Entire Transcript in Adobe Acrobat Format - National Reference ...

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and safety.
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Now what we did about the flow of information
is that we said tissue needs to be used and no one can know
today what the uses will be in five years or ten but that
we can predict today that the valuable tissue will be
linked and it will be linked to clinical information and
that the need of the researcher will be for the clinical
information with the tissue. And, therefore, we needed to
come up with a model that could satisfy protecting the
individual but allow the research to proceed.
The model that we came up with was a fiduciary
standing at the tissue standing with the bank. They devise
a system for collecting the tissue and they send the tissue
out with the appropriate clinical information but without
the identifiers. Coded information is what we have used
that we think is essential.
Now I believe we can apply some of this to the
archive samples that exist but we for political reasons,
very good political reasons, look forward rather than back
but I know you care about back so I decided to be brave and
talk a little bit about backwards.
(Slide.)
The existing resources are vital. It will take
us a very long time to get consents today and then