Entire Transcript in Adobe Acrobat Format - National Reference ...

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The answer in each case may be we have
encrypted it and we have encrypted it for the reason that
you should not have access and we are not going to give you
access. That is a possibility. But we all know human
nature and we know that there is at this point the
potential to say there is a good enough reason to do that.
The situation is different in these two
situations on the face of it between the encrypted and the
totally anonymous cannot be linked, you know, you did not
get anything other than the fact you got a sample that
started off with a diagnosis in the category that you
wanted to research.
DR. EMANUEL: But, Alex, I would go back -- I
agree with you 100 percent. Facially they are different,
right. One you have the potential if, in fact, you kept
that sheet of what number one really means of going back or
-- I mean, even if you actually ripped up the sheet if you
are in a pathology department with enough work you could
actually go back. It is not like you cannot go back just
because you have ripped that sheet up.
So now the question is what kind of
protections, Alex, would you like in place, how high do you
think that risk is and what kind of protections do you
think should be in place before you -- to do that study?