Entire Transcript in Adobe Acrobat Format - National Reference ...

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DR. CHILDRESS: And Diane was -- because a part
of this grew out of our discussion in early December at the
conference which used this particular title and part of it
is an effort to get at how the subject is first sort of
confronted. What do we see? Questions are raised about
the person's capacity to consent.
However, your point is well taken.
Diane, do you want to respond?
DR. SCOTT-JONES: We did spend a lot of time
discussing this issue, Alex, and I agree with you. It is
not really an elegant or a precise term to use but if you
use other terms such as uncertain, uncertain connotes
lacking self-confidence or something like that so it is not
the best term either. What we were using before,
decisionally impaired, became awkward in its use throughout
the text.
I think part of the problem is that we are
lumping together and calling a population be referred to
persons who lack decision making capacity as a population
when, in fact, there are many different groups who are
being lumped under this rubric and a better choice -- I do
not think we can practically do it but a better choice
would be to talk about persons with various disorders