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Network News - Winter/Spring 2010 - Canadian Breast Cancer ...

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e part of a remarkable Board of<br />

Directors, with passionate, hardworking<br />

Board members and<br />

staff.<br />

I know that my time with<br />

CBCN will be very exciting.<br />

This year, our work will include<br />

the possibility of organizing a<br />

second National Conference<br />

for Young Women Living with<br />

<strong>Breast</strong> <strong>Cancer</strong>, provided that we<br />

can raise sufficient funds. We<br />

will also continue to respond<br />

to critical issues such as the<br />

new recommendations from<br />

the United States Preventive<br />

Services Task Force (USPSTF),<br />

which advise against the use<br />

of mammography screening<br />

before age 50. The USPSTF<br />

also recommends against the<br />

practice of breast self-examination<br />

(BSE) as a screening tool for women of<br />

any age. CBCN disagrees with these<br />

recommendations from the USPSTF.<br />

We strongly support mammography<br />

screening in Canada, starting from<br />

age 40, and we urge women to<br />

continue practicing BSE as a way of<br />

familiarizing yourself with monthly<br />

changes in your breasts and to seek<br />

medical attention if you discover<br />

something that feels unusual. Women<br />

have been practicing BSE for years.<br />

I myself began performing BSE soon<br />

after my dear friend passed away in<br />

1982. These recommendations have<br />

caused quite a bit of controversy and<br />

will likely continue to be doubted<br />

and disputed by several medical and<br />

survivor-based communities.<br />

This edition of <strong>Network</strong> <strong>News</strong> revolves<br />

around the familial breast cancer<br />

susceptibility or BRCA genes. I learned<br />

Jackie Manthorne and incoming President Cathy Ammendolea present plaque of appreciation to past President Diana Ermel<br />

a great deal about BRCA genes over<br />

the past few years. I support the<br />

Hereditary <strong>Breast</strong> & Ovarian <strong>Cancer</strong><br />

Foundation (HBOC Foundation) in<br />

my home city of Montreal. HBOC<br />

Foundation states that, “In some<br />

populations, as many as 1 in 40 women<br />

has certain alterations in their basic<br />

genetic code, commonly referred to<br />

as BRCA mutations. In the absence of<br />

risk reducing strategies, these women<br />

have as high as a 90 percent life time<br />

risk of developing breast cancer, and a<br />

40 percent life time risk of developing<br />

ovarian cancer. BRCA mutations are<br />

inherited, so this change in the genetic<br />

code may be passed from parents to<br />

children, putting future generations at<br />

risk.”<br />

Years have gone by since Vi<br />

introduced herself to me. A disease<br />

that was often concealed in the past is<br />

now being discussed more openly. I<br />

often wonder how much the lady with<br />

the bright smile and warm manner<br />

would appreciate the hard work of<br />

such a large number of individuals<br />

and organizations, dedicated to the<br />

concerns of all <strong>Canadian</strong>s affected by<br />

breast cancer and for those at risk as<br />

well.<br />

This is to Vi for making a difference in<br />

my life. •<br />

Cathy Ammendolea is a 10-year breast<br />

cancer survivor who has been involved<br />

with several breast cancer organizations<br />

in addition to the <strong>Canadian</strong> <strong>Breast</strong><br />

<strong>Cancer</strong> <strong>Network</strong>. She has been a volunteer<br />

for nine years for a local hospital<br />

in Montreal, working as a patient<br />

navigator and psychosocial volunteer<br />

with the Gynecological Oncology team<br />

at the Segal <strong>Cancer</strong> Centre at the Jewish<br />

General Hospital. She is also a patient<br />

representative on the McGill University<br />

Integrated Health <strong>Network</strong> (RUIS).<br />

<strong>Network</strong> <strong>News</strong> <strong>Winter</strong>/<strong>Spring</strong> <strong>2010</strong> 3

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