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Early Childhood Development and Disability: - World Health ...

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How many children with disabilities are there?<br />

WHO <strong>and</strong> the <strong>World</strong> Bank estimate that more than a billion people live with some form of<br />

disability, which equates to approximately 15% of the world’s population (5). Among these,<br />

between 110 million (2.2%) <strong>and</strong> 190 million (3.8%) adults have very significant difficulties in<br />

functioning (5).<br />

There are currently no reliable <strong>and</strong> representative estimates based on actual measurement<br />

of the number of children with disabilities (9,5). Existing prevalence estimates of<br />

childhood disability vary considerably because of differences in definitions <strong>and</strong> the wide<br />

range of methodologies <strong>and</strong> measurement instruments adopted (5,10). The limitations<br />

of census <strong>and</strong> general household surveys to capture childhood disability, the absence of<br />

registries in most low- <strong>and</strong> middle-income countries (LMICs), <strong>and</strong> poor access to culturally<br />

appropriate clinical <strong>and</strong> diagnostic services contribute to lower estimates (10). As a result<br />

many children with disabilities may neither be identified nor receive needed services (5).<br />

What are the rights of children with disabilities?<br />

The CRC applies to all children in the world, including children with disabilities. It spells<br />

out the basic human rights that children everywhere have: the right to survival; to<br />

develop to the fullest; to protection from harmful influences, abuse <strong>and</strong> exploitation; <strong>and</strong><br />

to participate fully in family, cultural <strong>and</strong> social life. It also recognizes the importance of<br />

family assistance <strong>and</strong> support (6). Two articles make specific reference to children with<br />

disabilities: Article 2 outlines the principle of non-discrimination <strong>and</strong> includes disability as<br />

grounds for protection from discrimination; Article 23 highlights the special efforts States<br />

Parties must make to realize these rights (6).<br />

In General Comment 9, the Committee on the Rights of the Child which oversees the<br />

implementation of the CRC has provided guidance to States Parties in their efforts<br />

to implement the rights of children with disabilities, covering all the provisions of the<br />

Convention (11). In addition General Comment 7 (12) <strong>and</strong> General Comment 9 (11) of the<br />

CRC specifically highlight that children with disabilities: are entitled to active participation<br />

in all aspects of family <strong>and</strong> community life; require equal opportunities in order to fulfil<br />

their rights; <strong>and</strong> should be treated with dignity at all times. Furthermore, they state<br />

that children with disabilities “are best cared for <strong>and</strong> nurtured within their own family<br />

environment” (11) <strong>and</strong> they “should never be institutionalized solely on the grounds of<br />

disability” (12). States Parties must protect children with disabilities from discrimination<br />

<strong>and</strong> provide access to a range of services <strong>and</strong> supports which are specifically designed to<br />

help them achieve their full potential. This was reinforced in the 2010 UN General Assembly<br />

Resolution A/65/452 (13).<br />

8<br />

<strong>Early</strong> <strong>Childhood</strong> <strong>Development</strong> <strong>and</strong> <strong>Disability</strong>

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