Entire Transcript in Adobe Acrobat Format - National Reference ...

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stated the attractive aspects of this approach to dealing
with stored tissue samples but it is particularly relevant
for the large numbers of pathology samples that presently
exist and then the clinical samples that are going to come
in. It does not very well take into account potential
future types of research that are going to require closer
and closer interaction between the researcher and the
subjects.
Although it does take into account subject's
viewpoints from the point of view of their privacy it does
not take into account the subject's involvement in the
design of the research studies at all.
The other aspect of it is that in many ways for
researchers it perpetuates a distancing of researchers from
the research subjects at a time when the whole direction of
much of the science is an increased involvement in
relationship between researchers and their subjects so that
I, for one, have sort of a difficult time balancing these
different issues and
I just wanted to mention what some of the down
sides of this approach are.
The final point that I would like to make is
that any kind of such barrier that is put up to protect
people is only as valuable and only as effective as its