Entire Transcript in Adobe Acrobat Format - National Reference ...

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samples, to take into consideration all the various aspects
involved in using these samples. In other words, the
various interest groups, the participants in studies, the
investigators that collect the samples, and the public
good. And then also the goal -- one of the goals was to
use a carrot not a stick to help people share these
resources.
It says right here in the overview one of the
key issues is how can NHLBI's valuable data and sample
collection be made available to the broadest scientific
community while maintaining the privacy and the trust of
the study participant and what barriers exist, either
funding, samples, control, and how can they be overcome.
So this committee identified four key areas on
how to make samples widely available to the community,
disseminating information, getting information out there on
an NHLBI studies, what studies do we have available that
people could use samples from, how do we ensure that there
are adequate DNA resources, in other words establishing
immortalization and repository services to use these
samples, facilitating collaborations and putting in all
small grants to share resources, to further pilot studies,
to get collaborations set up, and also protecting human
subjects, and that is what I am going to be addressing