Entire Transcript in Adobe Acrobat Format - National Reference ...

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be reasons for and against having such a key in different
circumstances.
DR. COX: That is your formulation. That was
not the formulation I was just making. The formulation I
was just making was viewed in a different way, which is
look at the amount of information that flows through. If
at the end of the day that you are asking for all the
information besides the person's name and social security
number to be updated to you on a regular basis, okay, even
though you are saying that it is anonymous I am
questioning, okay, what that relationship is that you are
really having with the individual patient.
DR. MURRAY: That is the first thing.
DR. EMANUEL: Well, let's just think through
something like Framingham or the Nurse's Health Study. You
get some physical exams on an every two year basis I think
on the Nurse's Health Study. That information minus who it
is then goes through a machine to encrypt it and is
attached to a number. That does not require the researcher
having any relationship. It does require an infrastructure
of the researcher sending out the surveys, data inputting
it, but the researcher who looks at the data at the other
end, right, has no idea.
Now how difficult or whether it is literally