Entire Transcript in Adobe Acrobat Format - National Reference ...

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The second thing is the issue here is it is
impossible to identify the person or is it possible. This
again is going to be a big spectrum. The question is how
much effort is necessary to do that? Remember in this --
many of these people will already be dead. Many of these
people -- you know, 20 percent of Americans move every
year. Outside of a research setting where you are tracking
them for some reason it is enormously difficult and you are
not interested in the particular person.
I would also say, Alex, on your remark it is
not us. I mean, the current policy is no consent. Let's
be --
DR. DUMAS: No consent?
DR. EMANUEL: That is the current policy.
DR. DUMAS: All right. Well, then --
DR. EMANUEL: Because this is existing data.
DR. DUMAS: All right. And I will hold my
comments because we are going to talk about this again but
I really would urge that we put as our primary focal point
informed consent and how to obtain it.
DR. MURRAY: Steve?
This is going to be the last comment from a
commissioner before we move to Dr. Old.
Steve?