Entire Transcript in Adobe Acrobat Format - National Reference ...

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to decide some things and not others.
And our failure to distinguish between
institutionalized and non-institutionalized individuals may
have led us to reach conclusions where I would be certainly
open to the notion that there can be a definition of the
benefit of -- prospective benefit to a group of people of
whom the individual is one. Where if you had some -- both
extraordinary proof that there was no other way of getting
this information rather than just as an avenue of
convenience, indication of the great value of the
information and some surrogate process beyond the
individual's relatives because we know that there are many
relatives who are very protective.
We also know that for some long-term
institutionalized people there are relatives who have
relatively little attachment to the individual and who are
not really likely to exercise the kind of concern that we
are expecting from them.
This may just be a topic where the devil is in
the details and we have got to go back and attend to those
details a little bit more and we do not want to paint with
too broad a brush. I continue to think we should go into
it with a very strong presumption that the efforts should
be addressed towards getting people to seek that consent