Entire Transcript in Adobe Acrobat Format - National Reference ...

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of where that trade off comes. And you can have had other
people with similar illnesses agreeing and you can even
have a legally authorized representative agreeing.
Our sense was you should not do something to
somebody which has greater than minimal risk and by the
design, even the designers would say, it is not designed to
do them any benefit and any benefit would be totally
adventitious and unexpected without that person having said
if the time comes I am willing to be in that kind of an
experiment because I, like you, Mr. Researcher, value the
outcome of research enough to subject myself in a state in
which I am not capable of protecting myself and not capable
of indicating that I want to withdraw, and everything else
we think of as normal protections that people have I,
myself, am willing to take that risk in order to advance
science.
It is here, unlike -- I mean, I do not know
what I feel in the end about all the losses that will -- if
we cannot get access to every human tissue without consent
-- I mean, you know, I do not know where I come out on that
yet. You all will still have to convince me. But I do
know what I think about living human beings who cannot
protect themselves and are going to be used in greater than
minimal research. I do not want it done unless they have