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Diabetes in pregnancy: are we providing the best care ... - HQIP

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11.Dex S, Hea<strong>the</strong>r J (eds). Millennium Cohort Study First Survey: a user’s guide to <strong>in</strong>itial fi nd<strong>in</strong>gs.<br />

Centre for Longitud<strong>in</strong>al Studies: London; 2004.<br />

12. Ray JG, S<strong>in</strong>gh G, Burrows RF. Evidence for suboptimal use of periconceptional folic acid<br />

supplements globally. BJOG 2004;111:399-408.<br />

Commentary<br />

Kirsty Samuel<br />

CEMACH lay panel assessor, Legal assessor, woman with type 1 diabetes and mo<strong>the</strong>r of two children.<br />

As a lay panel assessor <strong>in</strong> <strong>the</strong> CEMACH diabetes enquiry, a woman with diabetes and a mo<strong>the</strong>r of two<br />

children, I feel this chapter highlights a number of important <strong>are</strong>as <strong>in</strong> expla<strong>in</strong><strong>in</strong>g <strong>the</strong> unacceptably high<br />

number of adverse <strong>pregnancy</strong> outcomes for women with diabetes. Ho<strong>we</strong>ver it is <strong>the</strong> reasons beh<strong>in</strong>d <strong>the</strong><br />

fi gures that <strong>are</strong> of relevance <strong>in</strong> go<strong>in</strong>g forward. Why is suboptimal glycaemic control before and dur<strong>in</strong>g<br />

<strong>pregnancy</strong> so common and why is <strong>the</strong> woman’s approach to manag<strong>in</strong>g her diabetes less than ideal?<br />

These two questions <strong>are</strong>, <strong>in</strong> my op<strong>in</strong>ion, <strong>in</strong>extricably l<strong>in</strong>ked. The ans<strong>we</strong>r lies <strong>in</strong> <strong>the</strong> lack of accessible<br />

diabetes education and pre-<strong>pregnancy</strong> counsell<strong>in</strong>g. Women do not realise <strong>the</strong> importance of good control,<br />

and <strong>the</strong>refore do not ‘follow <strong>the</strong> advice given’, as it does not seem ei<strong>the</strong>r signifi cant or achievable to <strong>the</strong>m.<br />

Women with diabetes of childbear<strong>in</strong>g age need to be made more aw<strong>are</strong> of <strong>the</strong> potential impact of poor<br />

glycaemic control on <strong>pregnancy</strong> outcomes. This <strong>in</strong>formation should be made available before <strong>pregnancy</strong><br />

is seriously contemplated so that HbA1c levels can be reduced <strong>in</strong> preparation for <strong>pregnancy</strong> and<br />

unplanned pregnancies can be avoided. Women with type 2 diabetes particularly need to be targeted<br />

as many wrongly believe that <strong>the</strong>ir condition is less serious than type 1 diabetes and <strong>the</strong>refore will have<br />

less of an impact on <strong>pregnancy</strong>.<br />

In conjunction with this counsell<strong>in</strong>g, women need to be told of <strong>the</strong> tangible benefi ts of good control and<br />

<strong>the</strong> greatly <strong>in</strong>creased likelihood of hav<strong>in</strong>g a healthy baby, as fear of complications and congenital<br />

anomalies also has a part to play <strong>in</strong> non-attendance at cl<strong>in</strong>ics.<br />

As optimal glycaemic control is central to diabetes management <strong>in</strong> <strong>pregnancy</strong>, <strong>the</strong> means to achieve it has<br />

to be provided more effectively. The practicalities of atta<strong>in</strong><strong>in</strong>g near perfect control for such a long period of<br />

time <strong>are</strong> frighten<strong>in</strong>g and off-putt<strong>in</strong>g to many women, who fi nd good control hard enough to achieve without<br />

<strong>the</strong> additional burden of <strong>pregnancy</strong>. Realistic targets must be set, and ongo<strong>in</strong>g support and reassurance<br />

provided. Women need to know that <strong>the</strong>ir blood sugar levels will fl uctuate, and should be taught how<br />

to deal with <strong>the</strong>se fl uctuations <strong>in</strong> practical terms - how to adjust <strong>the</strong>ir <strong>in</strong>sul<strong>in</strong>, when and how to test <strong>the</strong>ir<br />

ur<strong>in</strong>e for ketones, and when to seek medical help. This will require a great deal of additional support and<br />

resources but by teach<strong>in</strong>g women how to manage <strong>the</strong>ir glycaemic control more effectively, <strong>the</strong>y will feel<br />

more <strong>in</strong>volved, more secure and more able to deal with <strong>the</strong> realities of <strong>pregnancy</strong>.<br />

Non-attendance at appo<strong>in</strong>tments will hopefully decrease <strong>in</strong> <strong>the</strong> future with <strong>in</strong>creased public knowledge and<br />

aw<strong>are</strong>ness of <strong>the</strong> importance of adher<strong>in</strong>g to medical advice. Ho<strong>we</strong>ver this, along with a fear of be<strong>in</strong>g ‘told<br />

off’ for fail<strong>in</strong>g to meet targets, is only one element of non-attendance at cl<strong>in</strong>ics. Practical problems such as<br />

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