Entire Transcript in Adobe Acrobat Format - National Reference ...

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hypertension, and in trying to determine the genetics of
complex diseases you need to look at vast numbers of
people, you know, if you are looking at any sort of asthma,
any sort of large disease that you are talking about huge
networks of investigators spread out all over the country
and all over the world as it is and sometimes defining what
the community is, is difficult.
They also recognize that doing just your
standard epidemiological studies you could -- the results
that come out of those put individuals at risk. You find
that African Americans have higher rates of salt induced
hypertension. You find that women -- men get heart disease
faster than women, that there are -- the community can be
women and the community can be men so in those sorts of
sense it is difficult but where they are identifiable
communities we do already seek input.
The consent form, the layered approach, I think
that by having a layered approach at least what we have
found in the current study where it is being used it does
require a much greater deal of interaction between the
clinic staff and the participant because you are getting
something that they have never seen before. And in a large
number of our studies we are recontacting, we are bringing
-- you know, we have somebody from Framingham coming back