Entire Transcript in Adobe Acrobat Format - National Reference ...
Entire Transcript in Adobe Acrobat Format - National Reference ... Entire Transcript in Adobe Acrobat Format - National Reference ...
149 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 which Pat has participated in but also in our mini-hearings where we found -- I thought quite surprising -- support of doing scientific research and a concern about having the information if it were ever linked back to the person come back and hurt them and that, you know, the insurance companies are the villains of the piece by and large. That is what people mentioned spontaneously. But generally a sense that it is very much in keeping with Pat's conception and Courtney's notion of this as a contribution. You should use it. If it is there and it might help people, by God, you should use it and that was key. So put all those together and I think it certainly influences my conclusions about how to treat those samples which we already have. DR. DUMAS: They have to have principles. DR. MURRAY: Pardon? DR. DUMAS: Not you should use them but not without principles and some protections. DR. MURRAY: Right. And now that we have been alerted to the significance, the potential significance of the tissue, we should not just -- we should not find past practices acceptable for the future. DR. DUMAS: Right. DR. MURRAY: And we should have a much more --
150 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 a much more serious consent process about potential use and I think we very much bear that in mind. It is 12:15. We have -- DR. SHAPIRO: No, no. DR. MURRAY: It is 11:45. I misread my watch yesterday. Excuse me. It is 11:45 by which I mean it is 15 minutes before 12:00 and I had promised Harold Shapiro that we would try to wrap things up about now so that he and I could say a little bit about next steps for this part of the report. Jim, I know, wants to make a comment in general about the report and we may have -- do we have any public testimony? DR. SHAPIRO: Yes, we have one person. DR. MURRAY: One person. So we will need five minutes for that. But can we start with Jim and then I will speak and then Harold? CONTINUATION OF DISCUSSION ON TISSUE SAMPLES REPORT DR. CHILDRESS: Tom, you made reference to Courtney Campbell's contribution to this report with the notion of contribution and that this is -- one question I wanted to raise is to the subcommittee and the commission and Kathy and others who work on the report is really whether we want to follow the pattern of the plenary report
- Page 101 and 102: 98 1 2 3 4 5 6 7 8 9 10 11 12 13 14
- Page 103 and 104: 100 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 105 and 106: 102 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 107 and 108: 104 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 109 and 110: 106 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 111 and 112: 108 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 113 and 114: 110 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 115 and 116: 112 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 117 and 118: 114 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 119 and 120: 116 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 121 and 122: 118 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 123 and 124: 120 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 125 and 126: 122 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 127 and 128: 124 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 129 and 130: 126 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 131 and 132: 128 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 133 and 134: 130 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 135 and 136: 132 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 137 and 138: 134 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 139 and 140: 136 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 141 and 142: 138 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 143 and 144: 140 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 145 and 146: 142 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 147 and 148: 144 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 149 and 150: 146 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 151: 148 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 155 and 156: 152 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 157 and 158: 154 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 159 and 160: 156 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 161 and 162: 158 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 163 and 164: 160 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 165 and 166: 162 1 2 3 4 5 6 We will adjourn now
- Page 167 and 168: 164 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 169 and 170: 166 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 171 and 172: 168 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 173 and 174: 170 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 175 and 176: 172 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 177 and 178: 174 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 179 and 180: 176 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 181 and 182: 178 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 183 and 184: 180 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 185 and 186: 182 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 187 and 188: 184 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 189 and 190: 186 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 191 and 192: 188 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 193 and 194: 190 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 195 and 196: 192 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 197 and 198: 194 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 199 and 200: 196 1 2 3 4 5 6 7 8 9 10 11 12 13 1
- Page 201 and 202: 198 1 2 3 4 5 6 7 8 9 10 11 12 13 1
150<br />
1<br />
2<br />
3<br />
4<br />
5<br />
6<br />
7<br />
8<br />
9<br />
10<br />
11<br />
12<br />
13<br />
14<br />
15<br />
16<br />
17<br />
18<br />
19<br />
20<br />
21<br />
22<br />
23<br />
24<br />
a much more serious consent process about potential use and<br />
I th<strong>in</strong>k we very much bear that <strong>in</strong> m<strong>in</strong>d.<br />
It is 12:15. We have --<br />
DR. SHAPIRO: No, no.<br />
DR. MURRAY: It is 11:45. I misread my watch<br />
yesterday. Excuse me. It is 11:45 by which I mean it is<br />
15 m<strong>in</strong>utes before 12:00 and I had promised Harold Shapiro<br />
that we would try to wrap th<strong>in</strong>gs up about now so that he<br />
and I could say a little bit about next steps for this part<br />
of the report.<br />
Jim, I know, wants to make a comment <strong>in</strong> general<br />
about the report and we may have -- do we have any public<br />
testimony?<br />
DR. SHAPIRO: Yes, we have one person.<br />
DR. MURRAY: One person. So we will need five<br />
m<strong>in</strong>utes for that. But can we start with Jim and then I<br />
will speak and then Harold?<br />
CONTINUATION OF DISCUSSION ON TISSUE SAMPLES REPORT<br />
DR. CHILDRESS: Tom, you made reference to<br />
Courtney Campbell's contribution to this report with the<br />
notion of contribution and that this is -- one question I<br />
wanted to raise is to the subcommittee and the commission<br />
and Kathy and others who work on the report is really<br />
whether we want to follow the pattern of the plenary report
Change language