Entire Transcript in Adobe Acrobat Format - National Reference ...

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are adequately protected and also to ensure public trust as
essential to enable appropriate and valuable research to go
forward.
There are various proposals in the literature.
For example, if one looks over the last two years at the
large number of articles on this topic with recommendations
of various kinds of guidelines.
How? How do we get to this point and what
process we are following? Well, we have heard from a
number of investigators, subjects, families of subjects,
policy makers, commentators and others, both those who were
invited and those who volunteered to contribute either
written materials or public testimony. Certainly one
valuable session, very valuable session was the large
public hearing we held in mid-September.
In addition, we have had contract papers from
Rebecca Dresser. A very large and helpful paper that then
Jonathan Moreno used as a basis for the draft that you have
before you. A draft that has gone through several
different versions already.
In addition, you will be getting later today --
there was a confusion bout whether we could get copies made
and when -- a few additional pages prepared under contract
with Paul Appelbaum to go into those sections in Chapter 1