Entire Transcript in Adobe Acrobat Format - National Reference ...

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variation you are going to get among IRB's from those that
really have thought about this very well and really go
through a very careful process to those for whom the issues
just do not emerge and so they easily approve it or
disapprove it is going to be extreme. I am very worried
and I hope that -- this is to my fellow commissioners -- I
hope that we in looking at it will think about what kinds
of guidance that would be because that breaching the
barrier and going back for "what are good reasons" is an
essential issue on this anonymizable or identifiable, or
whatever the phrase that we end up using, encrypted
information.
But I have those other three points if you
could -- I think you took notes on them.
MS. BARR: I did. Let me try and go backwards.
On paying for the code, I basically come from a world that
says you usually do not get the whole pie and that is
because I come from a very political world. That was my
prior activist sort of training. And so what I have
learned is that you set -- sometimes move in incremental
steps. And faced with a very large problem and a desire to
move the process forward what our group did was locate two
areas of grave concern in terms of facilitating research
with research.