Entire Transcript in Adobe Acrobat Format - National Reference ...

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that because these are not equivalent phrases and we keep
tossing them around equivalently. In our proposal or
suggestion or thinking about this the possibility of having
continuous information updates, as long as it is stripped
of identifiers, still makes the research to be done in an
anonymous manner. If I understand you correctly that is
not possible in your's even if you cannot walk backwards.
DR. MURRAY: That is correct.
DR. EMANUEL: And that is one of the reasons --
MR. CAPRON: It is the category.
DR. EMANUEL: What I would say is that is one
of the reasons we threw out these categories.
DR. OLD: Right. I think what this group is
saying is that if you want that possibility you should run
it by an IRB.
DR. EMANUEL: We do not disagree with that.
DR. OLD: I mean, that -- and that is what our
distinction is, is that it should be run by an IRB and, you
know, if the IRB says, "Oh, we consider that anonymized
even with further data flow," then that is what the IRB
says but it should go through the board.
DR. EMANUEL: Okay.
DR. HOLTZMAN: But I think this is a very
useful discussion because as we come back to the points