Entire Transcript in Adobe Acrobat Format - National Reference ...

More documents

Recommendations

Info

201 1 making? 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 Your comments were just stated in general terms? You apply them equally to both? DR. EMANUEL: As you know from my writing I think yes. I mean, I think the answer is if you look at substantive decisions we have lots of problems but clearly people do not feel about it. If you look even at procedural ones, appointing a proxy, you have a different set but also a set of -- first of all, people do not actually fill the documents out, number one. Two, when they fill them out they actually do not talk to someone so that you are sure that the attitudes are on the same wavelength. Many of the -- I mean, a lot of this happens informally and people think what has happened informally is what happens formally. If I could have a parenthesis because Eric prompted something which I think is extremely important and actually I think cuts across the report we heard this morning and this, which is our understanding of informed consent and what we really want to achieve. I mean, this is a process for something we want to achieve that is different. I think Rhetaugh raised the issue.
202 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 If I could just for a minute say something. Informed consent occurs over a spectrum. The detailed elaborate delineation where you have really gone through it with someone and it is an extensive process and not just a form is an ideal. DR. DUMAS: Right. DR. EMANUEL: In both the settings that we are dealing with we cannot reach that ideal for many reasons it seems to me because we are asking prospectively way before the event and so we will not have a lot of the information. We are going to have something less than the ideal and the question there for us is what are we satisfied with and what role is consent supposed to play in that process. I think -- I mean, I am like Rhetaugh. We should never give up informed consent as a standard but we also should not fool ourselves that just because we have this piece of paper we have gotten informed consent and we have respected autonomy in that way. There are other things that need to be considered and I think -- I am just worried that again we may -- we may feel better but we actually have not improved the system and improved the protection and really respected autonomy any more by just having this form.
Page 1 and 2:
NATIONAL BIOETHICS ADVISORY COMMISS
Page 3 and 4:
I N D E X Welcome 1 Report from the
Page 5 and 6:
2 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 7 and 8:
4 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 9 and 10:
6 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 11 and 12:
8 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 13 and 14:
10 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 15 and 16:
12 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 17 and 18:
14 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 19 and 20:
16 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 21 and 22:
18 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 23 and 24:
20 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 25 and 26:
22 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 27 and 28:
24 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 29 and 30:
26 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 31 and 32:
28 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 33 and 34:
30 1 distinct." 2 3 4 5 6 7 8 9 10
Page 35 and 36:
32 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 37 and 38:
34 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 39 and 40:
36 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 41 and 42:
38 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 43 and 44:
40 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 45 and 46:
42 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 47 and 48:
44 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 49 and 50:
46 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 51 and 52:
48 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 53 and 54:
50 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 55 and 56:
52 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 57 and 58:
54 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 59 and 60:
56 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 61 and 62:
58 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 63 and 64:
60 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 65 and 66:
62 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 67 and 68:
64 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 69 and 70:
66 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 71 and 72:
68 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 73 and 74:
70 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 75 and 76:
72 1 us. 2 3 4 5 6 7 8 9 10 11 12 1
Page 77 and 78:
74 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 79 and 80:
76 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 81 and 82:
78 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 83 and 84:
80 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 85 and 86:
82 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 87 and 88:
84 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 89 and 90:
86 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 91 and 92:
88 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 93 and 94:
90 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 95 and 96:
92 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 97 and 98:
94 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 99 and 100:
96 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 101 and 102:
98 1 2 3 4 5 6 7 8 9 10 11 12 13 14
Page 103 and 104:
100 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 105 and 106:
102 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 107 and 108:
104 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 109 and 110:
106 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 111 and 112:
108 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 113 and 114:
110 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 115 and 116:
112 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 117 and 118:
114 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 119 and 120:
116 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 121 and 122:
118 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 123 and 124:
120 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 125 and 126:
122 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 127 and 128:
124 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 129 and 130:
126 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 131 and 132:
128 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 133 and 134:
130 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 135 and 136:
132 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 137 and 138:
134 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 139 and 140:
136 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 141 and 142:
138 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 143 and 144:
140 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 145 and 146:
142 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 147 and 148:
144 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 149 and 150:
146 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 151 and 152:
148 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 153 and 154: 150 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 155 and 156: 152 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 157 and 158: 154 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 159 and 160: 156 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 161 and 162: 158 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 163 and 164: 160 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 165 and 166: 162 1 2 3 4 5 6 We will adjourn now
Page 167 and 168: 164 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 169 and 170: 166 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 171 and 172: 168 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 173 and 174: 170 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 175 and 176: 172 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 177 and 178: 174 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 179 and 180: 176 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 181 and 182: 178 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 183 and 184: 180 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 185 and 186: 182 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 187 and 188: 184 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 189 and 190: 186 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 191 and 192: 188 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 193 and 194: 190 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 195 and 196: 192 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 197 and 198: 194 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 199 and 200: 196 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 201 and 202: 198 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 203: 200 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 207 and 208: 204 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 209 and 210: 206 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 211 and 212: 208 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 213 and 214: 210 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 215 and 216: 212 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 217 and 218: 214 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 219 and 220: 216 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 221 and 222: 218 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 223 and 224: 220 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 225 and 226: 222 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 227 and 228: 224 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 229 and 230: 226 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 231 and 232: 228 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 233 and 234: 230 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 235 and 236: 232 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 237 and 238: 234 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 239 and 240: 236 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 241 and 242: 238 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 243 and 244: 240 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 245 and 246: 242 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 247 and 248: 244 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 249 and 250: 246 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 251 and 252: 248 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 253 and 254: 250 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 255 and 256:
252 1 creativity. 2 3 4 5 6 7 8 9 1
Page 257 and 258:
254 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 259 and 260:
256 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 261 and 262:
258 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 263 and 264:
260 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 265 and 266:
262 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 267 and 268:
264 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 269 and 270:
266 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 271 and 272:
268 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 273 and 274:
270 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 275 and 276:
272 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 277 and 278:
274 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 279 and 280:
276 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 281 and 282:
278 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 283 and 284:
1 280
Page 285 and 286:
282 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 287 and 288:
284 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 289 and 290:
286 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 291 and 292:
288 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 293 and 294:
290 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 295 and 296:
292 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 297 and 298:
294 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 299 and 300:
296 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 301 and 302:
298 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 303 and 304:
300 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 305 and 306:
302 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 307 and 308:
304 1 on. 2 3 4 5 6 7 8 9 I think D
Page 309 and 310:
306 1 2 3 4 5 6 7 8 9 10 11 12 13 1
Page 311 and 312:
308 1 2 3 4 5 6 7 8 9 10 11 12 (App
show all

Entire Transcript in Adobe Acrobat Format - National Reference ...

Create successful ePaper yourself

Delete template?

Save as template?