Entire Transcript in Adobe Acrobat Format - National Reference ...

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reluctance to make out something of which you know nothing.
This we are talking about something like a
psychiatric advance directive. You may not have had
precise experience but you should have had some experience
perhaps in losing capacity to make decisions for yourself.
All you are doing is with a specific protocol putting in
place certain protections for yourself should you lose
capacity during that research process. And that will be
those protections of a surrogate and an outside health care
provider.
DR. CHILDRESS: But I just might note we can
put --
MS. BACKLAR: And the ability to drop out
whatever happens. If you object you get out of it.
DR. CHILDRESS: But see this is why I think,
Trish, as you and I have discussed several times, it is
really important to distinguish the notion of advance
directive from all these other protections and as long as
you can inflate them then a lot of this debate is going to
go on.
MS. BACKLAR: Okay. I am willing --
DR. CHILDRESS: We could require these
protections --
MS. BACKLAR: -- the reason --