... 

of 

Ccd, I am living a useful life in my home with my wife and 

~hildren. 3oreen's constant attention an2 the joy I get from 

watching the children at play m&e life worth living.

war. 1, r mvo. an ut*rt. 

dP.i,**, or patin$ c8da - 

(''Grace Hates"!, oal~tlng ulth 

. m0"t'istlcX. see eat Pollo 

in 1950, rhllr at coliap. She 

met her busbud, a=**, throu* 

hu r.di.. mar mrrica 

Ln 1928. She cortlnued roilcge 

work bg corraapondence. Both 

rara,..a dabmas at *a U. of 

rorr - D.Sld a. R.*. i. *ha& 

Illtatio. Cmvllellng ud Cr.ca 

a B.A. in Beild. Dare ia nor 

91dr Plg*lloqiai in the Pahabillimtfon 

Onlt d 01. 0. of 

CONSIDER ADOPTION! 

by Crsee Layton Sandness 

3506-7th Ave I.. Grad Fcrks. 1r.D. 

About 

four years ago we first learne6 

*bout the H~rry Halt Adoption Plan 

(CrphanSs idoptior. Fund, Inc.). Mr. 

and Mrs. Holt "ere tree farmers at 

Cresuell, Oregon, who became interested 

-~ in Korean-American Crnhans. le~ally 

adopted eight of their own, and then 

set up their own ornhana~e in Korea. 

k'e did not ap~ly for a child in this country, since ve hew 

ezough about state agencies to realize that ue vould not have 

a chance. Our fa-1 apnlicetian through the Holt Plan was 

made in December, 1962. Since ue knev of a specific child we 

wished, the process vent faster fcr us thar ordinarily. 

After ap~lying, our home was investigated bp ar irdenendent 

home std~ agencj. We were asked to suhmit letters of recow 

mendatior, pictures, and so forth. Ve next co~leted many 

le@ papers pertaining to the adoption in Kore&. Cynthia Lea 

was subsecuently adopted to us in the Korean courts vith the 

understandin6 that, after she had been vith us six mmths, we 

uould rendopt her in ow state ccurts. 

The next steo was to apoly to the U.S. Immigratior Service 

far a visa for cindx. %is ertailed more home inv~stipitien, 

esoeciall~ of a finareial nature, finger nrints, ete. 

rit last ve received the final aooroval, and CCirdy was flown 

to us - arrivine in Chicapo on !.:a7 5, three days after her 

5th birthday. t!~ husband met her a d ri~ht now ve are adjustins 

to each other and learcing how to camuricate. 

;Je feel th~t, in our situation, an older child will be much 

easier to care for thar. a baby vould heve beer.. I havs three 

reoole,tuc of them collere ~irls, who vcrk at different times 

during the day. They will be able to do the material things 

for Cindy while cq hushand is at work. Hmever, we don't have 

someone living with us all the time, so it shouldn't be had 

for the three of us to become h real family. 

We certainly feel that we can give Cindg a goad home, full 

of the love she needs so much. Since I won't be out gadding 

around as much as same mothers do, I will be able to wend h 

lot of time with her, heloinp her to learn English, etc. 

You can imagine how thrilled ue are to have her. She is 

chattering and sinsing all the time and thrilled vith every 

neu discovery. It will take a lot of adjusting far all of us, 

... 

but we are sure it is all going to work out. We can hardly 

believe that she is finally ours. 

decided to smnort a Korear. bay because 1 

saw so manu little homeless children on 

those dirty streets that I felt I should 

1: . I wrote to the Everett Svanson &ang. Assoc. 

Iis., -771 i.. Irvine Park W., Chicapo 3L, 111. Mr. %ansar. 

sent me information which included the ace of children, 

country they are from, and their rules. For a smrll 

mount yearly, I found that I could support an orphan. 

!.:in rung, the little Korean boy I decided to help, has 

been a blessing to !re. He is now 11 years old and writes 

.nice letters which he dictates. He is studying English 

this year, so I hope he will soon be vriting his own. 

Since I arn unmarried, this eqerienee has been a, real 

satisfaction to me. These children show their apnreciation 

so much. Here is the closing paragraoh from Min's 

last letter: "In all, everything is fine with us, dear 

Dad, and ue are living hamy life in your loving care. I 

just wanted to say that I do love you and pray ffo you 

alvays.. ..your beloved son."

everybody in the act 

scene 1: Mary Ann Hamilton and Family 

scene 2: Ruth Davis and Family 

/ 

1 

4. 1-2 - 

scene 1 

y name is Mary Ann Hamilton. I am an up-side-down 

polio alumna of the 195L cmaign. I am the mother 

of four -elaus children, and one stupendous (that 

is quality, not quantity) husband who calls me his 

wife. Lady luck dropped on my shoulder vhen polio bug 54 came 

visiting in Denver. I am able to valk anprhere I please, 

vithin the capacity of a L50 V.C. I find that I have a small 

problem, though - vhat to do vhen I get there. 

My ams are about as much use to me as an ostrich 

3 wings are to him. Just something to carry around, 

which 1 do, naturally. hlt my "uings" do not fold up 

so my aunt dreamed up a brainstom for me. I wear a 

stole around my neck: it reaches about my vaist length in the 

front. There is a packet in each end in vhich my hands fit. 

These stoles are mads of fairly heav broadcloth and I have 

them in many.colars including orange. For dressy occasions I 

felt and trimmed vith shoulder pins. 

at the thought of a schedule. I haven% 

thought much about being on one. I just accept each 

day as a gift and gratefully open each one to see 

vhat it will bring. 

Our day begins uith thirteen year old Patty 

crawling out of bed at 6:L5 to pack lunches 

for fourteen year old Dmny and herself. Theg 

attend Junior High School. The rest of my 

gang - Danny, Mike, twelve; Jan, ten; and WE KASTER OF OUR 

HOVE, Ed, all take turns banging on the bathroom door. 

Bert, our housekeeper, arrives at 7:15, accompanied 

by her assistant, Pammy, age three. 

Bert has been vith us for three years, which, 

in this house, is a record. After tvo years we a v d the Valor 

in Action Medal, hut after three years - The Purple Heart! 

Pmmy has been coming with her mother since she was only five 

months old. This vas the first time ve had tried a housekeeper 

vith a child and it has varked out beautifully. 

+> At about 8:30 it's my turn to rise and shine. Out of 

the shell, up and dressed. Then Bert, Pmmy and I err 

6 joy breakfast together. I usually read or type 'ti1 

the noon time msh vhen my elementary school erev comes home 

for lunch. 

I sit am) rest for a couple of hours in the afternoon 

g ,in the shell or vith positive pressure(playi'u1ly !mown 

as the opium pipe). I like to stay up late so I take 

a breather in the afternoon. I use a magic vand (mouthstick) 

to type, made of plastic and cut to fit the bite of my teeth. 

Typing this uay,thers is a slight resemblance to a wood-pecker 

beating on the bark of a tree. 

Around 3:30 ve organize the supner and start anything that 

can be cooked that early. My vonderful daughters are taking 

over the cooking more and more, vhich makes us dl feel terribly 

independent. My marvelous husband does all of the shopping 

and sometimes, depending on the weather, I trail along. 

As long as ve aren't out to break the qeed test, I can valk 

all over our large grocery stores. fiery evening is filled 

vithfour sets of homework, which hasn't taught me a thing a- 

bout spelling. 

Bert leaves at four and the children take turns staying 

vith me until their daddy comes home..me most wonderful part 

of the dav!

scene 2 

My name is Fath Davis. I'm another up-side-dower, polio vintage of 1953, and one of the horizontal 

editors of TjG. Mary Ann's description of her family bestirs me to write of the Davis menage... 

Mi 

One more week until school is out. I doc't know if I should yell for joy or scream far heln. 

b:ith school out, I should be able tc elimicate sme cf mg shouting. I seem te be the ~nlg 

one in the family that can xake up in the morcinp. Each evenicg, my husband and 

our three "monsters" tell me what time they & be uo. Cones 6::O, the first call. 

3ells ring. Husic plhys. hot a soul stirs. I frop m a big B?LLCI.I. 

!!w there's a slight movement. The yelling contirues to E:lP 

j!$ 

when the last bus leaves. Then I turn up the motor for a ccunle 

of stiff breathes and lay back to recuperate. 

p 

In the meantime, 

brhen Mary arrives, breakfast shouldn't be far behicd. 

R.,.',? (fl my husband, David, has been 

But I have to fipht the eats for first serving. 

.I awake several times, but never 

the four eats rubbing around her ankles, and their 

enoueh tt rise out of bed. The 

rneoocuing, my yelling has no effect. 

bell that does that is the 

Conseouently they win. 

"money bell" - the business phone. 

Good tbicg I like toast and orange Juice and 

+lienever the phone rings, the business day 

not cereal and milk or there might be an all 

begins and Daddy is off and running. ?he 

our war. Incidentally, that isn't the only 

business is next door but, contrary to what 

place the cats have won orecedence aver me. 

people think. I never knov where my husband is. 

I was known around the neighborhood as 

'!hen the big trucks come, he is out. 

the lady with the bed in the living roon. 

When the telenhone rincs, he is in. 

Now we're known as 

Cur television isn't vorkinp. It keeps makinp designs 

the house of the cats. 

instead of pictures - orabably influenced by mdsrn art. 

(KO variations 

Consequently, it's cuiet around here 50 I've been making telephone 

on that theme, 

calls for our minister and for the Bay Scouts' Court of Honor. 

please. ) 

In fact, I've talked so much I've a blister on roy big toe. 

3:iO o.m. and the elementary school bus arrives 

and Nancy and Bob have found their way back once more. .. . 

"Hey, Mom - ,If "Let me tell her" '?..!hots cornin' over?" "tiAI.'??!CY." 

"Can I have sone of these nuts without you yellin' at me?" 

"Can I go to Southland?" "Me, tco!" "Not with me, ya brat." 

'Tley, Mom - - ," "Ah, now you for& me what I wanted to tell Mom, ya stupe." 

One more to come home. Mary to leave. 

And after next week these conversations can go on all day. 

I've just decided to scream. 

HULL?? !

O 

day-tc-day life because we are firm believers in making every- T HE Rcdolfos are another of 

thing as easy as possible. Because of this, I really don't the many hanoy couples vho 

think taking cam of a handicapped person is as hard as it u- have pooled their abilities 

sually sounds and I ought to know. Bob and I live alone and I in marriage. dioooy and Fay 

have his complete care except for the 7 hours a day I vork. were patients at the Massa- 

"Here are some ideas that Bob and I had that might be of chusetts Hospital School in 

. . 

help to others: Canton when they met. In iu- 

@st, 1953, Fay was stricken 

Ihs couple should live by themselves with polio, which paralyzed 

Privacy is important to everyone. Our apartment isn't the her from the vaist down. In 

greatest, but it is convenient to my work,stores, our church, July of the same year,Jimmy dove ix:c z5ill~; ;i:er -.d 5rcke 

etc. since ~ o does b not get out in the winter, the fact that his neck, resulting in paralysis frcm the neck CIOLT. 

. . 

our place is easy to reach, means ve have a lot more company. In '54 both entered the hospital school for rehabilitation 

and academic studies. Fay took a secretarid course. J- 

Make evsry effort to travel and ms*e social contacts learned to paint with a brush held between his teeth. 

It is worth the effort and, after the first time, it mnvt They returned to their families in 1956. Fay worked as a 

be so much effort. We take vacation trips by ourselves and secretary at the local YMCA. Jimmy continued with his art 

we have always enjoyed them. In the summer we go out about lessons. Meanwhile, they saw each other on weekends once or 

three evenings a week. twice a month. They were married in October, 1957. 

Row they live with his parents and have a large roam equip- 

. It ia important to contribute something to others . ped for their wheelchairs. One section of the room is his art 

We must a lot of help from others for many things, studio; the other is her sewing area. Fay is an enthusiastic 

but, to maintain self-respect, we mst also give something. seamstress and an excellent cook. She does all the varnishing 

Even though we have received financial aid from various and framing of his paintings and "sets him up" for his vork. 

sources, we tithe what money we have. We teach a Sunday Jimmy devotes most of his day to his art work. He has de- 

School class and serve on various church committees, Bob has siped and sold greeting cuds and his paintings have been 

done a lot of typing for both the church and the National show throu~hout this country and Europe. He works fluently 

Foundation. When places to stay are needed for out of town in oils, watercolor and casein. In August 1962, he becme 

groups, we always volunteer and we have met some interesting one of the first U.S. artists to be selected as a member of 

people. We have a special interest in a man about Bob's age the Association of Handicapned Artists and receives a regular 

who is in a nursing home. 

income from them. 

They have mmF friends and a gay social life. Uith a group 

. Involve your families in the marriage of their friends,they have costume parties every three months, 

It seems natural for a family to have difficulty accepting such as a luau, a roaring ZO's, a Western, or a Near East 

this type of marriage but, since our marriage, lqv family has party. They enjoy many activities: drive-ins, out riding, 

come to love Bob very much and our relationship with them has visiting, record collecting, shopoing through 

been as wonderful as always. 

year they spend one week at a Naine resort. 

11

VOLUNTEERS GIVE VALUED SERVICE 

Three new officers of the Kenny Rehabilitation inrfif~ts ouiili~q chot with Dr. 

Fmnk H. KW.", pre.idant of the Sister Elizabeth found.tion and dirscto. 

of the institute Fmm lafl on MR. Roben Chirholm of St. Paul, executive committ.e 

member; MR. Paul D. Andemon of 342 Lafoysne, Excelsior, president; ond Mr.. 

Ern& Skrmm~t~d of Wnodsid.. Llcal%ior, "ice 

&ads fulfill their need 

to be needed through volunteering 

In Ninnsanolis, a blonde, vivaeiovs young won;= named Marcaret 

raderson was recently elected the first "resident of 

the Kenny Rehabilitation Institute Auxiliary. Margaret, a 35 

year old \life and mother, was a natient in the Institute for 

11 mcnths, but is now home "here, nh:-sically, she is confined 

to a vh~elchair and a chestpiece. In no other way is she restricted, 

however, for her idezs and mapetie enthusiasm are 

charging uo the ladies in the Twin Cities like a "aver plant. 

Elar:a~.et's roommate at the Institute in 1953, Herle (Mrs. 

Robert) Chisholm, was also instrunental in forming the Awiliary 

and is a member of the executive board. Both are resilos 

and artists (wielding their brushes with their teeth). hv?other 

Auxiliary member was their third roomate, Susanne (Krs. 

Yillim) Sum~ers. The three women made a pact ten years ago 

that they would somehow repay the Institute far its wonderful 

care. Margaret sooke for all three "hen she said, "Levre so 

hapoy - we've finally dons it." 

me Auxiliary was founded a year ago uith 50 members, of 

which 8 are forner patients. Its main puvase is to educate 

the on the increasing need far uell-eauinped and uellstafred 

rehabilitation centers throughout the country.

The xuxiliary is organizing a Second International 

Art Contest and Fhhibit for 

Handican~ed Artists, con ti nu in^ the oattern 

of'the first s"ch show initiated by 

TOOMET j GAZETTE in Chagrin Falls in ;960. 

Deadline for entries is September 1, 1963. The show 

vill be held at the Kenny Institute in 0ctobA. For 

details, writs to Margaret at 0 2 Lafayette Avenue, 

Excelsior, Minnesota. 

This fall, they will have brochures of the Christmas 

cards by 12 different handieapoed tlrtists, which they 

have had printed and will sell for the benefit of the 

Auxiliary and the artists. The cards vill be done in 

black and white and the price is tentativelp set at 

53.50 for 25. To receive a brochure, send your name 

and address to Margaret. 

Connie Brown of Phoenix is one of the most notable 

examples of immobility taking a back seat to an active 

mind. Connie has been a respa for nearly 18 of her 35 

years. Gay, articulate and responsive, she has filled 

her life with treasured friendships and her work with 

handicapped children through the Iddoor Sports Club, 

an international organization of clubs for the physically 

handicapped. 

When the Indoor Soorts held their national cornention 

in Phoenix last year, she semed efficiently as 

their publicity chairman. In a newspaper interview at 

the time of the convention, Connie was quoted as saying: 

"You keep going and growing as long as you keep 

trying. . . . Physically, you're down the tubes. But 

spiritually, intellectually, emotionally - in so many 

ways your growth and development go on." 

Catinued

I3a ?'.rinkma. (aSrre) of Uillowick, Ohio, the mother 

of three children ard a respo for 10 years, was nominated 

far the Welfare Federation of Cleveland's "Volunteer 

of the Year" award in 1962 for her work with caw^ 

Fire Girls. In addition to leading weekly meetings of 

a Blue Bird group of C- Fire Girls, Ida helps vith 

Little Leape and PTA activities,rnostly by teleohoning 

and typing. Ida is also one of TjC's horizontal editors 

and its authority on mouthstick tyoing. 

Ken Kingery is know as the "Can-Do" man in his part of Wisconsin. 

In his home town of Stoufhton, he is an adult advisor at the Teen 

Canteen and Youth Center and a director of the District School Board. 

Ken, a respo since 1952,uas selected as Wisconsin's Hanlicapred Person 

of the Year in 1961. Another resno, Californian Foster Grundy, 

arranges tape exehan~es between American pung people and those of 

India and Japan tc promote friendships. Foster also helps a blind 

friend edit h taped journal for the blind. 

Roger Winter of Indiana, a reqo, teaches a Young Adult Sunday 

School class and Serves on a number of committees, such as sports, 

by-laws and evanpelism. He is an enthusiastic coach of church softball 

and basketball teams. k wheelchaired lawyer in Kansas, Laurence 

b.'agner, supplies free legal advice to churches, nonprofit organizations 

and indicent individuals. 

Scout activities,?TA and church work seem to have the most universal 

anneal for horizontal volunteers. Almost everyone who volunteers 

for community projects, assists with the different health and United 

Fund drives. Many find oolitical party activities stimulating. 

Many readers find satisfaction in working with other handicanoed 

persons, such as reading to the blind, tutoring children who are unable 

to attend school, and coach in^ wheelchair snorts. A paralyzed 

insurance agent trains other handicapped oeople in the insurance 

business. One reader makes repdular phone calls to aged shut-ins. 

Hospitalized respos volunteer too. Ethna O'Davd, of the Cherry Orchard 

Hosoital in Dublin, has some use of her hands so she writes 

letters for her friends in iron lungs and teaches crafts and minting 

to her fellow patients. 

Utilizing their special talents, interests and skills, ouads enjag 

a variety of volunteering orojeets: proofreading, correcting papers, 

teaching and tutoring, translating, writing and poster msking. Many 

mothers and fathers have expandable families as their friends add a 

child or two for them to "bab-sit" with their own. Amateur radio 

operators are always available to help in emergencies. 

Througih their many and varied volunteer services, quads have taken 

a big step out into their communities and found it to be a rewarding 

experience - a fulfillment of the need to be needed. ...

SPORT AND VACATIONS 

I. Fishing 

With Rod and Wheel 

by Don W. Smith, Route2, Guthrie, Minnesota 

aiace early ohildhod, I have enjoyed fishing more than any other sport. However, in 1952, 

a- the epe of 13, polio struck and, apparently, out an end to my fishinp. It left me 

totally paralyzed from the waist down, with about fifty-five ~ereent of normal muscle function 

abaue, and a weak left am and hand. \%en I returned home from the hosgital ir! the summer of 

1954, my father took me fishing vith him. I became very discouraged because I found it too 

difficult to keen my balance while sittin5 in the conventional boat seats; 

After unsuccessfully trying various types of boat seats, I struck upon the idea of ~utting 

my vheelchhir directly in the boat, "laced crosswise between the seats. It fits well in 

most of the nodern round bottom boats: but I prefer the new fiberglass boats as they are . 

~enerally wider and nore stable. Of course, I always take along a life jacket. 

Thus, having defeated the problem of a seat, I set about finding a rcd and reel I could 

handle. I foiind that a spinning outfit consisting of a 7' hallow fiberglass rod and an openfaced 

spinning reel, vith right hand retrieve, suited me best. h'ith this eauipment, I can 

cast, troll, or still fish. I have been able to hardle all but one fish I have hooked. 'his 

ues a huge muskie in the 35 to LO lb. clh55. I battled it for ten minutes or nore and became 

tired. Ky father uillin61~ took the rd and continued the battle fcr nearly hn hour; however, 

mls 

. fish proved to be too much for my light teckle, and ue parted comnan:~. I can sag- now 

that just seeing this fish was the greatest thrill of nq: life. 

Ih recent years, I have discovered I can even enjcy strem fishing for trout. Freouently, 

where a stream crosses a road, there vill be a pool in the downstresm side washed out by hi& 

water in the spring. These pools are often easily acce5sible, and, while sitting in my 

wheelchair on the banks of such pools, I have caught some really fine trout. i am especially 

=mud of two - one a 1%" arockie (see ~hoto), and the other, a lL? arom. 

The winters are very long in the northern part of >:innesoth. This meant that from the 

... 

first of Xovember, until the last of aril, fishing was pretts much'at a standstill for me: 

so, this year, I had a fish house built. It is eouioped with a small oil stave so I am 

assured of reasonable comfort on the coldest days and very rlehsunt fishing.

' It's No 

Fish 

Story 

~ ~ 

Keroper, 

fisherman, 

contest 

winner, 

and avid 

sports buff

- 

Luts of ~emle vent fishing at Fort f lk 

I:yers, Florida, in June, and Robert 

Kenper vas among them. Fishing is 

his favorite snort, and one ni~ht 

he caught 20 fish. That may sound 

like ~ r d i n fishinn. ~ r ~ -~~". hut there is nathin~ - 

~~~~ 

x:ay Rcbert fish~s. 

, ne was 13, he was the victim 

, ia and has been paralyzed 

from the neck down ever since. 

Robert's father, Judge Kernper, cam u? 

vith a unicue invention that made it 

possible for him to fish once more. He 

lies flat on an mbulanee-type stretcher in 

the stern cockpit of a boht (or on a pier) 

and a bcrrrd is secured to the frame across 

his legs. The fishing rod butt fits into 

a socket at his chest. Then the apparatus 

is hooked up to his dad's invention. A 

spiming reel is mounted on the board across 

his legs beside a vindshield wiper motor. 

The motor is connected to a 12-volt 

battery placed at the end of the stretcher. 

H starting witch is based an the butt 

of the rod. 

His father casts, then Robert takes over. 

keepinp a keen eye on the line, vith a 

string in his teeth, the string being 

attached to the starting switch. When a 

fish takes the bait, Robert starts the 

witch with a jerk 0:' his head and the 

motor reels the fish in. 

Cne of his snecialiti~s is mullet 

fishing, usin: red vigrlers, in the Pt. 

Jahrs in his netive Georcia. On this trio 

to Fort IKyers, he landed fish erery 

night, including several tvo znd three 

nound trout. 

One day the Xemoers vent out 

on a 29 ft. boat, and here iie'll , 'I e 

ruote Robert: "It vas kinda 

rau~h, about like a racking bed. 

big yare hit the boat and 

turnei the stretcher over on its 

side. Ny head and shoulders were on 

the floor, but it didn't hurt me any. 

'!e had an umbrella to keep the sun 

off me, but the wind tore it to 

pieces. I nearly got blistered, 

but I didn't." 

""4 

nnd concerning his necessary 

breathing equipment, "halfway 

to Florida we discovered we had 

forgotten my chestshell, so I used the 

vacuum in the daytime and slept in the 

iron lung at night." He no longer uses 

the shell, just the lung at night. 

One of these fishine trips,Fobert hooes to land a tarpon. 

It wouldn't surprise his friends one bit to see a mounted 

"silver king" in the Kemper house in Jonesboro. ... 

- Excemted from TiE ROCK .U!D POLL, 

oublieation of the Cnnth~astern Resniratory Center 

17

11. Swimming 

by Susan Armbreeht, 

"Head" Svimninp Coach, respo, age 24 

3uimminF to increase stren~th and mobility in the partially paralyzed is cust~rnary. Eut 

''suimmin~" by the totally -d permarpntly paralyzed for pure pleasore - that's revolutionarp. 

5jnce I was piralyzed 1F years aco, ncthjng has ~iven me such a tremendous feeling of real 

freedom as floatirg sererely md DT,FFEIDEI:TLY ir. a oaol: no mattress a~zinst back; no 

nressure on m?. tail-bone or heels; nore of my usual dead-veipht feeling; my smallest movement. 

maFjfied ten times ten to a flowing sweer, of metion. The). call me "Unsinkable Susan." I'm 

prirarteed to float. This is amazing - almost ridiculous. Paralysis causes buoxancy - the 

more paralyzed, the more extremely buoyant. Here's an Olymic which quads cm win. 

Let me tell you of m)- first darinf summer in a pool. Fear was my peatest obstacle. The 

little rjpnles in the water created by other nea~le were terrifyin&. Beins able to more all 

of a sudden was frighterin~. But, gradually, I gained ccnfidence as I realized that I could 

not sink. A whole new world opened up to me. I felt I cculd "suim" the English Channel - 

if it were as pleashntly heated as the pool (80C to 9W). 

First, I tried floating on a rubber raft to get the feel of the rater's matirn. When I 

felt nore secure, I dargled ny fert in the water, then the lover hhlf of my bdy. Eventually, 

onl;. my head was an the raft. The next ste~ was to have ny head held securely around the 

jaxbore while my body floated. Then this was too tane - just being held up and slovly moved. 

So ue put music on the outdoor spesker and started "darcinf." I.,'E gently "cracked the whip" - 

by rhyihmiehlly moving m;. head. >

111. Camping 

A Wonderful Experience 

by Betty Mielke, 

Fond du Lac, Wisconsin 

1 first foucd out about CT l.sxbeek fro- ~ o ~ l:lvestad, 

n n 

vho had been to Camp the sm.er before a d had a marvelous 

time. I believe it is the only camp in the United States 

where an alult handicapped person can stay without an ilttendant 

Tor a tx~~xe~k "eriod. It is not a family affair. only 

the handicapped, betveer the ages of 8 and l: car attend. 

Half of the cost of ehch camper's stay is chid by the Kircocsir 

Easter Seal Society, which owns and onerater it, and the 

remaining $60 is "aid bs the c-er himself or sox snonsorin^ 

organization. 

Fach cmcr has a counselcr to help hir vith ?relyt!liz.g he 

reeds heln vith and to sct as a comar:cn. b!ost of the ceurselcrs 

are vaeatioc5ng collere students who are ~lannirg to 

be nurses or dactcrs. They have cne roct;rf bed +,hich Jokr 

and I use at different tvo-vect oerids. ~'..:rsicims are cn 

call and a re~ist~red nurse is at cam at all times. 

Th~re are so many thicgs to 20 throughout the day that it 

would be imossible for a persoa not tc ficd somethirg that 

would be interesting. There is xheelchair bowlirp, card 

~ames, wheelchair bell Emes, nature-rork, handicrafts, krittirg, 

conferences and lectures on thine.? that are teirg dorm 

m.d should be done for the handicapped. If you can't bat a 

ball or hold 6 hand of cards, a counselor is alvhys there to 

help. Soti just tell him what to do. 

I think the very hig~est attractien is the big heated swimming 

pool. One of the mast exciting things tc do is to ride 

the big trailer, pulled by a traetcr, that enkblrs about 25 

e+ers, in their wheelchairs, to go far triil rides in the 

woods. It is so beautiful - especially at sundown. The woods 

seen so peaceful. The pine trees smell sc good. You can see 

so ma11 dlff-rent birc;s an3 hear them sirlging. 

Bett:. 

certer: ?&~Led fcr .i castule bal: 

At niiht therr is alr-ass one big activit:., to get ereq-one 

t~~ethe?, snch as a czq fire sing, or local entertaifiers, or 

a costume narty, or a vhrelchair Zance. It is a real dance: 

a theme is nicked for the d~caraticns, a kirp ant1 cueer. and 

court are selected, and a live orchestra plays the msic. .At 

the en? of our camirg vacirticn, s talent show is nut on by 

?he staff and cam-rs. 

I look forwar3 all year to my two-week canning vacaticn,nat 

orly for the good times, but to seeinp my alrl friends and to 

makin? neu ones. Every year I hava learned a new craft vhich 

I can rake durin~ the winter and market ~rofitiibly. Goink to 

camp is a wonderful eqerience! The C m is aoen only to i!jscocsin 

residents. I wish eVe.T state h ~d ;l a~amoHavbeek. ...

."WINGS ON WHEELS" - TOURS FOR mE HANOICmPID 

Evergreen Travel Service specializes in travel tours for 

the handicaooed, comlete with nursinc care, personal aides, 

and two tour escorts. Last January, eighteen disabled nersons 

from the Seattle area enjoyed a 10-day trip to Hawaii. Fcllovinp 

are tyoic-1 scheduled tours: 21 days in Eura~e starting 

Seotember 29. November 1 - 10 to Mexico City, Taco s.d 

Acapulco. January 6 - 16, lY6l to Hawaii. Prices include jet 

air fare, transfers, sightseeing, bagpee handling and hotel 

rooms and meals. Send for brochures: Betty J. Hoffman, Ever- 

DIRECTDAY OF U.S. CAWS FOR lRE HANDICAPDDI . . 

green Travel Service, Box 583, Security Bank Building, Lynnwood, 

Washington. 

This directory, revised reylarly, lists emps uhieh are MEXICAN RISOFX HOME FOR QUADS AND PliRAS 

organized and adapted for the handicapped. The majority are Open year round. Individual rooms, attendant care, good 

pelred far children only, but several dosen welcome handieap- food, companionship and interesting sightseeing. Cuads - $180 

ped adultsar the parents and families of handicapned children. a month. Paras - 8120. Males only. Altitude too high for a 

Many of the csmps are devoted to a specific disorder, such as respiratory polio. lirite to: George E. Ray, Cubilete 1L7, 

diabetes, blindness, cerebral palsy: others have a more prier- Cal. Chanalita, Guadalajara, Jalisco, Mexico. 

a1 service to orthopedic and neuro-muscular handicaos. Price 

50s. Order from National Society for Cripoled Children and . . 

PILGRlXAGE FOR lRE HANJICAPPD TO LOUOWES ANO PARIS 

Adults, Inc., 2023 West Ogder. Aue., Chicaeo 12, Illinois. A11 inclusive rate of F59S includes air transportation from 

Nsx, York. hotels and meals. Dates: October 1-9. 1963. For 

. . 

DIPECTOAY OF HOLIDAYS FOR ME HANDICAPPID IN BRITAIN details, write to: Catholic Travel Office, Dupant Circle 

. 

This exciting booklet lists the Organisation, Holiday C-s, Building, Yashington 6, 

. 

D.C. 

Hotels, Cuest Houses, Private Homss and Cheshire Homes which 

offer special holiday facilities for the disabled. Detailed WHEFLCHAIR TRBVEL Gum= 

infomtion is included as to facilities and care available. "\here lrninp Wheels Stop." Paralyzed Veterans of America, 

types of disabilities which can be accommodated (from special 7521 Roslyn St., Swissvale, Pittsburgh 18, Pennsylvania. 

diets to respiratory polios), ape groups, nrices (average a- 

bout 6 pounds per week or S17), and the entertainments ar.d "Along the Wayside." A1 Cahee, 27 K.63rd St., Philadelphia 

special features of the nearby areas. 

39, Pennsylvania. 15# 

IV. Vacation 

Directory 

The pmphlet was oublished jointly by ?he Central Council 

for the Cara of Cripoles and the British Red Cross Society. 

It may be ordered from the latter at lL, Grosvenor Crescent, 

London, S.W.1 for only 2/6 (3U) olus postape. 

"New York with Ease." Compiled by a respo, Sandra Sehnur. 

Published by: Association far Crippled Children and Adults of 

New York State, 239 Park Ave. S., New York 3, N.Y. $1. ...

I *-i-Lk 

I 

ST. ~ S Yoelj W ~ iw zs 

You WOULD CLCE m W;LL ToTJG, wc lr o * ~ 

\F vou i(rvt C.~.T,V~ ,otas olr W~LL f;*~ bOlA~oU+ CLLL wllo WHAT 

tj~osn~rio* CO-OP !&;,DLM(L NLGDS 'ir. w€ URLVT 9-N Gdt* WUT~~G., 

r4r FOLLO&I*+ TO G~VL AWAY: 

T*LT YOU L.6 NOT 05i4~ 

0% ma7 .Tonr~ PI\UL

HOUSING FOR HOMELESS QUADS 

if I outlive my parants? 

WHERE WILL I GO if ~omething happens to my wife? 

when q children us ready to marry? 

Handicapped young adults are haunted by these ever-present fears. 

In the past, the few extremely disabled who lived and survived beyond their families, 

were consieed to a living burial in a County Home for the senile. 

The present has little more to offer although, in the last two decades, antibiotics 

and other medical discoveries have created a new and svsr-growing population of able-minded 

young people who live on, healthfully, in spite of extreme physical limitations. 

Obviously, their accomplishments shov clearly that, with their ow determination and some 

commonsense assistance, they can be successfully and economically employed, can raise 

their families and serve their communities. 

But assistance is essential to their livinf and productivity. 

Now, before their present 

assistants are eone, their 'Where will I go?" must be answered. 

wara ally, institutionalizing young people with so many potentialities for service is wrong. 

One answer lies in small co-operative residence homes in which the residents have 

freedom and privacy to live - not merely exist. 

Because each handica~oed individual is uniaue, the problem is a local one. 

His needs can best be accommodated in or near his ohm cammunjty. The nature of the oroblem 

suggests that local community action and active leadership by the major voluntary health 

concerned would evolve answers to this chronic and grow in^ oroblem. 

Examples of various types of residence homes throughout the world, already in aoeration 

or nlanned, are presented on the follouing fifteen pages. It is our hope that these 

examnles will be folloved by similar voluntaly ur.dert&ings in many communities 

to prevent these iwortant human beings frcm beecming superfluous oeople, 

in the worst sense of the ward. 

- The Editors

THE Cheshire Homes were started in 19L8 %hen Croup Ca~tain 

Leonard Cheshire toot one sick and homeless old man into his 

own home. Others in similar circumstances followed, and were 

admitted on the sole grounds of there being nowhere else to 

go. Some were old and helpless, others young and still semiambulant 

but suffering fron propessive nuscular diseases. 

Within a year, he had collected some twenty severely disjbled 

people, caring for them,and running his family hone,Le Court, 

on purely voluntary resources, the disabled residents helping 

as much as possible. 

From this small beginning, there has developed a whole 

chain of Cheshire Foundaticns throughout the uorld. In Brit6in, 

where there are at present, thirty-nine Homes, there 16 

a central Trust, known as The Cheshire Foundation Homes far 

the Chronic Sick. The Homes are privately owned and run, having 

no capital behind them and being largely dependent on "01- 

untary help and subscriptions. The Trust presides over the 

Hones, ovns all the pro~erty and is a registered charity. 

Similar Trusts have been established to control the Homes in 

India, Afifrica, i!alaya and Jor3an. 

Each !%one is autononausly managed by a cornittee, representative 

of the local community, vhich decides all matters of 

~Aicy, admits ~atients, an~oints staff and raises the nscessay 

money. In tiis way, the Hones fit naturally into their 

surroundings, and the patients have a sense of belonging to

the community. There is a volunteer medical officer who visits 

at regular intervals and is available on call and who is 

helped bg mecialist consultants. The larger Homes have a 

resident warden in charee, but most of them are run by a 

Nursing Sister, who has a nucleus of tralned ayd semi-trained 

nurses and other permanent staff. 

Hel" is given by the patients who are encouraped to take 

part in the running of the Home, and vho are resnonsible for 

the Patient's Welfare Fund. Local people helo by orranizing 

money raising events, collecting furniture, books, and eouipment, 

visiting and entertaining patients, arranging lessons 

by local artists or musicims, and assisting uith avocations 

such as amateur radio. 

The Homes have develooed as onrartunity or need has presented 

itself, and very often in premises for vhieh no one else 

could find a use. Some of the Homes were acquired by war of 

a gift, others by purchase. 

The majority of the Homes admit only the younger generation 

of the disabled, betveen the ages of l? and LO, who have a 

lone orognosis. However, the residents, as they grow older, 

are never discharged far that reason. A bdance is preserved 

between those who, with the soecial facilities orovided, can 

achieve a real degree of nersonal independence, and those uha 

reoresent a heav nursing work-load. llarried eoqles, the 

aged, and the mentallg retarded are not included, but have a 

few Hones for their own separate proups. 

Members of the disabled family heln vith the laundry, cl~ar 

and wash un after meals, po or errands in their invalid tricycles. 

Same heln uith the house sew in^, as well as execute 

nrivate orders. One young girl weaves ?came5 with her feet. 

i young naa has set im a small orintins bcsiness of his own. 

.acther aaints with a brush held between his teeth. Same do 

~acka~ine for local manufacturing firms. hather does develo-iicp, 

nrinting and enihr.sing. Shoe repairs &re carried out 

by one. ;. ereat variety of handmide pift items are nroduced 

for sale. Others are writers, salesnen, accountants, etc. 

The mnning cost of the Homes has been kept lou by thp use 

of voluntary helners and by the oatients taking anactive 

part in the running of the Hones. Thus, in Eng1-d the rreckly 

bpd-cost in 1960 was as low as $18 to 5ZC in the Fomes, canpared 

cith S6L in a National Health Service Eosnital with 

chronic sick facilities. Pitients pay none, art or all of 

their costs, denending on their ability to pay. In some instances, 

the various service cl~~bs or ;issaeiaticns to which 

the patients may belong pw all or part of the costs and some 

have small per capita Couty Grants. 

?he Ymes re m as homes rather than hosnitals and they 

aim to offer the affection and freedom of famil:. life. They 

average about LO patients per iione, in eaual numbers o: men 

and women, and with a carefully balanced selection of various

tmes of disorders - nultiple sclerosis, Parkinson's,cerehral 

palsy, re-iratory polio, traumatic ~idriple~ia, etc. 1 

In addition to the permarLent residents ir ehch iicne, tvo or 

. - 

three beds are reserved for disabled visitors to sta; for a k '.-.: 

..K . . , 

short time. These may cone from their own faxilies who are 1'11t: .57i11 IKI:SIIII:\~I< 

( 1 1 1.r: c,>t~!t~ 

canseauer.tly enabled to have a holiday; from ot!!er Cheshire 

Eames, thus pravidinE an exchan~e of ideas; or as an annli- krovledge that we can do useful, bezxtiful ar~d constructive 

cant on nrobatian, which builds a realistic vaiting list. thin~s ." 

"The Cheshire Smile ," The Homes are evolving and responsive to new ideas. The 

the semi-official orFan latest, fiaphhel, *.as started ir kcenher, 1962, when a shipof 

the F o d a t i is c& pins millionaire handed over the deeds of a lGacre nrcrerty 

ited, nanaged and nub- at Eydon Beath, near Cdalming. This Hone uill oroside selflished 

cuarterly by a ccrtained units of accon~cdntioc, bath for disabled married 

grouo of residents at ecu~les and for single peonle uho reauire nursing. They uill, 

Le Court. The cireula- as far as ~~SSible, be able to live their 0i.n lives, although 

tien has aaased the com~.mal facilities will be available. 

7,000 nark wider the *ether innovation,a Service Corps, emhracirp nurses, cooks, 

editorship of Frarjr domestic helners.occunatiora1 theranists,etc.,r.ill be trained 

Soath (left), who has here. This will be a "Sneciul %ties Corns," comased of oeobeen 

disabled by rheuma nle who feel they *act to ~ive st least part of their lives 

toid arthritis sirce to the service of the disktled, uithozt rcauiric~ in return 

his teens. 

the full vaee that they co1:ld otherwise earn. S1~1.11 salaries 

Frank wrote, "It is will be paid according to icdividuhl needs and reauirenents. 

not sumrising that we 

are strengthened by the 

... 

.i -ersion scheme is brine initiated so that those who retire 

will hare security for their future.

More Projects Abroad 

Eneland: EAT1CI.L FIPTJ. IL:.T1?IIi CCITRE, Stoke Mandeville 

Xosnital. Dr. L. Gutt.nann, Director, re-arted the fclloving 

statistics ir July, 1962 to the European Seminc at Cmhrid~e 

University: 

Durinp Korld k!ar I1 this Centre rare a lead to the world by 

.. - 

a nei! !re:;cll ard ~sychala~ical amroach to the oaralyaed. Of 

the 2,500 natients treated sicce then: 1,622 are livin at 

home: 233 in saecial settlenents, hos'els and hones; 21L arestill 

under treatment a d ?71 died. 

Those who were resettled at home were assisted in ajjustjnc 

their - hnmes 

~~~ 

to uheelchair living ;ird ii securing e.mlo3ment. 

Several hostels ir Erpland and one ir Ccotlind for EX-service 

uen have bern set up fcr those ;.ho c a ~o out to work% their 

motorised tricycles or where they can work in sheltered workshops. 

;s ria~e-earners, they hale to oay income tax and also 

for their boar3 and ldging ir the hostels. Of the 1,7i0 tra* 

matic pkraplegics and quadri;ile~ies aviilahle for eml~yment, 

E.5: *re gainfully eml~yed. 

England: BRITISH POLIO FZLLOXS31P3S RTSID1:TLS. H m has 

been in operation nearly six years. Know as "Silveruaod," it 

I 

is located in Cabham, Surrey. It is the oermanent home for 

18 severely handieapned polios. The Matron and her husband 

are both trained nurses and they run it as a large "family" 

! without rules or replations. 

The house is a oleasant old one which has been redeco:ated 

and adanted to wheelchair living. It has soacious lounge 

rooms, a libraly and a large meeting room. Provisions are 

I 

made for hobbies, such as phota~ranhy and oainting.and local 

Friends are recruited to assist with the hobbies and to take 

the residents on outings. Some of the residents assist uith 

the bookkeeoing, others sell Christmas cards, ete. 

There are three shared rooms - two for tuo ~eonle each, one 

for three, all the rest being siaples. P:ewcosers start by 

sharing, and move irto their om rooms as the7 become vacant. 

Members of the local Fellovshi~ maintain a continuing interest 

and assist with fund-raishg throush an annual Fete. 

l',!r,3~l;g,c 

ll

The 13-rrorey block oj liOPari, I4 bein? reirrvsd jor riipiroiory potir,rri and iiir.ii/a,nil~e~. ~Vurring nnnexe is on topfloor 

Family flats with a nursing annexe 

A Danish experiment for the disabled 

Deseaed by Eugenie Engberg. X.Econ. 

Copenhagen, M.Sc. Columbia; 

Deputy Divisional Chief, Danish Ministry of 

Social Affairs, Copenhagen

IN MOST COUNTRIES hospital beds are expensive and scarce, 

vet manv of them are filled by patients who need only care 

Hnd attehtion. ~nfortunatelii; seems likely that the number 

of these long-stay invalids will increase. We are likely 

to have more old people, and, with modern therapeutic 

methods and drugs, many people survive formerly fatal illnesses 

but have to live with a disability. War, traffic, and 

industry each claim their own casualties, and too many of 

these are young people. 

At present completely helpless patients usually have to 

be in some form of institution, but in Copenhagen we have 

Lately built an experimental block of flats with some bospital 

facilities on the top floor, where it is hoped they will 

be able to live with their families and yet not become too 

great a burden on their healthy relatives. 

Background to experiment 

In 1952 there was an epidemic of poliomyelitis in Denmark, 

and for the &st time a considerable number of 

patients survived though with respiratory paralysis. They 

have now been in hospital for 8 years and this has had 

serious consequences both for them and for their families. 

The young patients have lost their ties with their siblings, 

and some of the very young cannot remember anything 

except life in a hospital bed. Spouses have become 

estranged and some marriages have ended in divorce. 

There seemed to be no future for these patients other than 

a continuing hospital life with increasing deterioration of 

family ties. 

31 

However, a new venture changed the outlook for them. 

In 1956, as a pilot project, a few respiratory patients were 

discharged and placed in their own homes, with the result 

that the physical and emotional well-being af some of them 

improved. Even if a father breathes only through a respirator, 

he will want to play his part in the daily Life of 

the family, helping to bring up the children, visit relatives 

and friends, and share in community life. Similarly, a 

paralysed child needs the love and care of his parent and 

siblings, and he too wants to follow the happenings in his 

family. Likewise the single adult, who used to have rooms 

of his own, usually wants to get away from a hospital life 

with its rigid time-table and changing nurses. 

In 1959 the National Foundation against Poliomyelitis 

gave 1 million Danish kroner (about £50,000)* to the 

Ministry of Social Akiairs to provide accommodation for 

these patients outside hospital. 

As a start all the patients and their families were interviewed 

by a social worker and asked to say how they 

thought their future should he arranged. Their wishes 

had to be considered against the family background, and 

the difficulties caused by the long separation had to be 

faced. Some marriages had broken up, and some were 

only formally still in existence. Where the patient was a 

child, two or three more babies had been born into the 

family, with whom the patient had not established any 

ties. The wishes of the relatives as well as the patients 

bad to be taken into account, for we recognised that the 

experiment would fail unless there was honesty on both 

sides. 

l krone = 1 shilling.

According to what was said in these interviews, the 

patients could be grouped as follows:- 

(a) Patients who wanted to live alone with their family in 

a specially designed and equipped individual home (12 

patients). 

(b) Single patients, who for various reasonbsuch as 

divorce or death of a relative-wanted to live alone wirh a 

housekeeper-nurse in a suitable apartment (2). 

(c) Patients who had to be placed in an institution because 

their relatives felt they could not accept responsibility (6). 

(d) Patients who wanted to live with their families in 

private flats, but at the same time have the help of an institution 

(6). 

Parolyred poliomyelirir porient wirh inside respirator, in his pivote 

room rjping vith the aid of o stick gripped in his movfh 

32 

Family life and medical and nursing care 

The wishes of the first three groups could be met by 

orthodox solutions, but the groping wishes of the last 

group contained an idea for a new form of care. They 

wanted the privacy of family life in a setting which would 

provide a regular medical service, professional nurses, 

reserve respiratorv . eaui~ment. .. and accommodation where 

the patients could sleep under professional supervision. 

As one of the parents put it, they needed o combinotion of 

family and institutional care. 

In response to these suggestions an experimental block 

of flats with some medical facilities was opened in Copenhagen 

in 1960. A semi-public organisation representing 

the Ministry of Social Atfairs, the National Foundation 

against Poliomyelitis, and the Society and Home for the

Crippled, has been made responsible for the management. 

The project is housed in a new 13-storey black containing 

170 flats and such communal services as doorman, 

switchboard, and restaurant. It is owned by a non-profit 

housing association. Fourteen flats are reserved for respiratory 

patients and their families, and the organisation pays the 

housing association a monthly rent of 425-800 kr. far each 

flat. 

Each family has its awn flat with bathroom, and kitchen. 

The flat is designid, and equipped with extra electrical 

equipment and safety installations, to accommodate respiratory 

patients. 

On the top floor of the building there is a nursing 

annexe with professional staff and emergency equipment. 

It contains cubicles where patients can sleep under professional 

supervision at night, when they are ill, or when 

their families are on holiday. In an emergency a patient 

can be wheeled in his bed or wheelchair to an elevator and 

within minutes he under professional care on the top floor. 

The annexe also has living-rooms, a classroom for education 

and entertainment, and roof gardens. There are some 

private rooms in the institution for those few patients who 

do not have families and who must be classified as full-time 

institutional patients. 

In our experience a member of the family is able to look 

after these patients with some help from the nurses and 

doctors of the annexe. A mother, a wife, a sister, or a 

full-time housekeeper is employed by the Government to 

take on this responsibility after some hospital training in 

the use of respiratory equipment. The principle of paying 

a member of a family to look after a relative has never been

~ 

used in Danish social welfare before. But if a relative becomes 

a full-time paid attendant she cannot take on another 

job, and more chan half of all married women in Copenhagen 

are employed outside their own home. From the point of 

view of the Government she replaces a nurse who would 

have to be oaid anvwav. 

> ., since the exoenses for the care of 

~ 

the severely handicapped is a State responsibility. 

The benefit normally paid under the Danish disablement 

insurance scheme does-nit nearly cover the care of a patient 

with respiratory poliomyelitis and must be supplemented 

by the Government. Financial needs vary from family to 

family, and no flat-rate salary for taking care of a relative 

or flac-rate subsidy is recognised; hut eachcase is considered 

individually. 

In a family consisting of a sick child and her widowed 

mother, who after a training period in the hospital is responsible 

for the care of her daughter, the flat is regarded as an 

official flat as long as the mother takes care of the patient. 

Besides the rent, a monthly allowance of 700 kr. is paid to 

cover other expenses. 

Another family consists of a father, mother, and paralysed 

child. The father has a job, the mother takes care of the 

child, and besides the rent the family is paid an allowance of 

150 kr. 

Single adult patients have a full-time housekeeper/nurse 

who gets full board and lodging in the patients' flat and a 

salary of 450 kr. a month. The patient gets rhe rent for the 

flat, and 350 kr. to cover his own expenses. 

The institutional services (medical care, sleeping cubicles, 

nursing care, education, entertainment) are free of charge. 

It was expected that some patients and their families 

would meet difficulties in rhis new way of life. Some 

families had to move from the country to a big city. Sometimes 

the wage-earner had to get a new jab, and the children 

had to move to new schools and find new friends. Accordingly 

a trained social worker, who can work intensively with 

the patients and with their families, is considered essential 

to success. 

Conclusions 

Though it is much too early to evaluate the results of 

this project, some preliminiary conclusions might be drawn 

as to the wide application of this type of service: 

1. A new type of service has been designed in an attempt 

to meet the growing number of patients who are severely 

handicapped not only by the after-effects of poliomyelitis 

but also by such conditions as multiple sclerosis, debilitating 

diseases, or old age. 

2. Severely handicapped patients and their families have 

been enabled to function as a family unit in spite of the 

handicap. 

3. Badly needed hospital beds and personnel have been 

released for other purposes. 

4. Public funds have been saved, since rhe cost of maintaining 

a patient in his own home is less by a third than 

the cost of maintaining him in hospital. 

5. For the first time the Government has employed a 

member of a family to look after a sick relative. 

Printed in England by Nswgafe Pwr Ltd.. 18-20 Lamtall Strccl. London. E.C.I.

HOUSING FOR HO>lELESS QUADS (Continued) 

FREEDOM GARDENS 

for the Handicaooed. Inc. 

, s - 

.ne Main House 

Freedom Carde~s for the Handicapned, Inr. is a oioneer in 

the United States in the establishment of a self-supoartin& 

home for nh3-sically handieap~ed persons. 

This nor-profit npency was founded by Kiss Lillian Fetock, 

who is afflicted vith muscular dystrmhy. The proup includes 

members oe-ently disabled by remiratory polio, arthritis, 

and cerebral palsy. 

Since 195s they have been telerrhorin~ friends and neiphbors 

ir b.'estchester County askine for discarded clothing anti household 

materials to be re~aired and sold to helo suo-ort their 

prcjeet of ewloying the handieaoned and setting a.cide a fwd 

to establish a home. 

Sy 1962 they had raised enough money to nurrhase a bungalou 

colony on rolling land, vith a swimmin~ pool and a brook. 

They ho~ed to move into their new home in the sorin~. of 1963. 

However, their olans were halted uhen the Yorktown Zor;i* 

Soard of Anneals tur.ned dawn their reouest for a soecial use 

oermi t . 

Victoly was realized in E!ay, 1963, after 11 morths and a 

Sunreme Court rulinp. The points to be ecmlied with were: 

. that it be ooerated far the ournaae of or or id in^ individual 

residence aeconmodations far the nhysically haodic&nned; 

. that it shall ~ravide inlividual "homes" for individual 

persons, and not accorrmcdations for nursing, convalescent or 

. 

boarding care, vith each family or sin~le persor. having a 

separate apartment with kitchen facilities; 

that 

each family "ill pay its prooortionate share of the 

. 

cperating costs of the total project similar to that of a cooperative 

apartment project; 

that no handicapoed person shall occupy the second floor 

. 

of any buildinp unless oraper exit facilities are orovided; 

that all structures shall canoly vith the aoolicable 

loch1 and state codes relating to multiole type residerees. 

The nire-building proup is located at the intersection of 

Strawberry iiill hoad and Foothill Street in Shrub Oak, Neu 

Ycrk. The potential occupancy will include about 10 to 50 

persons. Residents will cone from hospitals and faster homes 

where tkey are oresently being cared for. Final closine of 

the pronerty "ill be in October 1963. Meanwhile, the grouo 

is raising funds to adapt the property to wheelchair living 

and to mzke other needed imrovenents, such as better heetin~ 

souipment. 

Far further information, write to: Lillian Detock, 

Executive Director, 9 Joan Drive, Yonkers 1, K.Y.

In 1955, in the New Britain Mernorid Hospital, a handful of 

severely handiea~ned patients decided to do something about 

the drab, uninteresting lives they were livin~ and were perhaps 

destined to keep on living. They formed an organization 

knoxn as "?!ex. Horizons." 

Joan Hermm, the organization's spearhead ard the editor of 

their quarterly oublieation, was "mowed down" by respiratory 

oolio just after she finished high school acd was preparin~ 

to enter ~lellssley College. Since then, she has spent 17 

years in hospitals. inother organiaer, Jmes Dunigan, who had 

occupied e bed in the same room for 30 years, isolated by 

rheumatic fever, arthritis and antiauated ideas, acts as secretary 

of the group. Other officers are quads or C.P.'s. 

. Immediate objective Obtain q l e acreage in Connecticut, 

uithin convenient distance of an urban center and establish 

. 

residence for betveer. 30 and 60 ohysically handicapned persons, 

with perhaps 20 resident staff members. 

Long-term development . Establish a productive workshop - 

t&ing on subcontracts frcm factories. It is hoped further 

development vill also see the eorstruction of ranch-style 

hones, arourd the first laree residence,for families with one 

or two severely handieaoned members; the building of e gift 

shoo; the raising of a modest auditorium; the eocstructian of 

. . 

a cha~el; the developing of a ~icnic area and swimming pool; 

the creation of a school for higher learning. 

Environment The residents would have the ri&t to determine 

their oun lives. Though the home would ororide adeamk 

orderly and nursing help, as well as medical care, the emphasis 

. 

would be on 

. 

homelike, productive living. There vould be 

a living room, dining room, library, rooms for crafts, music 

and study. 

Management Each resident would have the opoortunity to 

participate in the management. The administrator woad be 

chosen by the eacutive Board,many of whom uould be residents. 

. 

They would elect a Representative Council which would draw up 

recommendations to guide the ruraing of the hwe. 

Struoture Everything planned would hsve the wheelchair 

person in mind: all on one floor, ramps, wide doorways, etc. 

Jedraams would be for one, two or four persons, having wallpaper, 

curtains, according to the individud's preference. 

. Finances Local comities have cooperated enthusiastically 

with many fund-raising projects to produce a sizeable 

start an the Building Fund. New Horizons hopes for large corr 

tributior.~ from individuals and foundations, as well as from 

interested groups. B growing circle of friends who give small 

contributions each year vill always be an imortant source of 

funds. Federal grants may be available throu~h the Hill- 

Burton Bill and the Community Health Facilities and Services 

Act of 1961. All such aid would subsidiae the cost of per 

diem care for each resident, in some cases provided by State 

Welfare, or individual families, or the resident himself 

through his own or grow work. 

This dynaie croup of able-minded adults aptly ouotes Helen 

Keller in their prososctus: "A person who is severely im 

paired never knows his hidden sources of strength until he is 

trested like a nor& human being and encouraged to shape his 

own life ." 

For further information, write to: John Heman, 

New Horizons, Inc., New Britain, Connecticut.

More Projects in U. S. A. 

CHRISTIAN 

LEAGUE FOR lNE HANDICkPPED, located ir Waluorth, 

Wisconsin, has been working to raise the money for a home for 

many years, through pledges from its chapters throughout the 

country.Their dream will be realized this sunmer when thehone 

is comleted. Funds were raised either by outri&t gifts, or 

Tmst Agreement loans,on a non-interest basis or on the basis 

of receiving 58 interest semi-annually. future plans include 

a gift shop buildin~,cooperative apartments and facilitiesfor 

individuals who reauire comlete nursin~ care. For further information, 

write to Mr. Charles E. Pedersen, General Director, 

and editor of their monthly "Bulletin." 

PRIVATELY OWhT HOME FOR PRYSICALLY RANOICAPPED is now being 

started in Cloouet, Minnesota by Joyce Okerstrom. A farmer 

nurse, who has taken care of many who are severely disabled, 

she pat the idea from seeing the unhanoiness of young adults 

among the aged and senile in nursing homes. 

lhe home will be financed by a Federal loan and about 4% 

by private funds. Monthly costs vill be in accordance with 

County and State Nursing Home rates, and vill be paid by the 

patients, most of whom receive their supnort from County Welfare. 

No soecial ~rovision vill he made for the patients to 

earn money in the home. 

Construction started h June 1963 with space for 16 patients 

and plans for future expansion. She plans to have bothmm 

and women, with two patients to a room, and to limit the ages 

to those between 18 and 50. 

Plans call for a basement and ground floor,with an elevator 

between the floors. The basement will include a recreation 

room and craft shop. The ground level vill contain the family 

SmmE HANJICAPPD CENTER, with a members hi^ of 200, is the 

~nly large center in the country run exclusivel:: by the hardieapoed. 

Its director, Ida Dal?, eriooled @; muscular dystr3rhy 

sirce childhood, has been workinp to ~ e the t Seattle 

Housing Authority to build a Residence Ho~e for the Handicanped 

unaer Pu5lic fausinp. The Center would dairister all activities 

ad the dining fscility. Public Housing, under new room. , bedrooms and dining room. 

laws, can build auxiiiary recreaticnnl facilities for ~eneral 

handicapoed use (suinming aoal, wasium snd ~uditcriun ccnbined 

and meeting rooms) ir. conjunction vith a housinp prcject. 

Plans have been formulated rouchi:: for 125 units which 

would include living roon, b~draom and bathrcom. It wculd 

house the handica~oed reouiring all degrees cf care fron nbximum 

to none. In cases where an able-Sc3ied parect or helnmate 

would share a unit with the hanriicbnnrd indirij~ahl, he or she 

would helo in returr; for rouF and bcir5. Ir other cases, 

keln could be emected frcn each oihrl. T!~oueh may nro';lena 

remain to be cleared, their Residence Hcne Comttee is both ty will be accepted. 

active and optimistic. Fcr more information, mite to I.!rs. 

For further information, write to: 

Daly at 252: SO. Hill Street, Seattle U., liashinctan. 

Joyce Okerstrom, Cloauet, Minnesota 

Miss Okerstrom's main Eonceri is that this home be like a 

home not a hospital or institution. With this in mind, she 

is choosing draperies, bedspreads and colors which will orovide 

the warmth of a home. Provision will be made for day and 

evening snacks. The home will be surrounded by 10 acres of 

land and many outdoor activities such as barbecues and oicnits 

will he arranged for the residents. 

So far, those uhho have emressed interest in living in the 

home include victims of cerebral palsy, multiple sclerosis, 

oolio and rheumatoid arthritis. .Any type of fhysical disabili-

FTX VACATIOI I

. . . . Suggested Reading 

HONEMAKING iP0 HOUSIRG FOR RF DISABLED IN lllE UNITEC 

STATES OF AMERICA. Rehabilitaticn i.:onoyr;l-h 17.. Zl. 

order from: 6eu Tork I'niuersity Iledical Center, Institute 

of Ph:rsicvl !!eoicine and liehahilitatiar, LOO 

Ehst fLth St., li'eu verk 16, liev Yark. 

LA vIsTfi cLua - i HaIc;ID-Ifi -ZIn cO-c? co:.n-m(In ir 

l i in '~hich they have cc:?lired their ibilities to 

b:;ld a "::iri,tu:e cit:" or tnpir cwc. Ii i::c;udes stores 

b.!~ich sell hhc5icrLts and ce~;nics, red estiie and irsiir- 

;r.ce. Cti~pr builciri-s in the ca:vcnjt:, ;re h social hall, i 

:coJ-i:crkiri. si!o-. ar.i; four-unit ai,;.rtments. The:; ha.:e orran- 

. . 

~ZEC a Y Z ~ ~ p?-5~ri~1, 

C a d ~i. orrh~stri to ria:. at their darrcr, 

a:$ collrcte; a 1ibr;r:: of record? a d kooks ir Jraill~. 

;.r "rils ~3 en-!si' stox in da%ntai:r. tmth 2;rb;ra b r i ~ ir ~ s 

-.cat of the curmnrit::'~ ir.coce, slipolelrcted b) icneravs dcr 

rztiens b.: iile citizens of Slrta jhrbira of .?one::, lahor, material~ 

and i?iicsrortaticn. 

UNITEC CERFBRAL PALSY OF PEh'SYLVANIA ard the Denartment of 

Welfare ~ l a n a two-year study of the 33,000 Dersons with cerebral 

~alsy living ir Pennsylvania to evaluate the needs of 

cerebral palsied adults anmarine to need resident care a d 

to demonstrate the use of comity facilities for lonp term 

care. For information, write to: 12r. Leslie Park, Zxecutive 

Director, 1719 1:orth Front St., Harrisburg, ?ennsylvania. 

FOSTER 

HOMES FOR HkNIICkD~m ADULTS have solved livin~ nrablems 

for some hosnitdl-bound throughsot the countn. :I New 

York aeency is one source for such olacenerit. Hovever, it 

limits its services to those betueen the ages of 1E and LO 

and those who need minimal assistance in eating and dressing 

and have total indenendence in toilet and bathing. For information, 

vrite to: New York Service for the Orthopedically 

Handieapoed, 853 Broadway, New York 5 , N.Y. 

881e ('OSDAESS 

1sTszssros H. R. 740 

A BILL 

This Bill uas introduced 

by Representa- 

To nonend tille 11 of the Housiup .\cc of 1950 L. 

lo extel,ct the profcLlll of I~;,,,~ for ~ , l=~' ~ of Ohio. ~ ~ i ~ 

for the elrlrrly so 21s to inclnde hourinp for 

Ihnadio~pped fnmilies :lad permns, nurl to 

If XoU feel H.R. 740 

el,;lble oert1p:t,~c~ of sllcl, hoasiug hy fl8e V~Uld help to solve 

handicapped .t lel,~:l~s tllpy cnn .rol.d I,?. YO"' problems, write 

:L,~~I,o~.~z~,I~ 

prillltS to nlililltnill its so~relacx to YO=- Senators and 

,rl~ere rentals are md~~ced for !his purpose. Representative indicating 

ycur support 

By Mr. 2Ls,rl.zr 

of this measure. 

Jmolar 9.1981 

nererma to the mmmitle on Ranking snd curnocy

CO-~ER~T~E 

HOME (KESID~T CARE CENTER) FOR ALERT H ~ICAP- 

PED ADULTS is being planned in Florida @ a private group of 

the severely handicapoed. Their pwpase is twofold: (1) Tc 

provide maxim opoortunity for handicapped persons to partieipate 

in the management of their own affairs, and (2) to provide 

a background for disabled persons to participate (mare 

flillg) in the community's social, cultural and economic life. 

Their plans now envision small units. Eventudly, they hope 

far more centers, vhich would be scattered but cooperating, 

with one or tvo close to a college campus so that they could 

avail themselves of student hel~ and telenhone hook-ups for 

eon ti nu in^ education. There uocld be both sir~le and family 

units. Patients of varied disabilities would heln each other 

and all would share housekceoers, nurses and stenopanhers. 

Acca-modations would be included for vachtionin~ disabled on 

a short term basis. For more information, urite to: Margaret 

Xorris, V.d. Hospital, Yard 22-1-N, Bay Pines, Florida. 

' 

& El;; 

:?H SFRIICES fin FACILITIES ACT 

?d the Surgeon General of the 

"hljc Health Service to make nroject prants to 

nublic or "on-nrofit apccies or orfanieations 

fn. :he develonment of outside-the-hosnital health semices, 

nartieularlg for the chronicallp ill and aged. 

This Act eccourages emerirnental projects and neu anhes, 

at the camnit? level, to semie* as such as 

r;~ hone anti hone nursinc chre, honemaker services, 

1 services, etc. For more detailed in1 'ormati on, 

It :,our Public Heal:h Sen-ice Re~iocal Off 'ice. 

RANCHO 

HOME CnRE FLU!, based at 3ar.cho Lo5 &gcs i!osnital lifts, etc. Kcrlprs from the mechanical de~~rtmert visit 

in Dalme?, Chlifornia, makes it possible for aboit 200 res- monthlg to service rauipment and nravide emerpencp cal-prsFe 

pirator patients in Lcs .in~eles Coontg to live at home. ?if- ZL hcilrs a day. 

teer vithout homes are carrie6 as home care patients ir cor- Before the patiect Foes hcme, thp medical social vorker 

tract sanitaiums, vhich are also used for short-term "lace- corferr iith hi- md his fanil- freroentl?. She helrrr salve 

ment when families need rest perids or go on vucatioc. financial nroblens and emlore: community resources. Fsgmihe 

Courty plan, started in 1953, is an extersior. cf the cholo~ical and vocational courseling are a~~;iil~ble in the 

hospital into the home. me patient remains a ahtient of the hosnital and on an a~t~atiert ba~is. 

hospital vith the Home Care Departmerit providingm arranginr ~uthorizatien for attendant-housekeenin6 hein is based on 

for services a d ecuipmert. Private in the na- the needs of tie ptient md his fmil?. Feccnmen6atiors of 

tients' ccmqurities care for them at home -5 are given liait- varims tiepartnerts are considered befcre tie service is ~ u- 

eC ~ r i v i l e an~~intrnents 

~ ~ to the medical staff of t!,r hasoi- thorized. The County pa~~s 

all or r*rt of the sdaq. Th. 

tnl, renortin6 rerularl:~ on the nedical status of their n s family hnd the attendant-housekeeper receive ir:structions at 

tients. Specialized medical services, laboratory tests . the hosrritai in the care of the patient end his eruionent. 

medicines are supplied or. an outnhticnt bcsis. 

For nore infor:>atiso, mite to Mrs. %id 8. Cillahan, Home 

The hosoital provides resoirators, ~m~ratars, hydraulic Care Coor:inator, 3ar.cho Los ..mifcs Eosilithl, DO?PE", Calif.

Warning to Others : A Letter to Ponder 

T 

NOTES FROM HELL OR A POLIO'S PERDWON 

by former K.B. 

(human being) E. S. Rector 

I n World i!ar I the expression "Going West1' meant to stumble 

into a sir by three hole and stay there. Well, let me tell 

you whet "Going Scuth" meant to this nolio and what kind of a 

hole I am in. . . 

i HAD my halcyon days at heme vith the sliding glass doors 

everreedy to unfold me to the kindly ministrations of the sun, 

as vith Hands of Praise. . . "he storemen knew my wheelchair; 

twice I went to church. 

rind, then amongst these parts of 

Paradise, black lightning struck. . . 

Xy attendact had to go to Ninnesota on family business and 

thus beger a flight amorgst those darlings fate sends to 

soueeze shut the eyelids of those the bus has sucked. I mean 

the attenjsnts YOU get when you put an ad in the oaoer. I 

have read enough from others to eschew the nursuit of such 

delicacy, n'est-ce oasl 

next that shield of my ipony and despair, the WID, 

metmomhosed into that Dragon with Tail RSiess, the N.F. 

and I was struck dour: a la mg attendant (meaning without one) 

so that the perversity of fate has planted me here. 

sleep, but when they suggested I go the weekend the same way 

I BLEW MY STACK. Result - a truck arrived vith my bsd just 

as I turned black from cursing and blue from C02. . . 

It uas soon evident to me that I was considered something 

which ought to have been dumped on somebody else. me baby 

watchers had no men to help them get me up or down and it was 

here I began to meditate how to strangle myself with the hair 

of the next inbound beauty (if she ever came). Have you ever 

lhid on your back, unable to move, for seven hours, without 

seeing even an Mtation of a hman soul? Go ahead, RING 

your button. Or have you ever sat in (you name it) for the 

same length of time and then have the red rash hastily 

diagnosed and rushed to the lab? 

Out of that room and into another ward, twenty old and dying 

men, vith three more wards like same or vorse, making eighty, 

and two male attendants on at ni~hto heln a nurse and her 

aide feed and t&e care of them, including twenty incontinent*. 

In such a place it uas days before anybody realized big, fat, 

husky, normal me had any needs at all . . . I vrote to the 

County Supervisors. I wrote good old friends . . . and 

so comicstion was established - Just the facts, ma'm - 

Tday I have my first shamooo since July . . six weeks for 

a haircut . . I wrote a friend who "as coming to see me hnd 

said, Stag Home. But I won't do that apain and if any of you 

vant to come to visit me, you mag (Purgatory notwithstanding). 

DITOR'S liOTE: The preceding letter was dictated by our 

friend, Elbridge Rector (now deceased). It was received a 

few weeks before he passed away. ..It seems noor management 

on the part of society to spend thousands of dollars getting 

a man vith a fine education and talents through a polio crisis 

and dropping hi? to be institutionalized at irdigect level... 

I arrived at this County Hospital attended only by those 

looks ~eanle give cows balancing on thistles. I passed the 

first ni~ht on positive pressure tube without sleep (where 

uas my rocking bed?) and the second night on tcbe without 

Elbridge's letter and the Mitor's Note are excemted 

from THE SOOEE3W, November 1900, the Newsletter of 

the Bay Counties Post-Polio Association.

. 9:i?Cf!:p ':".-J"?-~....... .., . :iF:nPrsi,.e 

irest?-cperzted , ark1 breather. 

Csff~l ia h;ve ir car in case of an '"""'"""~ 

accident, or during a power failure, 

or for pencral emergency use. 

Victim's lungs are inflated when 

rescuer blows into mouthoiece. He ons.wa, 

breathes out thrcugh the exhaust 

side-vents and no? into the rescuer's 

mouth. Prjce: $1.95. Venti-Breather 

Sales, Inc., 72542th St., B.1.'. 

1.!ashicgtcn 5, D.C. 

.. . . 

. : . ... . : 

?.., _ ..(,.', . .. 

.. , r

I 

5-foot rise four-uav elevator with three ~osts 

afoot rise elevator 

Vince La Mielle, "olio '0, a creative inventor, has 

organized a machine shop to enpineer his designs at 

minimum prices. 

Each 

. 

elevator is individually desiped and 

for the particular handicap and home: 

Attendant-mperated or self-operated, by either 

hand, with micro-switch. 

Sized to wheelchair or ambulance cot. 

. 

Outside from porch to ground level. 

Inside from first to basement or to second floor. 

Entrance and exit, from side, back or front. 

Typical 

rise heights and prices: 3' rise ($200); 

5' rise ($225); 8' rise (9300 to $350). 1U1 

prices f.0.b. Bad Axe, Michigm. Since all units 

are mstoncmhde, remittance in full must 

accompany order. 

Shipped in a husw wooden crate; can be handled 

by motor freight. 

. 

Inconspicuous and compact; easy to install or 

relocate; simple to maintain. 

Rueeedlg built of steel. Operated by a 1/3 to 

314 H .P., 110 volt motor - in relation to 

height and personal need. 

Send for more complete infomation. With your initial 

inquiry: (1) specify height of rise desired; (2) send 

a photograph or sketch of location; (3) detail your 

oroblems. Write to: V. La Mielle 8; Co., East City 

Limits, Bad Axe, Michigan

Readl- :o leave for ul Australii; "roo shoot" 

PORTABLE FIBRE GLASS LD?!C This lightweight respirator 

"as desi~ed for eighteen-pear old Noelene Heley to use ht 

night on camping trios with her family an their kangaroo 

hunts and fishing trips. 

It was develo~ed and produced by Dr. Peter Colville of 

the Health Department with technicians and ohysiotheranists 

Victoria, Australia.

- 

ine lur,~, vtich lcaks like a wsce cmsuie, 

is really a "tank" tailored to size and shaos. 

It uei~hs only 51 lhs. olus a L" foam rubber 

mattress. A stmdard s~iral twist tyoe of 

collar is nrovided . 

.4 mould was made to the reouired dimensjans, 

the fibre glass anolied, and the mould 

dismantled throueh the collar hole. The lid 

was then saxm out of the resultant barrel 

shaped shell and ~rorided vith aluminium 

clips for repositionint. 

The seal is orobhbly urioue: simly a sheet 

of Plastic on Terylene laid over the shell - 

!he suction creatine a "en. good seal betx-een 

the smooth sheet and the smooth shell; this 

sheet is positioned by several ~ieces of 

Velcro fastener. 

A standart' hospital tyoe helious is used. 

It is ~auered by a light vacuum cleaner motor 

or, uhen thep leave the =over lines, by a 

znall petrol driven engine. The latter is 

used vith about 30 feet of air hose an5 a 

large ex3aust ~ioe submerged in water, so that 

the noise is subdued to tolerable levela. 

I 

(TjG 

has been furcished comlete ifistructions and bluenrints 

that we vill send to an>-one whc warts to duplicate Poelene's 

Colville Pesoiratar.) 

,liar Lightweight motor and bellows I

. . . SELF-mn7L'CTABLE BEE it the tocch 

of a button the bed becomes a mobile 

chair. It eives a ranee of ~ositions 

between lying and sitting and includes 

extra fittin~s to orovido far postural 

drainage, for leg raising and for . 

hesd-down tilt. Sides and adjustable 5;1..~. L:--J~~~ 

foot-rest are removable. k!idth: 3' or 

2'6". Length: 6'6" or 7'. For more 

information, write to the Sales 

Representative (a respo): Mr. Paul 

Bates, Egerton Fhgineering Co., Tower 

Hill, !iorsham, Sussex, Weland. 

.,__.= 

- ..,_ti 

ELECTRONIC N!LTI-COETROLLEB . 

(See TjC, Fall-l'inter 1962, 

pages 32 and 33) 

I.:=. W. H. Short, inventor of the 

Selectascan, has developed a 

tyoewriter connected to a taoe 

recorder. 

His wife, %t, in an iron lung, 

now has a job tming and editing 

tanes for the a.0.C. 

\!rite: Ihe Avondale h~ineering 

Go., 22 .ivondale W., Farnworth, 

aolton, Lanc., hgland. 

I.!=. Herbert S. Ferrill, resoo, 

an electronics design engineer, 

has developed an %raved and 

less emensive model of his 

Suitch-O-Matic - especially 

designed for other quads. 

Send for his neu brochures: 

Down East E1ec:ronics IYg. Co., 

93 Depot Rd., Falmauth, Maine. 

Consult him for solutions to gaur 

individual problsms. For example, 

he can furnish a voice controlled 

unit for some dictating machines 

for :30 to ELO.

DOL-LE 

for tvin girl resnos 

FITTm TO ;i RII:G. Srealjert ?ri.;;li- >.:acspvelt 

"resented this chdir tc i:icf Iln sku? of

to all Your Wants and needs. 

" uith herbert merrill'sswitch-o-msii 

.earn far yourself with grace and irenels lovely 

pBpeF... stand up for "ourself with kendell's elevating se 

... these and manvother exciting values are to be found in the market place 

lllv L-Y~~~IL?? 

tired of luqain~ your lapboaxl 

PLACZ - ell edvertisers 

are respaa and o the? 

wheelchairs, lirt; ... camto 

every party? get one of 

babbp's unioue terre-cotta 

severelv handicapped .. modes... polyfasm, foem rubfree 

space write to mic 

ber ... write for catalome 

caasters...ties onto arm of 

our cbair...alezed in mette 

chsqrin falls, ohio. 

street ... senta cruz.cslif. 

(not shiny) white only. ..$l.CO 

each...write to bsrbara cory ststione 8$ x 11 inch sheet the country school mn bp jern 

h5t ereenw~od.. .alencoe,ill. + th nen sketch of hnrseTs rvan (see tjq, vol V, na.2).. 

heed OF country church scene wonfisrful outlet ?or your 

hand-made baskets and purses 

... 15 sheets plus envelopes - s~eciel craPt...donlt pass up 

... suhscriptians ts "readem 

41.25. ..contact jane comstock this opnortunity...send on 

divest". .. write lenora cleek 

... the comstock lode...aparka, consi~nment to jean ryants 

... h77 vinsns ... akron.ohio. 

oklshama. 

qift shon for the handicapped 

... rts.Z...dundee, illinois. 

cilstom built, outdoors,elee- "your work merits our metitrio 

elevators...see special culous attention". ..typing- businecs orinting-cards... 

equipment section of this tjg man~lscript.legal.etc...cor - letterheads ... statements... 

... vince la mielle...bad axe. reottona if desired...steneil edvertizinq novelties-book 

mcsraw C/O tjg...box 14 ... specialty aids...439 locus? 

michi~en. tvoinp: - tming for photo re- matehes...psns...ealendars... 

orldnction...mimeographing - maqezinea...write tomy sexweddine 

invitations and at- booklets, proqrams.forms,let- ton...1723 evansdale...toledo 

tendants $irts...discounts ters,bulletins,postca~ds, 7, ohlo. 

to all...urite or phone... nricelists, etc...estimates m 

also handle avon and stanley recuest...contact entep bookkee~inx and tex service.. 

oroducts...jo an" goodin... nrisas.. .ginny pau* contact mary w. an~el ... 8 

19602 helen...detroit 34, mard.. .766 st. johns eve. asnsavoort street ... bath, 

michiaan. lima, ohio. ~ew york. 

L8

~~~ 

"we clear nsxezines for agents david tawuater...insurance 

... over 3.000 domestic and 

secret en pal club - join tb 

eaency...bookkeeping-tax serv. 

foreign ~eriodicals in our 

?un...have a secret pel... 

... contact him at 303 moffett 

cstslogue...many of the more write a letter telling about 

atr~et...richardson, texas. roueself - hobbies, interests 

po~ular magazines carry 50% 

ape, sex, ete...send infoma- 

comission"...for latest cat* hanlicsna, inc...hand driving 

l o ~ write e ad rosenwasser... 

tion with a self-addressed, 

control. ..also very much int- stamped envelope to joycs 

msnezino subscription service erested in findine people to walker. ..20304 dresdsn...det- 

... p.o. box 3062...cor~ua act as local agents for prod- roit 5, miehiean. 

christi, texas. 

ucts. ..wonderful opportunitg 

contact bandieaps, ine... kno3 handle rubber stamp - 1 

s~ent in switzerland and Oths 4345 south sante fe...en%le -, 

ellropean countries for "thom~ 

line .75 ... 2 lines $1.00... 

wood, colorado. 

son respiration products". . 7 lines *1.50...4 lines $1.75 

incormation and catalogues on 

... 5 lines $2.00.. . also 1000 

earn UP to 5.45 pzr box... name and add~sss 

reouest...ehsrles froelicher sell "=race notes - charcoal 

labels - 3 

... steinhofhalde 18...lucern% 

lines only ... $1.00... hand 

sketched note paper and gresb 

switzerlend. 

leeorated stationery - $1.25 

in6 cards made by one of the ... jewel =ole ... 9h w.moun- 

RanR...for further infomat- tsin street...fayettevills , 

hart's soeeialties...adver- 

ion write to race nates 

arkansas. 

tizing ... imn~ints...n~veltiss 3506 7th a v a . b i n i 

... qreeting cards...magazlne fo-ks, nnrth dakota. the rock sho ... tourist insubscriptions...hlaina 

hart formation an novelties ... 

... rd *j...fairvieu "seconds sanctified" - a bi- lspida~g jewel~y...c=nadian 

ealsm, ohio. monthlp publication especially souvenisra...alan and berniee 

'OF 8hut-ins written by shut- kay...highway 16 wsst...ed- 

1000 personal address labels ins ... correspond with people monton...alberta...ean~da. 

- 31.00 ... 4 lines neatly all ooe~ 

the world...only $la: 

orintsd in black on white... DPT pear...more information rehab aids announces spring 

marion sampra ... 2501 north nn request...write msrian release or '63-164 rehabilimaade 

ave...ehicago 39, ill. ricker. .. rldtl. ..mar~us,iowa. tation mail order catslo,qm. 

..wonderful opportunity - 

set or 24 postcards - reprod- erofusely illustrated...msny 

mouthstick christmas cards... uetions of paintings by mouth new items ... only $.50...slao 

w~ite far complete brochure ... $l.n0 plus $.lo postage... available -"easier living" - 

I? these beautiful cards... also oil ori~inal postcards a free bulletin coverinq all 

enn adans. ..3405 hendrieks or paintinqs for those inter- phases of rehabilitation... 

~va...epartment Z...jaekson - ested...miss nyla thompson... writs to rehab aida. ..6473 @v 

nilla, florida. 1711 crown dr...austin, texas 8 street...miami, florida.

- 

wanted - ~sed kar-top lifter. 

w 

wonderful buy-electric page siiitch-o-maticl mldel s-2 

..%* sale-niagara cyclo mas- -. ..almost new...must controls rive appliances, by 

sasa car cnshion...lZ volt let go. ..only $30.00. ..$ of microswitch-$119.00...neu 

svstem iv fine condition or- orieinal purchsse price... mldel 3-3 especially designed 

iqinelly hq9...nou only $40. ~ O mo-c P information write to far quads-controls appliances, 

write lowall weissert...604 bettye srickson. ..2519 barnes tv.recorders,intereommphones. 

w.sunset...bourban,indiana. bridge rd...dallas 28, texas. ..fa? full details of this 

wooderful new devioe contact 

accounts and income tax ef- herbe~t s. merrill...down - 

ricisntlp and inexpensively would be glad to be of any east eleetronics...93 depot 

serviced by mail ... please hsln to those interested in road...falmouth, maine. 

writs eharles lyser ... 717 writins childrens books... 

liberty street... el cerrito. 

1 

alsn be sure to get elyce's agents wanted - take ordsra 

nwo book "roeb the rocket 

californie. 

for megazins aubacriptiona.,. 

mouse". ..only $2.75 per copy free sales kit - no obligatsell 

mouth stick sketched ... contact alvce mae bergeg.. ion...~ood commissions on all 

ca~ds a-d natepaper...write lanesbnro, minnesotn. magszines...sewyerls magazine 

for hroehure...also available 

maoazines f6r any hobby: for 

service...box 90 - austinvilk 

12 lar~e. single fold notes 

t%se atudvinq freneb there rdgl. ..troy, pennsylvania. 

for $1.25 ... irene ridgeway 

...u.415 luxor street...downey is "se lection du reader's kendell elevatin~ sest...aelf 

california. dicest" ... six mais pour operating. ..lU" travel can be 

seulement $1.00...ssve over used over toilets or as chair 

thomosants ohristian bookstom f rewlar price.. .any lung in other rooms...hydraulic 

... books, bibles, gifts. wee6 usge edition regular $4.00 pump raises you bigh enough to 

inq cards, stationery, sunday per vear...slso sell "tv~ide ~tsnd without bending YOW 

school supplies, etc...qreene -34 weeks only $2.88...writs koees...louers to lounge chai~ 

and morris streeta...waynes - my. qlle (kn7tcy)...815 11th levsl...kendell enterpriser... 

burg, o-nnsylvenia. st. nu. ... puyallup,wasbing- 2714 holly avs...arcadia.calif, 

ton. 

'or sale -electric mosor.... newsletter written by and for realstsrsd representative of 

24V., 13.5A.,D., C.13H.P, bsndieappsd adults...publiah - waddell and reed, inc. ... 

compound .. size -3" iiametf ed 11 times a year...filled mutual funds and financial 

x 8" lon . . shaft -5/8diam- with news of people, organizs pls-ning ... glad to answer 

eter x 18" long ... $10.00, tions, activities, etc...$l.cX any questiona...eontact tom 

nostnaid...writs to bleir kay ner yesr...write editor... rogsrs...lOOl 25th ave.ct.... 

jnnes ... Qs09 dilston road.. clliesgo star newslettsr...543 moline.illinoir. 

silver snrinqs, maryland. n.msqnnlia ave...chioago 40, 

i11inois. 

50

Statement for 

Balance on hand January 1, 14 

Cheekine " Balance 

(Including $150 girslr rl 

Cash 

: (Gifts f~ -am . 129 fri ends) 

~ .--* .- Donations n"..+ ". tine atteni 

"Sales" < ,f Gazettes 

TjG is proud to announce that mong the 

"Gifts from 129 friends" listed in our 

1962 Year End Statement, are donations 

from the following Foundations: 

The Harry K. Fox and Ema R. Fox 

Charitable Foundation 

#l,OOO 

Il- Imarges 

Books and Pericdicr rls 

C.0.P.H.f Dues and Meeting 

Office Supplies 

Part-tim s Attendant 

Postage 

Printing the TOOMFI ! j GAZETTE 

Prines 

. .- 

. .- 

3n hana Jar lUary L, LY 

Balance 

lioally Handicapped 

$5,065.@ 

The Cleveland Foundation from the 

David C. Wright Memorial h d 

$l.OW 

The Charles H. Giles and Fannie M. Giles 

Memorial Foundation 

8300 

If you wish to help with a 

tax-deductible contribution. 

make check to: 

IRON LUNG POLIOS, INC. 

Box 149, Chagrin Falls, Ohio 

,

thds our good friends, listed below, for their generous gifts 

I.30 which helped nay for the printing and mailing of this issue: 

California 

Mrs Madeline Alverson 

Mr & Mr9 H J Barnesm Jr 

Michael J Callahan 

Marilyn V Card 

Mrs Hollis Caswell 

In memory of Johnny Denton 

Carolyn DeVaney 

Ralph 0 Dosch 

Alta E Dubois 

Rev & M?s F Harold Eesert 

Mrs &tin L Greiffenberg 

Linda L H-ey 

The Lerner Foundation 

Janet A McDonald 

Mr & Mrs Seymour Rosenberg 

m bd 

Mrs Carltm L Shock 

In memory of Mrs Louis J Smith 

Deanna Tovnsend 

Ben Woodcock 

a,&&.& 

Mr John Burke & Sons 

Virginia T Smith 

Dana Stanton 

. 

Harris A Thompson 

Connecticut 

.-a 

In memory of Dr Burton H Fern 

Patricia Gagner 

Mr & Mrs William F Otterstrom 

Mr Harry A Doll Sr 

. 

Chris W Ford 

Margaret Norria 

-a 

Gene Marks 

Illfnoia 

Jean &an 

Cinny Simens 

Beulah B Snell 

Thomas Howard Taylor 

Indiana 

Merlin L H-an 

Jim Tnampson 

e- 

Mr & Mr6 L'ilb~ hold 

Mrs Nah Sahner 

Louisiana 

Anonymous 

.- 

Massachussetts 

Mary T Chiavarini 

. 

J o b Goodin 

Minnesota 

Paul M Ellwood Jr MD 

.EIIssouII 

David Beatty 

Mrs Wilson Carr 

Robert V Fellhauer 

Mr & Mrs Ernest Kirschten 

.Nebraska 

Lois Krautkremar 

.- 

Anonymous 

Mrs Charles W Baat 

Richard J Bauer 

John Lyle Brovnlee 

Mr & Mrs Martin Eaton 

Robert D Eckhouse 

Dr and Mrs Paul L Essert 

Rev Francis F Fisher 

Edvd J Klanit 

Mrs Maurice K Stern 

. 

North Dakota 

Grace Sandness 

Lenore Cleek 

E ~ C J Dobler 

Mrs R J Edvds 

The Harry K Fox & h a R Fox 

Charitable Foundation 

In memory of Mrs Eldy Gross 

Albert Holloway 

James W Hooper 

Miss Ceeile Hush 

Ealon Lamphier 

Roger Liephart 

Mrs Robert A Little 

Rose Marqud 

Mrs Arthur A Mathson 

Donna McGwinn 

Edward J Moriarty 

Imogene Prichard 

Mrs Jack Rodgers 

Solon Women's Service Club 

. 

Mrs Shirley Wolf 

Ohio. Chagrin Falls 

Mrs Allan M Cleaveland 

Mr & Mrs William A Harshau I1 

Mr & Mrs Bill F Hutchins 

J S Laurie 

Dr Tom D Rose 

Willard C Stoner Jr MD 

fi6 Arthur Win.910" 

-a 

. 

Bobbie Slattsn 

Pennsylvania 

Ann Alderfer 

Mrs George C Crovder 

Mr & Mrs W H M~CUllough 

South Carolina 

Catherine D Tarpley 

*- 

Rev Skardon DIAubert 

Jeanne Drake 

Highland Baptist Church 

Louella Long 

Ben A Rosamond 

.- 

Mrs Cornelia Lightner 

Thetford Ladies' 

Senemlent Society 

Virpinia 

Cassie M Gunn 

Washinetan 

. 

Kenneth C hderson 

West Vireinia 

. 

Fairy Gdmother 

Wisconsin 

Marie C. Hoyer 

.&g& 

Dr & Mrs Neil Campton 

In memory of 

William Fraser Maeklaier 

Clifford MeIntosh 

0 

.- 

- 

Ds H B C Sandiford 

Janet 

. 

Sandif ord 

Hans Nuck 

=a 

Dr Ruth M Myers 

Philli~ines 

Fe Isaac-S& 

K"W !" "=A

Toomey J Gazette (Vol. 6, No. 1, 1963) - Polio Place

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