DOS BULLETIN - Dansk Ortopædisk Selskab

2010-378_DOS nr. 3 2010 29/09/10 10:08 Side 105
Validation of a Danish translation of the measure
"Pediatric Quality of Life Inventory 3.0 Cerebral Palsy
Module (PedsQL 3.0 CP Module)" to assess the
quality of life in children with cerebral palsy (CP)
Camilla Mersø, Michelle Stahlhut, Derek Curtis,
Karen Taudorf, Christian Wong
Ortopaedic Department, Hvidovre Hospital; Child Terapy, Gentofte
Municipality; Gait Laboratory, Hvidovre Hospital;
Pediatric Department, Hvidovre Hospital
Background: Health-related quality of life is a measurement of the individual's
own perception of their physical health, mental and social function and emotional
state.This can be measured quantitatively by self-reporting questionnaire,and
these exist in English.
Purpose: PedsQL 3.0 CP Module is an english questionnaire assessing the
quality of life in children with CP.We aimed to translate this questionnaire to
Danish.
Methods: The english questionnaire is designed to assess the quality of life in
children and adolescents with CP.There exists a validated stepwise process,
when translating the questionnaires to a foreign language.This process involves
several steps, including forward translation to danish and then backwards translation
to english.The translation was then tested on target groups of 14 CP children
and 19 of their parents.Their feedback on the danish translation was incorporated
into a final danish version.
Findings: Questionnaires of self-reporting have been translated for the age
groups 5 to7, 8 to 12 and 13 to 18 years for CP children.Furthermore, questionnaires
for parents with CP children were also translated for the above mentioned
three age groups and for the age group 2 to 4 years,where self-reporting
would be difficult to obtain accurately. All of these translations into danish were
validated by the incremental process.The translations were subsequently
approved by the MAPI Research Institute Trust, and will be available as a danish
local terms translation in the near future.
Conclusion: PedsQL 3.0 CP Module is a practical and easily applicable clinical
tool measuring self-reporting on quality of life in CP children. It is possible
to use the questionnaires for assessing the quality of life of CP children in clinical
trials, with new treatments or to detect changes in a child's clinical status.
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