Diabetes in pregnancy: are we providing the best care ... - HQIP

Diabetes in pregnancy: are we providing the best care ... - HQIP Diabetes in pregnancy: are we providing the best care ... - HQIP

25.10.2014 Views

Methodology 4.3.2 Panel composition Each panel for the diabetes enquiry consisted of two of each of the following disciplines: • Obstetrician • Midwife • Diabetes specialist nurse • Diabetes physician. At least one clinician from each specialty was required to be present in order for the panel meeting to take place. Under exceptional circumstances the panel chair could participate as a full assessor if there were no other clinicians available from their specifi c discipline. If it was not possible for at least one clinician from each specialty to be represented then the panel meeting was cancelled. Additional panel members whose input was relevant to particular enquiry cases were invited to attend meetings as required e.g. general practitioners, pathologists, neonatologists. Previous confi dential enquiries had not included lay panel assessors. For the diabetes enquiry, CEMACH sought to include lay assessors on the enquiry panels. Criteria for lay panel assessors were agreed with Diabetes UK, and the initiative was piloted in 2 regions. One lay member attended 5 panel meetings in Yorkshire and Humberside region. Observers were allowed to attend (with due notice) but were not expected to contribute to the discussion during assessment. In total, 647 health professionals contributed over 5000 hours to panel enquiries over the course of the enquiry module, with 70 additional observers attending one or more panels. The median number of cases reviewed by each assessor was 8 (range 4-48). 4.4 Enquiry documentation Panel members were provided with the medical records for each case pertaining to care in the antenatal, delivery and postnatal periods. These included diabetes and maternity notes plus any relevant drug charts, haematology, biochemistry and histology results. Neonatal notes up to day 3 post delivery were also provided where applicable. Following a feasibility exercise at the outset of the project it was deemed impractical to collect all medical records pertaining to diabetes care prior to the pregnancy of interest. In order to allow some assessment of care in the pre-pregnancy period a pre-pregnancy pro forma was also completed by a health professional involved in the preconception care of the woman, either within the adult diabetes service or in primary care (see Appendix A). In addition, any professional correspondence relating to diabetes management within the year preceding the last menstrual period was requested. Women were not contacted directly at any stage of this process, and information about social and lifestyle issues and clinical care was therefore based solely on documentation provided by the health professionals involved in the care of the woman and her baby. In order to maintain confi dentiality of the women, their families and the health professionals involved in their care, all notes provided to panel assessors were anonymised by the CEMACH regional managers 12

in order to remove any identifi able information. This included patient identifi ers, hospital identifi ers and staff identifi ers. Where names of staff were anonymised, the designation (grade) of the staff member was entered onto the documentation, to enable panel assessment of whether care had been provided by the appropriate grade of staff. 4.5 Assessment of care The scope of this enquiry included preconception care, care during pregnancy, labour and delivery, and postnatal and neonatal care up to 3 days post delivery. A structured enquiry pro forma (see Appendix B) was developed by the CEMACH central offi ce with advice from members of the CEMACH Diabetes Professional Advisory Group. This pro forma contained a mixture of factual questions and assessments of care from review of the medical records, after a round-table discussion and after panel consensus had been reached. Panel assessors were asked to grade their opinion of the quality of care as ‘optimal’, ‘adequate’ or ‘poor’. ‘Optimal’ indicated that there were no issues with care, while ‘adequate’ indicated that there were some issues of concern. ‘Adequate’ and ‘poor’ care were aggregated as ‘suboptimal’ care for the purpose of analysis. If concerns had been identifi ed, panels were asked to describe the key issues contributing to this assessment and to code the issues according to the following categories: PD PO PC PA PN Duration or severity of diabetes. Issues relating directly to the patient and/or family issues Other complicating medical or social and / or lifestyle factors which may hinder optimal management e.g. management-intensive medical conditions such as thrombophilia or cardiac disease, and social factors such as housing problems or lack of family support. Woman actively chose not to follow the medical advice given e.g. refusal to undergo induction of labour until 42+ weeks of gestation. Woman’s actions detracted from optimal management e.g. infrequent home blood glucose monitoring, not following dietary instructions. Woman did not attend appointments e.g. failure to attend for clinic visits or ultrasound scans. HP HC HR Issues relating to the provision of health services Clinical practice e.g. no timely discussion of timing and mode of delivery. Communication. This could be a failure of communication between professionals caring for the woman e.g. inadequate discussion between obstetrician and physician, or a failure of communication between professionals and the woman e.g. interpreting services were not adequate despite diffi culties with English. Resources including staffi ng e.g. no dietitian in the antenatal clinic, lack of midwifery staff on labour ward, problems with accessing timely fetal surveillance such as growth scans. Panels were asked to code up to four issues that were appropriate to the judgment of ‘adequate’ or ‘poor’ care. During analysis, these codes were used as a guide for the analysis of the themes arising from the free text. 13

<strong>in</strong> order to remove any identifi able <strong>in</strong>formation. This <strong>in</strong>cluded patient identifi ers, hospital identifi ers and<br />

staff identifi ers. Where names of staff <strong>we</strong>re anonymised, <strong>the</strong> designation (grade) of <strong>the</strong> staff member<br />

was entered onto <strong>the</strong> documentation, to enable panel assessment of whe<strong>the</strong>r c<strong>are</strong> had been provided<br />

by <strong>the</strong> appropriate grade of staff.<br />

4.5 Assessment of c<strong>are</strong><br />

The scope of this enquiry <strong>in</strong>cluded preconception c<strong>are</strong>, c<strong>are</strong> dur<strong>in</strong>g <strong>pregnancy</strong>, labour and delivery, and<br />

postnatal and neonatal c<strong>are</strong> up to 3 days post delivery. A structured enquiry pro forma (see Appendix<br />

B) was developed by <strong>the</strong> CEMACH central offi ce with advice from members of <strong>the</strong> CEMACH <strong>Diabetes</strong><br />

Professional Advisory Group. This pro forma conta<strong>in</strong>ed a mixture of factual questions and assessments<br />

of c<strong>are</strong> from review of <strong>the</strong> medical records, after a round-table discussion and after panel consensus<br />

had been reached. Panel assessors <strong>we</strong>re asked to grade <strong>the</strong>ir op<strong>in</strong>ion of <strong>the</strong> quality of c<strong>are</strong> as ‘optimal’,<br />

‘adequate’ or ‘poor’. ‘Optimal’ <strong>in</strong>dicated that <strong>the</strong>re <strong>we</strong>re no issues with c<strong>are</strong>, while ‘adequate’ <strong>in</strong>dicated that<br />

<strong>the</strong>re <strong>we</strong>re some issues of concern. ‘Adequate’ and ‘poor’ c<strong>are</strong> <strong>we</strong>re aggregated as ‘suboptimal’ c<strong>are</strong> for<br />

<strong>the</strong> purpose of analysis.<br />

If concerns had been identifi ed, panels <strong>we</strong>re asked to describe <strong>the</strong> key issues contribut<strong>in</strong>g to this<br />

assessment and to code <strong>the</strong> issues accord<strong>in</strong>g to <strong>the</strong> follow<strong>in</strong>g categories:<br />

PD<br />

PO<br />

PC<br />

PA<br />

PN<br />

Duration or severity of diabetes.<br />

Issues relat<strong>in</strong>g directly to <strong>the</strong> patient and/or family issues<br />

O<strong>the</strong>r complicat<strong>in</strong>g medical or social and / or lifestyle factors which may h<strong>in</strong>der optimal management e.g.<br />

management-<strong>in</strong>tensive medical conditions such as thrombophilia or cardiac disease, and social factors such<br />

as hous<strong>in</strong>g problems or lack of family support.<br />

Woman actively chose not to follow <strong>the</strong> medical advice given e.g. refusal to undergo <strong>in</strong>duction of labour until<br />

42+ <strong>we</strong>eks of gestation.<br />

Woman’s actions detracted from optimal management e.g. <strong>in</strong>frequent home blood glucose monitor<strong>in</strong>g,<br />

not follow<strong>in</strong>g dietary <strong>in</strong>structions.<br />

Woman did not attend appo<strong>in</strong>tments e.g. failure to attend for cl<strong>in</strong>ic visits or ultrasound scans.<br />

HP<br />

HC<br />

HR<br />

Issues relat<strong>in</strong>g to <strong>the</strong> provision of health services<br />

Cl<strong>in</strong>ical practice e.g. no timely discussion of tim<strong>in</strong>g and mode of delivery.<br />

Communication. This could be a failure of communication bet<strong>we</strong>en professionals car<strong>in</strong>g for <strong>the</strong> woman<br />

e.g. <strong>in</strong>adequate discussion bet<strong>we</strong>en obstetrician and physician, or a failure of communication bet<strong>we</strong>en<br />

professionals and <strong>the</strong> woman e.g. <strong>in</strong>terpret<strong>in</strong>g services <strong>we</strong>re not adequate despite diffi culties with English.<br />

Resources <strong>in</strong>clud<strong>in</strong>g staffi ng e.g. no dietitian <strong>in</strong> <strong>the</strong> antenatal cl<strong>in</strong>ic, lack of midwifery staff on labour ward,<br />

problems with access<strong>in</strong>g timely fetal surveillance such as growth scans.<br />

Panels <strong>we</strong>re asked to code up to four issues that <strong>we</strong>re appropriate to <strong>the</strong> judgment of ‘adequate’ or ‘poor’<br />

c<strong>are</strong>. Dur<strong>in</strong>g analysis, <strong>the</strong>se codes <strong>we</strong>re used as a guide for <strong>the</strong> analysis of <strong>the</strong> <strong>the</strong>mes aris<strong>in</strong>g from <strong>the</strong><br />

free text.<br />

13

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