Entire Transcript in Adobe Acrobat Format - National Reference ...

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There is another aspect of this which is we
keep talking about more communitarian view of what the
process is and then when we come to write a recommendation
we are right back to trying to do it as though there was no
community whatsoever and we have not protected this person
totally against without having put some kind of standard in
that would allow the research to go on and protect the
individual.
Now, I do not know -- you could come back to me
and say, "Well, Eric, can you solve that?" Well, I do not
know whether I can but I know that is -- even if I cannot
it is not a reason to keep putting back into place
something that did not work before.
DR. CHILDRESS: One criticism of the draft
notes that we make the family a part of the health care
team, that is care giving a part, but we then take the
family away from this individual.
But let me just, before turning to Alex, raise
one question for Zeke.
Your comments were stated in general terms. Do
you take them to apply to what one might call procedural
events, directives, as well as substantive ones, that is to
ones that recommend a designated decision maker versus the
advanced directives that set out standards for decision