Caring Partners Spring 2012 - Mayo Clinic Health System

Spring 2012
Caring Partners
Your Your gifts gifts | | Your impact | Our thanks
The cancer study
you made possible
PAGE 4
How you help improve
asthma education across
the Coulee Region
PAGE 8
St. Francis Fund:
A new option for your
charitable contributions
PAGE 10
Your role in the quest for better
care and better outcomes
PAGE 2
mayoclinichealthsystem.org/giving
Franciscan Healthcare Foundation

Cover story
The quest for
better care and
better outcomes
Your support helps maintain
a vibrant research program
Above: Dennis Costakos, M.D., with the co-authors of two of
his published studies, registered nurse Lynn Dahlen (center) and
neonatal nurse practitioner Jennifer Walden (right). NICU babies
Caiden Streich, and twins Laney and Layla Kneifl keep them busy.
On the cover: Cardiologist Tahir Tak, M.D., Ph.D., monitors a patient
undergoing a stress test.
It sounds a bit like a foreign
language: Comparative Analysis of
Umbilical Cord Blood and Neonatal
Blood in the Neonatal Sepsis Evaluation
of Preterm Infants Under 37 Weeks of
Gestation.
It’s actually a study conducted
by Dennis Costakos, M.D., at Mayo
Clinic Health System – Franciscan
Healthcare in La Crosse.
While many large academic
medical centers have thriving
research programs, it’s less common
to find one at a community hospital.
Barriers include lack of financial
resources, regulatory burdens,
practicing physicians with limited
time for research, and lack of
support staff.
Since 1999, your gifts have helped
provide generous support for the
medical research program based in
La Crosse. That support has enabled
the program to flourish.
At any given time, there are
180 open clinical trials in Mayo
Clinic Health System, 61 of which
are currently underway in La Crosse,
where reasearchers are supported by
a seven-member research team. Half
of the current studies in La Crosse
focus on cancer, including cancers of
the breast, colon, lungs, pancreas and
prostate. Leukemia, melanoma and
myeloma are also being studied.
The balance of the research spans
such diverse fields as audiology,
behavioral health, cardiology,
geriatrics, neonatology, nephrology,
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orthopedics and pediatrics. Some
studies are related to the treatment of
specific diseases, including multiple
sclerosis, diabetes and irritable bowel
syndrome.
Helping newborn
babies thrive
Dr. Costakos, a neonatologist
specializing in the care of sick and
premature infants, is an accomplished
researcher with several published
studies to his credit.
“Society needs research to solve the
problems of today and tomorrow,”
says Dr. Costakos. “One only needs to
think of how people today live longer
and healthier, or how we’ve seen
polio virtually eradicated, to see the
value of medical research.”
Babies are born naturally deficient
in Vitamin K, which can help
prevent serious bleeding, including
Neonatologist Dennis Costakos, M.D.,
cares for sick and premature infants.
bleeding into the brain. That’s why
all babies born in the United States
receive additional Vitamin K shortly
after birth. Research performed
by Dr. Costakos was instrumental
in understanding the optimum
dosage of Vitamin K for premature
newborns.
Dr. Costakos’ most recent study
focused on infections in newborns.
His findings resulted in a new
protocol for the evaluation of full
term babies at risk for infection. His
work also yielded a quicker, painless
way to check babies for infection
shortly after birth, by proving that
testing umbilical cord blood yielded
equally reliable results as testing
blood drawn from newborns.
Veteran neonatal nurses Lynn
Dahlen and Jennifer Walden were coauthors
of the published studies.
Reducing risk, identifying
best practices for patients
with heart disease
Tahir Tak, M.D., Ph.D., is a
cardiologist. He came to Mayo
Clinic Health System from a large
academic medical center where he
conducted research for many years.
“Research provides that extra
dimension, beyond clinical work,
which helps me in my career
satisfaction,” says Dr. Tak.
The principal investigator for two
current studies, Dr. Tak has a keen
interest in improving outcomes for
patients with heart disease. Along
with others, he’s studying whether
a particular drug can reduce the risk
of a second cardiac event for patients
who’ve suffered a heart attack and
have type 2 diabetes.
Dr. Tak’s second study is part of
an effort to determine the best way
to treat atrial fibrillation, a heart
arrhythmia that patients often live
with for many years.
Atrial fibrillation carries the risk
of stroke and other complications.
Controlling it often involves many
types of treatment. The study looks
at how patients are being treated
Tahir Tak, M.D., Ph.D., has a keen
interest in improving outcomes for
patients with heart disease.
in community hospitals across the
country, as well as the results of those
treatments.
Dr. Tak notes that one of the three
shields in the Mayo Clinic Health
System logo represents medical
research. (The others represent
medical practice and education.)
“Increasingly, research studies are
being done by community hospitals
with help from affiliated academic
centers, like Mayo Clinic. I think this
trend is likely to gain momentum
as certain research studies are easier
to complete at smaller institutions
within a small geographical area,”
says Dr. Tak. “I think community
hospitals can enhance their prestige
and credibility by supporting
research programs.”
Medical professionals at Mayo
Clinic Health System are working
hard to improve patient care and
achieve better outcomes. Your gifts
help further their efforts, and they are
grateful for your support.•
| 3

Your gifts at work
Can acupuncture effectively relieve
cancer-related fatigue?
Researchers seek the answer, with your help
“ I almost gave up hope.
Then after my sixth
treatment I began to
notice I was less tired.
I stopped falling asleep
during the treatments.
By the time I finished
week eight, my fatigue
was gone, and it’s
never returned.”
Darla Schuld
Study participant Darla Schuld,
right, with clinical nurse
specialist Kathleen Graham, the
study’s primary investigator.
The National Cancer Institute
describes fatigue as a condition that
causes distress and decreased ability
to function due to a lack of energy.
That was Darla Schuld’s experience.
In 2010, she was treated for breast cancer
at Mayo Clinic Health System’s Cancer
Center in La Crosse.
“The fatigue began almost as soon
as I started treatment, and a year
after my treatment ended, it was still
there. I wondered if it would ever
go away,” recalls Schuld. “I’d come
home from work exhausted and
would need to take a nap before I
could fix dinner. On the weekends, I’d
clean a room, take a nap, then clean
another room. I just felt worn out.”
When asked to consider participating
in a study looking at the effect of
acupuncture on cancer-related fatigue,
Schuld didn’t hesitate. “I was skeptical,
but I figured I had nothing to lose.”
Fine needles are
inserted during
treatment.
Your role in the study
Generous friends like you made it possible
to conduct the study and for patients like
Schuld to participate.
Kathleen Graham, a clinical nurse
specialist in the Cancer Center, applied for
and received a Foundation grant to fund
the project. It got underway in February
of 2011. Since then, Graham, principal
investigator, and Deb Storlie, a registered
nurse and research specialist, have been
busy enrolling patients and gathering
feedback.
According to Storlie, “All of our
cancer patients complete the National
Comprehensive Cancer Network distress
tool. It covers physical, emotional and
spiritual issues that patients may be
facing. If they identify fatigue as causing
high distress, I’ll contact them to see if
they’re interested in the study.”
Storlie says enrolling the 40 patients
needed to complete the study will
take time.
“Sometimes patients want to
participate, but they don’t meet the study
criteria established to ensure patient safety
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and clean data. I may talk to four patients
and only one will qualify.”
Schuld did qualify, and recalls her first
acupuncture sessions. “I couldn’t stay
awake through them and I didn’t feel any
different afterward. I almost gave up hope.
Then after my sixth treatment I began to
notice I was less tired. I stopped falling
asleep during the treatments. By the time I
finished week eight, my fatigue was gone,
and it’s never returned.”
Results could lead to more
questions, more answers
Graham and Storlie have observed varied
responses among patients in the study.
“Some, like Darla, are thrilled with
the results. A few liked it so much they
continued to receive treatments after
they’d completed the study,” says Storlie.
“Others have been disappointed, not
getting from it what they’d hoped.”
Graham senses there may be a subset of
patients who receive greater benefit, based
on where they are in their treatment.
“That’s why we want to work with a wide
variety of patients,” she says.
The pair looks forward to compiling
the results of the study. “We may see
something that hasn’t been shown before,”
says Graham. “We’re excited about that.
It may lead to further study here or
elsewhere.”
Acupuncture services are performed
by Sr. Eileen McKenzie, a registered
nurse with a master’s degree in oriental
medicine. McKenzie is licensed in
acupuncture by the National Certification
Commission for Acupuncture and
Oriental Medicine.
The treatments are provided in a
community-style setting. When the Cancer
Center closes on Tuesday evenings,
reclining chairs and screens are set up in a
portion of the waiting room.
“It’s a cost effective way to provide
acupuncture services,” notes Graham.
“Patients not involved in the study can
participate for just $35 a session. That
makes acupuncture accessible to those
who could not afford it as it is typically
delivered.”
Schuld remains grateful for the
opportunity to be a study participant. “For
me, it worked. When I go to my follow up
appointments they always ask me if I feel
tired, and I say, ‘No, I feel really good!’”
How effective is acupuncture as a
treatment for cancer-related fatigue?
Could it be more effective for some groups
than others? You’re helping researchers at
Mayo Clinic Health System answer these
questions and more. We’re glad to have
you on the research team! •
“ All of our cancer
patients complete
the National
Comprehensive
Cancer Network
distress tool...
If they identify
fatigue as causing
high distress, I’ll
contact them to see
if they’re interested
in the study.”
Deb Storlie
Registered Nurse
Registered nurse
Sr. Eileen McKenzie
visits with patient Don
Handstad during an
acupuncture session.
| 5

Mayo Clinic translating research into
better patient care
In 2006, Mayo Clinic became one of the first
institutions in the nation to receive a Clinical
and Translational Science Award from the
National Institutes of Health (NIH).
The five-year, $72.5 million grant
supported Mayo Clinic’s Center for
Translational Science Activities (CTSA)
work to speed the translation of research
results into therapies, tools and patient care
practices that improve community health.
The CTSA makes connections, finds
best practices, bridges gaps, engages the
community and builds on more than a
century of Mayo Clinic medical research and
education expertise.
In June 2011, the NIH renewed Mayo’s
CTSA award for five years, providing a $64.6
million grant to continue this important
work. The funding also supports a broad
spectrum of research training programs.•
Center offers exciting look
at Mayo Clinic research
About Mayo Clinic
Mayo Clinic is a nonprofit
worldwide leader in
medical care, research
and education for people
from all walks of life.
For more information,
visit MayoClinic.com or
MayoClinic.org/news.
Visitors to Mayo Clinic in Rochester can
now explore the fascinating world of
medical research. The Research Information
Center offers a multimedia tour of Mayo’s
multidisciplinary research program and
how it has (and is) changing the practice and
delivery of medical care.
“We are putting the face of research at
Mayo Clinic where visitors can experience
it,” says Eric Matteson, M.D., coordinator of
the project.
Visitors to the Research Information
Center can experience:
• Interactive digital displays
• A mini-theater showcasing medical
advancements
• State-of-the-art scientific visualizations
• Opportunities to learn about Mayo’s
clinical research
“Today’s research is tomorrow’s
treatment,” says Robert Rizza, M.D.,
executive dean for Research. “We hope the
center conveys to patients and the public
the value that Mayo places on research in
improving their lives and advancing medical
science.”
The Center is located in the Gonda
building and is open during business
hours. Trained staff are available to answer
questions.•
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Bequests
A family-first approach
to charitable giving
Provide for loved ones and support
Franciscan Healthcare Foundation in
your will or trust
Did you know that in addition to passing assets
to loved ones, your will or living trust can
also be used to define your legacy? When you
remember Mayo Clinic Health System through a
gift to Franciscan Healthcare Foundation in your
estate plans — known as a bequest — you join
a special group of people that has helped make
possible some of our most important advances.
Advantages of bequests
• Simplicity. A few sentences, called bequest
language, in your will or living trust are all
that is needed to complete your gift.
• Flexibility. Until your will or trust goes into
effect, you are free to alter your plans.
• Versatility. You can bequeath a specific item,
an amount of money, a gift contingent upon
certain events or a percentage of your estate.
• Tax benefits. Your estate is entitled to an
unlimited estate tax charitable deduction for
gifts to qualified charitable organizations like
Franciscan Healthcare Foundation.
How a bequest works
Your estate planning attorney can help you
structure a gift so your loved ones will be taken
care of first after you’re gone. He or she will
include our official bequest language in a will
or living trust you create, or add it to existing
documents through an amendment called a
codicil. A popular bequest option is to leave a
percentage of what is left of your estate after
other beneficiaries have received their share so
your gift will remain proportionate to the size of
your estate, no matter how it fluctuates.
© The Stelter Company
The information in this publication is not intended as legal advice. For
legal advice, please consult an attorney. Figures cited in examples are
for hypothetical purposes only and are subject to change. References
to estate and income taxes include federal taxes only. State income/
estate taxes or state law may impact your results.
If you’re interested in giving to Mayo Clinic Health
System through a bequest to Franciscan Healthcare
Foundation, contact Peter Grabow at (608) 392-9394
or grabow.peter@mayo.edu for specific language your
estate planning attorney can add to your will or trust.
A gift in your estate plan is right for you if:
• You want the opportunity to guide decisions about the future
ownership of your possessions and the legacy you leave behind.
• You have a will or living trust or are ready to create one.
• You want to make sure your support of Mayo Clinic Health System
is still available after your lifetime.
• You want to balance your generosity to us with an assurance
that loved ones are taken care of first.
• You want to maintain the flexibility to change your mind about
your gift at any time.
Our suggested bequest language
I give, devise and bequeath to Mayo Clinic Health System - Franciscan
Healthcare Foundation, Inc., a Wisconsin charitable corporation located
in La Crosse, Wisconsin, the sum of (or % of my estate), (or other
personal real property herein described) to be used for (designated
purpose) or to provide health care services.
| 7

Your gifts at work
‘Toolkits’ improve asthma education
Your gifts provide opportunity for hands-on learning
“...it’s like being submerged
underwater and trying to
breathe through a tiny straw.”
Marlis O’Brien,
respiratory therapist and
training coordinator
Wheezing, coughing, shortness of breath,
chest tightness or pain — these are the
symptoms of asthma.
About 20 million people in the United
States live with asthma. For some,
symptoms are mild. For others, symptoms
are a nuisance that regularly interfere with
daily life. Those with severe asthma may
suffer life-threatening asthma attacks.
Laura, 53, was diagnosed with asthma as
a toddler. “I know my triggers and do my
best to avoid them, but
it’s not always possible.
Occasionally I have a bad
attack,” she says. “For me,
it’s like being submerged
underwater and trying
to breathe through a tiny
straw. It’s frightening. If I
can’t get it under control
myself, I know I need
to get to the emergency
department.”
While asthma can't be cured, its symptoms
can be managed. Patients who understand
the nature of asthma and actively participate
in their treatment do best.
Your generosity helped Mayo Clinic
Health System develop special asthma
education “toolkits” and a training program
for nurses and providers working with
asthma patients throughout the region.
According to training coordinator and
respiratory therapist Marlis O’Brien, “The
goal is to provide more uniform education
for patients, whether the educator works
with two asthma patients a year, or 200.”
Having the proper teaching tools
is important. That’s why each toolkit
includes placebo inhaler canisters as well
as disposable sleeves, masks, spacers and
other commonly used devices.
Laura, asthma sufferer
Mayo Clinic Health System staff participate
in the new system-wide asthma training
program made possible by your support.
“It allows staff to demonstrate how
to use an inhaler or a peak flow meter,”
says Marlis. “Then the patient can try it
themselves and get feedback.”
Because asthma changes over time,
patients are encouraged to track their
symptoms and work with their health
care provider to adjust their treatment
as needed.
Patients who struggle to control their
symptoms can receive additional education
from respiratory therapists or nursing
staff. These sessions include developing
a personalized asthma action plan,
identifying asthma triggers and knowing
when to seek emergency care.
It’s a lot to take in, but asthma sufferers
like Laura appreciate the extra focus on
education.
“It’s always been my goal not to let
asthma be a handicap,” says Laura.
“It’s essential I learn all I can about
managing my asthma, so I can live my
life to the fullest.”
Thank you for providing the tools and
training to help patients with asthma live
better.•
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Will you share
your thoughts
with us?
Do you enjoy reading Caring Partners? Have you found supporting
Mayo Clinic Health System through a gift to Franciscan Healthcare
Foundation a meaningful experience, or could we do better? We
hope you’ll take a moment to complete this brief survey and return
it in the enclosed envelope, or enter http://goo.gl/4NMsh in the
address bar of your web browser to take the survey on line. Your
feedback is important and greatly appreciated!
How you help
save lives in the
Coulee Region
mayoclinichealthsystem.org/giving
Caring Partners
Your Your gifts gifts | | Your impact | Our thanks
Franciscan Healthcare Foundation
CPFA11_LaCro se_final_r.in d 1 9/29/ 1 9:47 AM
Fa l 2011
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Caring Partners provides information that helps me feel confident in choosing Mayo Clinic Health System - Franciscan
Healthcare Foundation to receive my charitable gifts.
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Thank you for your continued support..
| 9

Your gifts at work
St. Francis Fund helps patients
in dire circumstances
Announcing a new option for your charitable contributions
Most of us have a running to-do list of
things that need attention: The car is
overdue for an oil change, next week’s
dental appointment needs
rescheduling, the bathroom sink
is plugged... There’s always
something.
Kim* (36) had a running list of
things needing attention too, but
hers was a bit more daunting.
She was homeless, jobless,
uninsured, diabetic and broke.
Then a serious burn landed
her in the hospital, and into the
caring hands of staff at Mayo
The St. Francis Fund was named to Clinic Health System.
honor the medical center’s Franciscan After several days Kim was
heritage and the Franciscan Sisters healing nicely, but she couldn’t
of Perpetual Adoration. Mayo Clinic be discharged. Her wound had
Health System originally opened
a high risk for infection and
as St. Francis Hospital, which was
doctors weren’t comfortable
founded by the FSPA in 1883. Above,
discharging her to a homeless
the original hospital is depicted in a
shelter. With no family in the
watercolor by Marion Biehn.
area, she had few options.
Kim also had another urgent
need. Her diabetes had been
treated in the hospital, but her own
supplies were nearly depleted. She’d need
to replenish them soon.
While Kim’s circumstances were extreme,
they are not unique. With a struggling
economy and an aging population, more
patients’ medical care is complicated by
overwhelming personal needs.
These needs vary, but examples include:
• Transportation — a tank of gas or a ride
home from the hospital; a bus pass for
follow-up appointments
• Baby needs — car seats for newborns;
lodging for parents of sick and
premature infants; expensive formulas
needed by premature infants
• Prescription medications — typically
an initial supply needed for discharge
from the hospital, later provided by
government programs, St. Clare Health
Mission or other charitable programs.
When other resources have been
exhausted and time is of the essence,
these patients are referred to Franciscan
Healthcare Foundation by medical social
workers or a patient financial assistance
coordinator.
It doesn’t take enormous sums to
help these patients, but until recently,
few funds were designated to help
individual patients, so the ability to
assist them was limited.
Your gifts have always provided
support for programs benefiting large
groups of patients. Programs like hospice,
medical research, the cancer center,
diabetes education and many more.
Now, if you choose, your gifts can make
a difference for individuals.
The St. Francis Fund was created
to address the growing need for
temporary, individual patient assistance.
Contributions to the Foundation that
are designated for the St. Francis Fund
directly benefit patients in the most dire
circumstances — patients facing hardships
most of us can only imagine.
The fund was named to honor the
medical center’s Franciscan heritage
and the Franciscan Sisters of Perpetual
*name changed to protect privacy
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Thanks to your support, the busy Sparta emergency
department now has two new state-of-the-art
trauma bays (shown) and eight exam rooms.
Adoration, whose example of
compassionate care continues today.
Contributions extend comfort and hope
to patients, like Kim, who desperately
need it.
Speaking of Kim, you’ll be glad to
know her story has a happy ending.
The Foundation provided her a
week’s stay at a hotel near the hospital.
A medical social worker connected Kim
with local programs that assisted her
with diabetes supplies, food and other
urgent needs. An out-of-state relative
offered her a place to stay as soon as
she could travel.
Today, Kim is making steady
progress toward regaining her selfsufficiency
and hopes to return to the
area in the future. She’d like to find a
way to repay those who helped her in
her time of need.
Through Franciscan Healthcare
Foundation’s new St. Francis Fund, you
can help patients recover not only from
injury and illness, but from challenges
most of us — fortunately — will never
know. Thank you for your partnership
in this important work.•
St. Fancis-Fund
The Sisters’ example of compassionate
care continues today. Contributions to
the St. Francis Fund extend comfort
and hope to patients who desperately
need it.
It’s Essential:
The new
Sparta
emergency
department
State-of-the-art facility
made possible through
your support
With the help of hundreds of generous
donors, Mayo Clinic Health System in
Sparta recently opened a new, state of the
art Emergency Department.
The rural Emergency Department is one
The nurses station
provides a full
view of the new
Sparta Emergency
Department.
of the busiest in Western Wisconsin. More than 9,000 patients were
treated there in 2011.
The old facility, built in 1963, had just 2148 square feet and four
exam rooms. In contrast, the new facility has 11,000 square feet,
eight exam rooms and two trauma bays. Its larger footprint allowed
for numerous technological upgrades, improvements to patient
flow, greater privacy and an ambulance garage. A special children’s
nook, created by Ronald McDonald House Charities of Western
Wisconsin and Southeastern Minnesota, provides a welcome
distraction for young visitors.
More than $1.7 million was raised through the “It’s Essential”
campaign for a new Sparta emergency department. Many heartfelt
thanks to everyone who helped make this beautiful and muchneeded
facility possible.•
| 11

Franciscan Healthcare Foundation
700 West Ave S
La Crosse, WI 54601-4796
NON-PROFIT ORG.
U.S. POSTAGE
PAID
Mayo Clinic
Ordinary fellow makes extraordinary gift
Bob Franke’s generosity extends beyond his lifetime
— Bob Franke —
1918-2009
By most accounts, Bob Franke was an
ordinary fellow.
He lived his entire life on La Crosse’s
north side in the house where he grew
up. Though he earned a teaching degree,
Franke yearned to be a railroad engineer
like his father. Following a brief stint in the classroom, he
landed a job with the CB&Q Railroad (now Burlington
Northern), worked hard and achieved his goal.
Franke was single into his 40s. Then he met Eleanor, a
teacher, and the love of his life. They enjoyed four decades
of marriage.
Over time the couple made numerous contributions to
Franciscan Healthcare Foundation and were especially
generous to the chapel, cardiac rehabilitation center and
the spiritual care department. After Eleanor passed away
in 2001, Franke continued his generous support. He spent
his final days at the medical center, rejoining his beloved
Eleanor in 2009.
Following Franke’s death, the Foundation received
notice that he had named the medical center in his will. The
gift was significant — a cash contribution and one-third of
a perpetual trust worth more than $20 million — but its size
wasn’t the only thing that made Franke’s gift extraordinary.
In the United States, only about eight percent of people
name a charity in their will. Franke provided for Franciscan
Healthcare Foundation and other local nonprofits that
were important to him. The medical center is humbled by
Franke’s gift, and thankful that he was one of the 8 people
in 100 who make a charitable bequest.
That statistic aside, Franke, an ordinary fellow, will
always be remembered as one in a million.
For information on charitable bequests, contact Peter
Grabow at (608) 392-9394 or grabow.peter@mayo.edu.
Rest assured any discussion will be held in confidence.
Caring Partners
Caring Partners is published twice yearly for the friends and
benefactors of Mayo Clinic Health System.
Information for Caring Partner stories is provided by Mayo Clinic Health
System medical professionals. If you have medical questions about these
stories and how they affect your health, please contact your physician.
Mayo Clinic Health System - Franciscan
Healthcare Foundation is a 501(c)3
not-for-profit corporation. Gifts to the
Foundation are tax deductible to the full
extent allowed by law.
mayoclinichealthsystem.org/giving
• Learn more about the Foundation
• Make a donation
• View complete list of benefactors
• News & Events, FAQs and more
MAYO CLINIC HEALTH SYSTEM
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©2012 Mayo Foundation for Medical Education and Research. All rights reserved. MAYO, MAYO CLINIC, Mayo Clinic Health
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