Entire Transcript in Adobe Acrobat Format - National Reference ...
Entire Transcript in Adobe Acrobat Format - National Reference ... Entire Transcript in Adobe Acrobat Format - National Reference ...
15 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 I mean, if we have a medical record from which my name has been removed and been replaced by a number we have a lot of information and I cannot believe that someone looking at that -- a clerk working on the project who knows that I was in for a removal of a cancerous growth and you are now looking to see some other genetic factor would not be able to look at that and say, "Oh, that is Professor Capron." DR. MURRAY: That would not be anonymous, Alex. You misunderstand what we are saying. Zeke will have some comments. DR. EMANUEL: I think -- MR. CAPRON: And then, Zeke, as you do this could you explain what the results "Name-A," results "Namenumber-A." What that X means and what those are? DR. EMANUEL: Alex, this is why I suggested before criticizing the boxes I thought we would explain why we got there. Maybe I can explain why we got to where we have and how this graphic fits in with the thinking because, in fact, we began exactly where you and most of the recommended statements begin exactly where you are, which is making more than a few distinctions. 23 24 So everyone has -- all the commissioners have
16 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 this but I am going to use some overheads so we are all on the same page as it were. (Slide.) And I want to, in part, talk a little bit about the evolution of the thinking because this is not where we are today. All right? But I think by trying to explain a little bit of the evolution of the subcommittee's thinking it will become clear why we have gotten rid of some of the distinctions. So this is sort of transitory intermediate framework that we use and then we will talk about it. Is that in focus? COMMISSIONERS: No. DR. EMANUEL: This will not do this. I apologize. DR. SHAPIRO: Help is coming. DR. EMANUEL: All right. You have it on a sheet of paper. Okay. If we walk -- just if we walk down from the top you see we have made one division here which is previously collected samples and samples collected in the future. By that we mean -- and please my fellow subcommittee members jump in if I have made a mistake or inserted my opinion over the agreement since I was not here all of yesterday. Previously collected samples are those samples
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this but I am go<strong>in</strong>g to use some overheads so we are all on<br />
the same page as it were.<br />
(Slide.)<br />
And I want to, <strong>in</strong> part, talk a little bit about<br />
the evolution of the th<strong>in</strong>k<strong>in</strong>g because this is not where we<br />
are today. All right? But I th<strong>in</strong>k by try<strong>in</strong>g to expla<strong>in</strong> a<br />
little bit of the evolution of the subcommittee's th<strong>in</strong>k<strong>in</strong>g<br />
it will become clear why we have gotten rid of some of the<br />
dist<strong>in</strong>ctions. So this is sort of transitory <strong>in</strong>termediate<br />
framework that we use and then we will talk about it.<br />
Is that <strong>in</strong> focus?<br />
COMMISSIONERS: No.<br />
DR. EMANUEL: This will not do this.<br />
I apologize.<br />
DR. SHAPIRO: Help is com<strong>in</strong>g.<br />
DR. EMANUEL: All right. You have it on a<br />
sheet of paper. Okay.<br />
If we walk -- just if we walk down from the top<br />
you see we have made one division here which is previously<br />
collected samples and samples collected <strong>in</strong> the future. By<br />
that we mean -- and please my fellow subcommittee members<br />
jump <strong>in</strong> if I have made a mistake or <strong>in</strong>serted my op<strong>in</strong>ion<br />
over the agreement s<strong>in</strong>ce I was not here all of yesterday.<br />
Previously collected samples are those samples
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