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How patients have helped us with our research - University College ...

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PATIENT CASE STUDIES 13 15<br />

In a strange way it<br />

<strong>helped</strong> me<br />

Elizabeth Aldo<strong>us</strong> is one of<br />

hundreds of <strong>patients</strong> who <strong>have</strong><br />

been <strong>helped</strong> by the Eastman<br />

Dental Hospital’s work on facial<br />

pain consultations.<br />

Elizabeth worked <strong>with</strong><br />

Deborah to co-create images<br />

representing the pain she was<br />

experiencing. Elizabeth says:<br />

“The images were of decay,<br />

destruction and despair. I was<br />

once a functional, <strong>us</strong>eful person<br />

who <strong>us</strong>ed to do loads of things<br />

and was now in pieces. It was<br />

upsetting but in a strange way<br />

it <strong>helped</strong> me manage my pain,”<br />

she explains.<br />

© Deborah Padfield<br />

Initially Elizabeth was told by a<br />

dentist that a decaying tooth<br />

was the problem. But after the<br />

tooth had been removed, the<br />

pain actually got worse.<br />

“The pain spread to my neck<br />

and my ears. Wind hurt my<br />

face, I couldn’t eat, swim, sing,<br />

work – do all the things I love.”<br />

Elizabeth was finally referred to<br />

the facial pain clinic. She says:<br />

“The different specialists are<br />

Elizabeth Aldo<strong>us</strong> is one of the <strong>patients</strong> who worked on the<br />

facial pain project<br />

working together to try to find<br />

the right approach for me.”<br />

She adds: “Some approaches<br />

work, some don’t – but they<br />

might for someone else! The<br />

pain hasn’t gone completely<br />

but I am noticing that I <strong>have</strong><br />

more days when the pain is<br />

less severe.“

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