Entire Transcript in Adobe Acrobat Format - National Reference ...

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thing on their mind when they are going into the biopsy is
about research. And weighing the -- let me call it
autonomy rights of the individual which we give very
robustly and fully when they are in the calm atmosphere of
a research context versus when they come into the clinic
and weighing that against the potential for those samples
just not being available whatsoever.
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I think that is what we struggled with here
about whether or not to collapse.
DR. MURRAY: Thank you, Steve. That was very
helpful.
DR. COX: So to go one step further that was
the reasoning. So in my simple minded way what is the
punch line? Zeke has filled in the boxes so what is the
punch line, big picture punch line if we look at those
boxes. First we have a ton of samples that were previously
collected. Can we use them or not? Can we say -- okay,
even though those were not -- and that is both from the
point of view of research and from the point of view of the
clinic, the -- if we are going to use them with identifiers
we have got to go back and get consent, full consent. If
we are not going to use them with identifiers, okay, it is
okay to use them even though we do not have the consent