Entire Transcript in Adobe Acrobat Format - National Reference ...

234
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
report I think we need to set up. First there is a longterm
benefit to people with things like -- with conditions
such as depression, dementia, to have research done that
does not give them direct benefit but illuminates the
condition they have, the etiology, things like that.
The problem is that some of the things which
are not very risky to people who have decision making
capacity can be quite risky in some sense to people who do
not so that is things like CAT scans, MRI scans, PET scans,
which for people who are aware present most of the time
very little risk. To someone who does not understand what
is going on it can be very frightening. One might,
depending on how you construe greater than minimal risk,
might say that.
What is missing out of, you know, the way this
has fallen out is the notion that was there before that has
been in previous writings on the subject that it makes a
difference whether the research is pertinent to the
condition that the patient has or not.
Now one thing you have done, which I have not
thought through yet, is when you say that it makes a
difference whether you could do the research on subjects
who are able to give consent or not. But, I mean, if you
want to study, for example, what the glucose metabolism is