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Community-based Research - Fraser Health Authority

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<strong>Community</strong> Based <strong>Research</strong><br />

With a Lens on Aging and Gender<br />

Exploring Connections and Fostering<br />

Collaboration<br />

Elana Brief, PhD<br />

Women’s <strong>Health</strong> <strong>Research</strong> Network<br />

Bobbi Symes, MA<br />

BC Network on Aging <strong>Research</strong>


Goals<br />

By the end of the workshop participants will be able to:<br />

• articulate the potential of community<br />

<strong>based</strong> research<br />

• feel inspired to consider research<br />

questions that emerge from their work<br />

• identify potential collaborators<br />

• seek out resources to support them in<br />

pursuing their research questions


Plan for today<br />

• Wearing multiple hats<br />

• What is <strong>Community</strong> Based <strong>Research</strong>?<br />

• Different roles and opportunities<br />

• Asking meaningful questions<br />

• Who else to involve?<br />

• Additional resources


Expertise in the Room<br />

How would I describe myself?<br />

A) Academic <strong>Research</strong>er / Student / <strong>Research</strong> Assistant<br />

B) <strong>Community</strong> Based <strong>Research</strong>er<br />

C) <strong>Health</strong> Care Provider<br />

D) <strong>Community</strong> Service Provider<br />

E) Policy Developer / Analyst<br />

F) <strong>Research</strong> Participant<br />

G) Other


Desire to do <strong>Research</strong><br />

Why do I want to engage in research?<br />

A) Need more evidence for decisions I make<br />

B) Need more evidence to convince decision makers<br />

C) Want to make a bigger difference<br />

D) I like details and data<br />

E) <strong>Research</strong> is necessary to get funding for my unit<br />

F) Build my portfolio to apply for grad school<br />

G) I’m a researcher looking for a good question<br />

H) Other?


Engaged in <strong>Community</strong> Based <strong>Research</strong>?


<strong>Community</strong> Based <strong>Research</strong><br />

“… conducted by, for and with the participation<br />

of community members…. <strong>Community</strong> <strong>based</strong><br />

research aims not merely to advance<br />

understanding, but also to ensure that<br />

knowledge contributes to making a concrete and<br />

constructive difference in the world”.<br />

(The Loka Institute, 2002)


Multiple, Overlapping Terms…<br />

• Collaborative research<br />

• Participatory research<br />

• Participatory action research<br />

• Action research<br />

• Feminist action research<br />

• Feminist‐informed participatory action research<br />

• <strong>Community</strong>‐<strong>based</strong> participatory research<br />

• <strong>Research</strong> in practice<br />

And so on!<br />

What they have in common:<br />

•Seek multiple perspectives.<br />

•Goal of the research is<br />

measurable change.


Relationships in “Traditional <strong>Research</strong>”<br />

I know you only as a<br />

subject.<br />

My academic colleagues<br />

and I have full control<br />

over the study.<br />

This is the first and last<br />

time we meet.<br />

I help out with the project.<br />

I have no input into the<br />

question or design.<br />

I know you only as a<br />

researcher.<br />

I do not contribute to<br />

research question, design,<br />

analysis or dissemination.<br />

I have no access to the<br />

results.


Democratizing <strong>Research</strong><br />

Ritas, C. (2003). Speaking Truth, Creating Power: A Guide to Policy Work for <strong>Community</strong>‐Based Participatory<br />

<strong>Research</strong> Practitioners. New York NY, Hunter College Center on AIDS, Drugs and <strong>Community</strong> <strong>Health</strong> For <strong>Community</strong>‐<br />

Campus Partnerships for <strong>Health</strong>.


Examples of Roles<br />

Formulating<br />

the <strong>Research</strong><br />

Question<br />

Designing<br />

Method<br />

Data<br />

Collection<br />

Data Analysis<br />

Dissemination<br />

and Action<br />

academic<br />

researcher<br />

clinical<br />

researcher<br />

community<br />

<strong>based</strong><br />

researcher<br />

service<br />

provider<br />

policy maker<br />

patient / client


Individual Exercise: What do I like to do?<br />

You’ll have 5 minutes to reflect on these questions. This is just for you –you will not be<br />

asked to share your responses.


What Comes of the Results?<br />

academic<br />

literature<br />

previous<br />

research<br />

<strong>Research</strong><br />

Question<br />

academic<br />

collaborators<br />

academic<br />

literature /<br />

grey literature<br />

community<br />

activists<br />

service<br />

delivery<br />

question<br />

previous<br />

research<br />

CBR<br />

<strong>Research</strong><br />

Question<br />

academic/community<br />

collaborators<br />

community<br />

needs<br />

assessment<br />

policy issue<br />

or question<br />

collaborative<br />

research process<br />

increased<br />

research skills<br />

Results of<br />

<strong>Research</strong><br />

policy<br />

change<br />

Results of<br />

<strong>Research</strong><br />

grey<br />

literature<br />

community<br />

action<br />

academic<br />

literature<br />

best<br />

practices<br />

academic<br />

literature


How to build a research team?


Individual and Group Exercises


Networking Survey<br />

What best describes you?<br />

A) Enthusiastic networker<br />

B) Reluctant, but adequate networker<br />

C) Shy, but I’ll meet people<br />

D) I skip all the networking events I can


Awkward Beginnings<br />

Exercise<br />

groups of TWO for 1 minute<br />

say full NAME<br />

(don’t mumble or<br />

cover your mouth)<br />

Hello,<br />

I’m Elana Brief<br />

Ahem…


Making Connections<br />

Having a GOAL helps to connect with others<br />

1. Like minded people<br />

• Asking the same types of questions<br />

• Working with the same populations<br />

2. Complementary skills<br />

• Good at different stages of research<br />

3. Growing partnerships<br />

• Working in different sectors<br />

Determines how<br />

the conversation<br />

will proceed


Promoting Self and Others<br />

Exercise<br />

On your own<br />

1. Reflective Exercise (to come)<br />

2. Answer questions:<br />

• Who am I?<br />

• Two minute blurb: personal research interest.<br />

With a partner<br />

1. Say your name clearly.<br />

2. Say your blurb to each other.<br />

3. Give feedback.<br />

Enlarging your network<br />

1. “Work” the room.<br />

2. Meet people you don’t know.<br />

3. Introduce new people to people you already know.


Advice to the Shy (or Tired)…<br />

It is when people really listen to us, with quiet, fascinated attention,<br />

that the little fountain [inspiration, engagement, enjoyment] begins<br />

to work again, to accelerate in the most surprising way.<br />

I discovered all this about three years ago, and truly it made a<br />

revolutionary change in my life. Before that, when I went to a party,<br />

I would think anxiously: "Now try hard. Be lively. Say bright things.<br />

Talk. Don't let down." And when tired, I would have to drink a lot of<br />

coffee to keep this up.<br />

Now before going to a party, I just tell myself to listen with affection<br />

to anyone who talks to me, to be in their shoes when they talk; to<br />

try to know them without my mind pressing against theirs, or<br />

arguing, or changing the subject.<br />

‐ Brenda Ueland


Reflection: Approaching a <strong>Research</strong> Question<br />

myself<br />

What do I care<br />

about?<br />

my/our context<br />

social<br />

economic<br />

political<br />

What is possible?<br />

What can I do right<br />

now?<br />

What’s my<br />

question?<br />

my co‐researchers<br />

my co‐workers<br />

my neighbourhood<br />

my community<br />

my/our concerns<br />

How do my concerns<br />

fit with others’<br />

concerns?<br />

What questions or<br />

concerns do I have in<br />

my daily life or work?


Individual Exercise: What’s My Question?<br />

You’ll have 15 minutes to reflect on these questions. This is just for you –you will not be<br />

asked to share your responses.


Fact or Fiction?<br />

FACT<br />

Dark Chocolate is <strong>Health</strong>y:<br />

Chocolate is made from plants, which means it contains many of the<br />

health benefits of dark vegetables. These benefits are from flavonoids,<br />

which act as antioxidants. Antioxidants protect the body from aging<br />

caused by free radicals, which can cause damage that leads to heart<br />

disease. Dark chocolate contains a large number of antioxidants (nearly<br />

8 times the number found in strawberries). Flavonoids also help relax<br />

blood pressure through the production of nitric oxide, and balance certain<br />

hormones in the body.<br />

……at least that’s our excuse


Guidelines for Exercise<br />

Exercise<br />

On your own<br />

1. Reflective Exercise<br />

2. Answer questions:<br />

• Who am I?<br />

• Two minute blurb: personal research interest.<br />

With a partner<br />

1. Say your name clearly.<br />

2. Say your blurb to each other.<br />

3. Give feedback.<br />

Enlarging your network<br />

1. “Work” the room.<br />

2. Meet people you don’t know.<br />

3. Introduce new people to people you already know.


Large Group Discussion<br />

1.What surprised you?<br />

2.What challenged you?<br />

3.What questions do you still have?


Resources from BCNAR and WHRN


Our Common Ground – Goals of Publication<br />

research in girls’<br />

and women’s health<br />

action <strong>based</strong> on research


What’s In Our Common Ground?


Definitions and Philosophy


Roles and Responsibility


<strong>Research</strong> Strategies


Celebrating Action


Worksheets for Discussion


<strong>Research</strong> Primers<br />

Sex & Gender<br />

<strong>Health</strong> Determinants<br />

Intersectionality<br />

<strong>Community</strong> Based <strong>Research</strong><br />

www.whrn.ca<br />

Downloadable


Conference Reports<br />

Aging Well in Northern, Rural and<br />

Remote Communities<br />

Promoting Active Aging by Connecting<br />

BC <strong>Research</strong>ers and Communities<br />

Gender, Gerontology and Geography<br />

The Assisted Living Model<br />

www.bcnar.ca


<strong>Health</strong> Data Links –The Source<br />

www.womenshealthdata.ca


<strong>Health</strong> Data Links –The Source<br />

www.womenshealthdata.ca


Grey Literature Search<br />

www.womenshealthdata.ca


Peer Reviewed Publications Database<br />

www.bcnar.ca


Searchable Member Database<br />

www.whrn.ca<br />

www.bcnar.ca


Online Meetings for Network Members<br />

WHRN and BCNAR members have access to WebEx for free longdistance<br />

telephone and internet‐<strong>based</strong> meetings.


Resources Available<br />

Downloadable podcasts<br />

Announcements about<br />

events, jobs, funding and<br />

publications


Resources Available


Become a Member (FREE)


Become a Member (FREE)


Goals<br />

By the end of the workshop participants will be able to:<br />

• articulate the potential of community<br />

<strong>based</strong> research<br />

• feel inspired to consider research<br />

questions that emerge from their work<br />

• identify potential collaborators<br />

• seek out resources to support them in<br />

pursuing their research questions<br />

www.whrn.ca<br />

www.bcnar.ca

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