Entire Transcript in Adobe Acrobat Format - National Reference ...

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barriers to this. It has not been deemed that this is too
difficult for people to get through this. I think when
people are given the choice of what they are doing they are
much more open and much more interested in participating in
genetic research.
So I will -- I can talk about part of the
report or focus on anything I have just said.
DR. MURRAY: I see Zeke, Harold and Carol.
DR. EMANUEL: And Bernie.
DR. MURRAY: Bernie. This is Zeke. I see Zeke
but Bernie was the one who wanted to speak. Sorry.
Bernie?
DR. LO: It is the first time Zeke and I have
ever been misidentified.
DR. EMANUEL: It must be those genetics.
DR. LO: I wanted to thank you for coming and
also thank the NHLBI for doing this. I have a couple of
questions that relate to the issues that this commission is
talking about. First, on page 15 you say in the bottom
sentence, "The advisory board investigators should seek
advice about consent issues from members of the group whose
tissue is being studied."
We are discussing sort of a more robust concept
of community participation where it is not just "should"