Entire Transcript in Adobe Acrobat Format - National Reference ...

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whom that -- I prefer to think of it as prospective consent
instead of an advance directive. Prospective consent and
appointment of their surrogate.
They have not gone through that process or they
went through it and they said no, they were not interested,
or whatever reason. If you do not have that from them they
are out. They are protected in a sense that they will not
be subjected to that except by someone who is willing to
break the law.
DR. CASSELL: I want to see examples of the
advance -- I mean, the advance consent, which I think is a
good distinction.
DR. CHILDRESS: I am sorry, Eric. I missed
that.
DR. CASSELL: I would like to see copies of
what you mean. I mean, you can write a general, very
general statement of somebody approves the research, they
really would like to be a member of a research project even
if they cannot consent at that time, very general statement
and then I understand what the person is doing but the more
concrete you get the less valuable the thing is and the
more broad it becomes the more question there is are they
really consenting to the --
MR. CAPRON: And the key thing that you are