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<strong>Keith</strong> J. <strong>Hyatt</strong>, <strong>EdD</strong>, <strong>Western</strong> <strong>Washington</strong> <strong>University</strong><br />

<strong>Ken</strong> <strong>Howell</strong>, PhD, <strong>Western</strong> <strong>Washington</strong> <strong>University</strong><br />

2010 Pacific Rim Conference


Purposes of Presentation<br />

• Discuss the importance of selecting research-based<br />

practices<br />

• Review and critique selected “controversial” practices<br />

• Investigate reasons for seemingly uncritical adoption<br />

of “controversial” practices<br />

• Provide basic guidelines for selecting research-based<br />

practices<br />

• It is our hope that knowledge will lead to increased use<br />

of evidence based practices and improved outcomes<br />

for individuals with disabilities<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

2


Importance of Research-based<br />

Interventions<br />

• Individuals with disabilities deserve to receive effective<br />

interventions<br />

• Many allied health and human services professionals<br />

receive training that does not emphasize scientific<br />

training (Jacobson, Foxx, & Mulick. 2005a)<br />

• Lack of research time and expertise can lead many well<br />

intentioned professionals to recommend interventions<br />

based on familiarity<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

3


Importance of Research-based<br />

• Legal Requirements<br />

Interventions<br />

• “promoting schoolwide reform and ensuring access of<br />

children to effective, scientifically based instructional<br />

strategies and challenging academic content” (NCLB)<br />

• “to ensure that those personnel have the necessary skills<br />

and knowledge, derived from practices that have been<br />

determined, through scientifically based research to be<br />

successful in serving those children.” (IDEA)<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

4


Importance of Research-based<br />

Interventions<br />

• Past practices in special education that have been<br />

refuted continue to re-appear and/or maintain some<br />

following.<br />

• Process training has always made the phoenix look like<br />

a bedraggled sparrow. You cannot kill it. It simply<br />

bides its time in exile after being dislodged by one of<br />

history’s periodic attacks upon it and then returns,<br />

wearing disguises or carrying new noms de plume, as it<br />

were, but consisting of the same old ideas, doing<br />

business much in the same old way. (Mann, 1979)<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

5


Possible Dangers of Using Nonscientifically<br />

supported practices<br />

• Some may actually cause harm<br />

• Take time away from effective interventions<br />

• May provide false hopes<br />

• May provide unrealistic expectations of individuals<br />

• Many are quite expensive<br />

• Can cause guild feelings among family members<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

6


Why do controversial practices<br />

continue?<br />

• Lack of training in use of effective practices<br />

• Effective practices too difficult to implement<br />

• Positive effects of validated practices aren’t readily<br />

apparent<br />

• Workshops and trainings that promote ineffective<br />

practices<br />

• Convincing testimonials<br />

• Pseudoscientific fads frequently use “scientific<br />

sounding” terminology<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

7


Importance of Research-based<br />

Interventions<br />

• Recent survey of parents<br />

of children with autism<br />

• Reported current or past<br />

use of 108 different<br />

treatments<br />

• Used 7 different<br />

treatments on average<br />

( Green, Pituch, Itchon,<br />

Choi, O’Reilly, Sigafoos,<br />

2005)<br />

Rank Treatment Now<br />

(%)<br />

Past<br />

(%)<br />

1 Speech Therapy 70 23.2<br />

2 Visual Schedule 43.2 18.6<br />

3 Sensory Integration 38.2 33.2<br />

4 ABA 36.4 22.7<br />

30 Facilitated Com 9.8 10.2<br />

33 Chelation 7.4 10.2<br />

62 Irlen Lenses 1.6 1.6<br />

82 Doman-Delacato .6 1.6<br />

103 Dolphin Therapy 0 1.2<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009 8


Importance of Research-based<br />

Interventions<br />

• Doman-Delacato Repatterning<br />

• Ontogeny recapitulates Phylogeny<br />

• Crawling, creeping, crude walking, mature walking<br />

• Reproduce evolutionary patterns of amphibian to reptilian to<br />

human<br />

• Clearly discredited by numerous research studies, yet the<br />

practice continues: Institutes for Advancement of Human<br />

Potential and National Association for Child Development<br />

• American Academy of Pediatrics (1984 and 1999)<br />

recommended alerting new physicians to program to avoid<br />

errors of past and noted absolute lack of scientific research<br />

supporting repatterning.<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

9


Importance of Research-based<br />

• Sensory Integration Therapy<br />

Interventions<br />

• Based on theory developed by Jean Ayres (1972)<br />

• Recapitulationist theory<br />

• Originally used with children with learning disabilities<br />

• Not promoted as a substitute to academic intervention, rather<br />

to integrate sensory perception in CNS and get individual<br />

ready for learning<br />

• Theory correctly notes the role of cortex in incorporating<br />

sensory information but no reliable evidence that integration<br />

of sensory information is necessary for higher level<br />

functioning (Smith, et al., Ch 20 2005)<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

10


Importance of Research-based<br />

Interventions<br />

• Sensory Integration Therapy (continued)<br />

• Practices thought to impact vestibular, proprioceptive,<br />

and tactile systems<br />

• Traditional practice included swinging, scooter boards,<br />

smooshing<br />

• Current practice may include brushing, deep massage, and<br />

weighted vests<br />

• Treatment often costly and may last more than 1 year<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

11


Importance of Research-based<br />

Interventions<br />

• Sensory Integration Therapy (continued)<br />

• Numerous studies and reviews have failed to support the<br />

efficacy of sensory integration therapy<br />

• Poor research design of numerous studies with earliest<br />

studies tending to provide some support while later,<br />

better developed studies failed to support (Vargas &<br />

Camilli, 1999)<br />

• Baranek (2002) noted studies of children with autism<br />

were fraught with methodological problems and threats<br />

to validity.<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

12


Importance of Research-based<br />

Interventions<br />

• Sensory Integration Theory (cont.)<br />

• Lack of consistent research support for efficacy and is<br />

based on an older neurological theory that has failed<br />

empirical investigation. (Baranek, 2002)<br />

• Reviews b y Hoehn & Baumeister, 1994; Polatajko et al.,<br />

1992; Arendt et al., 1988, <strong>Hyatt</strong>, Stephenson, & Carter,<br />

2009, Leong & Carter, 2008; Shaw, 2002 failed to support<br />

efficacy of Sensory Integration Therapy.<br />

• Some (eg. Baranek) who noted significant problems<br />

with SI research advocated for additional research.<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

13


Importance of Research-based<br />

Interventions<br />

• Sensory Integration Therapy<br />

• Dawson and Watling (2000) noted little research on individuals<br />

with autism.<br />

• “In the case of sensory integration therapy . . . There exist so few<br />

studies that conclusions cannot be drawn.”<br />

• Arentd, MacLean, & Baumeister (1988) “ To base a treatment on a<br />

theory that cannot be tested is pesudoscience. To conduct<br />

interventions based on opinion without critically evaluating the<br />

evidence is paternalism, not professionalism.”<br />

• Considered an nonreimbursable medical expense by<br />

major insurance companies due to lack of supportive<br />

research<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

14


Importance of Research-based<br />

• Miller (2003)<br />

Interventions<br />

• “ Rigorous research evaluating the effectiveness of<br />

sensory integration therapy is crucial and must continue<br />

over the upcoming decades. However, these children<br />

and families cannot wait for definitive research<br />

evidence.” A statement similar to this would indicate<br />

bias in a research study.<br />

• “The knowledge base from research in this field is in its<br />

infancy and substantial work is needed before enough<br />

rigorous empirical data are available to proffer valid<br />

conclusions about the effectiveness of this intervention<br />

approach.” The field is over 30 years old, how long with<br />

this infancy last?<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

15


Importance of Research-based<br />

Interventions<br />

• Facilitated Communication<br />

• Originated in Australia and was initially used with<br />

individuals with CP<br />

• Fundamental premise is that some people have<br />

“undisclosed literacy” and simply experience difficulty<br />

with expression not a cognitive limitation (Jacobson,<br />

Foxx, Mulick, 2005b; Kavale and Mostert, 2004)<br />

• Research has repeatedly failed to support FC<br />

• Jacobson et al. (2005b) Reviewed 9 studies since 1992 that<br />

supported FC but found major methodological errors<br />

• Virtually every appropriately designed study failed to support<br />

communicator authorship<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

16


Importance of Research-based<br />

Interventions<br />

• Facilitated Communication (continued)<br />

• Mostert (2001) reviewed 29 studies<br />

• 19 provided one or more control procedures refuted FC<br />

• 6 provided one or more control procedures supported FC<br />

• 4 with no controls supported FC<br />

• Review confirms prior research with high quality research<br />

failing to support FC & those supporting FC were so<br />

methodologically poor that results can’t be accepted<br />

• Experimental rigor required if there is any hope of<br />

demonstrating efficacy of FC<br />

• Noted findings consistent with prior reviews (e.g., Cummins &<br />

Prior, 1992; Green, 1992, 1994; Hudson, 1995)<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

17


Importance of Research-based<br />

Interventions<br />

• Facilitated Communication (continued)<br />

• Emerson, Grayson, Griffiths (2001) found that<br />

quantitative data in their study failed to support FC but<br />

qualitative supported<br />

• They did not even discuss the methodology in the paper<br />

• Biklen (1990)<br />

• Research should not include testing the person<br />

• Fundamental belief in FC by facilitator is required<br />

• Wolfensberger (1992) “the mother of all crazes, the<br />

cold fusion of human services”<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

18


Importance of Research-based<br />

Interventions<br />

• Facilitated Communication (continued)<br />

• American Psychological Association (1994):<br />

• facilitated communication is a controversial and unproved<br />

communicative procedure with no scientifically demonstrated<br />

support for its efficacy.<br />

• Association for Behavior Analysis International (1995):<br />

• It is the position of the Association for Behavior Analysis that<br />

FC is a discredited technique. Because of the absence of<br />

ample, objective, scientific evidence that FC is beneficial and<br />

that identifies the specific conditions under which it may be<br />

used with benefit, its use is unwarranted and unethical.<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

19


Importance of Research-based<br />

Interventions<br />

• Facilitated Communication (continued)<br />

• TASH (2000)<br />

• Recognized the controversy, yet supported use of FC and<br />

encouraged additional research.<br />

• encourages its membership to become informed about the<br />

complexities of facilitated communication training and<br />

practice and to stay informed of new research and practice<br />

throughout the facilitated communication training process.<br />

• American Academy of Child & Adolescent Psychiatry<br />

(2008)<br />

• Studies have repeatedly demonstrated that FC is not a<br />

scientifically valid technique for individuals with autism or<br />

mental retardation. <strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

20


Importance of Research-based<br />

Interventions<br />

• Brain Gym (educational kinesiology)<br />

• Commercial program that claims simple exercised get<br />

the brain organized and ready to learn (Dennison &<br />

Dennison, )<br />

• Good for riding in plane, train, auto, sales, surfing,<br />

reading, attention, organization, writer’s block, senior<br />

moments, ADHD, reading comprehension, spelling,<br />

hand writing, golf . . .<br />

• Few research reports available in blind peer-reviewed<br />

journals<br />

• <strong>Hyatt</strong> (2007) found no empirical studies supporting<br />

efficacy of program<br />

<strong>Hyatt</strong>, Filler, & Krasch;<br />

and<br />

TASH<br />

not<br />

2009valid<br />

theoretical support<br />

21


Importance of Research-based<br />

Interventions<br />

• Considerations for selecting evidence-based practices<br />

• Avoid practices initially promoted through the media<br />

• Do not rely on persuasive testimonials<br />

• Be wary of research conducted by one organization or<br />

person with financial interest in the practice<br />

• Demand a body of research before choosing practice<br />

• Ensure that quality research is basis for decision<br />

• Look for experimental or quasi-experimental research<br />

• Review position statements of reputable organizations<br />

• Don’t rely on one study or one organization<br />

• Contact local university<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

22


Importance of Research-based<br />

Interventions<br />

American Academy of Child and Adolescent Psychiatry. (2008). Facilitated communication. Retrieved,<br />

October 1, 2009, from http://www.aacap.org/cs/root/policy_statements/facilitated_communication<br />

American Academy of Pediatrics. (1999). The treatment of neurologically impaired children using<br />

patterning [Electronic version]. Pediatrics, 104, 1149-1151.<br />

American Psychological Association. (1994). Council Policy Manual: M scientific affairs: Facilitated<br />

communication. Retrieved October 1. 2009, from<br />

http://www.apa.org/about/division/cpmscientific.html#5<br />

Arendt, R. E., MacLean,W. E., & Baumeister, A. A. (1988). Sensory integration theory and practice: An<br />

uncertain connection. American Journal on Mental Retardation, 92, 427-429.<br />

Association for Behavior Analysis International. (1995). Statement on Facilitated Communication.<br />

Retrieved October 1, 2009, from http://www.abainternational.org/ABA/statements/FC.asp<br />

Ayres, J. (1972). Sensory integration and learning disorders. Los Angeles, CA: <strong>Western</strong> Psychologycial<br />

Services.<br />

Baranek, G. T. (2002). Efficacy of sensory and motor interventions for children with autism. Journal of<br />

Autism and Developmental Disorders, 32, 397-422.<br />

Biklen, D. (1990). Communication unbound: Autism and praxis. Harvard Educational Review, 60, 3,<br />

Dawson, G. D., & Watling, R. (2000). Interventions to facilitate auditory, visual, and motor integration in<br />

autism: A review of the evidence. Journal of Autism and Developmental Disorders, 30, 415-421.<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

23


Importance of Research-based<br />

Interventions<br />

Emerson, A., Grayson, A., & Griffiths, A. (2001). Can’t or won’t? Evidence relating to authorship in<br />

facilitated communication. International Journal of Language & Communication Disorders, 36 (Supp),<br />

98-103.<br />

Green, V. A., Pituch, K. A., Itchon, J., Choi, A., O’Reilly, M., & Sigafoos, J. (2006). Internet survey of<br />

treatments used by parents of children with autism. Research in Developmental Disabilities, 27, 70-84.<br />

Hohen, T., P., & Baumeister. A. A. (1994). A critique of the application of sensory integration therapy to<br />

children with learning disabilities. Journal of Learning Disabilities, 27, 338-350.<br />

<strong>Hyatt</strong>, K. J. (2007). Brain Gym: Building Stronger Brains or Wishful Thinking? Remedial and Special<br />

Education, 28, 117-124.<br />

<strong>Hyatt</strong>, K. J., Stephenson, J., & Carter, M. (2009). A review of three controversial practices: Perceptual<br />

motor programs, sensory integration, and tinted lenses. Education and Treatment of Children, 32,<br />

313-342.<br />

Individuals with Disabilities Education Improvement Act of 2004, 20 U.S.C. § 1400 et seq. (2004).<br />

Jacobson, J. W., Foxx, R. M., Mulick, J. A. (2005a). Fad, dubious, controversial, pseudoscientific, and<br />

politically correct treatments in developmental disabilities services. In J. W. Jacobson, R. M. Foxx,<br />

and J. A. Mulick (Eds.), Controversial therapies for developmental disabilities: Fads, fashions, and<br />

science in the professional practice (pp. xi-xvii). Mahwah, NJ: Lawrence Erlbaum.<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

24


Importance of Research-based<br />

Interventions<br />

Jacobsen, J. W., Foxx, R. M., & Mulick, J. A. (2005b). Facilitated communication: The ultimate fad<br />

treatment. In J. W. Jacobson, R. M. Foxx, and J. A Mulick (Eds.), Controversial therapies for<br />

developmental disabilities: Fads, fashions, and science in the professional practice (pp. 363-383).<br />

Mahwah, NJ: Lawrence Erlbaum.<br />

Kavale, K. A., & Mostert, M. P. (2004). Treating autism: manipulators, mystics, and monsters. The positive<br />

side of special education: Minimizing its fads, fancies, and follies. Lanaham, MD: Scarercrow<br />

Education.<br />

Leong, H. M, & Carter, M. (2008). Research on the efficacy of sensory integration therapy: Past, present,<br />

and future. Australasian Journal of Special Education, 32, 83-99.<br />

Mann, L. (1979). On the trail of process. New York: Grune & Stratton.<br />

Miller, L. J. (2003). Empirical evidence related to therapies for sensory processing impairments. NASP<br />

Communiqué, 31 (5). Retrieved August 9, 2006, from<br />

http://www.nasponline.org/publications/cq315sensory.html.<br />

Mostert, M. P. (2001). Facilitated communication since 1995: A review of published studies. Journal of<br />

Autism and Developmental Disorders, 26, 19-42.<br />

No Child Left Behind Act of 2001, 20 U.S.C. 70 § 6301 et seq. (2002).<br />

Shaw, S. R. (2002). A school psychologist investigates sensory integration therapies: Promise, possibility,<br />

and the art of placebo. NASP Communique, 31(2). Retrieved August 9, 2006, from<br />

http://www.nasponline.org/publications/cq312si.html.<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

25


Importance of Research-based<br />

Interventions<br />

Smith, T., Mruzek, D. W., & Mozingo, D. (2005). Sensory integrative theraspy. In J. W. Jacobson, R. M. Foxx, and J. A Mulick<br />

(Eds.), Controversial therapies for developmental disabilities: Fads, fashions, and science in the professional practice<br />

(pp. 341-350). Mahwah, NJ: Lawrence Erlbaum.<br />

TASH. (2000). Resolution on facilitated communication. Retrieved October 1, 2009, from<br />

http://www.tash.org/IRR/resolutions/res02faccom.htm<br />

Vargas, S., & Camilli, G. (1999). A meta-analysis of research on sensory integration treatment. American Journal of<br />

Occupational Therapy, 53, 189-198.<br />

Wolfensberger, W. (1992). The “facilitated communication” craze as an instance of pathological science: The cold fusion of<br />

human services. In H.C. Shane (Ed.), Facilitated communication: The clinical and social phenomenon (pp. 57-122). San<br />

Diego, CA: Singular Publishing Group, Inc.<br />

<strong>Hyatt</strong>, Filler, & Krasch; TASH 2009<br />

26

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