Entire Transcript in Adobe Acrobat Format - National Reference ...
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35 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 cannot remember anything beyond that. So we are in that magic circle right now. DR. MURRAY: Steve? DR. HOLTZMAN: I guess I have a very simple view of the point Alex is raising and thinking about our deliberations, and that is what we care about is the nature of the protections, the nature of the processes that will go along with the research being done or not being done. So, Alex is simply pointing out something we started with as well, that there is a distinction between samples where it is logically impossible to connect them to an individual, samples where they are connected to the individual in the research and in between ones where it is physically difficult but not logically impossible. The question -- where the rubber hits the road the question is are your protections different, are your processes different? We concluded that with respect to the logically impossible and physically very, very difficult the protections would be the same, the processes would be no different. So, I guess, what I am saying, Larry, I would start with the more complex conceptual scheme because it is out there in the literature and explain why we have reduced.
36 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 I think there is a reasonable discussion to be had, and I think Alex wants to lead that, that says he feels either that there are three different processes, three different levels of protection, or he wants to collapse the physically difficult into the same as being identified. MR. CAPRON: Tom? DR. MURRAY: Alex? MR. CAPRON: I think that is fair and I like Harold's way of going about it. It seems to me that the matrix we are talking about is a three-dimensional matrix and the dimension that has not been mentioned so far is what risks is a person exposed to in any particular situation. What types of risks? For example, the risk that someone knows something about me that I do not know and the risk that, therefore, I will come to harm, that was preventable if only I knew, or the risk that I will have a knock on the door with someone saying we would like now to get more information about your current health status because we have found something about you genetically that you did not know and we did not know until we did this study. Those are different situations.
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I th<strong>in</strong>k there is a reasonable discussion to be<br />
had, and I th<strong>in</strong>k Alex wants to lead that, that says he<br />
feels either that there are three different processes,<br />
three different levels of protection, or he wants to<br />
collapse the physically difficult <strong>in</strong>to the same as be<strong>in</strong>g<br />
identified.<br />
MR. CAPRON: Tom?<br />
DR. MURRAY: Alex?<br />
MR. CAPRON: I th<strong>in</strong>k that is fair and I like<br />
Harold's way of go<strong>in</strong>g about it.<br />
It seems to me that the matrix we are talk<strong>in</strong>g<br />
about is a three-dimensional matrix and the dimension that<br />
has not been mentioned so far is what risks is a person<br />
exposed to <strong>in</strong> any particular situation. What types of<br />
risks?<br />
For example, the risk that someone knows<br />
someth<strong>in</strong>g about me that I do not know and the risk that,<br />
therefore, I will come to harm, that was preventable if<br />
only I knew, or the risk that I will have a knock on the<br />
door with someone say<strong>in</strong>g we would like now to get more<br />
<strong>in</strong>formation about your current health status because we<br />
have found someth<strong>in</strong>g about you genetically that you did not<br />
know and we did not know until we did this study. Those<br />
are different situations.
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