PVA SUMMIT 2012 - Paralyzed Veterans of America
PVA SUMMIT 2012 - Paralyzed Veterans of America
PVA SUMMIT 2012 - Paralyzed Veterans of America
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<strong>Paralyzed</strong> <strong>Veterans</strong> <strong>of</strong> <strong>America</strong> Summit 2013: Delivering Excellence Achieving State-<strong>of</strong>-the-Art Healthcare<br />
TIME DAY ONE - TUESDAY AUGUST 27, 2013 Renaissance SeaWorld in Orlando, FL<br />
7:00 am–7:30 am CONTINENTAL BREAKFAST CRYSTAL BALLROOM<br />
7:30 am– 8:15 am OPENING REMARKS<br />
Bill Lawson, National President, <strong>Paralyzed</strong> <strong>Veterans</strong> <strong>of</strong> <strong>America</strong><br />
Homer Townsend Jr., National Executive Director, <strong>Paralyzed</strong> <strong>Veterans</strong> <strong>of</strong> <strong>America</strong><br />
8:15 am –9:45 am (1301) PLENARY SESSION<br />
Dr. Barry Goldstein, VHA Nationals SCI Chief Consultant<br />
Moderator: Paul Gutierrez, MD , MS; Summit 2013 Program Committee Chairman<br />
9:45 am- 10:30 am C<strong>of</strong>fee Break, EXPO & e-Poster Viewing C<strong>of</strong>fee Break, EXPO & e-Poster Viewing<br />
10:30 am - Noon TRACK ONE<br />
Moderator: Catherine Kelly, PT, DPT, MS<br />
(1302) Diagnosing Mild Head Injury in<br />
Traumatic Spinal Cord Injury<br />
Kathleen Castillo, MA, CCC-SLP, BRS-S<br />
Kazuko Shem, MD<br />
(1303) Satisfaction with Life After Spinal<br />
Cord Injury: A Look Over 35 Years<br />
Stephanie A. Kolakowsky-Hayner, PhD,CBIST<br />
Kimberly Bellon, CBIS<br />
Jerry Wright, MS, CBIST<br />
TRACK TWO<br />
Moderator: Michael Levin, MD<br />
(1304) Immunopathogenesis and Disease<br />
Modifying Therapies<br />
Olaf Stuve, MD, PhD<br />
TRACK THREE<br />
Moderator: Stephen Yerkovich, MD<br />
(1305) Pain Management in Post Spinal<br />
Injury and Multiple Sclerosis<br />
David Gater, MD, PhD, MS<br />
Heidi Maloni, PhD, ANP-BC<br />
Noon Lunch Break, EXPO & e-Poster Viewing Lunch Break, EXPO & e-Poster Viewing<br />
Noon<br />
SCI Chief Consultant with SCI Nurse Managers<br />
1:30 pm – 3:00 pm TRACK ONE<br />
Moderator: Heidi Maloni, PhD, ANP-BC<br />
(1308) Obesity Drives the Metabolic<br />
Syndrome in SCI<br />
David Gater, MD, PhD, MS<br />
TRACK TWO<br />
Moderator: John Rinker, MD<br />
(1309) Optic Neuritis and Multiple<br />
Sclerosis (MS): Hot Topics<br />
Robert K. Shin, MD<br />
TRACK THREE<br />
Moderator: Elizabeth Auld, PA-C<br />
(1310) Applying the Promise/Domain<br />
Model to ALS Care: An Interactive<br />
Learning Session<br />
Tony Hilton, RN, MSN, FNP, CRRN, DrPH<br />
(1311) Improving ALS Care from<br />
Diagnosis to Death: A Model Based on<br />
Palliative Care Principles<br />
Kathleen Bixby, MSN, CHPN<br />
3:00 pm C<strong>of</strong>fee Break, EXPO & e-Poster Viewing C<strong>of</strong>fee Break, EXPO & e-Poster Viewing<br />
3:30 pm – 5:00 pm TRACK ONE<br />
Moderator: Jeri Muse, PhD, DAAPM<br />
(1314) Culturally-Competent<br />
Comprehensive Care for <strong>Veterans</strong> with<br />
Spinal Cord Injury and Serious Mental<br />
Illness<br />
Gretchen Sholty, PhD<br />
Linda Mona, PhD<br />
Marsha Sargeant, PhD<br />
TRACK TWO<br />
Moderator: Mark Agius, MD<br />
(1315) Advanced Management <strong>of</strong> Spasticity<br />
Ileana Howard, MD<br />
Keith Claffey, CWCN, APN<br />
George Gombas, MD<br />
TRACK THREE<br />
Moderator: Penny Graves, RN, MSN, CCM,<br />
CRRN<br />
(1316)<br />
Monitoring Pressure Ulcer Healing in<br />
<strong>Veterans</strong> with Spinal Cord Injury<br />
Deirdre Murphy, RN, MSN<br />
Marylou Guihan, PhD<br />
5:00 pm– 6:00 pm Interactive Poster Sessions<br />
(1317) Preventative Skin Assessment for<br />
Spinal Cord Injured <strong>Veterans</strong><br />
Marylou Guihan, PhD<br />
Dawn Ehde, PhD<br />
TRACK FOUR<br />
Moderator: Maureen Simonson, RN, MSN<br />
(1306) Sexual Presence: A Mindfulness-based<br />
Approach to Increasing Sexual Satisfaction<br />
among Individuals with SCI<br />
Linda Mona, PhD<br />
Linda Baggett, PhD<br />
Elisha Carcieri, MS<br />
(1307) Pregnancy and Spinal Cord Injury, How<br />
it Can Get Complicated<br />
Maureen Simonson, RN,MSN<br />
TRACK FOUR<br />
Moderator: Allison Kitchens, LMSW<br />
(1312) Supporting the Caregivers <strong>of</strong> <strong>Veterans</strong><br />
with Spinal Cord Injury/Disease<br />
Jeanine Penzo, MSW, LICSW<br />
(1313) MS Caregiver Matters: Education and<br />
Support-Just a Phone Call Away<br />
Alicia Sloan, MPH, MSW, LICSW<br />
Margaret Kazmierski, MSW, LCSW-C, MSCS<br />
TRACK FOUR<br />
Moderator: Michael Richardson, MD, FACP<br />
(1318)<br />
GU issues in SCI and MS <strong>Veterans</strong>, Review <strong>of</strong><br />
Minimally Invasive Treatments<br />
Larissa Bresler, MD<br />
1
<strong>Paralyzed</strong> <strong>Veterans</strong> <strong>of</strong> <strong>America</strong> Summit 2013: Delivering Excellence Achieving State-<strong>of</strong>-the-Art Healthcare<br />
TIME DAY TWO - WEDNESDAY AUGUST 28, 2013<br />
7:00 am –7:30 am CONTINENTAL BREAKFAST CRYSTAL BALLROOM<br />
7:30 am – 7:45 am OPENING REMARKS<br />
Lana McKenzie, RN,BSN,MBA, Associate Executive Director, Medical Services and Health<br />
Policy, <strong>Paralyzed</strong> <strong>Veterans</strong> <strong>of</strong> <strong>America</strong><br />
7:45 am – 8:15 am KEYNOTE SPEAKER<br />
A Closer Review <strong>of</strong> SCI Rehabilitation Outcome<br />
Sherman Gillums, Associate Executive Director, <strong>Veterans</strong> Benefits Department, <strong>Paralyzed</strong><br />
<strong>Veterans</strong> <strong>of</strong> <strong>America</strong><br />
Moderator: Lana McKenzie, RN,BSN,MBA, Associate Executive Director, Medical Services<br />
and Healthy Policy, <strong>Paralyzed</strong> <strong>Veterans</strong> <strong>of</strong> <strong>America</strong><br />
8:15 am – 9:45 am (1319) PLENARY SESSION<br />
Assistive Technology: Research to Clinical Practice<br />
Rory A. Cooper, PhD and Pr<strong>of</strong>essor <strong>of</strong> the Department <strong>of</strong> Rehabilitation Science and<br />
Technology at the University <strong>of</strong> Pittsburgh & Rosemarie Cooper, MPT, ATP and Director,<br />
Center for Assistive Technology<br />
Moderator: Sherman Gillums, Associate Executive Director, <strong>Veterans</strong> Benefits Department,<br />
<strong>Paralyzed</strong> <strong>Veterans</strong> <strong>of</strong> <strong>America</strong><br />
9:45 am - 10:30 am C<strong>of</strong>fee Break, EXPO & e-Poster Viewing C<strong>of</strong>fee Break, EXPO & e-Poster Viewing<br />
10:30 am - NOON TRACK ONE<br />
Moderator: Michael Richardson, MD,<br />
FACP<br />
(1320) Promoting Learning to Remote<br />
Providers via Nursing Grand Rounds in a<br />
<strong>Veterans</strong> Affairs System<br />
Tiffany Villamin, RN, BSN<br />
Debbie Holzer, RN, BSN<br />
TRACK TWO<br />
Moderator: Anne Bateman, RN, CNP, CRRN<br />
(1322) Disordered Sleep and Fatigue in<br />
Multiple Sclerosis<br />
Florian Thomas, MD, MA, PhD<br />
Raman Malhotra, MD<br />
TRACK THREE<br />
Moderator: Christopher Bever, MD<br />
(1323) Cell- Based Therapies for<br />
Multiple Sclerosis and Spinal Cord Injury<br />
Dennis Bourdette, MD<br />
TRACK FOUR<br />
Moderator: Catherine Kelly, PT, DPT, MS<br />
(1324) Telehealth: SCI/D’s Biggest<br />
Advancement in Quality <strong>of</strong> Life since the<br />
Introduction <strong>of</strong> the Power Chair<br />
Richard J. Strozewski, BA, MP, PMP<br />
NOON<br />
(1321) Curriculum Based Educational<br />
Program for SCI Patients<br />
Evelyn Quinones, RN, MSN<br />
Zulma Jimenez, RN,MSN, CRRN<br />
Lunch Break, EXPO & e-Poster Viewing<br />
SCI Chief Meetings<br />
1:30 pm – 3:00 pm TRACK ONE<br />
Moderator: Allison Kitchens, LMSW<br />
(1325) Expanding the Horizons:<br />
Delivering Social Work Services to SCI/D<br />
Patients Through Videoconferencing<br />
Technology<br />
Joyce Williams, LCSW<br />
Carol Gibson-Gill, MD<br />
Karen Farrell, RN, MaEd<br />
TRACK TWO<br />
Moderator: Carol Gibson-Gill, MD<br />
(1326) Addressing the Challenge <strong>of</strong> Fatigue in<br />
People with MS<br />
Cinda Hugos, MS, PT<br />
Lois Copperman, PhD, OTR/L<br />
TRACK THREE<br />
Moderator: Hayley Howells, MPT<br />
(1327)<br />
Seating Solutions for Wheelchair users<br />
during Recreational Activities<br />
Joe Bieganek, Orthotist, ATP<br />
Lunch Break, EXPO & e-Poster Viewing<br />
SCI Chief Meetings<br />
TRACK FOUR<br />
Moderator: Mark Lichter, AIA<br />
(1328) SCAN: A New Interdisciplinary Team<br />
Approach to Wound Care Utilizing Innovative<br />
Telemedicine Technology<br />
Kevin Broder, MD<br />
Richard Bodor, MD<br />
Elaine Minsch, MSN, RN, CRRN<br />
3:00 pm C<strong>of</strong>fee Break, EXPO & e-Poster Viewing C<strong>of</strong>fee Break, EXPO & e-Poster Viewing<br />
3:30pm – 5:00 pm TRACK ONE<br />
Moderator: Penny Graves, RN, MSN, CCM,<br />
CRRN<br />
(1329) Revisions <strong>of</strong> Clinical Practice<br />
Guidelines: Pressure Ulcer Prevention<br />
TRACK TWO<br />
Moderator: Walter Royal, MD<br />
(1331)<br />
Advances in the use <strong>of</strong> MRI in the<br />
Management <strong>of</strong> MS<br />
TRACK THREE<br />
Moderator: Jodie Haselkorn, MD, MPH<br />
(1332) Diagnosis, Incidence, and<br />
Treatment <strong>of</strong> Dysphagia after Spinal<br />
Cord Injury<br />
and Treatment following Spinal Cord Jack Simon, MD, PhD<br />
Stephanie Kolakowsky-Hayner, PhD, Christopher Bever, MD<br />
Lawrence Vogel, MD<br />
CBIST<br />
Benjamin Brownell, DPM<br />
(1330) Patient and Provider Perspectives<br />
<strong>of</strong> Self-Management <strong>of</strong> Ulcers in SCI/D<br />
Marylou Guihan, PhD Dawn Ehde, PhD<br />
Kazuko Shem, MD<br />
Kathleen Castillo, MA, CCC-SLP, BRS-S<br />
Heidi Maloni, PhD, ANP-BC<br />
TRACK FOUR<br />
Moderator: Paul Gutierrez, MD, MS<br />
(1333) Rehabilitation Interdisciplinary Team<br />
Case Exploration: A Collaborative Discussion<br />
about Individuals Living with SCI and MS<br />
Walter Chua, MD<br />
Jeri Muse, PhD,<br />
DAAPM Michael Richardson, MD, FACP<br />
Maureen Simonson, RN, MSN Linda Mona, PhD<br />
2
<strong>Paralyzed</strong> <strong>Veterans</strong> <strong>of</strong> <strong>America</strong> Summit 2013: Delivering Excellence Achieving State-<strong>of</strong>-the-Art Healthcare<br />
(Day Two continued)<br />
5:00 pm-6:00pm<br />
Interactive Poster Sessions<br />
TIME DAY THREE - THURSDAY AUGUST 29, 2013<br />
7:00 am-7:30 am CONTINENTAL BREAKFAST<br />
7:30 am –7:45 am OPENING REMARKS<br />
Paul Gutierrez, MD , MS; Summit 2013 Program Committee Chairman<br />
7:45 am – 8:30 am PLENARY SESSION<br />
Jeffery Kocsis, PhD<br />
8:30 am–10:00 am (1334) WHITAKER LECTURE<br />
How Far Can Epidemiology Take Us in Finding the cause <strong>of</strong> Multiple Sclerosis?<br />
John Kurtzke, MD<br />
Moderator: Christopher Bever, MD, MBA<br />
10:00 am –10:30 am C<strong>of</strong>fee Break, EXPO & e-Poster Viewing C<strong>of</strong>fee Break, EXPO & e-Poster Viewing<br />
10:30 am – Noon TRACK ONE<br />
Moderator: Jeri Muse, PhD, DAAPM<br />
(1335) Bringing Telehealth to Life in an<br />
SCI Center<br />
Colleen Berding, MS, RN-BC, CRRN, MSCN<br />
(1336) FacingDisability.com: A State-<strong>of</strong>-the-Art<br />
Intervention for Spinal Cord Injury Education<br />
and Support in an Online World<br />
Sara J. Klaas, MSW, C-ASWCM<br />
Thea Flaum, President, Hill Foundation<br />
TRACK TWO<br />
Moderator: John Rose, MD<br />
(1337) Clinical Features and Treatment<br />
Outcomes in MS: An Update from<br />
Contemporary Cohorts<br />
Mitchell Wallin, MD, MPH<br />
Albert Lo, MD, PhD<br />
William J. Culpepper, PhD<br />
TRACK THREE<br />
Moderator: Mark Lichter, AIA<br />
(1338) The Do’s and Don’ts: Airline<br />
Travel for Individuals Using<br />
Wheelchairs<br />
Steve Klemz, MS, MSW, LCSW<br />
Kathryn Wellman, MA, CRC<br />
TRACK FOUR<br />
Moderator: Stephen Yerkovich, MD<br />
(1339) Nerve Transfer Surgery to Improve Hand<br />
Function in Cervical Spinal Cord Injury:<br />
Multidisciplinary Evaluation and Management<br />
Ida Fox, MD<br />
Lorna Kahn, CHT, PT<br />
(1340) Update on Therapies to Improve Mobility<br />
for MS and SCI<br />
Albert Lo, MD, PhD<br />
NOON Lunch Break, EXPO & e-Poster Viewing Lunch Break, EXPO & e-Poster Viewing<br />
1:30 pm – 3:00 pm TRACK ONE<br />
TRACK TWO<br />
TRACK THREE<br />
TRACK FOUR<br />
Moderator: Jennifer French, Executive Director,<br />
Neurotech Network<br />
(1341) Restoring Function for Spinal Cord Injury<br />
and Stroke Populations Using Functional<br />
Electrical Stimulation<br />
Dustin Hardwick, PhD<br />
Mary Harley, OT/L<br />
Moderator: Mary Fitzpatrick, BSN, MPH,<br />
ANP<br />
(1342) Multiple Sclerosis and Sexual<br />
Health<br />
Florian Thomas, MD, MA, PhD<br />
Moderator: Hayley Howells, MPT<br />
(1343) Outpatient Care Management<br />
<strong>of</strong> <strong>Veterans</strong> with ALS<br />
Patricia Beat Reisinger, MS, CRRN,<br />
FNP,GNP<br />
Brigitte Lee, MSW, LCSW<br />
Moderator: Christopher Bever, MD, MBA<br />
(1344) Telemedicine in the Management <strong>of</strong><br />
Patients with Spinal Cord Injury<br />
Robert Ruff, MD, PhD<br />
Glenn Graham, MD, PhD<br />
Jodie Haselkorn, MD, MPH<br />
3:00 pm C<strong>of</strong>fee Break, EXPO & e-Poster Viewing C<strong>of</strong>fee Break, EXPO & e-Poster Viewing<br />
3:30pm– 5:00 pm TRACK ONE<br />
Moderator: Penny Graves, RN, MSN, CCM, CRRN<br />
(1345) Psychology and Surgery Joining Hands<br />
for Comprehensive Treatment <strong>of</strong> Individuals<br />
with Spinal Cord Injury<br />
Benjamin Brownell, PhD, DPM<br />
Walter Chua, MD<br />
Linda Mona, PhD<br />
Elisha Carcieri, MS<br />
Sarah Fraley, PhD<br />
TRACK TWO<br />
Moderator: Ms. Pamela Miller<br />
(1346)<br />
Cognitive Issues in Multiple Sclerosis<br />
Robert Kane, PhD<br />
John DeLuca, PhD<br />
TRACK THREE<br />
Moderator: Maureen Simonson, RN,<br />
MSN<br />
(1347) Nursing Best Practices: A Case<br />
Study Approach to Nursing Care <strong>of</strong> the<br />
SCI, MS , and ALS Patient<br />
Heidi Maloni, PhD, ANP-BC<br />
Lori H<strong>of</strong>fman, NP, MSCN<br />
TRACK FOUR<br />
Moderator: Jodie Haselkorn, MD, MPH<br />
(1348) Driving and Multiple Sclerosis<br />
Florian Thomas, MD, MA, PhD<br />
Patricia Niewoehner, OTR/L, CDRS<br />
3