Entire Transcript in Adobe Acrobat Format - National Reference ...

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they need consistency in their trial. If they know they
are using tissue and we can simplify what has to be done so
that they can use the tissue we will have facilitated
research. That was our goal.
And finally because we are looking at testing
in a clinical setting we are doing some pilot testing with
NCI of using this consent in the clinical setting. And
what we have done with is it is an add on to the general
surgical consent and we are doing some pilot testing and
presenting it at different times, sometimes in the doctor's
office and sometimes unfortunately the night before because
that is when it really happens, and trying to get feedback.
You should also know that we focused group the
documents and as a result of that working with different
ethnic communities we got a lot of very good feedback on
how to change the documents and it was from that process
that we did the informational brochure.
(Slide.)
A few more solutions. NCI is actually working
with professional groups now regarding costs and storage
guidelines. That is going to be a long process. NCI and
DOD are talking about a national storage system. That is
very preliminary. And then we are in a world where there
is ongoing attention to informatics, questions of encoding